Articles

There is usually a time in life when having CF feels embarrassing. It may be when you cough in public like you smoke a couple packs a day or perhaps...

My experience in receiving the first dosage of the COVID-19 vaccine was amazingly simple. When my state opened the vaccination appointments to include those with certain pre-existing conditions including cystic...

As someone in the cystic fibrosis community, you have probably heard about Five Feet Apart. Five Feet Apart is a book-turned-Blockbuster film that details and stories of Stella and Will...

With spring within reach, it’s time to break out the gardening gloves, shovel and lawn mower and get messy! Gardening is one of my favorite hobbies that helps keep me...

Have you or a family member been newly diagnosed with cystic fibrosis-related diabetes (CFRD)? If so, you are probably feeling an array of emotions after the fact. It can be...

Digital therapeutics (DTx) first entered clinical discussions in the 1990s. The idea was that technology could improve healthcare access. It could help overcome barriers of location, time, and resources. This...

If you have cystic fibrosis (CF) or if CF runs in your family, your doctor might suggest genetic testing. People get genetic testing for a variety of reasons. You do...

In the first part of this article series, we highlighted what causes iron deficiency in people with cystic fibrosis, and the various iron supplements available. This section will outline how...

Coughing up blood is scary and alarming. You could find yourself worried because it is not something that should be happening. In my case, I cough up blood every other...

Let's play a game! What would you add to complete this sentence: “You know you have CF when... ?” There are so many funny and painfully true answers to this...

NO PURCHASE NECESSARY TO ENTER OR WIN. A PURCHASE DOES NOT INCREASE YOUR CHANCES OF WINNING. VOID WHERE PROHIBITED. The $25 Amazon Gift Card Giveaway (the “Promotion”) begins at 9...

May is cystic fibrosis (CF) awareness month! Throughout May, we will be sharing simple ways to get involved with advocacy and awareness efforts for CF such as volunteering with a...

Some of the most stressful times in my life have been when my toddler - in desperate need of a nap - accompanied me to a few hours long CF...

The average life expectancy of someone with cystic fibrosis when I was born was 31 years old. Although I haven’t reached it, in a way, I have beaten the odds...

Six months ago, I started the miracle drug, Trikafta. Six weeks ago, I stopped it. Why? Side effects. They say the definition of madness is doing the same thing over...

A quick month flew by before it was time to receive my second COVID vaccination. (Well, I guess as quick as a month can go while in isolation in your...

When I first had my daughter, one of the things that truly made me feel energized was connecting with other new moms. I met a group of women in our...

As a result of Trikafta, there’s been a huge baby boom in the CF community among women. As much as I am happy for those women, I am sad for...

There’s a lot of health information available on the internet these days. From personal blogs to online magazines to government websites and beyond, advice about your health is at every...

Living with cystic fibrosis (CF) may make it harder to earn a living. Shortness of breath, the need for rest breaks, and sudden hospital stays are common complications that interfere...