The Progression of CF through the YearsThe average life expectancy of someone with cystic fibrosis when I was born was 31 years old. Although I haven’t reached it, in a way, I have beaten the odds... By Ella Balasa3 min readBookmark for laterReactions 0 reactions Comments1 comments
Trikafta: The Miracle Drug That May Not Be a MiracleSix months ago, I started the miracle drug, Trikafta. Six weeks ago, I stopped it. Why? Side effects. They say the definition of madness is doing the same thing over... By Emma Boniface3 min readBookmark for laterReactions 0 reactions Comments6 comments
The Second COVID Vaccine Wasn’t Easy But It Was Worth ItA quick month flew by before it was time to receive my second COVID vaccination. (Well, I guess as quick as a month can go while in isolation in your... By Janeil Whitworth3 min readBookmark for laterReactions 0 reactions Comments0 comments
Making Connections in the CF CommunityWhen I first had my daughter, one of the things that truly made me feel energized was connecting with other new moms. I met a group of women in our... By Meagan Brackeen3 min readBookmark for laterReactions 0 reactions Comments4 comments
Pursuing IVF Treatment for Our InfertilityAs a result of Trikafta, there’s been a huge baby boom in the CF community among women. As much as I am happy for those women, I am sad for... By Janeil Whitworth3 min readBookmark for laterReactions 0 reactions Comments0 comments
Finding Credible Health InformationThere’s a lot of health information available on the internet these days. From personal blogs to online magazines to government websites and beyond, advice about your health is at every... By BridgetGawinowicz2 min readBookmark for laterReactions 0 reactions Comments1 comments
Is Cystic Fibrosis a Disability?Living with cystic fibrosis (CF) may make it harder to earn a living. Shortness of breath, the need for rest breaks, and sudden hospital stays are common complications that interfere... By Editorial Team 3 min readBookmark for laterReactions 0 reactions Comments0 comments
Receiving My First Dose of the COVID-19 Vaccine with CFEvery Thursday, I tried to tune into Ohio’s Governor, Mike Dewine's press conference to the public about COVID-19 updates. Mostly, I was looking for hope of when I could expect... By Janeil Whitworth3 min readBookmark for laterReactions 0 reactions Comments1 comments
All About My Partner's CF Carrier TestingCF genetic testing is an important step in both the diagnosis of CF as well as determining if someone carries the CF gene without actually having the disease. Many parents-to-be... By Janeil Whitworth3 min readBookmark for laterReactions 0 reactions Comments0 comments
Out of NowhereI think you would probably agree with me when I say that being a caregiver to someone with CF is really just going through the motions. There is not much... By Misty Roussa3 min readBookmark for laterReactions 0 reactions Comments1 comments
Five Favorite Pandemic Self-Care Activities for CFHow have you de-stressed this past year? The pandemic, political divide, disruption of routine doctor's visits, and isolation from friends and family has really highlighted the care my mental health... By Janeil Whitworth3 min readBookmark for laterReactions 0 reactions Comments0 comments
Why Are My Hands So Wrinkly?Everyone has experienced hand and feet wrinkling at some point in their life. When we are young, we quickly learn that if we submerge our hands and feet in water... By Canadian Pharmacist2 min readBookmark for laterReactions 0 reactions Comments6 comments
Community Views: What People With Cystic Fibrosis Do Not Talk AboutSo much of the pain of cystic fibrosis is invisible. The diagnosis itself is not one that outsiders can visibly see, so conversations about cystic fibrosis are not often common... By Editorial Team 3 min readBookmark for laterReactions 0 reactions Comments0 comments
Trying to Conceive with CF: My IUI ExperienceAfter our fertility testing was complete, we met with a Reproductive Endocrinologist to discuss the treatment plan and various success rates. I was a bit nervous as there are so... By Janeil Whitworth3 min readBookmark for laterReactions 0 reactions Comments0 comments
Fibrosing Colonopathy in Cystic FibrosisCystic fibrosis (CF) can cause different complications in the body that may be mild to severe. They can also vary from person to person. Some of these complications affect the... By Editorial Team 2 min readBookmark for laterReactions 0 reactions Comments0 comments
My WalkerIt all started a few years ago when I started having joint pains. It was as random as can be and I was very taken back by it. The pain... By Marieliz Landa2 min readBookmark for laterReactions 0 reactions Comments0 comments
Adjusting to ChangesIf you’re on medication, then you’ll recognize this feeling. You meet with your doctor and they suggest taking a new prescription or over-the-counter medicine, for either an issue that is... By Katelyn Harlow4 min readBookmark for laterReactions 0 reactions Comments2 comments
Four Lifestyle Changes That Improved My CFHow many times have you heard the following advice: you should drink more water, eat lots of fruits and vegetables, and make sure to exercise? A bunch, right! Why? Because... By Janeil Whitworth3 min readBookmark for laterReactions 0 reactions Comments0 comments
Iron Supplementation in CF - Part 1Anemia, or iron deficiency, is one of the most common nutritional deficiencies in the world. Furthermore, people with cystic fibrosis (CF) are at an increased risk of developing anemia: 10%... By Canadian Pharmacist2 min readBookmark for laterReactions 0 reactions Comments0 comments
Preparing My Advance Directive at 28I'm sitting in an exam room and the nurse asks me, "Do you happen to have an advance directive or power of attorney?" Suddenly, a wave of nerves comes over... By Janeil Whitworth3 min readBookmark for laterReactions 0 reactions Comments0 comments