Articles

If you have cystic fibrosis (CF) or if CF runs in your family, your doctor might suggest genetic testing. People get genetic testing for a variety of reasons. You do...

In the first part of this article series, we highlighted what causes iron deficiency in people with cystic fibrosis, and the various iron supplements available. This section will outline how...

Coughing up blood is scary and alarming. You could find yourself worried because it is not something that should be happening. In my case, I cough up blood every other...

Let's play a game! What would you add to complete this sentence: “You know you have CF when... ?” There are so many funny and painfully true answers to this...

NO PURCHASE NECESSARY TO ENTER OR WIN. A PURCHASE DOES NOT INCREASE YOUR CHANCES OF WINNING. VOID WHERE PROHIBITED. The $25 Amazon Gift Card Giveaway (the “Promotion”) begins at 9...

May is cystic fibrosis (CF) awareness month! Throughout May, we will be sharing simple ways to get involved with advocacy and awareness efforts for CF such as volunteering with a...

Some of the most stressful times in my life have been when my toddler - in desperate need of a nap - accompanied me to a few hours long CF...

The average life expectancy of someone with cystic fibrosis when I was born was 31 years old. Although I haven’t reached it, in a way, I have beaten the odds...

Six months ago, I started the miracle drug, Trikafta. Six weeks ago, I stopped it. Why? Side effects. They say the definition of madness is doing the same thing over...

A quick month flew by before it was time to receive my second COVID vaccination. (Well, I guess as quick as a month can go while in isolation in your...

When I first had my daughter, one of the things that truly made me feel energized was connecting with other new moms. I met a group of women in our...

As a result of Trikafta, there’s been a huge baby boom in the CF community among women. As much as I am happy for those women, I am sad for...

There’s a lot of health information available on the internet these days. From personal blogs to online magazines to government websites and beyond, advice about your health is at every...

Living with cystic fibrosis (CF) may make it harder to earn a living. Shortness of breath, the need for rest breaks, and sudden hospital stays are common complications that interfere...

Every Thursday, I tried to tune into Ohio’s Governor, Mike Dewine's press conference to the public about COVID-19 updates. Mostly, I was looking for hope of when I could expect...

CF genetic testing is an important step in both the diagnosis of CF as well as determining if someone carries the CF gene without actually having the disease. Many parents-to-be...

I think you would probably agree with me when I say that being a caregiver to someone with CF is really just going through the motions. There is not much...

How have you de-stressed this past year? The pandemic, political divide, disruption of routine doctor's visits, and isolation from friends and family has really highlighted the care my mental health...

Everyone has experienced hand and feet wrinkling at some point in their life. When we are young, we quickly learn that if we submerge our hands and feet in water...

So much of the pain of cystic fibrosis is invisible. The diagnosis itself is not one that outsiders can visibly see, so conversations about cystic fibrosis are not often common...