Post Trikafta Flare-UpsReceiving the gift of Trikafta didn’t feel like a cure, it felt more along the lines of a promise. It felt like it promised me a life back that I...reactionscomments
A Happy Ending: My IVF JourneyIn late March 2020, I discovered two pieces of bad news. The initial transfer did not result in a pregnancy. I felt extremely disappointed and frustrated. There was so much happening...reactionscomments
Not Enough Hours in the DayMornings are usually the most hectic time in our household. On top of getting ourselves up and ready for work, we also help the girls get dressed, fed, washed up...reactionscomments
Staphylococcus Aureus and Decreased Lung Function in Cystic FibrosisCystic fibrosis (CF) is caused by a defective protein. This protein affects how salt and water move in and out of cells. This leads to thickened mucus throughout the body...reactionscomments
I Forgot My Treatments and I Am OKSome things always go together, like cystic fibrosis (CF) and airway clearance. It’s no surprise that airway clearance is an important part of CF maintenance. For decades, most people with...reactionscomments
Best Friends With CFAs a CF patient, one of the most heartbreaking realities is you must stay at least six feet apart from other CFers. I am willing to bet that 85% of us...reactions2comments
Date Nights with Cystic FibrosisWhat did you do for Valentine's day? I feel like there are three groups of people when it comes to Valentine’s Day. Group one loves Valentine's Day. While group two thinks...reactionscomments
The Many Colors of Cystic Fibrosis: Grey (Part 2)In my previous article, I explained why grey is an essential color in my journey with cystic fibrosis (CF). Back to the color grey. The grey awareness ribbon represents a...reactionscomments
Chores That Wreak Havoc on My CF (Thank you, Husband!)Today, I want to talk to you about a few chores my husband does for me in light of having cystic fibrosis (CF). You might say that my husband and...reactionscomments
Almost to the End: An IVF JourneyHere we are! We’ve arrived at the final stages of my IVF journey. As mentioned in my previous articles outlining our experience, the main reason we were doing IVF was...reactionscomments
A Lid for Every Pot: Dating with Cystic FibrosisNavigating the dating scene is hard. It was hard when our parents dated and when their parents dated. And it is still hard today. Now add in cystic fibrosis (CF)?...reactions2comments
What Having A CF Flare Up Looks LikeSince modulators broke onto the scene for the cystic fibrosis (CF) community a few years back, having a flare up can sometimes seem a thing of the past. Which means...reactionscomments
The Many Colors of Cystic Fibrosis: Grey (Part 1)My journey with cystic fibrosis (CF) has been very colorful. I’ve had to expel and capture my green, sticky mucus. I walked alongside the CF community at the Great Strides...reactionscomments
Did You See This NACFC Talk? Part 2The range of topics and novel presentations at the 2022 North American Cystic Fibrosis Conference (NACFC) in Philadelphia, PA was impressive. I’m sure it was exciting for the in-person attendants...reactionscomments
Coping With the Weight of CFSaying cystic fibrosis (CF) has its obstacles is an understatement. As if the lung infections, gastrointestinal issues, diabetes, and all the other countless issues with our body were not enough...reactionscomments
Did You See This NACFC Talk? Part 1I look forward to the North American Cystic Fibrosis Conference (NACFC) every year. So much so that this year I devoted a previous article to the topics I hoped would...reactionscomments
Birthdays Through the Lense of Cystic FibrosisIn light of my birthday in January, I’ve been thinking a lot about getting older. Living with cystic fibrosis (CF) has definitely affected my feelings about aging, and not always...reactionscomments
Life Challenges and CF ComplicationsI’ve been in what one would call a funk for the past few months. It began with going from being at my peak physical health to getting a pretty tough...reactionscomments
Please Stop Asking CF Women If They Will Have More KidsAuthor’s note: The title of this article should really read, “Please Stop Asking Women if They Want More Kids”. This subject is touchy whether or not you have CF. In...reactionscomments
Challenges of Living in a Rural CommunityToday I wanted to talk to you about something that is a personal obstacle for me when it comes to my healthcare: distance. I live in a very rural community...reactions7comments
