CF Snacks My Five Year Old LovesI have yet to meet a parent whose child has a perfectly balanced and healthy diet 24/7. Sure, we would love that...reactionscomments
My CF Exacerbation Complication: AtelectasisLiving with CF, I know pain–all kinds of different types, locations, and degrees of pain. Pain from lung infections and coughing, abdominal...reactionscomments
My 25-Year Anniversary of CF DiagnosisThe 25th anniversary of my diagnosis. It crept up on me without my noticing. I was on a meeting a week or...reactionscomments
Painsomnia: The Unspoken CF SymptomPainsomnia became more of an issue for me in my twenties when I felt it was a symptom often overlooked by CF...reactionscomments
Getting Triggered By CF Medical TraumaI had cystic fibrosis (CF) exacerbations every other month for many years. The routine was pretty much the same. My doctors would...reactionscomments
What to Say When Your Friend's Child is Diagnosed with CFFive years ago, when my daughter Caroline was two weeks old, she was diagnosed with cystic fibrosis (CF). Initially, we kept her...reactionscomments
Post Trikafta Flare-UpsReceiving the gift of Trikafta didn’t feel like a cure, it felt more along the lines of a promise. It felt like...reactionscomments
A Happy Ending: My IVF JourneyIn late March 2020, I discovered two pieces of bad news. The initial transfer did not result in a pregnancy. I felt extremely...reactionscomments
Not Enough Hours in the DayMornings are usually the most hectic time in our household. On top of getting ourselves up and ready for work, we also...reactionscomments
Staphylococcus Aureus and Decreased Lung Function in Cystic FibrosisCystic fibrosis (CF) is caused by a defective protein. This protein affects how salt and water move in and out of cells...reactionscomments
I Forgot My Treatments and I Am OKSome things always go together, like cystic fibrosis (CF) and airway clearance. It’s no surprise that airway clearance is an important part...reactionscomments
Best Friends With CFAs a CF patient, one of the most heartbreaking realities is you must stay at least six feet apart from other CFers. I...reactions2comments
Date Nights with Cystic FibrosisWhat did you do for Valentine's day? I feel like there are three groups of people when it comes to Valentine’s Day...reactionscomments
The Many Colors of Cystic Fibrosis: Grey (Part 2)In my previous article, I explained why grey is an essential color in my journey with cystic fibrosis (CF). Back to the...reactionscomments
Chores That Wreak Havoc on My CF (Thank you, Husband!)Today, I want to talk to you about a few chores my husband does for me in light of having cystic fibrosis...reactionscomments
Almost to the End: An IVF JourneyHere we are! We’ve arrived at the final stages of my IVF journey. As mentioned in my previous articles outlining our experience...reactionscomments
A Lid for Every Pot: Dating with Cystic FibrosisNavigating the dating scene is hard. It was hard when our parents dated and when their parents dated. And it is still...reactions2comments
What Having A CF Flare Up Looks LikeSince modulators broke onto the scene for the cystic fibrosis (CF) community a few years back, having a flare up can sometimes...reactionscomments
The Many Colors of Cystic Fibrosis: Grey (Part 1)My journey with cystic fibrosis (CF) has been very colorful. I’ve had to expel and capture my green, sticky mucus. I walked...reactionscomments
Did You See This NACFC Talk? Part 2The range of topics and novel presentations at the 2022 North American Cystic Fibrosis Conference (NACFC) in Philadelphia, PA was impressive. I’m...reactionscomments
