The Clinical Trial Consent Form: Understanding Your Rights & ResponsibilitiesInformed consent is the term that signifies a person has been given information regarding all possible consequences for a treatment, including both...reactionscomments
10 Things You Should Know About Clinical TrialsThousands of clinical trials occur each year. Learning about clinical trials can feel like you are learning a new language. The good...reactionscomments
Clinical Trials as a Treatment OptionWhen you’re dealing with a major health issue or condition, it’s helpful to know that in addition to standard treatment, complementary or...reactionscomments
5 Helpful Tips for CaregiversReceiving a cystic fibrosis diagnosis can be a life-altering experience, not only for the person with the diagnosis, but also for the...reactionscomments
Parenting While Managing A Chronic IllnessWhether or not you have a child, most people would agree that parenting is hard. Although there is no right or wrong...reactions2comments
Cystic Fibrosis Unsolicited AdviceLiving with CF can be challenging, and it certainly is not made any easier by all the unsolicited advice dished up by...reactions2comments
Growing Into The Patient I Never Thought I Would BeChronic illness requires a lot from a person. In CF, it takes a lot away from a person at a young, fragile...reactionscomments
Dietary Concerns and the Non-CF SiblingIn our home, we are a home divided. We have fruit and vegetables and waffles and snack cakes. Anything my son wants...reactions1comment
Mask Giveaway Terms and ConditionsOfficial Rules, Terms and Conditions for 65 Roses Mask Giveaway NO PURCHASE NECESSARY TO ENTER OR WIN. A PURCHASE DOES NOT INCREASE...reactionscomments
A Day In The Life: Pre-Teen Caregiver EditionWhen our son was first diagnosed with CF, what began as a new parent schedule shifted gears to a caregiver schedule. Everything...reactionscomments
It's The Most Stressful Time Of The Year: Open EnrollmentThe end of the year is always a stressful time in our household--and not because of reasons you might assume. It’s not...reactionscomments
Take the Connected Health Survey!The Connected Health Survey is now closed. Thank you for your interest!In the digital age, there are so many devices, websites, and...reactionscomments
Community Views: How Does Being a Caregiver Impact Your Life?Most of us know what a caregiver does, but not everyone fully understands what it is like to be a caregiver until...reactions1comment
Beyond Exhaustion: How Life Changes with FatigueFatigue: It’s not “just being tired”, and it’s an experience that individuals living with a chronic health condition know all too well...reactions2comments
Video: Tour of My Airway Clearance Treatment CartNo two people with CF are alike when it comes to symptoms, course of treatment, and outlook. Something we all have in...reactions1comment
Describing The Worst Days With Chronic PainIn September of 2019, Health Union (the parent company of Cystic-Fibrosis.com) partnered with the US Pain Foundation for our first ever Chronic...reactionscomments
Infographic: Pain Management Treatment and CareIn September of 2019, Health Union (the parent company of Cystic-Fibrosis.com) partnered with the US Pain Foundation for our first ever Chronic...reactionscomments
Living With CF: A Podcast Interview with Megan BarlowI recently spoke with Megan Barlow, one of the contributors here at Cystic-Fibrosis.com, who shared her experiences of life with CF and...reactionscomments
Tips for Overcoming DehydrationFor those of us with cystic fibrosis, our bodies put us through a lot every day because of those two mutated CFTR...reactionscomments
Nature's Impact on Our Physical & Mental HealthThere is growing evidence that spending time in nature can help people feel less depressed, anxious, or stressed. Maintaining our connection to...reactionscomments
