My Life with Cystic FibrosisMy name is Craig Konowal, and I was diagnosed with CF at birth. I was able to get an early diagnosis because I had an older sister who passed away...reactionscomments
PICC Lines and Ports for People With CFPeople with cystic fibrosis (CF) often need treatment with IV (intravenous) medications, most frequently antibiotics. Vascular access devices, including peripherally inserted central catheters (PICCs) and ports, permit ongoing access to...reactionscomments
Not Always a Placebo! Types of Clinical TrialsWhen many people think of clinical trials, they may think of testing a new experimental drug or taking a placebo pill. But, not all clinical trials involve treatment! Even among...reactionscomments
What Is Antibiotic Resistance and How Is It Harmful to People With CF?Antibiotics are vital medicines for many people. They are drugs that fight infections caused by bacteria, by either killing the bacteria or making it harder for the bacteria to multiply...reactionscomments
Sorting Out Hopes and DreamsRoughly 10 years ago, while at a CF Foundation event during the “My Dream” campaign, a writer for the Foundation asked me a basic but poignant question which, quite simply...reactionscomments
CF Friendships Are Worth the CostBrandon was my first close CF friend. We met decades ago during a hospital stay as teenagers, before the medical community understood the risks of cross-infection among CF patients. Brandon...reactionscomments
Part One: Growing Up in the HospitalI grew up being hospitalized 2-4 times a year. Typically, it was for a lung infection or gastrointestinal issue. Hospital stays lasted between 14-30 days normally, so it’s no wonder...reactions2comments
My Morning Routine - Investing in My Health & MyselfBeing a mother is a full-time job. Managing cystic fibrosis is a full-time job. Adding those two things together felt, at times, impossible. In the early days of motherhood, I...reactionscomments
Tips for Managing Pre-Clinic Day AnxietyI am writing this article now in the wake of having my clinic visit a few days ago. And, let me preface by saying I had a GOOD visit (which...reactionscomments
Work and Cystic Fibrosis“Sounds like someone has a case of the Mondays,” is a fairly well-known phrase, especially in the working world. It’s an acknowledgment of the fact that weekends are too short...reactionscomments
Tales From A Young Looking 29-Year-OldDue to not being diagnosed until I was 3 and the ensuing malnutrition that comes along with a lifetime of cystic fibrosis (and some “shorty” family genes), I stand at...reactions1comment
Can I Keep Working? When It's Time To Take A Step BackI’m a very motivated individual. I always ran for every board, committee, or leadership position I could. I starting working young. I had always wanted a career in real estate...reactionscomments
A Fall Preparation Guide: Entering the Season With an Attitude of GratitudeI’ll admit it. Fall has never been my favorite season. The falling leaves carry with them a very heavy weight for me. The end of summer typically means the end...reactions1comment
Using My Treatment Time for GoodSeventy-five minutes a day lost. That is how I felt about my treatment time for most of my life. Yes, I would catch up on my shows, or watch Netflix...reactionscomments
What It Means To Be A CarrierCystic fibrosis (CF) is a hereditary disease, which means individuals inherit genes that cause CF. CF causes changes in bodily secretions, particularly in the lungs and pancreas. By understanding the...reactions13comments
My Journey to Motherhood: A Mom with Cystic FibrosisAll my life I knew I’d be unable to have children biologically, but I never saw that as an obstacle to becoming a mother. I knew from a fairly young...reactionscomments
Part Two: Preparing for the HospitalIf only “hospital knowledge” could be used on my resume. I have cystic fibrosis and spent a lot of time growing up in the hospital. As a child, I’d spend...reactionscomments
What to Expect at a Chest CT ScanCystic fibrosis (CF) is typically diagnosed by a sweat test or with genetic testing, but once a diagnosis has been made, a chest CT scan (also commonly referred to as...reactionscomments
Travel and Cystic FibrosisTraveling with cystic fibrosis can be challenging at times. However, CF is manageable with the right preparation and precautions. Although it may seem like a lot more work to travel...reactionscomments
Navigating Weather With Cystic FibrosisJust as each individual’s journey with cystic fibrosis (CF) can vary, so can their response to different environmental factors. Some may enjoy certain seasons or weather, while others may find...reactions2comments