Articles

Being a mother is a full-time job. Managing cystic fibrosis is a full-time job. Adding those two things together felt, at times, impossible. In the early days of motherhood, I...

I am writing this article now in the wake of having my clinic visit a few days ago. And, let me preface by saying I had a GOOD visit (which...

“Sounds like someone has a case of the Mondays,” is a fairly well-known phrase, especially in the working world. It’s an acknowledgment of the fact that weekends are too short...

Due to not being diagnosed until I was 3 and the ensuing malnutrition that comes along with a lifetime of cystic fibrosis (and some “shorty” family genes), I stand at...

I’m a very motivated individual. I always ran for every board, committee, or leadership position I could. I starting working young. I had always wanted a career in real estate...

I’ll admit it. Fall has never been my favorite season. The falling leaves carry with them a very heavy weight for me. The end of summer typically means the end...

Seventy-five minutes a day lost. That is how I felt about my treatment time for most of my life. Yes, I would catch up on my shows, or watch Netflix...

Cystic fibrosis (CF) is a hereditary disease, which means individuals inherit genes that cause CF. CF causes changes in bodily secretions, particularly in the lungs and pancreas. By understanding the...

All my life I knew I’d be unable to have children biologically, but I never saw that as an obstacle to becoming a mother. I knew from a fairly young...

If only “hospital knowledge” could be used on my resume. I have cystic fibrosis and spent a lot of time growing up in the hospital. As a child, I’d spend...

Cystic fibrosis (CF) is typically diagnosed by a sweat test or with genetic testing, but once a diagnosis has been made, a chest CT scan (also commonly referred to as...

Traveling with cystic fibrosis can be challenging at times. However, CF is manageable with the right preparation and precautions. Although it may seem like a lot more work to travel...

Just as each individual’s journey with cystic fibrosis (CF) can vary, so can their response to different environmental factors. Some may enjoy certain seasons or weather, while others may find...

Every clinical trial is designed to look at a specific population, so each participant is required to have certain traits (eligibility criteria) in order to take part in the study...

In recent years, scientists have become increasingly interested in our microbiome and how it impacts many conditions, from gastrointestinal issues to neurological problems, and beyond. A growing body of research...

There are several terms that are commonly used when discussing clinical trials. Here are some that come up often:Adverse event: an undesirable experience associated with the use of a medical...

Sleep is a basic human need. We all need sleep, just as much as food and water, to stay healthy and fit. When we do not get enough sleep, or...

A clinical trial is a research study that is conducted to determine whether a specific medical intervention, such as a treatment, device, procedure, or change in behavior is safe and...