Articles

Even at the young age of two, I can sense my son is beginning to understand the role cystic fibrosis plays in our daily lives. He is undeniably soaking up...

Cystic fibrosis costs a lot, it adds up between the medication, hospitalizations, surgeries, and time off work. I know my family and I have experienced quite a lot of financial...

It’s been several weeks since the FDA announced the approval of Trikafta for use in 90% of cystic fibrosis patients. This news came as somewhat of a shock to me...

As we enter into the holiday season, and as I’ve gotten older, I’ve realized this time is more about giving than receiving. It brings me so much joy to see...

Clinical trials can provide an opportunity for patients to receive the latest treatment, provide a new treatment option for those whose previous treatment didn’t work, and allow patients to be...

Anyone affected by cystic fibrosis (CF) understands how challenging it can be. CF is a lifelong, genetic disease that affects 30,000 children and adults in the United States. While there...

Every year before winter hits, we like to enjoy the outdoors and go out with a BANG! My husband and I foster children, so depending on number, age, and interest...

Although not by design, music – singing, really – has played a big role in my relationship with my children. Singing or playing music for children to soothe and connect...

The Cystic Fibrosis Foundation estimates that more than 30,000 children and adults in the United States have cystic fibrosis (commonly referred to as CF). Whether you’ve been diagnosed with CF...

Cystic fibrosis (CF) is a disease caused by genetic mutations (changes) in a specific gene called the cystic fibrosis transmembrane conductor regulator (CFTR). When the CFTR proteins do not form...

Making decisions can be tough, especially when they relate to your health! One decision you may face is whether or not participating in a clinical trial is right for you...

I have always been active. Since I could remember, I’ve been involved in all different sports, by recommendation of my doctor from an early age. I wasn’t diagnosed with CF...

The Philips Innospire Go portable mesh nebulizer has opened up a whole new world for me when it comes to doing my treatments on the go. With the Monarch Vest...

My name is Craig Konowal, and I was diagnosed with CF at birth. I was able to get an early diagnosis because I had an older sister who passed away...

People with cystic fibrosis (CF) often need treatment with IV (intravenous) medications, most frequently antibiotics. Vascular access devices, including peripherally inserted central catheters (PICCs) and ports, permit ongoing access to...

When many people think of clinical trials, they may think of testing a new experimental drug or taking a placebo pill. But, not all clinical trials involve treatment! Even among...

Antibiotics are vital medicines for many people. They are drugs that fight infections caused by bacteria, by either killing the bacteria or making it harder for the bacteria to multiply...

Roughly 10 years ago, while at a CF Foundation event during the “My Dream” campaign, a writer for the Foundation asked me a basic but poignant question which, quite simply...

Brandon was my first close CF friend. We met decades ago during a hospital stay as teenagers, before the medical community understood the risks of cross-infection among CF patients. Brandon...

I grew up being hospitalized 2-4 times a year. Typically, it was for a lung infection or gastrointestinal issue. Hospital stays lasted between 14-30 days normally, so it’s no wonder...