CF Milestones: Celebrating Achievements and Managing ExpectationsIn addition to all the milestones one faces with their child, the treatment and management of cystic fibrosis includes pivotal moments for...reactions1comment
Kidney Stones and Cystic FibrosisAnyone who has had a kidney stone can tell you that it was one of the most painful events of their life...reactionscomments
Loving Your Care CenterOur first visit to our care center, like most parents of a child with cystic fibrosis, was not pleasant. I vaguely remember...reactions1comment
Wintery Butternut Squash SoupThis soup is absolutely PERFECT during the wintery/cold days. Add some delicious croutons, some crème fraiche, or top with some toasted pumpkin...reactionscomments
5 Things I Have Learned Living With Cystic FibrosisThe hardest thing about having CF is the invisibility. We look like the picture of health – like we should be full...reactionscomments
Myths & Facts About Living WillsA living will is known by several other names, including advanced directive, healthcare declaration, medical directive, and many more. There is often...reactionscomments
What I Want The Anti-Maskers To KnowImagine you could have a place in preventing a tragic incident from occurring. Think about how wonderful it could be if you...reactionscomments
Things Not To Say To Someone With CFIt seems that many people with CF know someone who hasn't learned the rule: “If you cannot say anything nice, do not...reactionscomments
How Technology Brings Both Convenience and Confusion: Results of the Connected Health SurveySometimes, it feels like we are surrounded by technology. Apps, devices, trackers, and gadgets are everywhere! In this digital age, though, everyone...reactionscomments
Ways To Infuse IV Antibiotics At HomeStarting IV antibiotics for a CF exacerbation can be a real bummer! It's not always easy to put your life on hold...reactionscomments
Workplace Accommodations and Navigating Disability IssuesDepending on the nature of a person's chronic condition and how it impacts their daily life, they may or may not want...reactions1comment
We Will Always Celebrate CF Awareness MonthHappy Cystic Fibrosis Awareness Month! It’s a special month for the CF community filled with advocacy and spotlighting our experiences. Although CF...reactionscomments
Glossary of Terms for Advance Care PlanningPerhaps you are thinking about situations where you may not be able to make decisions about your own healthcare. This might be...reactions1comment
What Is A Living Will?The word “will” can seem loaded when mentioned in casual conversation, and it might seem morbid to talk about or even unnecessary...reactionscomments
Looking For Answers To Chronic Pain: Part 1There’s a reason why when our bodies are experiencing pain we try to make it go away--ice, Tylenol, warm baths, hugs, and...reactionscomments
Peripheral Neuropathy In Cystic FibrosisBetter care and treatment for people living with cystic fibrosis (CF) means that people with CF have improved survival rates and live...reactions1comment
Clinical Trial TerminologyThere are several terms that are commonly used when discussing clinical trials. Here are some that come up often:Adverse event: an undesirable...reactionscomments
Not Always a Placebo! Types of Clinical TrialsWhen many people think of clinical trials, they may think of testing a new experimental drug or taking a placebo pill. But...reactionscomments
5 Questions to Ask Yourself Before Participating in a Clinical TrialMaking decisions can be tough, especially when they relate to your health! One decision you may face is whether or not participating...reactionscomments
Will I Need to Pay to Be in a Clinical Trial?Clinical trials can provide an opportunity for patients to receive the latest treatment, provide a new treatment option for those whose previous...reactionscomments
