Ten Ways to Support a Loved One With CFSupporting someone you love with cystic fibrosis is a great way to show how much you care and value their experience living...3 min read
Managing a Hospital Stay as a CF CaregiverCystic fibrosis, in most instances, requires frequent hospital stays for everything from a “tune-up” to a full-blown lung exacerbation and much more...4 min read
The CF Caregiver: An Honest Morning RoutineIt's just about impossible to keep a steady daily routine when you have a baby with cystic fibrosis (or a baby at...5 min read
A CF Diagnosis: From One Parent to AnotherGoing back to that Friday afternoon in August 2008 is still difficult for me to do. I was fatigued. I had an...3 min read
A Thank You To All the Moms With Adult CF ChildrenTo All the Moms with Adult CF Children: Present from the very beginning, this is a thank you to all the moms...3 min read
Musical Chest PT for CF, or How I Bond with My SonAlthough not by design, music – singing, really – has played a big role in my relationship with my children. Singing or...3 min read
An Interview With My CF Caregiver HusbandOn August 25th, 2017, I walked down the aisle at the top of a mountain to commit to a lifetime with my...4 min read
Video: Advice To Parents Of Newly Diagnosed Kids With CFIt is not easy to learn that your child has CF. Even though the CF community has come a long way in...1 min read
How to Encourage Your Child with CF to EatWith the holidays quickly approaching, I reminded of some of my favorite seasonal traditions: Making pie crust from my great grandmother’s recipe,...4 min read
