, how are you doing today? I'm glad you took the time to reach out, and I hope other community members will chime in to share their personal experiences. In the meantime, I wanted to share some articles that may be helpful. Please know you're not alone in this; our community is here to help as best as possible. Please keep us posted on how you're doing. Sending positive vibes your way. -Beth (Team Member)
https://cystic-fibrosis.com/living/rare-mutation-diagnosis-story
https://cystic-fibrosis.com/cftr-related-metabolic-syndrome