Will you take our In America survey and help others understand the true impact of cystic fibrosis?The In America survey is now closed. To better understand the patient experience and realities of living with cystic fibrosis, we are fielding our Cystic Fibrosis In America survey. By...Reactions 0 reactions Comments0 repliesAwareness
Cf chat groupsI wish there was a cf chat group where cf people can chat with each other and make cf friends if they wanted to. Especially since they aren't supposed to...Reactions 0 reactions Comments10 repliesAwarenessDepressionFriends & Family
Fill in the blank: ___________ is something that only someone with CF would understand. Share something that only those living with CF of caring for a loved one with CF would truly understand. Let's raise awareness by talking about topics that are uniquely related...Reactions 0 reactions Comments13 repliesAwareness
Help. Possible adult Cystic Fibrosis Hello?...Reactions 0 reactions Comments2 repliesAwarenessDiagnosisDiet & Nutrition
CF In the elderlyI am newly diagnosed at 69 years old. I’m angry and happy and so emotional. Anyone my age with CF?...Reactions 0 reactions Comments14 repliesAwareness
Texting buddies CF palsAnyone interested in staying connected and becoming friends over time sharing stories and just been a great support for one another and if and when give advice if ever needed...Reactions 0 reactions Comments2 repliesCopingDepressionAwareness
Will you take our In America survey and help others understand the true impact of CF?It is estimated that more than 30,000 children and adults in the United States have CF, which makes it a rare disease. Because of this, it is often a very...Reactions 0 reactions Comments0 repliesAwareness
Five Feet ApartWhile some people loved the movie Five Feet Apart, others were not as impressed. What did you think of this movie? Share your thoughts in the forum. ...Reactions 0 reactions Comments4 repliesAwareness
Your voice matters! Take our CF surveySpreading awareness drives hope and change. Bring awareness to this rare disease and share your truth through our survey today! Whether you are a patient or a caregiver, your daily...Reactions 0 reactions Comments0 repliesAwareness
Cystic Fibrosis and Covid vaccine -15 year oldHello, I am new to this forum and needed an outlet for my queries. I am the stepmother to a 15 year old boy with cystic fibrosis. His maternal mother...Reactions 0 reactions Comments6 repliesAwarenessCaregiving