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Cystic fibrosis adult onset?

Hi everyone 🙋🏻‍♀️just a quick introduction. I am 47 years old and live in the Netherlands.
I have severe intestinal complaints and therefore had a colonoscopy, in addition to active inflammation (Crohn’s) also is discovered I have “mucus plugs in my ileum crypts”. There shouldn’t be mucus plugs there. Together with my symptoms they now will test me genetically for CF.
I have pancreas insufficiency, chronic sinusitis, have a constant cold and that is nasty, a nasal polyp, slow intestinal motility, fatty stool, malabsorption, am constantly exhausted, cough if I lay down and am progressively short of breath with light exertion.
I also have neuropathy and a connective tissue disease that can explain my shortness of breath.

Does anyone have late onset CF and with what symptoms?

  1. Hi , I just wanted to check in to see how you've been feeling since you posted about these symptoms. Were you able to get tested for CF? I hope you're able to get the answers you're looking for and feel better soon.

    Here is a forum thread ( where a few of our community members are discussing their late-onset symptoms. I hope this helps. Sending lots of love your way! - Sarah, Team Member

    1. Hi Sarah, thank you for reaching out!
      My blood is being tested for CF. No result yet.
      If I have results I will post it here.

      1. Sounds good. I'll be thinking of you in the meantime. Hugs! - Sarah, Team Member

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