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Ivacaftor

Good evening. I am a 40 year old male with a mild form of c.f. I started Kaftrio 4 days ago. I have been told by my consultant I may not get the full advantage of kaftrio as I have been on KALYDECO ivcafor for 4 years now. Has anyone else been on just Ivacaftor before starting this new drug?

  1. Hello there,
    Congratulations on starting Trikafta! How exciting! I haven't heard that comparison but maybe he is referring to your specific mutations and how well they work with Trikafta. In my experience, Trikafta is MUCH more effective than Symdeko or Orkambi. Let us know how you feel on it! Warmly,
    Janeil (cystic-fibrosis.com Team Member)

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