Living

How have you de-stressed this past year? The pandemic, political divide, disruption of routine doctor's visits, and isolation from friends and family has really highlighted the care my mental health...

Everyone has experienced hand and feet wrinkling at some point in their life. When we are young, we quickly learn that if we submerge our hands and feet in water...

So much of the pain of cystic fibrosis is invisible. The diagnosis itself is not one that outsiders can visibly see, so conversations about cystic fibrosis are not often common...

After our fertility testing was complete, we met with a Reproductive Endocrinologist to discuss the treatment plan and various success rates. I was a bit nervous as there are so...

It all started a few years ago when I started having joint pains. It was as random as can be and I was very taken back by it. The pain...

If you’re on medication, then you’ll recognize this feeling. You meet with your doctor and they suggest taking a new prescription or over-the-counter medicine, for either an issue that is...

How many times have you heard the following advice: you should drink more water, eat lots of fruits and vegetables, and make sure to exercise? A bunch, right! Why? Because...

Anemia, or iron deficiency, is one of the most common nutritional deficiencies in the world. Furthermore, people with cystic fibrosis (CF) are at an increased risk of developing anemia: 10%...

I'm sitting in an exam room and the nurse asks me, "Do you happen to have an advance directive or power of attorney?" Suddenly, a wave of nerves comes over...

Being a parent is a tiring job, and often, life with a chronic illness often comes with fatigue. Both together can be a recipe for complete exhaustion and feelings of...

Nasal polyps are quite common in those of us with cystic fibrosis. It is not something I was even aware of because I had a late diagnosis. In my youth...

Living with CF can be wildly unique, silly, uncomfortable, and frankly, bizarre at times. Being in the CF community feels like a world of its own with its own language...

Having just completed a 2-week stint in hospital for a lung tune-up, I wanted to share what I wouldn’t leave home without when prepping for a long stay. There are...

Being diagnosed with diabetes on top of cystic fibrosis can often be a disappointing and hard transition to process. Unfortunately, it happens to a lot of people living with CF...

Parenting a child with cystic fibrosis is a big job, but it is not one you need to be overwhelmed by. The parents in our community have learned how to...

There has been a lot of talk about Trikafta over the past year. Many people have claimed that Trikafta has positively impacted their management of cystic fibrosis (CF). Our community...

Every time she coughed, a bit of anxiety would creep in my head. I began saying it aloud, “I think you have it, you should go get tested.” What if...

In the CF community, there’s an unusual pattern seen in the life expectancy between men and women with CF. Men with CF tend to live longer than women with CF...

It has been a particularly rough past year and now there is hope that can bring back some semblance of normalcy. The COVID-19 vaccine has come out and, with it...

Occasionally, people with cystic fibrosis (CF) can experience electrolyte imbalances. These electrolyte imbalances include hyponatremia, hypochloremia, hypokalemia, and metabolic alkalosis. Collectively, these are referred to as Pseudo-Bartter syndrome. The topic...