Nine Ways To Make CF Care Easier And More FunCystic fibrosis care is overwhelming, monotonous, and exhausting most of the time. Often taking care of myself feels like a vicious, neverending cycle of the same routine over and over... By Janeil Whitworth3 min readBookmark for laterReactions 0 reactions Comments0 comments
Incorporating High Calorie Supplements Into Your Diet While Minimizing SugarsStruggling with weight gain throughout my lifetime has required daily attention to making sure I am consuming enough calories just to maintain my weight. For many years, really ever since... By Ella Balasa2 min readBookmark for laterReactions 0 reactions Comments0 comments
Quick Guide To Applying For Disability With CFApplying for Social Security Disability can be a daunting and overwhelming process for adults living with cystic fibrosis (CF) who are unable to work because of their health status. If... By Janeil Whitworth3 min readBookmark for laterReactions 0 reactions Comments2 comments
Does Ethnicity Impact Access To CF Treatment?It is no surprise that disparities in health care access have been present since the establishment of a health system. While these disparities are recognized, many reports continue to highlight... By Canadian Pharmacist2 min readBookmark for laterReactions 0 reactions Comments0 comments
Myths & Facts About Living WillsA living will is known by several other names, including advanced directive, healthcare declaration, medical directive, and many more. There is often confusion about what these words mean and why... By Editorial Team 3 min readBookmark for laterReactions 0 reactions Comments0 comments
Understanding My Experiences with CFNot too long ago, during one of my regular face time calls with my mom, I was explaining to her how frustrated I was with the setbacks that living with... By Katelyn Harlow4 min readBookmark for laterReactions 0 reactions Comments0 comments
Intussusception Saved My Life: CF Diagnosis StoryAround two-thirds of people living with CF are diagnosed before the age of 2. However, that’s not how my CF diagnosis story plays out at all. My diagnosis story is... By Janeil Whitworth3 min readBookmark for laterReactions 0 reactions Comments0 comments
Things Not To Say To Someone With CFIt seems that many people with CF know someone who hasn't learned the rule: “If you cannot say anything nice, do not say anything at all.” Some people feel free... By Editorial Team 3 min readBookmark for laterReactions 0 reactions Comments0 comments
How Technology Brings Both Convenience and Confusion: Results of the Connected Health SurveySometimes, it feels like we are surrounded by technology. Apps, devices, trackers, and gadgets are everywhere! In this digital age, though, everyone has a different level of comfort using technology... By Editorial Team 3 min readBookmark for laterReactions 0 reactions Comments0 comments
Nine Lessons 2020 Taught Us About DisabilityThe year 2020 taught us a lot about ourselves and overcoming adversaries. After the onset of COVID-19, many non-disabled people were faced with unique challenges they have never experienced before... By Janeil Whitworth3 min readBookmark for laterReactions 0 reactions Comments0 comments
Home IVsHome infusions (IVs) are something most of us with cystic fibrosis are accustomed to. It’s one of the best ways to receive IVs without having to do an entire 2-week... By Marieliz Landa3 min readBookmark for laterReactions 0 reactions Comments3 comments
How Is CF Mucus Different From Non-CF Mucus?When people without cystic fibrosis (CF) think of CF, they likely focus on the hallmark characteristic of the condition: mucus. It is known that CF mucus is thick and sticky... By Canadian Pharmacist2 min readBookmark for laterReactions 0 reactions Comments0 comments
How To Build A Healthy Relationship With Your DoctorA good relationship with your doctor is essential when living with cystic fibrosis. CF patients often report feeling dismissed when talking to their doctors. On a recent social media Q&A... By Emma Boniface4 min readBookmark for laterReactions 0 reactions Comments0 comments
Cleaning And Disinfecting Your Home For Cystic FibrosisThere has been a lot of talk about cleaning, disinfecting, and overall best hygiene practices this past year. For those living with cystic fibrosis (CF), cleaning and disinfecting has been... By Canadian Pharmacist2 min readBookmark for laterReactions 0 reactions Comments2 comments
Six Minor Ways Trikafta Has Significantly Changed My LifeTrikafta has changed the lives of many individuals and families in the CF community since it’s release. A lot of people with CF are finally feeling better and living different... By Janeil Whitworth3 min readBookmark for laterReactions 0 reactions Comments0 comments
How Has CF Impacted Your Friendships?It's no secret that cystic fibrosis touches every area of our lives. Whether we are going to school, choosing colleges, entering the workforce, or building relationships, CF is there. When... By Editorial Team 3 min readBookmark for laterReactions 0 reactions Comments0 comments
Finding Answers To Chronic Pain: CF And Rheumatoid ArthritisIn the "Searching for Answers to Chronic Pain," I detailed the frustrating journey of living with chronic pain since late puberty. After the pain started severely impacting my quality of... By Janeil Whitworth3 min readBookmark for laterReactions 0 reactions Comments0 comments
Exploring Post Traumatic Stress Disorder in Cystic Fibrosis (Part 2)It is still early days when looking at the long-lasting effects trauma can have on babies and parents in newborn intensive care units (NICU). What has been identified as badly... By Emma Boniface3 min readBookmark for laterReactions 0 reactions Comments0 comments
The Difficulty With CF Clinic NumbersEven though I have gone to roughly 140 or more cystic fibrosis clinics in my life so far, I still feel anxious before each one. If I’m sick then I’m... By Cheriz K.3 min readBookmark for laterReactions 0 reactions Comments0 comments
MemoriesI’ve never been shy in regards to talking about those whom I have met with cystic fibrosis and the impact they’ve had on my life. I have talked about losing... By Marieliz Landa2 min readBookmark for laterReactions 0 reactions Comments0 comments