10 Things That Are Essential for a Hospital AdmissionHaving just completed a 2-week stint in hospital for a lung tune-up, I wanted to share what I wouldn’t leave home without...reactionscomments
Managing CFRD With a Continuous Glucose MonitorBeing diagnosed with diabetes on top of cystic fibrosis can often be a disappointing and hard transition to process. Unfortunately, it happens...reactionscomments
Tips for Parenting a Child With Cystic FibrosisParenting a child with cystic fibrosis is a big job, but it is not one you need to be overwhelmed by. The...reactionscomments
What to Know Before Starting Your Treatment with TrikaftaThere has been a lot of talk about Trikafta over the past year. Many people have claimed that Trikafta has positively impacted...reactions1comment
To Everyone's Surprise, COVID-19 Spared My LungsEvery time she coughed, a bit of anxiety would creep in my head. I began saying it aloud, “I think you have...reactionscomments
What's the "CF Gender Gap"?In the CF community, there’s an unusual pattern seen in the life expectancy between men and women with CF. Men with CF...reactionscomments
Grateful for the COVID-19 VaccinationIt has been a particularly rough past year and now there is hope that can bring back some semblance of normalcy. The...reactionscomments
Tips for Overcoming Hyponatremia Occasionally, people with cystic fibrosis (CF) can experience electrolyte imbalances. These electrolyte imbalances include hyponatremia, hypochloremia, hypokalemia, and metabolic alkalosis. Collectively, these...reactions1comment
CF Milestones: Celebrating Achievements and Managing ExpectationsIn addition to all the milestones one faces with their child, the treatment and management of cystic fibrosis includes pivotal moments for...reactions1comment
Do You Smell That? CF and Loss of SmellThere are so many wonderful (and gag-worthy) smells we experience in our day-to-day lives. Freshly baked cookies, a bouquet of roses, sunscreen...reactions1comment
Dealing With Trikafta AcneIncreased lung function? Check! Healthy weight gain? Check! Painful, cystic acne? Um...check! Improvements in the CF community since the release of Trikafta...reactions2comments
Invisible DisabilityLiving with cystic fibrosis is living with a disease no one will really realize you have unless they know the details of...reactionscomments
Understanding and Coping with CF BellyWhen we have a gut flare-up, many dieticians feel our digestive enzymes are the culprit. Adjustment to quantities, missed doses, inadequate amounts...reactionscomments
Kidney Stones and Cystic FibrosisAnyone who has had a kidney stone can tell you that it was one of the most painful events of their life...reactionscomments
5 Things I Have Learned Living With Cystic FibrosisThe hardest thing about having CF is the invisibility. We look like the picture of health – like we should be full...reactionscomments
Nine Ways To Make CF Care Easier And More FunCystic fibrosis care is overwhelming, monotonous, and exhausting most of the time. Often taking care of myself feels like a vicious, neverending...reactionscomments
Incorporating High Calorie Supplements Into Your Diet While Minimizing SugarsStruggling with weight gain throughout my lifetime has required daily attention to making sure I am consuming enough calories just to maintain...reactionscomments
Quick Guide To Applying For Disability With CFApplying for Social Security Disability can be a daunting and overwhelming process for adults living with cystic fibrosis (CF) who are unable...reactions2comments
Does Ethnicity Impact Access To CF Treatment?It is no surprise that disparities in health care access have been present since the establishment of a health system. While these...reactionscomments
Myths & Facts About Living WillsA living will is known by several other names, including advanced directive, healthcare declaration, medical directive, and many more. There is often...reactionscomments
