Managing CFRD With a Continuous Glucose MonitorBeing diagnosed with diabetes on top of cystic fibrosis can often be a disappointing and hard transition to process. Unfortunately, it happens to a lot of people living with CF...reactionscomments
Tips for Parenting a Child With Cystic FibrosisParenting a child with cystic fibrosis is a big job, but it is not one you need to be overwhelmed by. The parents in our community have learned how to...reactionscomments
What to Know Before Starting Your Treatment with TrikaftaThere has been a lot of talk about Trikafta over the past year. Many people have claimed that Trikafta has positively impacted their management of cystic fibrosis (CF). Our community...reactions1comment
To Everyone's Surprise, COVID-19 Spared My LungsEvery time she coughed, a bit of anxiety would creep in my head. I began saying it aloud, “I think you have it, you should go get tested.” What if...reactionscomments
What's the "CF Gender Gap"?In the CF community, there’s an unusual pattern seen in the life expectancy between men and women with CF. Men with CF tend to live longer than women with CF...reactionscomments
Grateful for the COVID-19 VaccinationIt has been a particularly rough past year and now there is hope that can bring back some semblance of normalcy. The COVID-19 vaccine has come out and, with it...reactionscomments
Tips for Overcoming Hyponatremia Occasionally, people with cystic fibrosis (CF) can experience electrolyte imbalances. These electrolyte imbalances include hyponatremia, hypochloremia, hypokalemia, and metabolic alkalosis. Collectively, these are referred to as Pseudo-Bartter syndrome. The topic...reactions1comment
CF Milestones: Celebrating Achievements and Managing ExpectationsIn addition to all the milestones one faces with their child, the treatment and management of cystic fibrosis includes pivotal moments for patients. While they may not be the traditional...reactions1comment
Do You Smell That? CF and Loss of SmellThere are so many wonderful (and gag-worthy) smells we experience in our day-to-day lives. Freshly baked cookies, a bouquet of roses, sunscreen on the beach, or a newly cut Christmas...reactions1comment
Dealing With Trikafta AcneIncreased lung function? Check! Healthy weight gain? Check! Painful, cystic acne? Um...check! Improvements in the CF community since the release of Trikafta have been astonishing. People are living healthier lives...reactions2comments
Invisible DisabilityLiving with cystic fibrosis is living with a disease no one will really realize you have unless they know the details of your day-to-day life. Cystic fibrosis is an invisible...reactionscomments
Understanding and Coping with CF BellyWhen we have a gut flare-up, many dieticians feel our digestive enzymes are the culprit. Adjustment to quantities, missed doses, inadequate amounts, and so on. I found it extremely challenging...reactionscomments
Kidney Stones and Cystic FibrosisAnyone who has had a kidney stone can tell you that it was one of the most painful events of their life. Nephrolithiasis is the process of forming a kidney...reactionscomments
5 Things I Have Learned Living With Cystic FibrosisThe hardest thing about having CF is the invisibility. We look like the picture of health – like we should be full to the brim with endless energy. It is...reactionscomments
Nine Ways To Make CF Care Easier And More FunCystic fibrosis care is overwhelming, monotonous, and exhausting most of the time. Often taking care of myself feels like a vicious, neverending cycle of the same routine over and over...reactionscomments
Incorporating High Calorie Supplements Into Your Diet While Minimizing SugarsStruggling with weight gain throughout my lifetime has required daily attention to making sure I am consuming enough calories just to maintain my weight. For many years, really ever since...reactionscomments
Quick Guide To Applying For Disability With CFApplying for Social Security Disability can be a daunting and overwhelming process for adults living with cystic fibrosis (CF) who are unable to work because of their health status. If...reactions2comments
Does Ethnicity Impact Access To CF Treatment?It is no surprise that disparities in health care access have been present since the establishment of a health system. While these disparities are recognized, many reports continue to highlight...reactionscomments
Myths & Facts About Living WillsA living will is known by several other names, including advanced directive, healthcare declaration, medical directive, and many more. There is often confusion about what these words mean and why...reactionscomments
Understanding My Experiences with CFNot too long ago, during one of my regular face time calls with my mom, I was explaining to her how frustrated I was with the setbacks that living with...reactionscomments
