Tips For Navigating a New CFRD DiagnosisHave you or a family member been newly diagnosed with cystic fibrosis-related diabetes (CFRD)? If so, you are probably feeling an array of emotions after the fact. It can be... By Janeil Whitworth3 min readBookmark for laterReactions 0 reactions Comments0 comments
Iron Supplementation in CF - Part 2In the first part of this article series, we highlighted what causes iron deficiency in people with cystic fibrosis, and the various iron supplements available. This section will outline how... By Canadian Pharmacist2 min readBookmark for laterReactions 0 reactions Comments0 comments
Coughing BloodCoughing up blood is scary and alarming. You could find yourself worried because it is not something that should be happening. In my case, I cough up blood every other... By Marieliz Landa2 min readBookmark for laterReactions 0 reactions Comments0 comments
You Know You Have CF When...Let's play a game! What would you add to complete this sentence: “You know you have CF when... ?” There are so many funny and painfully true answers to this... By Janeil Whitworth2 min readBookmark for laterReactions 0 reactions Comments0 comments
Surviving a Clinic Appointment With a ChildSome of the most stressful times in my life have been when my toddler - in desperate need of a nap - accompanied me to a few hours long CF... By Janeil Whitworth4 min readBookmark for laterReactions 0 reactions Comments0 comments
The Progression of CF through the YearsThe average life expectancy of someone with cystic fibrosis when I was born was 31 years old. Although I haven’t reached it, in a way, I have beaten the odds... By Ella Balasa3 min readBookmark for laterReactions 0 reactions Comments1 comments
Trikafta: The Miracle Drug That May Not Be a MiracleSix months ago, I started the miracle drug, Trikafta. Six weeks ago, I stopped it. Why? Side effects. They say the definition of madness is doing the same thing over... By Emma Boniface3 min readBookmark for laterReactions 0 reactions Comments6 comments
The Second COVID Vaccine Wasn’t Easy But It Was Worth ItA quick month flew by before it was time to receive my second COVID vaccination. (Well, I guess as quick as a month can go while in isolation in your... By Janeil Whitworth3 min readBookmark for laterReactions 0 reactions Comments0 comments
Pursuing IVF Treatment for Our InfertilityAs a result of Trikafta, there’s been a huge baby boom in the CF community among women. As much as I am happy for those women, I am sad for... By Janeil Whitworth3 min readBookmark for laterReactions 0 reactions Comments0 comments
Finding Credible Health InformationThere’s a lot of health information available on the internet these days. From personal blogs to online magazines to government websites and beyond, advice about your health is at every... By BridgetGawinowicz2 min readBookmark for laterReactions 0 reactions Comments1 comments
Receiving My First Dose of the COVID-19 Vaccine with CFEvery Thursday, I tried to tune into Ohio’s Governor, Mike Dewine's press conference to the public about COVID-19 updates. Mostly, I was looking for hope of when I could expect... By Janeil Whitworth3 min readBookmark for laterReactions 0 reactions Comments1 comments
All About My Partner's CF Carrier TestingCF genetic testing is an important step in both the diagnosis of CF as well as determining if someone carries the CF gene without actually having the disease. Many parents-to-be... By Janeil Whitworth3 min readBookmark for laterReactions 0 reactions Comments0 comments
Five Favorite Pandemic Self-Care Activities for CFHow have you de-stressed this past year? The pandemic, political divide, disruption of routine doctor's visits, and isolation from friends and family has really highlighted the care my mental health... By Janeil Whitworth3 min readBookmark for laterReactions 0 reactions Comments0 comments
Why Are My Hands So Wrinkly?Everyone has experienced hand and feet wrinkling at some point in their life. When we are young, we quickly learn that if we submerge our hands and feet in water... By Canadian Pharmacist2 min readBookmark for laterReactions 0 reactions Comments6 comments
Community Views: What People With Cystic Fibrosis Do Not Talk AboutSo much of the pain of cystic fibrosis is invisible. The diagnosis itself is not one that outsiders can visibly see, so conversations about cystic fibrosis are not often common... By Editorial Team 3 min readBookmark for laterReactions 0 reactions Comments0 comments
Trying to Conceive with CF: My IUI ExperienceAfter our fertility testing was complete, we met with a Reproductive Endocrinologist to discuss the treatment plan and various success rates. I was a bit nervous as there are so... By Janeil Whitworth3 min readBookmark for laterReactions 0 reactions Comments0 comments
My WalkerIt all started a few years ago when I started having joint pains. It was as random as can be and I was very taken back by it. The pain... By Marieliz Landa2 min readBookmark for laterReactions 0 reactions Comments0 comments
Adjusting to ChangesIf you’re on medication, then you’ll recognize this feeling. You meet with your doctor and they suggest taking a new prescription or over-the-counter medicine, for either an issue that is... By Katelyn Harlow4 min readBookmark for laterReactions 0 reactions Comments2 comments
Four Lifestyle Changes That Improved My CFHow many times have you heard the following advice: you should drink more water, eat lots of fruits and vegetables, and make sure to exercise? A bunch, right! Why? Because... By Janeil Whitworth3 min readBookmark for laterReactions 0 reactions Comments0 comments
Iron Supplementation in CF - Part 1Anemia, or iron deficiency, is one of the most common nutritional deficiencies in the world. Furthermore, people with cystic fibrosis (CF) are at an increased risk of developing anemia: 10%... By Canadian Pharmacist2 min readBookmark for laterReactions 0 reactions Comments0 comments