Living

When Trikafta was released almost a year and a half ago, a slew of people started recording how quickly they got over a seasonal cold with the help of this...

Advocacy is a pillar of the cystic fibrosis community, and we are a small but mighty group. There are lots of ways to advocate, including volunteer work, policy work, sharing...

Taking a vacation is meant to be about relaxing and enjoying yourself. Traveling when you have an illness like cystic fibrosis can seem scary and challenging, but it is not...

The first trimester, or the first 13 weeks, of pregnancy can be a really difficult time for a lot of moms-to-be. Morning sickness, fatigue, headaches, food aversions, etc. - the...

Candida is a yeast, a type of fungus, that inhabits the normal flora in humans. However, overgrowth of candida can result in yeast infections; another term for these infections is...

There is usually a time in life when having CF feels embarrassing. It may be when you cough in public like you smoke a couple packs a day or perhaps...

My experience in receiving the first dosage of the COVID-19 vaccine was amazingly simple. When my state opened the vaccination appointments to include those with certain pre-existing conditions including cystic...

With spring within reach, it’s time to break out the gardening gloves, shovel and lawn mower and get messy! Gardening is one of my favorite hobbies that helps keep me...

Have you or a family member been newly diagnosed with cystic fibrosis-related diabetes (CFRD)? If so, you are probably feeling an array of emotions after the fact. It can be...

In the first part of this article series, we highlighted what causes iron deficiency in people with cystic fibrosis, and the various iron supplements available. This section will outline how...

Coughing up blood is scary and alarming. You could find yourself worried because it is not something that should be happening. In my case, I cough up blood every other...

Let's play a game! What would you add to complete this sentence: “You know you have CF when... ?” There are so many funny and painfully true answers to this...

Some of the most stressful times in my life have been when my toddler - in desperate need of a nap - accompanied me to a few hours long CF...

The average life expectancy of someone with cystic fibrosis when I was born was 31 years old. Although I haven’t reached it, in a way, I have beaten the odds...

Six months ago, I started the miracle drug, Trikafta. Six weeks ago, I stopped it. Why? Side effects. They say the definition of madness is doing the same thing over...

A quick month flew by before it was time to receive my second COVID vaccination. (Well, I guess as quick as a month can go while in isolation in your...

As a result of Trikafta, there’s been a huge baby boom in the CF community among women. As much as I am happy for those women, I am sad for...

There’s a lot of health information available on the internet these days. From personal blogs to online magazines to government websites and beyond, advice about your health is at every...

Every Thursday, I tried to tune into Ohio’s Governor, Mike Dewine's press conference to the public about COVID-19 updates. Mostly, I was looking for hope of when I could expect...

CF genetic testing is an important step in both the diagnosis of CF as well as determining if someone carries the CF gene without actually having the disease. Many parents-to-be...