Best Friends With CFAs a CF patient, one of the most heartbreaking realities is you must stay at least six feet apart from other CFers. I...reactions2comments
One WishIf I was granted the ability to make one wish, what I would wish for would shock many people. I would wish...reactions1comment
Remembering Kadeem MorganWe are incredibly saddened to share that CysticFibrosis.com team member Kadeem Morgan passed away on June 27, 2023. Kadeem was a talented...reactionscomments
Ask the Health Leaders: More Than Our LungsA common misconception about cystic fibrosis is that it only impacts the lungs. We asked our Health Leaders what other parts of...reactions3comments
A Sniffle Away from Losing My MindThe unrelenting storm of cold and flu season has threatened to rock the boat. By boat–I mean me–a mom living with CF...reactionscomments
Life, Love, and LungsI recently rekindled a relationship that had ended some months before as I felt my life slowly falling apart. I received difficult...reactions2comments
Learning to Live with GriefGrief seems to go hand in hand with CF. It is impossible for sorrow not to rear its ugly head when battling...reactions1comment
A Letter To A New CF MomDear New CF Mom, I noticed you and your child today at Great Strides. Your newborn was wearing the same purple CF...reactionscomments
Passport, Pills, Plan: The Ultimate CF Jet Setter GuidePlanning a weekend break, a long haul trip or just a family holiday has always been difficult with CF. After Covid, many...reactions2comments
Tips for Summer Caregivers for Kiddos with CFSummer is here and that means your kiddos with CF are home for the next few months from school. Just when you...reactionscomments
Recognizing Caregiver BurnoutAs caregivers, we often get so caught up in the routines we have in place that we don’t realize just how much...reactions1comment
Ask the Health Leaders: Sharing Your StoryWe asked our health leaders: Do you feel that sharing your (or your loved ones) journey with CF has been healing? If...reactionscomments
How I Combat Loss of Appetite and NauseaGetting sick is part of being human. It may be from a virus or a bacterium. But people get sick, and it...reactionscomments
Too Much Immune System for Me: Immunosuppressants and CFSometimes, I introspectively peak at my mangled innards and wonder how this all came to be? You manage one chronic illness your...reactionscomments
Being Diagnosed With Difficult InfectionsSometimes in cystic fibrosis (CF) you just happen to pull the short straw. It doesn't matter how compliant you are with daily...reactions3comments
The Different Mindsets of Coping with IllnessWhen living with a chronic illness, I find my mind drifting into various stages, emotions and feelings. I often get comments from...reactionscomments
BFF Distanced Dining GiveawayThe Distanced Dining Giveaway is now closed. Thank you for your interest! It's Cystic Fibrosis (CF) Awareness Month, and we are...reactions3comments
Why Can Daily Tasks Feel Overwhelming?I sometimes feel overwhelmed with all the things I must do for my health. As soon as I finish one task there...reactionscomments
My Needle Phobia Is Not A Fear Of NeedlesI had a very interesting conversation with one of my CF nurses the other day just as we were preparing for the...reactionscomments
A New Reality With CFEvery now and then I get to feeling down. Sometimes, small, and simple things can bring me down. For example, not being...reactions3comments
