Cycling Across America with CFI was diagnosed with CF at birth, and currently am 44. I am lucky enough to be part of the evolution of changing treatments. If I look back 30-40 years... By CFCyclistAU2 min readBookmark for laterReactions 0 reactions Comments2 comments
Coping With the Weight of CFSaying cystic fibrosis (CF) has its obstacles is an understatement. As if the lung infections, gastrointestinal issues, diabetes, and all the other countless issues with our body were not enough... By Jennifer Oramas2 min readBookmark for laterReactions 0 reactions Comments0 comments
Did You See This NACFC Talk? Part 1I look forward to the North American Cystic Fibrosis Conference (NACFC) every year. So much so that this year I devoted a previous article to the topics I hoped would... By Janeil Whitworth3 min readBookmark for laterReactions 0 reactions Comments0 comments
Birthdays Through the Lense of Cystic FibrosisIn light of my birthday in January, I’ve been thinking a lot about getting older. Living with cystic fibrosis (CF) has definitely affected my feelings about aging, and not always... By Moriah Frisbie4 min readBookmark for laterReactions 0 reactions Comments0 comments
Life Challenges and CF ComplicationsI’ve been in what one would call a funk for the past few months. It began with going from being at my peak physical health to getting a pretty tough... By Jennifer Oramas3 min readBookmark for laterReactions 0 reactions Comments0 comments
Please Stop Asking CF Women If They Will Have More KidsAuthor’s note: The title of this article should really read, “Please Stop Asking Women if They Want More Kids”. This subject is touchy whether or not you have CF. In... By Janeil Whitworth4 min readBookmark for laterReactions 0 reactions Comments0 comments
Challenges of Living in a Rural CommunityToday I wanted to talk to you about something that is a personal obstacle for me when it comes to my healthcare: distance. I live in a very rural community... By Moriah Frisbie3 min readBookmark for laterReactions 0 reactions Comments7 comments
Ask the Health Leaders: CF TraitsPeople living with cystic fibrosis (CF) are often diagnosed at a young age and don't remember a time when they did not live with this condition. As a result, it... By Editorial Team 4 min readBookmark for laterReactions 0 reactions Comments0 comments
My 2023 CF Intentions and BeyondAlthough I tend to think of myself as a reasonably optimistic person, 2022 was a devastating year for me, personally. Between my mom’s very serious cancer diagnosis and navigating the... By Janeil Whitworth3 min readBookmark for laterReactions 0 reactions Comments0 comments
A New Year of StoriesWhat would you do if you had a clean slate? If none of the things weighing you down existed? What would you do with that freedom? “It’s a new year... By Jennifer Oramas3 min readBookmark for laterReactions 0 reactions Comments3 comments
Organizing CF MedicationsI have moved less than a handful of times in my life. Most of my moves have been since I got married. We have lived in a total of three... By Katelyn Harlow4 min readBookmark for laterReactions 0 reactions Comments0 comments
Motherhood Before and After Life Saving TreatmentThere’s a four year age gap between my two boys–and for a very good reason. Once my eldest was born 5 years ago, life with CF really hit me hard... By Janeil Whitworth3 min readBookmark for laterReactions 0 reactions Comments1 comments
A Day in the Life of a CF WarriorThis is just brief since I can have an attack at any time. So, I wake up at around 8:30am to take all my meds nebulizer, inhalers, vest, mental health... By Fightingforbreath1 min readBookmark for laterReactions 0 reactions Comments0 comments
Ask the Health Leaders: Working With CF SpecialistsCystic fibrosis (CF) healthcare teams tackle a variety of health issues, and therefore can be made up of many different types of healthcare professionals and doctors. Some examples include respiratory... By Editorial Team 3 min readBookmark for laterReactions 0 reactions Comments0 comments
Talking With Work About Cystic FibrosisI have always enjoyed working. My parents noticed my work ethic when I was younger, and it has remained the same. My motivation for working has changed, but the love... By Katelyn Harlow4 min readBookmark for laterReactions 0 reactions Comments0 comments
A Letter to Myself During My Diagnosis From the FutureDear Little Girl on the Day of Your Diagnosis, Hey, there! It’s great to see you. You look so sweet and innocent with your bleach blonde bob with bangs and... By Janeil Whitworth3 min readBookmark for laterReactions 0 reactions Comments4 comments
Setting New Year GoalsWith 2023 right around the corner, you will probably hear of people wanting to set New Year resolutions. A few examples are to exercise more, to learn a new skill... By Katelyn Harlow3 min readBookmark for laterReactions 0 reactions Comments2 comments
9 Ways CF Makes the Holidays UniqueThe holidays are some of the year’s most magical and memorable moments. Family and friend gatherings, festive decorations, and cozy winter wonderland weather can really make the season special. I... By Janeil Whitworth2 min readBookmark for laterReactions 0 reactions Comments0 comments
Hospitalization Series: Packing the EssentialsPacking for vacation is fun. But packing for a hospitalization is not fun. And packing for something you aren't look forward to can be overwhelming. You tend to overpack if... By Katelyn Harlow4 min readBookmark for laterReactions 0 reactions Comments0 comments
When Is the Right Time to Remove My Port?There’s been so many profound changes for individuals with cystic fibrosis (CF) over the past few years. Many of these changes are a direct result of the release of Trikafta... By Janeil Whitworth3 min readBookmark for laterReactions 0 reactions Comments4 comments