The Many Colors of Cystic Fibrosis: Yellow (Part 1)When I was a child, I fell in love with the show Joseph and the Technicolor Dreamcoat and its colorful set design...reactions2comments
The Many Colors of Cystic Fibrosis: Brown (Part 1)If you haven’t read my previous article, “The Many Colors of Cystic Fibrosis: Clear”, just know that I am a huge fan...reactionscomments
The Many Colors of Cystic Fibrosis: Brown (Part 2)In my previous article, I detailed my journey with gastrointestinal issues including pancreatic insufficiency, malnutrition, and dumping syndrome. In 2017, we began...reactionscomments
Strategies for Coping With a Rare Disease Like Cystic FibrosisWhen you are diagnosed with a rare disease like cystic fibrosis, you might feel overwhelmed about what to expect. Because few people...reactionscomments
The Many Colors of Cystic Fibrosis: Purple (Part 2)In my previous article, I explained the importance of the color purple, including the annual Great Strides walk. Let's continue to unpack...reactionscomments
Please Stop Asking CF Women If They Will Have More KidsAuthor’s note: The title of this article should really read, “Please Stop Asking Women if They Want More Kids”. This subject is...reactionscomments
Virtual FundraisingIt’s almost that time of year where my city does cystic fibrosis (CF) walks to raise money and awareness for CF. Fundraising...reactionscomments
The Many Colors of Cystic Fibrosis: Orange (Part 2)Let's get back into cystic fibrosis (CF) and the color orange. In my last article, I discussed Halloween, cautious living, and medication...reactionscomments
Saying Goodbye to a CF Support SystemTen years ago, my fiance and I adopted a fluffy dilute calico cat from a lady we met in a Target parking...reactions2comments
My Brother, My HeroMy baby brother was born with CF. He struggled as a child, teenager, and young adult. We were always told that he...reactionscomments
Complicated Emotions With CFIn a previous article I wrote about the mixed feelings and confusing thoughts I have had since the modulators – Orkambi, Symdeko...reactions2comments
Work and Cystic Fibrosis“Sounds like someone has a case of the Mondays,” is a fairly well-known phrase, especially in the working world. It’s an acknowledgment...reactionscomments
A Look Back On My CF JourneyI figured, with it being Cystic Fibrosis (CF) Awareness Month, this was a great time to look back on my journey over...reactionscomments
Six Things You Don't Need to Apologize for with CFOnce upon a time, I apologized for being unreliable and someone once told me to stop apologizing. They said, “Your disease is...reactions2comments
Disability Visibility: The Super CF ChameleonMy favorite thing about having cystic fibrosis (CF) is that most often no one can actually tell that I have CF or...reactionscomments
Why I Sobbed Registering My Son For KindergartenI do a lot of self-reflection humbly standing at my kitchen sink. Lost in the mundane task of dishwashing, I find it...reactionscomments
2023 CF Awareness Month: BFFsMay is Cystic Fibrosis Awareness Month, and we are celebrating BFFs (best fibrosis friends) in the cystic fibrosis (CF) community! All month...reactionscomments
Relearning Treatment Compliance After TrikaftaIn my teenage years, I struggled heavily with CF treatment compliance. I had a very laid-back approach to my health that bordered...reactions1comment
What it Feels Like to Be in the Transitional GenerationA recent article in the New York Times Opinion written by Dr. Daniela J. Lamas, a pulmonologist in Boston, detailed the story...reactionscomments
How Exercise Kept Me Out of the Hospital Until I Was 26I have always been active. Since I could remember, I’ve been involved in all different sports, by recommendation of my doctor from...reactionscomments
