Chores That Wreak Havoc on My CF (Thank you, Husband!)Today, I want to talk to you about a few chores my husband does for me in light of having cystic fibrosis (CF). You might say that my husband and...Reactions0reactionsComments0 comments
Almost to the End: An IVF JourneyHere we are! We’ve arrived at the final stages of my IVF journey. As mentioned in my previous articles outlining our experience, the main reason we were doing IVF was...Reactions0reactionsComments0 comments
A Lid for Every Pot: Dating with Cystic FibrosisNavigating the dating scene is hard. It was hard when our parents dated and when their parents dated. And it is still hard today. Now add in cystic fibrosis (CF)?...Reactions0reactionsComments2 comments
What Having A CF Flare Up Looks LikeSince modulators broke onto the scene for the cystic fibrosis (CF) community a few years back, having a flare up can sometimes seem a thing of the past. Which means...Reactions0reactionsComments0 comments
The Many Colors of Cystic Fibrosis: Grey (Part 1)My journey with cystic fibrosis (CF) has been very colorful. I’ve had to expel and capture my green, sticky mucus. I walked alongside the CF community at the Great Strides...Reactions0reactionsComments0 comments
Did You See This NACFC Talk? Part 2The range of topics and novel presentations at the 2022 North American Cystic Fibrosis Conference (NACFC) in Philadelphia, PA was impressive. I’m sure it was exciting for the in-person attendants...Reactions0reactionsComments0 comments
Cycling Across America with CFI was diagnosed with CF at birth, and currently am 44. I am lucky enough to be part of the evolution of changing treatments. If I look back 30-40 years...Reactions0reactionsComments2 comments
Coping With the Weight of CFSaying cystic fibrosis (CF) has its obstacles is an understatement. As if the lung infections, gastrointestinal issues, diabetes, and all the other countless issues with our body were not enough...Reactions0reactionsComments0 comments
Did You See This NACFC Talk? Part 1I look forward to the North American Cystic Fibrosis Conference (NACFC) every year. So much so that this year I devoted a previous article to the topics I hoped would...Reactions0reactionsComments0 comments
Birthdays Through the Lense of Cystic FibrosisIn light of my birthday in January, I’ve been thinking a lot about getting older. Living with cystic fibrosis (CF) has definitely affected my feelings about aging, and not always...Reactions0reactionsComments0 comments
Life Challenges and CF ComplicationsI’ve been in what one would call a funk for the past few months. It began with going from being at my peak physical health to getting a pretty tough...Reactions0reactionsComments0 comments
Please Stop Asking CF Women If They Will Have More KidsAuthor’s note: The title of this article should really read, “Please Stop Asking Women if They Want More Kids”. This subject is touchy whether or not you have CF. In...Reactions0reactionsComments0 comments
Challenges of Living in a Rural CommunityToday I wanted to talk to you about something that is a personal obstacle for me when it comes to my healthcare: distance. I live in a very rural community...Reactions0reactionsComments7 comments
Ask the Health Leaders: CF TraitsPeople living with cystic fibrosis (CF) are often diagnosed at a young age and don't remember a time when they did not live with this condition. As a result, it...Reactions0reactionsComments0 comments
My 2023 CF Intentions and BeyondAlthough I tend to think of myself as a reasonably optimistic person, 2022 was a devastating year for me, personally. Between my mom’s very serious cancer diagnosis and navigating the...Reactions0reactionsComments0 comments
A New Year of StoriesWhat would you do if you had a clean slate? If none of the things weighing you down existed? What would you do with that freedom? “It’s a new year...Reactions0reactionsComments3 comments
Organizing CF MedicationsI have moved less than a handful of times in my life. Most of my moves have been since I got married. We have lived in a total of three...Reactions0reactionsComments0 comments
Motherhood Before and After Life Saving TreatmentThere’s a four year age gap between my two boys–and for a very good reason. Once my eldest was born 5 years ago, life with CF really hit me hard...Reactions0reactionsComments1 comments
A Day in the Life of a CF WarriorThis is just brief since I can have an attack at any time. So, I wake up at around 8:30am to take all my meds nebulizer, inhalers, vest, mental health...Reactions0reactionsComments0 comments
Ask the Health Leaders: Working With CF SpecialistsCystic fibrosis (CF) healthcare teams tackle a variety of health issues, and therefore can be made up of many different types of healthcare professionals and doctors. Some examples include respiratory...Reactions0reactionsComments0 comments
