Tips for Employment with Cystic FibrosisAs Cystic Fibrosis patients continue to age, it is important to consider what types of jobs and careers would suit them. With...reactions2comments
My Rare Cystic Fibrosis Diagnosis StoryGrowing up with a rare disease, I didn’t realize how truly special I was. The novelty of my existence and the chance...reactionscomments
Hospitalization Creature ComfortsHave you ever heard of creature comforts? I’ve listened to this saying occasionally. Creature comfort is something that helps people feel physical...reactionscomments
The Many Colors of Cystic Fibrosis: MetallicInspired by the song “Joseph’s Coat” from Joseph and the Technicolor Dreamcoat, I was reminded to explore colors such as silver, gold...reactionscomments
Depression and Anxiety in People Living With Cystic FibrosisLiving with cystic fibrosis (CF) can bring many challenges. While the physical symptoms of CF are often discussed, the toll that the...reactionscomments
Preparing for TrikaftaWith the FDA approval of Trikafta for kids 2-5 years old, our daughter will be starting the medication earlier than expected. She...reactions2comments
My Scars Are Proof I'm LuckyI used to joke that I was the board game “Operation” because my body was covered in scars. By age 18, I...reactionscomments
Household Chores to Skip With CFDust, fumes, mold, and bacteria, oh my! Our homes are filled with many irritants that can harm our respiratory systems. However, those...reactionscomments
The 2024 Social Health Awards ProgramEditorial Note: Nominations for 2024 are now closed. We are very excited to announce the launch of the 2024 Social Health Awards...reactionscomments
IV Antibiotics: Hospital or Home?A big box was dropped on my doorstep filled with the most unexciting gifts: IV antibiotics. After a small bout of hemoptysis...reactionscomments
Ten Surprising Facts About CFEven after living with CF for 31 years, it seems like everyday I learn something new about this disease. CF is such...reactions10comments
Why Are My Hands So Wrinkly?Everyone has experienced hand and feet wrinkling at some point in their life. When we are young, we quickly learn that if...reactions10comments
Dealing with typical illnesses with my CF-erA few months ago, we went on a family vacation to the beach. Because it was early April, I figured the typical...reactionscomments
Parenting and FatigueBeing a parent is a tiring job, and often, life with a chronic illness often comes with fatigue. Both together can be...reactionscomments
Is CF A Secret?I have CF. For most of my life, that has been public knowledge. I shared it with people nonchalantly, as I would...reactionscomments
A Letter to My Morning LungsDear Morning Lungs, I’m writing to tell you that you’re doing your best. I don’t blame you for your sluggish mood every...reactionscomments
A Letter to Myself During My Diagnosis From the FutureDear Little Girl on the Day of Your Diagnosis, Hey, there! It’s great to see you. You look so sweet and innocent...reactions4comments
Setting Boundaries For Your HealthI was talking to someone about relationships recently. More specifically, we were talking about how hard boundaries can be, but how they...reactionscomments
What Having A CF Flare Up Looks LikeSince modulators broke onto the scene for the cystic fibrosis (CF) community a few years back, having a flare up can sometimes...reactionscomments
In Sickness and in Health: Telling my Partner I have CFI have lived with cystic fibrosis (CF) my entire life, I know it like the back of my hand. With CF being...reactions5comments
