Living

When living with a chronic illness, I find my mind drifting into various stages, emotions and feelings. I often get comments from people, praising my strength and positivity, solely for...

I had a very interesting conversation with one of my CF nurses the other day just as we were preparing for the dreaded monthly port flush. As I mentally psyched...

I sometimes feel overwhelmed with all the things I must do for my health. As soon as I finish one task there is another one waiting to be completed. On...

Let's get back into cystic fibrosis (CF) and the color orange. In my last article, I discussed Halloween, cautious living, and medication. Let’s keep talking about the color orange. One...

Ten years ago, my fiance and I adopted a fluffy dilute calico cat from a lady we met in a Target parking lot. She was beautiful with green eyes, gray...

It’s almost that time of year where my city does cystic fibrosis (CF) walks to raise money and awareness for CF. Fundraising is my calling, I love it! I also...

Content warning: This article contains mention of thoughts of self-harm. I was involved in a study the past two weeks that involved me taking my blood pressure twice a day...

In a previous article I wrote about the mixed feelings and confusing thoughts I have had since the modulators – Orkambi, Symdeko, and Trikafta – came out. I know that...

Once upon a time, I apologized for being unreliable and someone once told me to stop apologizing. They said, “Your disease is unreliable, not you.” At the time, it was...

Every now and then I get to feeling down. Sometimes, small, and simple things can bring me down. For example, not being able to go out to dinner with a...

I figured, with it being Cystic Fibrosis (CF) Awareness Month, this was a great time to look back on my journey over the past year. So much has happened, I...

My favorite thing about having cystic fibrosis (CF) is that most often no one can actually tell that I have CF or rather, anything unique about me at all. I...

May is Cystic Fibrosis Awareness Month, and we are celebrating BFFs (best fibrosis friends) in the cystic fibrosis (CF) community! All month long we will be highlighting ways to safely...

The Distanced Dining Giveaway is now closed. Thank you for your interest!   It's Cystic Fibrosis (CF) Awareness Month, and we are celebrating BFFs (best fibrosis friends). Since friends that...

I do a lot of self-reflection humbly standing at my kitchen sink. Lost in the mundane task of dishwashing, I find it easy to process through my emotions–sloshing, scrubbing, and...

Sleeping has been a great difficulty since starting Trikafta. I am not alone, the Trikafta tribe are pretty much all in agreement on this one. Those peachy pills do not like...

Being a partner to someone who has cystic fibrosis (CF) can be hard. It can be exhausting, scary, and confusing. As someone with CF who has a partner, my husband...

An essential part of staying healthy with CF is the diet. Often CF patients are told to include high-fat, high-calorie foods. In my experience, this was due to the probability...

For the first time, many people with CF have been able to focus less on gaining and maintaining weight and more on living life. Finally, they can eat a normal...