Articles

If you are prescribed a high-cost drug, chances are, you have had experience with patient support programs. Patient support programs, or PSPs, are programs funded by the manufacturer of a...

A big box was dropped on my doorstep filled with the most unexciting gifts: IV antibiotics. After a small bout of hemoptysis at the end of my pregnancy, my CF...

In my previous article, I detailed my journey with gastrointestinal issues including pancreatic insufficiency, malnutrition, and dumping syndrome. In 2017, we began to address a new issue: gastroparesis. Back to...

The Media Habits Survey is now closed. Thank you for your interest! Managing a chronic condition is not easy and can be physically and mentally exhausting. What types of media...

If you haven’t read my previous article, “The Many Colors of Cystic Fibrosis: Clear”, just know that I am a huge fan of Joseph and the Technicolor Dreamcoat”. Now it’s...

"Are you sure you want to commit to this?" "What happens if she gets really sick or dies at a young age?" "What happens when you have kids and she...

Before Trikafta, it was difficult to imagine life without… a cough. That cough. The cough we all know too well. I believe everyone who lives with a chronic illness hope...

As people with cystic fibrosis (CF) continue to live longer lives, unique challenges arise such as musculoskeletal issues like back pain. Anyone who has dealt with chronic back pain knows...

For the longest while, I have been debating what the topic of my first post on here should be. I don’t want to be too graphic, I don’t want to...

Cystic fibrosis (CF) has had many advances over the years in treatment, research and awareness. Each CF patient has a unique journey to travel, with notable changes along the way...

Living with an illness like cystic fibrosis (CF), the symptoms can often be "invisible" to others. Many people who have not been impacted with chronic illness in their own lives...

Cystic fibrosis has pushed me to my limits and then compelled me to go past them; time and time again. My perspective on life has been altered in many ways...

My daughter Caroline was two years old when we noticed she was developing medical anxiety. Most children do not enjoy going to the doctor and many tend to get nervous...

February is Black History Month. As health advocates, it’s important that we engage in dialogue on how health disparities exist for minorities across the globe. While cystic fibrosis (CF) is...

Navigating the pandemic with two kids under five is no joke. I feel like I’m in a game of dodgeball and am just ducking and pivoting to narrowly escape the...

Planning a weekend break, a long haul trip or just a family holiday has always been difficult with CF. After Covid, many patients are struggling with traveling again due to...

When you are diagnosed with a rare disease like cystic fibrosis, you might feel overwhelmed about what to expect. Because few people have your disease, there may be a lack...

As more women with CF reach childbearing age and start families of their own, the question of how to feed their baby is becoming much more commonplace. Many new CF...

I was talking to someone about relationships recently. More specifically, we were talking about how hard boundaries can be, but how they can help relationships so much. At one point...

There are so many ways to get involved with cystic fibrosis advocacy and research – from talking to loved ones about life with CF to donating to CF foundations, and...