Staying Organized with CFHello everyone! For my first article I’m beginning with something I have struggled with a lot when it comes to advocating for...reactions3comments
PleurisyCystic fibrosis (CF) is a chronic disease that primarily impacts the lungs. Lung infections are more severe with lung disease. They cause...reactionscomments
Cystic-Fibrosis.com Giveaway Terms and ConditionsThese Official Rules apply to any giveaway (or “Promotion”) published on Cystic-Fibrosis.com, a Health Union (“Health Union” or “We”) owned and operated...reactionscomments
Breastfeeding My Baby on TrikaftaWith an exciting uptick of women with CF having children, naturally there’s been an increase in women deciding how to feed their...reactionscomments
My Two CF Birth Stories: Part OneThere’s days where I wish August 4th, 1995 could peek into the future and see me now 26 years after my cystic...reactionscomments
My Scars Are Proof I'm LuckyI used to joke that I was the board game “Operation” because my body was covered in scars. By age 18, I...reactionscomments
CF and KindergartenOur daughter, Margo, will be starting kindergarten in the fall. On one hand, this makes complete sense to me, and on the...reactionscomments
Two Years of TrikaftaThis March marks two years since I started taking Trikafta. I remember getting the package in the mail. It was just a...reactions1comment
Hospitalization HacksHello there! For my first article, I thought I'd start with something I have a lot of experience with: getting hospitalized. Below...reactions2comments
This or That: CF EditionWe all have different preferences, which is what makes us unique! Playing This or That can be a fun way to learn...reactionscomments
What Are Patient Support Programs?If you are prescribed a high-cost drug, chances are, you have had experience with patient support programs. Patient support programs, or PSPs...reactionscomments
IV Antibiotics: Hospital or Home?A big box was dropped on my doorstep filled with the most unexciting gifts: IV antibiotics. After a small bout of hemoptysis...reactionscomments
The Many Colors of Cystic Fibrosis: Brown (Part 2)In my previous article, I detailed my journey with gastrointestinal issues including pancreatic insufficiency, malnutrition, and dumping syndrome. In 2017, we began...reactionscomments
Take the Health and Media Habits Survey!The Media Habits Survey is now closed. Thank you for your interest! Managing a chronic condition is not easy and can be...reactionscomments
The Many Colors of Cystic Fibrosis: Brown (Part 1)If you haven’t read my previous article, “The Many Colors of Cystic Fibrosis: Clear”, just know that I am a huge fan...reactionscomments
Thank You CF: The Positives of Marrying Someone with Cystic Fibrosis"Are you sure you want to commit to this?" "What happens if she gets really sick or dies at a young age?"...reactionscomments
Trikafta and Life Without My CF CoughBefore Trikafta, it was difficult to imagine life without… a cough. That cough. The cough we all know too well. I believe...reactionscomments
Attending Physical Therapy for CF Back PainAs people with cystic fibrosis (CF) continue to live longer lives, unique challenges arise such as musculoskeletal issues like back pain. Anyone...reactions1comment
Breaking The SilenceFor the longest while, I have been debating what the topic of my first post on here should be. I don’t want...reactions2comments
Ask the Advocates: Notable Changes in Your CF JourneyCystic fibrosis (CF) has had many advances over the years in treatment, research and awareness. Each CF patient has a unique journey...reactionscomments
