Ask the Health Leaders: Telehealth or In-Person?Technology has come a long way, and we now have the option to receive care from medical professionals in the comfort of...reactionscomments
Effects of COVID-19 on Anxiety Levels of Children with CF and Their PeersWhen the COVID-19 pandemic broke out in March 2020, nearly everyone had increased anxiety and stress. Fears of getting sick, dying, or...reactionscomments
Ask the Advocates: CF AdvocacyThere are so many ways to get involved with cystic fibrosis advocacy and research – from talking to loved ones about life...reactionscomments
Building Good Relationships With Our Care TeamsRelationships with our healthcare teams are integral to our health journey. This can feel especially true when living with cystic fibrosis (CF)...reactionscomments
Shopping Smarter for the Holiday SeasonThe holiday season is about to start! Each family has different traditions and beliefs around the holidays. But most people do see...reactionscomments
My Moment Of RebellionAs long as I can remember, I have always done my best to please those influential people in my life: my parents...reactions2comments
Nine Lessons 2020 Taught Us About DisabilityThe year 2020 taught us a lot about ourselves and overcoming adversaries. After the onset of COVID-19, many non-disabled people were faced...reactionscomments
Life with CF: An Interview and InsightOur current life events in shutdown and quarantine remind me how twenty-five years ago when my son was diagnosed with cystic fibrosis...reactionscomments
What Is Gene Therapy?Genes are the pieces of DNA that make us who we are. They determine our eye and hair color, how tall we...reactionscomments
The Many Colors of Cystic Fibrosis: Beige (Part 2)In my last article, I discussed the impact of the color beige on my journey with cystic fibrosis (CF). Let’s continue talking about...reactionscomments
The Many Colors of Cystic Fibrosis: Beige (Part 1)If you haven’t read my columns before, allow me to reintroduce myself. My name is Nicole Kohr. I am a cystic fibrosis...reactionscomments
Off to KindergartenWe are officially one month into kindergarten, and so far, we have had only positive experiences in Margo’s transition. She went from...reactionscomments
Managing Time As An Adult With CFRecently, I was talking to my sister about her three kids starting school again. In addition to the new school year, we...reactionscomments
Updating Your Name When You Receive MedicareHappy October everyone! Today I wanted to talk about how to change your name after marriage. I was recently married in September...reactionscomments
Let's Go Camping (With Trikafta)A redemptive sense of freedom was gifted to me when I started taking Trikafta. As my lungs cleared away infection, it also...reactionscomments
How Has CF Affected Your Hobbies & Passions?If you or a loved one has CF, you probably know that it can dictate what types of hobbies we can have...reactionscomments
Planning for Motherhood: Health ConsiderationsAs people with cystic fibrosis continue to live longer and healthier lives, adult milestones are becoming more attainable. For the first time...reactionscomments
Crawling Towards the CureYou know how when you’re running a race and you’re so tired you just want to stop, but then you see the...reactionscomments
Topics I Hope to See Covered at the NACFCEvery year, I look forward to tuning into the North American Cystic Fibrosis Conference (NACFC) to learn more about the newest research...reactionscomments
Living In The Trikafta EraMany of us are old hats when it comes to the bog standard CF stuff. So, this new territory that is the...reactionscomments
