Honoring the CF Experience: Invisible IllnessLiving with an illness like cystic fibrosis (CF), the symptoms can often be "invisible" to others. Many people who have not been...reactions1comment
Cystic Fibrosis Changed My Personality And This Is HowCystic fibrosis has pushed me to my limits and then compelled me to go past them; time and time again. My perspective...reactions1comment
Helping My Child Cope with Medical AnxietyMy daughter Caroline was two years old when we noticed she was developing medical anxiety. Most children do not enjoy going to...reactionscomments
A New Screening Tool for CF in Non-White PeopleFebruary is Black History Month. As health advocates, it’s important that we engage in dialogue on how health disparities exist for minorities...reactionscomments
Navigating a Pandemic with Kids Under 5Navigating the pandemic with two kids under five is no joke. I feel like I’m in a game of dodgeball and am...reactionscomments
Passport, Pills, Plan: The Ultimate CF Jet Setter GuidePlanning a weekend break, a long haul trip or just a family holiday has always been difficult with CF. After Covid, many...reactions2comments
Strategies for Coping With a Rare Disease Like Cystic FibrosisWhen you are diagnosed with a rare disease like cystic fibrosis, you might feel overwhelmed about what to expect. Because few people...reactionscomments
Can Women With CF Successfully Breastfeed?As more women with CF reach childbearing age and start families of their own, the question of how to feed their baby...reactionscomments
Setting Boundaries For Your HealthI was talking to someone about relationships recently. More specifically, we were talking about how hard boundaries can be, but how they...reactionscomments
Ask the Advocates: CF AdvocacyThere are so many ways to get involved with cystic fibrosis advocacy and research – from talking to loved ones about life...reactionscomments
The Role of Community Pharmacist in Your CF JourneyNumerous healthcare professionals are involved in CF care. Most often, people don’t think of their pharmacist as part of their CF team...reactionscomments
50 is the New 25: Life Expectancy With CFAt the NACFC (North American CF Conference) in October 2021, some very exciting news was announced for people and families living with...reactions3comments
Effects of COVID-19 on Anxiety Levels of Children with CF and Their PeersWhen the COVID-19 pandemic broke out in March 2020, nearly everyone had increased anxiety and stress. Fears of getting sick, dying, or...reactionscomments
The Many Colors of Cystic Fibrosis: ClearIf you haven’t had a chance to read my previous articles, just know that I’ve always been inspired by the colors of...reactionscomments
Ask the Advocates: DIOSDistal intestinal obstruction syndrome (DIOS) is a condition where the small intestines get blocked by thickened stool. About 15 percent of people...reactionscomments
Dealing with Depression and Anxiety in CFCystic fibrosis (CF) brings its own sets of challenges that are unique to us as patients. I know everybody deals with depression...reactions2comments
6 Tips for Staying on Top of TreatmentLiving with a long-term health condition requires us to stay on top of everything: doctor’s appointments, new symptoms, insurance, and, of course...reactionscomments
Decompression After the HolidaysThe excitement, or dread, that surrounds the holiday season is hard to ignore. People are busy. Shops are open late. Lines are...reactions2comments
What's New in Clinical TrialsThe CF community has seen the advent of disease altering treatments in the last few years and a spurred interest from researchers...reactionscomments
Ask the Advocates: COVID-19We asked our advocates on Cystic-Fibrosis.com to share their perspectives on the COVID-19 pandemic, and how their lives have been impacted so...reactionscomments