Articles

Thanks to medical advancements and recent breakthroughs in treatment options, people with cystic fibrosis (CF) are living longer and healthier lives than ever before. A few decades ago, few people...

In Part One of this series, I shared what survivor’s guilt is. I also shared some common symptoms of survivor’s guilt. We talked about how survivor’s guilt is a normal...

The U.S. Food and Drug Administration (FDA) has authorized a new drug that may help prevent COVID-19. It is called Evusheld (tixagevimab co-packaged with cilgavimab).1-3 Evusheld is not authorized for...

Approximately 30-40% of people with CF have a GI complication called Small Intestinal Bacterial Overgrowth (SIBO). Although SIBO isn’t generally talked about a lot in the CF community, it is...

Cystic fibrosis (CF) affects more than just the lungs, and it is always important to follow the advice of your CF care team. However, alternative treatments can bring additional comfort...

PICC line and port scars, meconium ileus surgery scars, lung transplant scars, and G-tube scars - that’s just the beginning of the permanent marks CF can leave on the body...

Not too long ago, I read an article about people who live with a chronic illness. In this article, it spoke about how people who are chronically ill juggle a...

When life with cystic fibrosis (CF) is all you know, it can be challenging to describe this reality to people who know little or nothing about it. To learn more...

People living with cystic fibrosis (CF) have unique needs that require comprehensive care from infancy to adulthood. A care team that includes different doctors and care providers ensures that people...

Terrence Ho is an end-of-life doula, working with families and loved ones of those nearing death to bring support and preparation to the end-of-life process. In Part II of Cystic-Fibrosis.com's...

Ho, ho, ho! It’s a good time to wrap up your holiday shopping (or maybe you're the type that needs to scramble and start shopping) as the end of the...

Terrence Ho is an end-of-life doula, working with families and loved ones of those nearing death to bring support and preparation to the end-of-life process. In Part I of Cystic-Fibrosis.com's...

"Joseph and the Technicolor Dreamcoat" is a very popular musical this time of year. I always loved gazing at the coat in admiration and wondering how those colors applied to...

With the holidays right around the corner, now is the perfect time to start purchasing gifts for your friends and families, especially those little ones living with CF. Full disclosure...

I married into a family that loves being outdoors--camping, mountain biking, running, hiking, you name it--they do it all. At first, this was totally intimidating because I didn’t grow up...

Staying active can feel like a balancing act, especially as a person living with cystic fibrosis (CF). Sure, there are plenty of fun ways to get your body moving. But...

Have you ever heard of the term “self-care”? I have heard a lot about self-care recently, especially during the pandemic. During the pandemic, a time when so many people were...

Official Rules, Terms and Conditions for the CF Coloring Book Giveaway NO PURCHASE NECESSARY TO ENTER OR WIN. A PURCHASE DOES NOT INCREASE YOUR CHANCES OF WINNING. VOID WHERE PROHIBITED...

Living with cystic fibrosis (CF) includes many challenges, including infertility. Infertility affects about 98 percent of men with CF, and women with CF may be less fertile than other women...

The definition of advocacy is to support another by giving them a voice. This, I think, rings so true when being part of the current CF community. Sometimes we are...