Your Voice Matters - Advocating for Cystic FibrosisWhen I stepped out of my comfort zone and started raising awareness, I never thought I would actually teach someone about cystic...reactionscomments
Study Finds People of Color with CF Have Worse Lung FunctionA published study finds that certain people of color with cystic fibrosis (CF) have poorer lung function than white people with the...reactionscomments
Labor and Delivery With CFEntering into parenthood with CF can be an exciting and anxious time for many couples. However, first you need to give birth...reactionscomments
What is Eating Fatigue in CF?For decades, many people living with cystic fibrosis struggled to gain and maintain their weight. Once enzymes were introduced in the 1950s...reactions1comment
Community Views: Feelings About Increases in Life ExpectancyThanks to medical advancements and recent breakthroughs in treatment options, people with cystic fibrosis (CF) are living longer and healthier lives than...reactionscomments
Surviving Survivor's Guilt (Part Two)In Part One of this series, I shared what survivor’s guilt is. I also shared some common symptoms of survivor’s guilt. We...reactionscomments
FDA Approves Drug for Pre-Exposure Prevention of COVID-19The U.S. Food and Drug Administration (FDA) has authorized a new drug that may help prevent COVID-19. It is called Evusheld (tixagevimab...reactionscomments
Small Intestinal Bacterial Overgrowth (SIBO) in CFApproximately 30-40% of people with CF have a GI complication called Small Intestinal Bacterial Overgrowth (SIBO). Although SIBO isn’t generally talked about...reactionscomments
Alternative Treatments for CFCystic fibrosis (CF) affects more than just the lungs, and it is always important to follow the advice of your CF care...reactionscomments
Honoring Your CF ScarsPICC line and port scars, meconium ileus surgery scars, lung transplant scars, and G-tube scars - that’s just the beginning of the...reactionscomments
Surviving Survivor's Guilt (Part One)Not too long ago, I read an article about people who live with a chronic illness. In this article, it spoke about...reactionscomments
Community Views: How to Describe CF to Someone Who Has Never Heard of ItWhen life with cystic fibrosis (CF) is all you know, it can be challenging to describe this reality to people who know...reactionscomments
Stories From Our CF Community: CF Care TeamPeople living with cystic fibrosis (CF) have unique needs that require comprehensive care from infancy to adulthood. A care team that includes...reactions5comments
Interview with Terrence Ho: End-of-Life Doula (Part II)Terrence Ho is an end-of-life doula, working with families and loved ones of those nearing death to bring support and preparation to...reactionscomments
Holiday Gift Guide for Adults With CFHo, ho, ho! It’s a good time to wrap up your holiday shopping (or maybe you're the type that needs to scramble...reactionscomments
Interview with Terrence Ho: End-of-Life Doula (Part I)Terrence Ho is an end-of-life doula, working with families and loved ones of those nearing death to bring support and preparation to...reactionscomments
The Many Colors Of Cystic Fibrosis: Green"Joseph and the Technicolor Dreamcoat" is a very popular musical this time of year. I always loved gazing at the coat in...reactions1comment
My Holiday Gift Guide for Children With CFWith the holidays right around the corner, now is the perfect time to start purchasing gifts for your friends and families, especially...reactionscomments
Hiking Safely With CFI married into a family that loves being outdoors--camping, mountain biking, running, hiking, you name it--they do it all. At first, this...reactions1comment
Staying Active with CFStaying active can feel like a balancing act, especially as a person living with cystic fibrosis (CF). Sure, there are plenty of...reactionscomments
