Alternative Treatments for CFCystic fibrosis (CF) affects more than just the lungs, and it is always important to follow the advice of your CF care team. However, alternative treatments can bring additional comfort...Reactions0reactionsComments0 comments
Honoring Your CF ScarsPICC line and port scars, meconium ileus surgery scars, lung transplant scars, and G-tube scars - that’s just the beginning of the permanent marks CF can leave on the body...Reactions0reactionsComments0 comments
Surviving Survivor's Guilt (Part One)Not too long ago, I read an article about people who live with a chronic illness. In this article, it spoke about how people who are chronically ill juggle a...Reactions0reactionsComments0 comments
Community Views: How to Describe CF to Someone Who Has Never Heard of ItWhen life with cystic fibrosis (CF) is all you know, it can be challenging to describe this reality to people who know little or nothing about it. To learn more...Reactions0reactionsComments0 comments
Stories From Our CF Community: CF Care TeamPeople living with cystic fibrosis (CF) have unique needs that require comprehensive care from infancy to adulthood. A care team that includes different doctors and care providers ensures that people...Reactions0reactionsComments5 comments
Interview with Terrence Ho: End-of-Life Doula (Part II)Terrence Ho is an end-of-life doula, working with families and loved ones of those nearing death to bring support and preparation to the end-of-life process. In Part II of Cystic-Fibrosis.com's...Reactions0reactionsComments0 comments
Holiday Gift Guide for Adults With CFHo, ho, ho! It’s a good time to wrap up your holiday shopping (or maybe you're the type that needs to scramble and start shopping) as the end of the...Reactions0reactionsComments0 comments
Interview with Terrence Ho: End-of-Life Doula (Part I)Terrence Ho is an end-of-life doula, working with families and loved ones of those nearing death to bring support and preparation to the end-of-life process. In Part I of Cystic-Fibrosis.com's...Reactions0reactionsComments0 comments
The Many Colors Of Cystic Fibrosis: Green"Joseph and the Technicolor Dreamcoat" is a very popular musical this time of year. I always loved gazing at the coat in admiration and wondering how those colors applied to...Reactions0reactionsComments1 comments
My Holiday Gift Guide for Children With CFWith the holidays right around the corner, now is the perfect time to start purchasing gifts for your friends and families, especially those little ones living with CF. Full disclosure...Reactions0reactionsComments0 comments
Hiking Safely With CFI married into a family that loves being outdoors--camping, mountain biking, running, hiking, you name it--they do it all. At first, this was totally intimidating because I didn’t grow up...Reactions0reactionsComments1 comments
Staying Active with CFStaying active can feel like a balancing act, especially as a person living with cystic fibrosis (CF). Sure, there are plenty of fun ways to get your body moving. But...Reactions0reactionsComments0 comments
Self-CareHave you ever heard of the term “self-care”? I have heard a lot about self-care recently, especially during the pandemic. During the pandemic, a time when so many people were...Reactions0reactionsComments0 comments
CF Coloring Book Giveaway Terms and ConditionsOfficial Rules, Terms and Conditions for the CF Coloring Book Giveaway NO PURCHASE NECESSARY TO ENTER OR WIN. A PURCHASE DOES NOT INCREASE YOUR CHANCES OF WINNING. VOID WHERE PROHIBITED...Reactions0reactionsComments0 comments
Stories from Our CF Community: InfertilityLiving with cystic fibrosis (CF) includes many challenges, including infertility. Infertility affects about 98 percent of men with CF, and women with CF may be less fertile than other women...Reactions0reactionsComments0 comments
Ask The Advocates: Importance Of Research and AdvocacyThe definition of advocacy is to support another by giving them a voice. This, I think, rings so true when being part of the current CF community. Sometimes we are...Reactions0reactionsComments0 comments
CF and Sex 101: Reproduction and Sexual FunctionSex is a normal, fun, and important part of our lives as humans. Whether you have CF or not, you have the right to connect with others and enjoy intimacy...Reactions0reactionsComments0 comments
Opioids for Cystic Fibrosis Pain: Benefits, Risks, and ConcernsResearch shows that more than 75 percent of adults with cystic fibrosis (CF) live with chronic pain. Many use prescription opioids to help reduce this pain. In 2021, researchers developed...Reactions0reactionsComments2 comments
How to Talk to Kids About IllnessCreating a good relationship with our nieces and nephews has been so important to me and my husband. One of the ways we have helped to foster that healthy relationship...Reactions0reactionsComments0 comments
The Many Colors of Cystic Fibrosis: Red (Part 2)Have you read my most recent post, “The Many Colors of Cystic Fibrosis: Red (Part 1)?” If not, just know that I am a huge fan of “Joseph and the...Reactions0reactionsComments0 comments