The Middle: An IVF JourneyIn this series, I am detailing my experience with IVF and genetic testing. You can visit the first installment here! This was...reactionscomments
Confession: Dealing With COVID Medical AnxietyAs the past two years came to a head and COVID-19 entered our house, I felt a break in my cool, calm...reactionscomments
Four Hard Truths Of Being A New Mom With CFThey say motherhood is the hardest thing you’ll ever do. What they don’t divulge about motherhood is how physically and mentally demanding...reactionscomments
How Trikafta Changed My LifeTrikafta is "pure magic" in a blister pack. "The golden ticket, the sunshine pill, the miracle". The commentary I heard from consumers...reactions4comments
Five Reasons to Join Research in the Post-Trikafta EraIn the fall of 2019 something amazing happened to the CF community: the newest CFTR modulator, Trikafta, became available. Many lives were...reactionscomments
Is Cystic Fibrosis a Disability?Living with cystic fibrosis (CF) may make it harder to earn a living. Shortness of breath, the need for rest breaks, and...reactionscomments
Migraines and CF: Are They Related?Migraines an extremely common condition; In fact, migraine is considered the third most common condition in the world. 12-15% of the population...reactionscomments
Do You Smell That? CF and Loss of SmellThere are so many wonderful (and gag-worthy) smells we experience in our day-to-day lives. Freshly baked cookies, a bouquet of roses, sunscreen...reactions1comment
Mental Health EmergenciesMental health emergencies can look different for different people. They all can put you at risk of losing your life, getting into...reactionscomments
May MadnessIn May we celebrate many things. Mothers. Cinco de Mayo. Memorial Day. The arrival of new growth and warmer days. We also...reactionscomments
First Child-Free VacationMargo was born almost five years ago, and in that time, my husband and I have only spent a handful of nights...reactionscomments
Thank You! To My CF CaregiversAs a person living with cystic fibrosis (CF), I know my life is hard. I know I go through so many things...reactionscomments
The Many Colors of Cystic Fibrosis: Purple (Part 1)May is cystic fibrosis awareness month, which is represented by the color purple. Purple is rarely seen in a hospital setting, so...reactions1comment
Ask the Advocates: Privacy In PublicCystic fibrosis (CF) can go hand-in-hand with uncomfortable symptoms that are difficult to resolve or mask in public. For example, symptoms like...reactionscomments
Caregiver and PatientI spent my life essentially being a patient. I was diagnosed with cystic fibrosis (CF) at age 12, after dealing with a...reactionscomments
Don't Ignore Me! Signed, PneumoniaGenerally – at least I think this is true – breathing in and out is NOT supposed to hurt. In fact, with...reactions2comments
Mental Health Side EffectsI was fortunate to not struggle with mental health when I was growing up. It wasn’t until I was an adult that...reactionscomments
The Power of TechnologyTechnology. Can't live with it, can’t live without it. When you think of technological advances most people think of the many blessings...reactionscomments
Ask the Health Leaders: Family and Friend SupportSupport from family and friends can be a game-changer when living with cystic fibrosis (CF). It can look different for each person...reactionscomments
Learning Who I Am AgainIn another blog I wrote recently, I talked about my two year anniversary since I began taking Trikafta. All in all, it...reactionscomments
