Digital Health vs. Digital TherapeuticsTechnology is now a common way to deliver healthcare. Digital health products help prevent, diagnose, or manage chronic conditions. Devices range from wellness apps to artificial intelligence and wearable devices...reactionscomments
Postural Drainage and PercussionPostural drainage and percussion (PD&P) are often used together to help clear the lungs and airway in cystic fibrosis (CF). Postural drainage uses gravity to drain thick, sticky mucus. It...reactionscomments
Complementary Therapies To Help Manage CF SymptomsI have been a huge fan of alternative medicine and complementary therapies to help manage my cystic fibrosis journey. Here I share some of my top-rated add on's. Antibiotics especially...reactionscomments
Peripheral Neuropathy (Feet)I have painful feet. I was shocked when the doctor told me that I have peripheral neuropathy, but it explained why I could not walk without being in horrible pain...reactions4comments
Supplemental Oxygen on FlightsThe topic of travel may not be at the forefront of your thoughts these days. However, the approaching warm weather may have some people scouring for flight and destination deals...reactions1comment
Cystic Fibrosis and Crohn's DiseaseDoctors and researchers speculate that there may be a relationship between Crohn’s disease and cystic fibrosis (CF). However, research on the link is still limited at this time. Crohn’s disease...reactionscomments
Three Ways to Sanitize Nebulizer CupsAn important step in airway clearance is the maintenance and cleaning of nebulizer cups used to nebulizer inhaled medications. Since I care about my overall lung health and work so...reactionscomments
Nutritious Ways to Boost Your Toddler's WeightMaintaining a healthy weight is essential for someone with cystic fibrosis. A low BMI is a risk factor in lung function decline and a normal BMI may help reduce the risk...reactionscomments
An Interview With My Son With CFOur son is 12 years old. He has only known life with CF. As much as I try to know how is feeling and what he is thinking about this...reactionscomments
Cystic Fibrosis and COVID-19Since late 2019, COVID-19 has become a household name. It has changed many aspects of daily life. Especially for those living with chronic conditions. "Quarantine," "social distancing," and "herd immunity"...reactionscomments
Interview with Emily Kramer-Golinkoff of Emily's EntourageWe sat down with Emily Kramer-Golinkoff, Co-Founder of Emily's Entourage and internationally recognized patient advocate and speaker. We chatted about her organization, her accomplishments, role models in the CF community...reactionscomments
Is Airline Travel Safe in the Post-COVID Era with CF?As the newly vaccinated US begins emerging from the terrible control of COVID-19, many people are eager to dust off their suitcases and passports and finally start traveling again. After...reactionscomments
Smell the RosesI have written about my sinus surgeries due to nasal polyps. Nasal polyps and sinus surgeries are routine for those of us with cystic fibrosis. Polyps are usually a problem...reactions2comments
CF Resilience PlaylistMusic helps us deal with difficult times and process emotions we otherwise would not have words for. It can invoke feelings in us that we were not currently experiencing, such...reactionscomments
Creating a New RoutineMost people have a routine of some sort, even if they are unaware, and it varies from person to person depending on their specific needs and goals. For example, when...reactionscomments
Starting Treatment with Inhaled Amikacin (Arikayce)People with cystic fibrosis (CF) are no strangers to antibiotics. Some antibiotics are well-known in the CF sphere as they are commonly used. One less-known antibiotic is amikacin, which is...reactionscomments
Depression Is Where I Was Finally Able to Accept CFI can’t remember the first time I experienced depression, but I know the black dog has been my friend for many years. Being at my most destructive when I was...reactions2comments
Does CF Cause Kidney Stones?Have you ever passed a dreaded kidney stone? If you have, then you know having a kidney stone is not a fun experience. Pretty painful and annoying? Yes. Fun? Not...reactionscomments
Airway Clearance VestsIf you or a loved one have cystic fibrosis, using an airway clearance vest is a familiar practice to you. Choosing a vest, on the other hand? That may be...reactions4comments
Mornings are Tough with CF Part 2: Tips and TricksIn Part 1 of this article series, I discussed how mornings are not an easy part of the day for a lot of people living with CF. Due to fatigue...reactionscomments
