Nasal Pressure Headaches/MigrainesNasal pressure from blocked nasal passages is bad enough but the accompanying headache increases it to terrible. In my case, my sinuses...reactions2comments
How Can a Gastroenterologist Treat People with Cystic Fibrosis?When most people think of cystic fibrosis (CF), they think of difficulty breathing and clogged lungs. And they are not wrong. People...reactions4comments
If There Was One Thing I Could Change about HealthcareIn my health journey, I have experienced times when doctors have treated me as though I don’t understand enough about my disease...reactionscomments
How Can CF Affect Oral Health?It’s been ingrained into us since early childhood and the days of blue bubblegum toothpaste how important it is to take care...reactionscomments
Digital Health vs. Digital TherapeuticsTechnology is now a common way to deliver healthcare. Digital health products help prevent, diagnose, or manage chronic conditions. Devices range from...reactionscomments
Postural Drainage and PercussionPostural drainage and percussion (PD&P) are often used together to help clear the lungs and airway in cystic fibrosis (CF). Postural drainage...reactionscomments
Complementary Therapies To Help Manage CF SymptomsI have been a huge fan of alternative medicine and complementary therapies to help manage my cystic fibrosis journey. Here I share...reactionscomments
Peripheral Neuropathy (Feet)I have painful feet. I was shocked when the doctor told me that I have peripheral neuropathy, but it explained why I...reactions4comments
Supplemental Oxygen on FlightsThe topic of travel may not be at the forefront of your thoughts these days. However, the approaching warm weather may have...reactions1comment
Cystic Fibrosis and Crohn's DiseaseDoctors and researchers speculate that there may be a relationship between Crohn’s disease and cystic fibrosis (CF). However, research on the link...reactionscomments
Three Ways to Sanitize Nebulizer CupsAn important step in airway clearance is the maintenance and cleaning of nebulizer cups used to nebulizer inhaled medications. Since I care...reactionscomments
Nutritious Ways to Boost Your Toddler's WeightMaintaining a healthy weight is essential for someone with cystic fibrosis. A low BMI is a risk factor in lung function decline and...reactionscomments
An Interview With My Son With CFOur son is 12 years old. He has only known life with CF. As much as I try to know how is...reactionscomments
Cystic Fibrosis and COVID-19Since late 2019, COVID-19 has become a household name. It has changed many aspects of daily life. Especially for those living with...reactionscomments
Interview with Emily Kramer-Golinkoff of Emily's EntourageWe sat down with Emily Kramer-Golinkoff, Co-Founder of Emily's Entourage and internationally recognized patient advocate and speaker. We chatted about her organization...reactionscomments
Is Airline Travel Safe in the Post-COVID Era with CF?As the newly vaccinated US begins emerging from the terrible control of COVID-19, many people are eager to dust off their suitcases...reactionscomments
Smell the RosesI have written about my sinus surgeries due to nasal polyps. Nasal polyps and sinus surgeries are routine for those of us...reactions2comments
CF Resilience PlaylistMusic helps us deal with difficult times and process emotions we otherwise would not have words for. It can invoke feelings in...reactionscomments
Creating a New RoutineMost people have a routine of some sort, even if they are unaware, and it varies from person to person depending on...reactionscomments
Starting Treatment with Inhaled Amikacin (Arikayce)People with cystic fibrosis (CF) are no strangers to antibiotics. Some antibiotics are well-known in the CF sphere as they are commonly...reactionscomments
