CF Resilience PlaylistMusic helps us deal with difficult times and process emotions we otherwise would not have words for. It can invoke feelings in us that we were not currently experiencing, such... By Editorial Team 1 min readBookmark for laterReactions 0 reactions Comments0 comments
Creating a New RoutineMost people have a routine of some sort, even if they are unaware, and it varies from person to person depending on their specific needs and goals. For example, when... By Katelyn Harlow3 min readBookmark for laterReactions 0 reactions Comments0 comments
Starting Treatment with Inhaled Amikacin (Arikayce)People with cystic fibrosis (CF) are no strangers to antibiotics. Some antibiotics are well-known in the CF sphere as they are commonly used. One less-known antibiotic is amikacin, which is... By Canadian Pharmacist2 min readBookmark for laterReactions 0 reactions Comments0 comments
Depression Is Where I Was Finally Able to Accept CFI can’t remember the first time I experienced depression, but I know the black dog has been my friend for many years. Being at my most destructive when I was... By Emma Boniface3 min readBookmark for laterReactions 0 reactions Comments2 comments
Does CF Cause Kidney Stones?Have you ever passed a dreaded kidney stone? If you have, then you know having a kidney stone is not a fun experience. Pretty painful and annoying? Yes. Fun? Not... By Janeil Whitworth3 min readBookmark for laterReactions 0 reactions Comments0 comments
Airway Clearance VestsIf you or a loved one have cystic fibrosis, using an airway clearance vest is a familiar practice to you. Choosing a vest, on the other hand? That may be... By Editorial Team 5 min readBookmark for laterReactions 0 reactions Comments2 comments
Mornings are Tough with CF Part 2: Tips and TricksIn Part 1 of this article series, I discussed how mornings are not an easy part of the day for a lot of people living with CF. Due to fatigue... By Janeil Whitworth2 min readBookmark for laterReactions 0 reactions Comments0 comments
Take the Person Before Patient SurveyThe Person Before Patient Survey is now closed. Thank you for your interest! What makes us the people we are? Living with a serious health condition like cystic fibrosis can... By Editorial Team 1 min readBookmark for laterReactions 0 reactions Comments0 comments
The Final 10%: Take The 2022 Survey From Emily's EntourageEmily’s Entourage is conducting a survey about the “final 10%” of the CF community that does not benefit from currently available CFTR modulators. If you are part of the final... By Editorial Team 2 min readBookmark for laterReactions 0 reactions Comments0 comments
Lung Transplants and CF For those with cystic fibrosis (CF) who continue to experience lung progression with treatment, a lung transplant may be an additional treatment option to prevent respiratory failure. From the period... By Canadian Pharmacist2 min readBookmark for laterReactions 0 reactions Comments9 comments
Mornings are Tough with CFNot a morning person? You’re definitely not alone. Our circadian rhythms have an impact on how alert we are throughout the day and how well we handle the demands of... By Janeil Whitworth2 min readBookmark for laterReactions 0 reactions Comments0 comments
If You Could Have Any Career, What Would It Be and Why?It is no secret that having cystic fibrosis affects many of life's choices, including what kind of career to pursue. Some people with CF may have an affinity for the... By Editorial Team 6 min readBookmark for laterReactions 0 reactions Comments0 comments
Should I Go For It? Dating Someone with CF (Part 1)Wow! That girl is hot! She is also super cool. She dances, sings, does comedy, she likes a lot of the things that I like...wait, what is this CF thing... By Andrew Loebach3 min readBookmark for laterReactions 0 reactions Comments1 comments
AwakeI have no idea who goes through this, but I find myself fighting every night to just get to sleep! My problem stems from me getting more congested and a... By Marieliz Landa2 min readBookmark for laterReactions 0 reactions Comments0 comments
Constipation and CFThe majority of people have experienced the discomfort of constipation at one point in life. However, for some people, constipation is a common occurrence. Constipation occurs in up to 50%... By Canadian Pharmacist2 min readBookmark for laterReactions 0 reactions Comments0 comments
The Importance of Supplementing With Probiotics In CFWe are taught how to manage pancreatic insufficiency with enzymes. Then given laxatives, food diaries, and stool charts to help manage other gut issues. But, where is the prescription for... By Emma Boniface2 min readBookmark for laterReactions 0 reactions Comments3 comments
What Is a “Nonclassic” Cystic Fibrosis Symptom That You Experience?Everyone in the cystic fibrosis community can name the telltale symptoms of CF: coughing, shortness of breath, gastrointestinal issues, frequent infections, and salty skin. However, there are so many more... By Editorial Team 4 min readBookmark for laterReactions 0 reactions Comments3 comments
You've Decided You Want to See a Therapist... Now What?It was a cool, dreary November day. My husband and I were at my cystic fibrosis clinic and, while we didn’t know it then, we were nearing the end of... By Katelyn Harlow4 min readBookmark for laterReactions 0 reactions Comments0 comments
Does Trikafta Make Having a Cold Any Easier?When Trikafta was released almost a year and a half ago, a slew of people started recording how quickly they got over a seasonal cold with the help of this... By Janeil Whitworth3 min readBookmark for laterReactions 0 reactions Comments0 comments
How to Prep Your Home for a CF VisitorWhen my daughter was diagnosed with cystic fibrosis, our friends and family were eager to do everything they could to help us. One of the (surprising) areas they have been... By Holly Williams4 min readBookmark for laterReactions 0 reactions Comments1 comments