Articles

An important step in airway clearance is the maintenance and cleaning of nebulizer cups used to nebulizer inhaled medications. Since I care about my overall lung health and work so...

Maintaining a healthy weight is essential for someone with cystic fibrosis. A low BMI is a risk factor in lung function decline and a normal BMI may help reduce the risk...

Our son is 12 years old. He has only known life with CF. As much as I try to know how is feeling and what he is thinking about this...

Since late 2019, COVID-19 has become a household name. It has changed many aspects of daily life. Especially for those living with chronic conditions. "Quarantine," "social distancing," and "herd immunity"...

We sat down with Emily Kramer-Golinkoff, Co-Founder of Emily's Entourage and internationally recognized patient advocate and speaker. We chatted about her organization, her accomplishments, role models in the CF community...

As the newly vaccinated US begins emerging from the terrible control of COVID-19, many people are eager to dust off their suitcases and passports and finally start traveling again. After...

I have written about my sinus surgeries due to nasal polyps. Nasal polyps and sinus surgeries are routine for those of us with cystic fibrosis. Polyps are usually a problem...

Music helps us deal with difficult times and process emotions we otherwise would not have words for. It can invoke feelings in us that we were not currently experiencing, such...

Most people have a routine of some sort, even if they are unaware, and it varies from person to person depending on their specific needs and goals. For example, when...

People with cystic fibrosis (CF) are no strangers to antibiotics. Some antibiotics are well-known in the CF sphere as they are commonly used. One less-known antibiotic is amikacin, which is...

I can’t remember the first time I experienced depression, but I know the black dog has been my friend for many years. Being at my most destructive when I was...

Have you ever passed a dreaded kidney stone? If you have, then you know having a kidney stone is not a fun experience. Pretty painful and annoying? Yes. Fun? Not...

If you or a loved one have cystic fibrosis, using an airway clearance vest is a familiar practice to you. Choosing a vest, on the other hand? That may be...

In Part 1 of this article series, I discussed how mornings are not an easy part of the day for a lot of people living with CF. Due to fatigue...

The Person Before Patient Survey is now closed. Thank you for your interest! What makes us the people we are? Living with a serious health condition like cystic fibrosis can...

Emily’s Entourage is conducting a survey about the “final 10%” of the CF community that does not benefit from currently available CFTR modulators. If you are part of the final...

For those with cystic fibrosis (CF) who continue to experience lung progression with treatment, a lung transplant may be an additional treatment option to prevent respiratory failure. From the period...

Not a morning person? You’re definitely not alone. Our circadian rhythms have an impact on how alert we are throughout the day and how well we handle the demands of...

It is no secret that having cystic fibrosis affects many of life's choices, including what kind of career to pursue. Some people with CF may have an affinity for the...

Wow! That girl is hot! She is also super cool. She dances, sings, does comedy, she likes a lot of the things that I like...wait, what is this CF thing...