Cystic Fibrosis and PneumothoraxPneumothorax is also known as a collapsed lung. It is caused by damage to the lung which then releases air into the chest cavity. For those living with cystic fibrosis...reactionscomments
The Constant Spiral of Caretaker GuiltOne feeling I was not prepared for when I became a CF caregiver was guilt. Few things can send me spiraling quicker than a perceived sense of guilt for something...reactions1comment
Morning TreatmentsGrowing up, treatments were never my favorite time of the day. Especially morning treatments. While I looked forward to the relief that my morning dose of medication gave me, I...reactionscomments
Transferring PharmaciesMoving can be a stressful. Coordinating leases, installations, and packing your life into boxes can feel like a lot. If you have a chronic illness, you also need to make...reactionscomments
Take the Managing Treatment and Medication SurveyThe Managing Treatment and Medication Survey is now closed. Thank you for your interest! Treatment is a big part of managing a chronic (long-term) health condition like cystic fibrosis (CF)...reactionscomments
HidingOne of the difficult parts of having this disease is pretending that you are okay when you are not. I believe at this point in my life I have become...reactions2comments
Why Are Fat-Soluble Vitamins Important in CF?Vitamins A, D,E, and K, or fat-soluble vitamins, play an important role in making sure people with CF are growing and healthy. From helping the body fight off dangerous bacteria...reactionscomments
Are Your Friends and Family Supportive of Your CF?It is no secret that living with cystic fibrosis (CF) can be time-consuming, frustrating, or even flat-out difficult. Due to the day-to-day challenges of living with a chronic condition like...reactionscomments
Mediterranean PizzaThis is a favorite pizza of my spouse, Cheriz! She loves the fact that it is high in fat grams, which goes great with her CF Modulator Trikafta (She needs...reactionscomments
Migraines and CF: Are They Related?Migraines an extremely common condition; In fact, migraine is considered the third most common condition in the world. 12-15% of the population is affected by migraines. The link between cystic...reactionscomments
The Many Colors of Cystic Fibrosis: BlueJoseph and the Technicolor Dream coat is one of my favorite shows. I see it every Christmas. One of my favorite songs, “Joseph Coat”, describes all of the colors on...reactionscomments
How Can a Lung Transplant Affect Cystic Fibrosis Life Expectancy?Cystic fibrosis is a genetic disease that affects the lungs, pancreas, and other vital organs. The life expectancy of someone with CF is 40 years. The disease impacts many parts...reactions2comments
When CF Treatments Become a HassleWhen our son was young, getting him to do his treatments was as simple as putting on YouTube for the 20 minutes of vest and 10 minutes of nebulized medicine...reactionscomments
Interview with Emily Lyons, CF Advocate and EntrepreneurEmily is the founder and CEO of North America's top event staffing, the multi-award-winning Femme Fatale Media Group. Emily has gone on to launch and scale several other successful companies...reactionscomments
Returning to Normal As the masks come off and regulations relax around the country, I’ve started to reflect on what the past year has meant for us as a CF family. For the...reactionscomments
CF Book Review: Breath From SaltIf you have CF, have a loved one with CF, or are just interested in science or the business model of disease non-profits, Breath from Salt: A Deadly Genetic Disease...reactionscomments
Nasal Pressure Headaches/MigrainesNasal pressure from blocked nasal passages is bad enough but the accompanying headache increases it to terrible. In my case, my sinuses inflame very easily and while I have always...reactions2comments
How Can a Gastroenterologist Treat People with Cystic Fibrosis?When most people think of cystic fibrosis (CF), they think of difficulty breathing and clogged lungs. And they are not wrong. People with CF usually have problems with mucus buildup...reactions4comments
If There Was One Thing I Could Change about HealthcareIn my health journey, I have experienced times when doctors have treated me as though I don’t understand enough about my disease for it to be worthwhile to explain details...reactionscomments
How Can CF Affect Oral Health?It’s been ingrained into us since early childhood and the days of blue bubblegum toothpaste how important it is to take care of your oral health by brushing and flossing...reactionscomments
