Why Are Fat-Soluble Vitamins Important in CF?Vitamins A, D,E, and K, or fat-soluble vitamins, play an important role in making sure people with CF are growing and healthy. From helping the body fight off dangerous bacteria...Reactions0reactionsComments0 comments
Are Your Friends and Family Supportive of Your CF?It is no secret that living with cystic fibrosis (CF) can be time-consuming, frustrating, or even flat-out difficult. Due to the day-to-day challenges of living with a chronic condition like...Reactions0reactionsComments0 comments
Mediterranean PizzaThis is a favorite pizza of my spouse, Cheriz! She loves the fact that it is high in fat grams, which goes great with her CF Modulator Trikafta (She needs...Reactions0reactionsComments0 comments
Migraines and CF: Are They Related?Migraines an extremely common condition; In fact, migraine is considered the third most common condition in the world. 12-15% of the population is affected by migraines. The link between cystic...Reactions0reactionsComments0 comments
The Many Colors of Cystic Fibrosis: BlueJoseph and the Technicolor Dream coat is one of my favorite shows. I see it every Christmas. One of my favorite songs, “Joseph Coat”, describes all of the colors on...Reactions0reactionsComments0 comments
How Can a Lung Transplant Affect Cystic Fibrosis Life Expectancy?Cystic fibrosis is a genetic disease that affects the lungs, pancreas, and other vital organs. The life expectancy of someone with CF is 40 years. The disease impacts many parts...Reactions0reactionsComments2 comments
When CF Treatments Become a HassleWhen our son was young, getting him to do his treatments was as simple as putting on YouTube for the 20 minutes of vest and 10 minutes of nebulized medicine...Reactions0reactionsComments0 comments
Interview with Emily Lyons, CF Advocate and EntrepreneurEmily is the founder and CEO of North America's top event staffing, the multi-award-winning Femme Fatale Media Group. Emily has gone on to launch and scale several other successful companies...Reactions0reactionsComments0 comments
Returning to Normal As the masks come off and regulations relax around the country, I’ve started to reflect on what the past year has meant for us as a CF family. For the...Reactions0reactionsComments0 comments
CF Book Review: Breath From SaltIf you have CF, have a loved one with CF, or are just interested in science or the business model of disease non-profits, Breath from Salt: A Deadly Genetic Disease...Reactions0reactionsComments0 comments
Nasal Pressure Headaches/MigrainesNasal pressure from blocked nasal passages is bad enough but the accompanying headache increases it to terrible. In my case, my sinuses inflame very easily and while I have always...Reactions0reactionsComments2 comments
How Can a Gastroenterologist Treat People with Cystic Fibrosis?When most people think of cystic fibrosis (CF), they think of difficulty breathing and clogged lungs. And they are not wrong. People with CF usually have problems with mucus buildup...Reactions0reactionsComments4 comments
If There Was One Thing I Could Change about HealthcareIn my health journey, I have experienced times when doctors have treated me as though I don’t understand enough about my disease for it to be worthwhile to explain details...Reactions0reactionsComments0 comments
How Can CF Affect Oral Health?It’s been ingrained into us since early childhood and the days of blue bubblegum toothpaste how important it is to take care of your oral health by brushing and flossing...Reactions0reactionsComments0 comments
Digital Health vs. Digital TherapeuticsTechnology is now a common way to deliver healthcare. Digital health products help prevent, diagnose, or manage chronic conditions. Devices range from wellness apps to artificial intelligence and wearable devices...Reactions0reactionsComments0 comments
Postural Drainage and PercussionPostural drainage and percussion (PD&P) are often used together to help clear the lungs and airway in cystic fibrosis (CF). Postural drainage uses gravity to drain thick, sticky mucus. It...Reactions0reactionsComments0 comments
Complementary Therapies To Help Manage CF SymptomsI have been a huge fan of alternative medicine and complementary therapies to help manage my cystic fibrosis journey. Here I share some of my top-rated add on's. Antibiotics especially...Reactions0reactionsComments0 comments
Peripheral Neuropathy (Feet)I have painful feet. I was shocked when the doctor told me that I have peripheral neuropathy, but it explained why I could not walk without being in horrible pain...Reactions0reactionsComments4 comments
Supplemental Oxygen on FlightsThe topic of travel may not be at the forefront of your thoughts these days. However, the approaching warm weather may have some people scouring for flight and destination deals...Reactions0reactionsComments1 comments
Cystic Fibrosis and Crohn's DiseaseDoctors and researchers speculate that there may be a relationship between Crohn’s disease and cystic fibrosis (CF). However, research on the link is still limited at this time. Crohn’s disease...Reactions0reactionsComments0 comments
