Two Years of TrikaftaThis March marks two years since I started taking Trikafta. I remember getting the package in the mail. It was just a...reactions1comment
What Are Patient Support Programs?If you are prescribed a high-cost drug, chances are, you have had experience with patient support programs. Patient support programs, or PSPs...reactionscomments
Cystic Fibrosis Changed My Personality And This Is HowCystic fibrosis has pushed me to my limits and then compelled me to go past them; time and time again. My perspective...reactions1comment
Navigating a Pandemic with Kids Under 5Navigating the pandemic with two kids under five is no joke. I feel like I’m in a game of dodgeball and am...reactionscomments
Parenting With Cystic FibrosisThe balance of being a provider and needing providing wasn’t something I thought about until I became a mother. Diagnosed with CF...reactions1comment
The Role of Community Pharmacist in Your CF JourneyNumerous healthcare professionals are involved in CF care. Most often, people don’t think of their pharmacist as part of their CF team...reactionscomments
Ask the Advocates: DIOSDistal intestinal obstruction syndrome (DIOS) is a condition where the small intestines get blocked by thickened stool. About 15 percent of people...reactionscomments
What's New in Clinical TrialsThe CF community has seen the advent of disease altering treatments in the last few years and a spurred interest from researchers...reactionscomments
Decompression After the HolidaysThe excitement, or dread, that surrounds the holiday season is hard to ignore. People are busy. Shops are open late. Lines are...reactions2comments
Your Voice Matters - Advocating for Cystic FibrosisWhen I stepped out of my comfort zone and started raising awareness, I never thought I would actually teach someone about cystic...reactionscomments
Study Finds People of Color with CF Have Worse Lung FunctionA published study finds that certain people of color with cystic fibrosis (CF) have poorer lung function than white people with the...reactionscomments
Take the Health and Media Habits Survey!The Media Habits Survey is now closed. Thank you for your interest! Managing a chronic condition is not easy and can be...reactionscomments
My Two CF Birth Stories: Part TwoIn Part One of this series, I reminisced about the birth of our first son as a new mom with cystic fibrosis...reactionscomments
Breastfeeding My Baby on TrikaftaWith an exciting uptick of women with CF having children, naturally there’s been an increase in women deciding how to feed their...reactionscomments
Connecting With CF PeersWe asked our advocates, "What methods do you use to connect with your CF peers? How do you feel about these methods?"...reactionscomments
CF Diet ManagementWe asked our advocates, "What practices have you applied to CF diet management?" Here's what we heard! Response from Cheriz K I...reactionscomments
Understanding CFWe asked our advocates, "How old were you when you felt you truly understood what cystic fibrosis is? How did you feel...reactionscomments
What Has Been The Biggest Obstacle You Have Overcome With CF?Each person in the cystic fibrosis community has had to overcome their fair share of obstacles. These obstacles come and go throughout...reactionscomments
How Has CF Impacted Your Friendships?It's no secret that cystic fibrosis touches every area of our lives. Whether we are going to school, choosing colleges, entering the...reactionscomments
Airway Clearance VestsIf you or a loved one have cystic fibrosis, using an airway clearance vest is a familiar practice to you. Choosing a...reactions4comments
