When CF Treatments Become a HassleWhen our son was young, getting him to do his treatments was as simple as putting on YouTube for the 20 minutes of vest and 10 minutes of nebulized medicine... By Misty Roussa3 min readBookmark for laterReactions 0 reactions Comments0 comments
Interview with Emily Lyons, CF Advocate and EntrepreneurEmily is the founder and CEO of North America's top event staffing, the multi-award-winning Femme Fatale Media Group. Emily has gone on to launch and scale several other successful companies... By Editorial Team 2 min readBookmark for laterReactions 0 reactions Comments0 comments
Returning to Normal As the masks come off and regulations relax around the country, I’ve started to reflect on what the past year has meant for us as a CF family. For the... By Meagan Brackeen2 min readBookmark for laterReactions 0 reactions Comments0 comments
CF Book Review: Breath From SaltIf you have CF, have a loved one with CF, or are just interested in science or the business model of disease non-profits, Breath from Salt: A Deadly Genetic Disease... By Janeil Whitworth3 min readBookmark for laterReactions 0 reactions Comments0 comments
Nasal Pressure Headaches/MigrainesNasal pressure from blocked nasal passages is bad enough but the accompanying headache increases it to terrible. In my case, my sinuses inflame very easily and while I have always... By Marieliz Landa2 min readBookmark for laterReactions 0 reactions Comments2 comments
How Can a Gastroenterologist Treat People with Cystic Fibrosis?When most people think of cystic fibrosis (CF), they think of difficulty breathing and clogged lungs. And they are not wrong. People with CF usually have problems with mucus buildup... By Editorial Team 3 min readBookmark for laterReactions 0 reactions Comments4 comments
If There Was One Thing I Could Change about HealthcareIn my health journey, I have experienced times when doctors have treated me as though I don’t understand enough about my disease for it to be worthwhile to explain details... By Ella Balasa1 min readBookmark for laterReactions 0 reactions Comments0 comments
How Can CF Affect Oral Health?It’s been ingrained into us since early childhood and the days of blue bubblegum toothpaste how important it is to take care of your oral health by brushing and flossing... By Janeil Whitworth2 min readBookmark for laterReactions 0 reactions Comments0 comments
Digital Health vs. Digital TherapeuticsTechnology is now a common way to deliver healthcare. Digital health products help prevent, diagnose, or manage chronic conditions. Devices range from wellness apps to artificial intelligence and wearable devices... By Editorial Team 2 min readBookmark for laterReactions 0 reactions Comments0 comments
Postural Drainage and PercussionPostural drainage and percussion (PD&P) are often used together to help clear the lungs and airway in cystic fibrosis (CF). Postural drainage uses gravity to drain thick, sticky mucus. It... By Editorial Team 3 min readBookmark for laterReactions 0 reactions Comments0 comments
Complementary Therapies To Help Manage CF SymptomsI have been a huge fan of alternative medicine and complementary therapies to help manage my cystic fibrosis journey. Here I share some of my top-rated add on's. Antibiotics especially... By Emma Boniface3 min readBookmark for laterReactions 0 reactions Comments0 comments
Peripheral Neuropathy (Feet)I have painful feet. I was shocked when the doctor told me that I have peripheral neuropathy, but it explained why I could not walk without being in horrible pain... By Marieliz Landa2 min readBookmark for laterReactions 0 reactions Comments4 comments
Supplemental Oxygen on FlightsThe topic of travel may not be at the forefront of your thoughts these days. However, the approaching warm weather may have some people scouring for flight and destination deals... By Canadian Pharmacist2 min readBookmark for laterReactions 0 reactions Comments1 comments
Cystic Fibrosis and Crohn's DiseaseDoctors and researchers speculate that there may be a relationship between Crohn’s disease and cystic fibrosis (CF). However, research on the link is still limited at this time. Crohn’s disease... By Editorial Team 3 min readBookmark for laterReactions 0 reactions Comments0 comments
Three Ways to Sanitize Nebulizer CupsAn important step in airway clearance is the maintenance and cleaning of nebulizer cups used to nebulizer inhaled medications. Since I care about my overall lung health and work so... By Janeil Whitworth2 min readBookmark for laterReactions 0 reactions Comments0 comments
Nutritious Ways to Boost Your Toddler's WeightMaintaining a healthy weight is essential for someone with cystic fibrosis. A low BMI is a risk factor in lung function decline and a normal BMI may help reduce the risk... By Holly Williams4 min readBookmark for laterReactions 0 reactions Comments0 comments
An Interview With My Son With CFOur son is 12 years old. He has only known life with CF. As much as I try to know how is feeling and what he is thinking about this... By Misty Roussa2 min readBookmark for laterReactions 0 reactions Comments0 comments
Cystic Fibrosis and COVID-19Since late 2019, COVID-19 has become a household name. It has changed many aspects of daily life. Especially for those living with chronic conditions. "Quarantine," "social distancing," and "herd immunity"... By Editorial Team 3 min readBookmark for laterReactions 0 reactions Comments0 comments
Interview with Emily Kramer-Golinkoff of Emily's EntourageWe sat down with Emily Kramer-Golinkoff, Co-Founder of Emily's Entourage and internationally recognized patient advocate and speaker. We chatted about her organization, her accomplishments, role models in the CF community... By Editorial Team 5 min readBookmark for laterReactions 0 reactions Comments0 comments
Is Airline Travel Safe in the Post-COVID Era with CF?As the newly vaccinated US begins emerging from the terrible control of COVID-19, many people are eager to dust off their suitcases and passports and finally start traveling again. After... By Janeil Whitworth2 min readBookmark for laterReactions 0 reactions Comments0 comments