How to Prep Your Home for a CF VisitorWhen my daughter was diagnosed with cystic fibrosis, our friends and family were eager to do everything they could to help us. One of the (surprising) areas they have been... By Holly Williams4 min readBookmark for laterReactions 0 reactions Comments1 comments
Telling Your Story May Be Good for Your Health“While writing about my health issues has not cured them, it has helped me develop better coping skills and even contributed to better management of my symptoms (and I could... By Editorial Team 3 min readBookmark for laterReactions 0 reactions Comments0 comments
What Does Advocacy Mean to You? (Part 2)In Part 1, we heard from some of our advocates about what kinds of advocacy they do and what advocacy means to them. Well, get ready for some more great... By Editorial Team 4 min readBookmark for laterReactions 0 reactions Comments0 comments
What Does Advocacy Mean to You? (Part 1)Advocacy is a pillar of the cystic fibrosis community, and we are a small but mighty group. There are lots of ways to advocate, including volunteer work, policy work, sharing... By Editorial Team 3 min readBookmark for laterReactions 0 reactions Comments0 comments
Traveling with CFTaking a vacation is meant to be about relaxing and enjoying yourself. Traveling when you have an illness like cystic fibrosis can seem scary and challenging, but it is not... By Marieliz Landa2 min readBookmark for laterReactions 0 reactions Comments6 comments
Dealing With The First Trimester of Pregnancy With CFThe first trimester, or the first 13 weeks, of pregnancy can be a really difficult time for a lot of moms-to-be. Morning sickness, fatigue, headaches, food aversions, etc. - the... By Janeil Whitworth2 min readBookmark for laterReactions 0 reactions Comments0 comments
CF and Yeast InfectionsCandida is a yeast, a type of fungus, that inhabits the normal flora in humans. However, overgrowth of candida can result in yeast infections; another term for these infections is... By Canadian Pharmacist3 min readBookmark for laterReactions 0 reactions Comments0 comments
Interview With Nicole Kohr, Author and CF AdvocateNicole Kohr is so many things; she is a daughter, an author, a comedian, a partner, a dog parent, a patient representative, and more. Oh, and she has cystic fibrosis... By Editorial Team 4 min readBookmark for laterReactions 0 reactions Comments1 comments
Coping With Urinary IncontinenceThere is usually a time in life when having CF feels embarrassing. It may be when you cough in public like you smoke a couple packs a day or perhaps... By Emma Boniface2 min readBookmark for laterReactions 0 reactions Comments3 comments
Getting the COVID-19 Vaccination With CFMy experience in receiving the first dosage of the COVID-19 vaccine was amazingly simple. When my state opened the vaccination appointments to include those with certain pre-existing conditions including cystic... By Marieliz Landa2 min readBookmark for laterReactions 0 reactions Comments0 comments
What Are Your Thoughts on Five Feet Apart?As someone in the cystic fibrosis community, you have probably heard about Five Feet Apart. Five Feet Apart is a book-turned-Blockbuster film that details and stories of Stella and Will... By Editorial Team 5 min readBookmark for laterReactions 0 reactions Comments0 comments
Is Gardening Safe with CF?With spring within reach, it’s time to break out the gardening gloves, shovel and lawn mower and get messy! Gardening is one of my favorite hobbies that helps keep me... By Janeil Whitworth3 min readBookmark for laterReactions 0 reactions Comments1 comments
Tips For Navigating a New CFRD DiagnosisHave you or a family member been newly diagnosed with cystic fibrosis-related diabetes (CFRD)? If so, you are probably feeling an array of emotions after the fact. It can be... By Janeil Whitworth3 min readBookmark for laterReactions 0 reactions Comments0 comments
What Are Digital Therapeutics?Digital therapeutics (DTx) first entered clinical discussions in the 1990s. The idea was that technology could improve healthcare access. It could help overcome barriers of location, time, and resources. This... By Editorial Team 3 min readBookmark for laterReactions 0 reactions Comments0 comments
Genetic Counseling for Cystic FibrosisIf you have cystic fibrosis (CF) or if CF runs in your family, your doctor might suggest genetic testing. People get genetic testing for a variety of reasons. You do... By Editorial Team 3 min readBookmark for laterReactions 0 reactions Comments0 comments
Iron Supplementation in CF - Part 2In the first part of this article series, we highlighted what causes iron deficiency in people with cystic fibrosis, and the various iron supplements available. This section will outline how... By Canadian Pharmacist2 min readBookmark for laterReactions 0 reactions Comments0 comments
Coughing BloodCoughing up blood is scary and alarming. You could find yourself worried because it is not something that should be happening. In my case, I cough up blood every other... By Marieliz Landa2 min readBookmark for laterReactions 0 reactions Comments0 comments
You Know You Have CF When...Let's play a game! What would you add to complete this sentence: “You know you have CF when... ?” There are so many funny and painfully true answers to this... By Janeil Whitworth2 min readBookmark for laterReactions 0 reactions Comments0 comments
National Family Caregivers Month Giveaway Terms and ConditionsNO PURCHASE NECESSARY TO ENTER OR WIN. A PURCHASE DOES NOT INCREASE YOUR CHANCES OF WINNING. VOID WHERE PROHIBITED. The $25 Amazon Gift Card Giveaway (the “Promotion”) begins at 9... By Editorial Team 19 min readBookmark for laterReactions 0 reactions Comments0 comments
CF Awareness Month: Closer to a CureMay is cystic fibrosis (CF) awareness month! Throughout May, we will be sharing simple ways to get involved with advocacy and awareness efforts for CF such as volunteering with a... By Editorial Team 1 min readBookmark for laterReactions 0 reactions Comments0 comments