AwakeI have no idea who goes through this, but I find myself fighting every night to just get to sleep! My problem stems from me getting more congested and a...Reactions0reactionsComments0 comments
Constipation and CFThe majority of people have experienced the discomfort of constipation at one point in life. However, for some people, constipation is a common occurrence. Constipation occurs in up to 50%...Reactions0reactionsComments0 comments
The Importance of Supplementing With Probiotics In CFWe are taught how to manage pancreatic insufficiency with enzymes. Then given laxatives, food diaries, and stool charts to help manage other gut issues. But, where is the prescription for...Reactions0reactionsComments3 comments
What Is a “Nonclassic” Cystic Fibrosis Symptom That You Experience?Everyone in the cystic fibrosis community can name the telltale symptoms of CF: coughing, shortness of breath, gastrointestinal issues, frequent infections, and salty skin. However, there are so many more...Reactions0reactionsComments3 comments
You've Decided You Want to See a Therapist... Now What?It was a cool, dreary November day. My husband and I were at my cystic fibrosis clinic and, while we didn’t know it then, we were nearing the end of...Reactions0reactionsComments0 comments
Does Trikafta Make Having a Cold Any Easier?When Trikafta was released almost a year and a half ago, a slew of people started recording how quickly they got over a seasonal cold with the help of this...Reactions0reactionsComments0 comments
How to Prep Your Home for a CF VisitorWhen my daughter was diagnosed with cystic fibrosis, our friends and family were eager to do everything they could to help us. One of the (surprising) areas they have been...Reactions0reactionsComments1 comments
Telling Your Story May Be Good for Your Health“While writing about my health issues has not cured them, it has helped me develop better coping skills and even contributed to better management of my symptoms (and I could...Reactions0reactionsComments0 comments
What Does Advocacy Mean to You? (Part 2)In Part 1, we heard from some of our advocates about what kinds of advocacy they do and what advocacy means to them. Well, get ready for some more great...Reactions0reactionsComments0 comments
What Does Advocacy Mean to You? (Part 1)Advocacy is a pillar of the cystic fibrosis community, and we are a small but mighty group. There are lots of ways to advocate, including volunteer work, policy work, sharing...Reactions0reactionsComments0 comments
Traveling with CFTaking a vacation is meant to be about relaxing and enjoying yourself. Traveling when you have an illness like cystic fibrosis can seem scary and challenging, but it is not...Reactions0reactionsComments6 comments
Dealing With The First Trimester of Pregnancy With CFThe first trimester, or the first 13 weeks, of pregnancy can be a really difficult time for a lot of moms-to-be. Morning sickness, fatigue, headaches, food aversions, etc. - the...Reactions0reactionsComments0 comments
CF and Yeast InfectionsCandida is a yeast, a type of fungus, that inhabits the normal flora in humans. However, overgrowth of candida can result in yeast infections; another term for these infections is...Reactions0reactionsComments0 comments
Interview With Nicole Kohr, Author and CF AdvocateNicole Kohr is so many things; she is a daughter, an author, a comedian, a partner, a dog parent, a patient representative, and more. Oh, and she has cystic fibrosis...Reactions0reactionsComments1 comments
Coping With Urinary IncontinenceThere is usually a time in life when having CF feels embarrassing. It may be when you cough in public like you smoke a couple packs a day or perhaps...Reactions0reactionsComments3 comments
Getting the COVID-19 Vaccination With CFMy experience in receiving the first dosage of the COVID-19 vaccine was amazingly simple. When my state opened the vaccination appointments to include those with certain pre-existing conditions including cystic...Reactions0reactionsComments0 comments
What Are Your Thoughts on Five Feet Apart?As someone in the cystic fibrosis community, you have probably heard about Five Feet Apart. Five Feet Apart is a book-turned-Blockbuster film that details and stories of Stella and Will...Reactions0reactionsComments0 comments
Is Gardening Safe with CF?With spring within reach, it’s time to break out the gardening gloves, shovel and lawn mower and get messy! Gardening is one of my favorite hobbies that helps keep me...Reactions0reactionsComments1 comments
Tips For Navigating a New CFRD DiagnosisHave you or a family member been newly diagnosed with cystic fibrosis-related diabetes (CFRD)? If so, you are probably feeling an array of emotions after the fact. It can be...Reactions0reactionsComments0 comments
What Are Digital Therapeutics?Digital therapeutics (DTx) first entered clinical discussions in the 1990s. The idea was that technology could improve healthcare access. It could help overcome barriers of location, time, and resources. This...Reactions0reactionsComments0 comments