A New Screening Tool for CF in Non-White PeopleFebruary is Black History Month. As health advocates, it’s important that we engage in dialogue on how health disparities exist for minorities...reactionscomments
Cleaning And Disinfecting Your Home For Cystic FibrosisThere has been a lot of talk about cleaning, disinfecting, and overall best hygiene practices this past year. For those living with...reactions2comments
Dealing With Trikafta AcneIncreased lung function? Check! Healthy weight gain? Check! Painful, cystic acne? Um...check! Improvements in the CF community since the release of Trikafta...reactions2comments
Trikafta: The Miracle Drug That May Not Be a MiracleSix months ago, I started the miracle drug, Trikafta. Six weeks ago, I stopped it. Why? Side effects. They say the definition...reactions9comments
Genetic Counseling for Cystic FibrosisIf you have cystic fibrosis (CF) or if CF runs in your family, your doctor might suggest genetic testing. People get genetic...reactionscomments
Understanding and Coping with CF BellyWhen we have a gut flare-up, many dieticians feel our digestive enzymes are the culprit. Adjustment to quantities, missed doses, inadequate amounts...reactionscomments
Burkholderia Cepacia Complex and Cystic FibrosisLung infections and a decrease in lung function are the main reasons for lung transplants and death among people with cystic fibrosis...reactionscomments
Gastrostomy Tubes (G-Tubes) and Cystic FibrosisGaining weight can increase energy and reduce complications for people with cystic fibrosis (CF). However, about 85 percent of people with cystic...reactionscomments
The Trikafta Tidal Wave Of HopeEarlier this year, Cystic-Fibrosis.com conducted our 2nd Annual Cystic Fibrosis In America survey. In this survey, we surveyed 404 people with CF...reactions3comments
Can Women With CF Successfully Breastfeed?As more women with CF reach childbearing age and start families of their own, the question of how to feed their baby...reactionscomments
Join the Cystic-Fibrosis.com Advocate TeamWould you like to share your experience with CF and help others who are also living or caring for someone with the...reactionscomments
The Many Colors of Cystic Fibrosis: ClearIf you haven’t had a chance to read my previous articles, just know that I’ve always been inspired by the colors of...reactionscomments
Dealing with Depression and Anxiety in CFCystic fibrosis (CF) brings its own sets of challenges that are unique to us as patients. I know everybody deals with depression...reactions2comments
6 Tips for Staying on Top of TreatmentLiving with a long-term health condition requires us to stay on top of everything: doctor’s appointments, new symptoms, insurance, and, of course...reactionscomments
Ask the Advocates: COVID-19We asked our advocates on Cystic-Fibrosis.com to share their perspectives on the COVID-19 pandemic, and how their lives have been impacted so...reactionscomments
Labor and Delivery With CFEntering into parenthood with CF can be an exciting and anxious time for many couples. However, first you need to give birth...reactionscomments
What is Eating Fatigue in CF?For decades, many people living with cystic fibrosis struggled to gain and maintain their weight. Once enzymes were introduced in the 1950s...reactions1comment
Community Views: Feelings About Increases in Life ExpectancyThanks to medical advancements and recent breakthroughs in treatment options, people with cystic fibrosis (CF) are living longer and healthier lives than...reactionscomments
Surviving Survivor's Guilt (Part Two)In Part One of this series, I shared what survivor’s guilt is. I also shared some common symptoms of survivor’s guilt. We...reactionscomments
FDA Approves Drug for Pre-Exposure Prevention of COVID-19The U.S. Food and Drug Administration (FDA) has authorized a new drug that may help prevent COVID-19. It is called Evusheld (tixagevimab...reactionscomments
