Take the Person Before Patient SurveyThe Person Before Patient Survey is now closed. Thank you for your interest! What makes us the people we are? Living with a serious health condition like cystic fibrosis can...reactionscomments
The Final 10%: Take The 2022 Survey From Emily's EntourageEmily’s Entourage is conducting a survey about the “final 10%” of the CF community that does not benefit from currently available CFTR modulators. If you are part of the final...reactionscomments
Lung Transplants and CF For those with cystic fibrosis (CF) who continue to experience lung progression with treatment, a lung transplant may be an additional treatment option to prevent respiratory failure. From the period...reactions9comments
Mornings are Tough with CFNot a morning person? You’re definitely not alone. Our circadian rhythms have an impact on how alert we are throughout the day and how well we handle the demands of...reactionscomments
If You Could Have Any Career, What Would It Be and Why?It is no secret that having cystic fibrosis affects many of life's choices, including what kind of career to pursue. Some people with CF may have an affinity for the...reactionscomments
Should I Go For It? Dating Someone with CF (Part 1)Wow! That girl is hot! She is also super cool. She dances, sings, does comedy, she likes a lot of the things that I like...wait, what is this CF thing...reactions1comment
AwakeI have no idea who goes through this, but I find myself fighting every night to just get to sleep! My problem stems from me getting more congested and a...reactionscomments
Constipation and CFThe majority of people have experienced the discomfort of constipation at one point in life. However, for some people, constipation is a common occurrence. Constipation occurs in up to 50%...reactionscomments
The Importance of Supplementing With Probiotics In CFWe are taught how to manage pancreatic insufficiency with enzymes. Then given laxatives, food diaries, and stool charts to help manage other gut issues. But, where is the prescription for...reactions3comments
What Is a “Nonclassic” Cystic Fibrosis Symptom That You Experience?Everyone in the cystic fibrosis community can name the telltale symptoms of CF: coughing, shortness of breath, gastrointestinal issues, frequent infections, and salty skin. However, there are so many more...reactions3comments
You've Decided You Want to See a Therapist... Now What?It was a cool, dreary November day. My husband and I were at my cystic fibrosis clinic and, while we didn’t know it then, we were nearing the end of...reactionscomments
Does Trikafta Make Having a Cold Any Easier?When Trikafta was released almost a year and a half ago, a slew of people started recording how quickly they got over a seasonal cold with the help of this...reactionscomments
How to Prep Your Home for a CF VisitorWhen my daughter was diagnosed with cystic fibrosis, our friends and family were eager to do everything they could to help us. One of the (surprising) areas they have been...reactions1comment
Telling Your Story May Be Good for Your Health“While writing about my health issues has not cured them, it has helped me develop better coping skills and even contributed to better management of my symptoms (and I could...reactionscomments
What Does Advocacy Mean to You? (Part 2)In Part 1, we heard from some of our advocates about what kinds of advocacy they do and what advocacy means to them. Well, get ready for some more great...reactionscomments
What Does Advocacy Mean to You? (Part 1)Advocacy is a pillar of the cystic fibrosis community, and we are a small but mighty group. There are lots of ways to advocate, including volunteer work, policy work, sharing...reactionscomments
Traveling with CFTaking a vacation is meant to be about relaxing and enjoying yourself. Traveling when you have an illness like cystic fibrosis can seem scary and challenging, but it is not...reactions6comments
Dealing With The First Trimester of Pregnancy With CFThe first trimester, or the first 13 weeks, of pregnancy can be a really difficult time for a lot of moms-to-be. Morning sickness, fatigue, headaches, food aversions, etc. - the...reactionscomments
CF and Yeast InfectionsCandida is a yeast, a type of fungus, that inhabits the normal flora in humans. However, overgrowth of candida can result in yeast infections; another term for these infections is...reactionscomments
Interview With Nicole Kohr, Author and CF AdvocateNicole Kohr is so many things; she is a daughter, an author, a comedian, a partner, a dog parent, a patient representative, and more. Oh, and she has cystic fibrosis...reactions1comment
