Finding Answers To Chronic Pain: CF And Rheumatoid ArthritisIn the "Searching for Answers to Chronic Pain," I detailed the frustrating journey of living with chronic pain since late puberty. After the pain started severely impacting my quality of...Reactions0reactionsComments0 comments
Exploring Post Traumatic Stress Disorder in Cystic Fibrosis (Part 2)It is still early days when looking at the long-lasting effects trauma can have on babies and parents in newborn intensive care units (NICU). What has been identified as badly...Reactions0reactionsComments0 comments
Cystic Fibrosis and MasksI was recently scrolling through Instagram and a post caught my eye. It was made by someone with thousands of followers and said something to the effect of how sad...Reactions0reactionsComments1 comments
What Is A Living Will?The word “will” can seem loaded when mentioned in casual conversation, and it might seem morbid to talk about or even unnecessary for the average person to think about. However...Reactions0reactionsComments0 comments
The Difficulty With CF Clinic NumbersEven though I have gone to roughly 140 or more cystic fibrosis clinics in my life so far, I still feel anxious before each one. If I’m sick then I’m...Reactions0reactionsComments0 comments
MemoriesI’ve never been shy in regards to talking about those whom I have met with cystic fibrosis and the impact they’ve had on my life. I have talked about losing...Reactions0reactionsComments0 comments
The Link Between CF and Ear InfectionsOtitis media, more commonly known as middle ear infections, is a prevalent infection that usually occurs in childhood. In fact, otitis media is the most prevailing childhood infection in the...Reactions0reactionsComments0 comments
Looking For Answers To Chronic Pain: Part 1There’s a reason why when our bodies are experiencing pain we try to make it go away--ice, Tylenol, warm baths, hugs, and kisses, etc. Pain is supposed to be a...Reactions0reactionsComments0 comments
Peripheral Neuropathy In Cystic FibrosisBetter care and treatment for people living with cystic fibrosis (CF) means that people with CF have improved survival rates and live longer. This also means we are seeing the...Reactions0reactionsComments1 comments
FDA Approves Trikafta®, Symdeko®, and Kalydeco® For Certain Rare MutationsThe U.S. Food and Drug Administration (FDA) has approved the expanded use of 3 cystic fibrosis (CF) drugs. These include: All 3 drugs can now be used for people with...Reactions0reactionsComments0 comments
Cystic Fibrosis and Celiac DiseaseMany people hear cystic fibrosis (CF) and think of a disease that affects the lungs. While this is true, CF actually affects many systems in the body. CF affects nearly...Reactions0reactionsComments0 comments
Dietary Concerns and the Non-CF SiblingIn our home, we are a home divided. We have fruit and vegetables and waffles and snack cakes. Anything my son wants, he usually gets. If he asks for something...Reactions0reactionsComments1 comments
How Being A CF Caregiver Changes Our LivesBeing a caregiver to a loved one with CF inevitably affects the way you live your life. While we love the people we care for, caregiving can still be stressful...Reactions0reactionsComments0 comments
Growing Into The Patient I Never Thought I Would BeChronic illness requires a lot from a person. In CF, it takes a lot away from a person at a young, fragile age. Many CFers are riddled with traumatic memories...Reactions0reactionsComments0 comments
Exploring Post Traumatic Stress Disorder in Cystic Fibrosis (Part 1)Living with cystic fibrosis can be physically debilitating and mentally destabilizing. We know there is an elevated level of depression and anxiety within the CF population, but little research has...Reactions0reactionsComments1 comments
What's The Deal With Fertility Testing And CF?As people with CF continue to live longer, healthier lives, couples are in the unique position to decide to become parents or not. Growing a family is such an exciting...Reactions0reactionsComments0 comments
The Trikafta Tidal Wave Of HopeEarlier this year, Cystic-Fibrosis.com conducted our 2nd Annual Cystic Fibrosis In America survey. In this survey, we surveyed 404 people with CF and 230 CF caregivers to learn more about...Reactions0reactionsComments3 comments
CF-Related Diabetes Risk FactorsCystic fibrosis-related diabetes (CFRD) is one of the most common non-respiratory complications of cystic fibrosis (CF). It differs from Type 1 and 2 Diabetes, yet shares similar features of each...Reactions0reactionsComments0 comments
Choosing To Send Our Daughter To Daycare: Part IOur daughter, Margo, has been in daycare since she was four months old. As two working parents, daycare was always a given for our family. Margo’s cystic fibrosis (CF) diagnosis...Reactions0reactionsComments0 comments
CF Advocacy Package Giveaway Terms & ConditionsOfficial Rules, Terms and Conditions for the Cystic Fibrosis Advocacy Package Giveaway on Instagram NO PURCHASE NECESSARY TO ENTER OR WIN. A PURCHASE DOES NOT INCREASE YOUR CHANCES OF WINNING...Reactions0reactionsComments0 comments