The Link Between CF and Ear InfectionsOtitis media, more commonly known as middle ear infections, is a prevalent infection that usually occurs in childhood. In fact, otitis media is the most prevailing childhood infection in the... By Canadian Pharmacist2 min readBookmark for laterReactions 0 reactions Comments0 comments
Looking For Answers To Chronic Pain: Part 1There’s a reason why when our bodies are experiencing pain we try to make it go away--ice, Tylenol, warm baths, hugs, and kisses, etc. Pain is supposed to be a... By Janeil Whitworth3 min readBookmark for laterReactions 0 reactions Comments0 comments
Peripheral Neuropathy In Cystic FibrosisBetter care and treatment for people living with cystic fibrosis (CF) means that people with CF have improved survival rates and live longer. This also means we are seeing the... By Editorial Team 3 min readBookmark for laterReactions 0 reactions Comments1 comments
FDA Approves Trikafta®, Symdeko®, and Kalydeco® For Certain Rare MutationsThe U.S. Food and Drug Administration (FDA) has approved the expanded use of 3 cystic fibrosis (CF) drugs. These include: All 3 drugs can now be used for people with... By Editorial Team 3 min readBookmark for laterReactions 0 reactions Comments0 comments
Cystic Fibrosis and Celiac DiseaseMany people hear cystic fibrosis (CF) and think of a disease that affects the lungs. While this is true, CF actually affects many systems in the body. CF affects nearly... By Editorial Team 3 min readBookmark for laterReactions 0 reactions Comments0 comments
Dietary Concerns and the Non-CF SiblingIn our home, we are a home divided. We have fruit and vegetables and waffles and snack cakes. Anything my son wants, he usually gets. If he asks for something... By Misty Roussa2 min readBookmark for laterReactions 0 reactions Comments1 comments
How Being A CF Caregiver Changes Our LivesBeing a caregiver to a loved one with CF inevitably affects the way you live your life. While we love the people we care for, caregiving can still be stressful... By Editorial Team 1 min readBookmark for laterReactions 0 reactions Comments0 comments
Growing Into The Patient I Never Thought I Would BeChronic illness requires a lot from a person. In CF, it takes a lot away from a person at a young, fragile age. Many CFers are riddled with traumatic memories... By Emma Boniface3 min readBookmark for laterReactions 0 reactions Comments0 comments
Exploring Post Traumatic Stress Disorder in Cystic Fibrosis (Part 1)Living with cystic fibrosis can be physically debilitating and mentally destabilizing. We know there is an elevated level of depression and anxiety within the CF population, but little research has... By Emma Boniface4 min readBookmark for laterReactions 0 reactions Comments1 comments
What's The Deal With Fertility Testing And CF?As people with CF continue to live longer, healthier lives, couples are in the unique position to decide to become parents or not. Growing a family is such an exciting... By Janeil Whitworth3 min readBookmark for laterReactions 0 reactions Comments0 comments
The Trikafta Tidal Wave Of HopeEarlier this year, Cystic-Fibrosis.com conducted our 2nd Annual Cystic Fibrosis In America survey. In this survey, we surveyed 404 people with CF and 230 CF caregivers to learn more about... By Editorial Team 4 min readBookmark for laterReactions 0 reactions Comments3 comments
CF-Related Diabetes Risk FactorsCystic fibrosis-related diabetes (CFRD) is one of the most common non-respiratory complications of cystic fibrosis (CF). It differs from Type 1 and 2 Diabetes, yet shares similar features of each... By Canadian Pharmacist2 min readBookmark for laterReactions 0 reactions Comments0 comments
Choosing To Send Our Daughter To Daycare: Part IOur daughter, Margo, has been in daycare since she was four months old. As two working parents, daycare was always a given for our family. Margo’s cystic fibrosis (CF) diagnosis... By Meagan Brackeen3 min readBookmark for laterReactions 0 reactions Comments0 comments
CF Advocacy Package Giveaway Terms & ConditionsOfficial Rules, Terms and Conditions for the Cystic Fibrosis Advocacy Package Giveaway on Instagram NO PURCHASE NECESSARY TO ENTER OR WIN. A PURCHASE DOES NOT INCREASE YOUR CHANCES OF WINNING... By Sarah Coff19 min readBookmark for laterReactions 0 reactions Comments0 comments
A Day In The Life: Pre-Teen Caregiver EditionWhen our son was first diagnosed with CF, what began as a new parent schedule shifted gears to a caregiver schedule. Everything in our life could be measured, lined up... By Misty Roussa3 min readBookmark for laterReactions 0 reactions Comments0 comments
It's The Most Stressful Time Of The Year: Open EnrollmentThe end of the year is always a stressful time in our household--and not because of reasons you might assume. It’s not holiday stress from Thanksgiving or Christmas that makes... By Janeil Whitworth3 min readBookmark for laterReactions 0 reactions Comments0 comments
Opening Up About Cystic FibrosisGrowing up I kept my CF hidden from everyone, to me it was a good thing that it was invisible because I was so scared of judgment and what my... By Kate Eveling1 min readBookmark for laterReactions 0 reactions Comments0 comments
Caregiver Resources: Where Caregivers Can Go for SupportMillions of people are caring for loved ones who are sick or disabled. In fact, some 25 percent of U.S. adults report providing care or assistance to someone with a... By Editorial Team 4 min readBookmark for laterReactions 0 reactions Comments0 comments
CF and Caregiver AnxietyI cannot think of a time that I was not anxious. I believe it is now a part of who I am. When I became a parent, it was increased... By Misty Roussa3 min readBookmark for laterReactions 0 reactions Comments0 comments
Growing Up With a Sibling With CF: My Sister's PerspectiveI am very lucky to have grown up in a family that loved me for me--and my CF. Being the only one in both my immediate and extended families with... By Janeil Whitworth4 min readBookmark for laterReactions 0 reactions Comments0 comments