CF Book Review: Breath From SaltIf you have CF, have a loved one with CF, or are just interested in science or the business model of disease...reactionscomments
Peripheral Neuropathy (Feet)I have painful feet. I was shocked when the doctor told me that I have peripheral neuropathy, but it explained why I...reactions4comments
Take the Person Before Patient SurveyThe Person Before Patient Survey is now closed. Thank you for your interest! What makes us the people we are? Living with...reactionscomments
An Interview With My Son With CFOur son is 12 years old. He has only known life with CF. As much as I try to know how is...reactionscomments
What Does Advocacy Mean to You? (Part 2)In Part 1, we heard from some of our advocates about what kinds of advocacy they do and what advocacy means to...reactionscomments
If You Could Have Any Career, What Would It Be and Why?It is no secret that having cystic fibrosis affects many of life's choices, including what kind of career to pursue. Some people...reactionscomments
You Know You Have CF When...Let's play a game! What would you add to complete this sentence: “You know you have CF when... ?” There are so...reactionscomments
Dealing With The First Trimester of Pregnancy With CFThe first trimester, or the first 13 weeks, of pregnancy can be a really difficult time for a lot of moms-to-be. Morning...reactionscomments
Traveling with CFTaking a vacation is meant to be about relaxing and enjoying yourself. Traveling when you have an illness like cystic fibrosis can...reactions6comments
Interview with Emily Kramer-Golinkoff of Emily's EntourageWe sat down with Emily Kramer-Golinkoff, Co-Founder of Emily's Entourage and internationally recognized patient advocate and speaker. We chatted about her organization...reactionscomments
Home IVsHome infusions (IVs) are something most of us with cystic fibrosis are accustomed to. It’s one of the best ways to receive...reactions3comments
Is Airline Travel Safe in the Post-COVID Era with CF?As the newly vaccinated US begins emerging from the terrible control of COVID-19, many people are eager to dust off their suitcases...reactionscomments
Smell the RosesI have written about my sinus surgeries due to nasal polyps. Nasal polyps and sinus surgeries are routine for those of us...reactions2comments
CF Resilience PlaylistMusic helps us deal with difficult times and process emotions we otherwise would not have words for. It can invoke feelings in...reactionscomments
Starting Treatment with Inhaled Amikacin (Arikayce)People with cystic fibrosis (CF) are no strangers to antibiotics. Some antibiotics are well-known in the CF sphere as they are commonly...reactionscomments
Planning for Motherhood: Practical ConsiderationsIn part one of this series, I shared some considerations to take into account before deciding to conceive with cystic fibrosis. Focusing...reactionscomments
Tales From A Young Looking 29-Year-OldDue to not being diagnosed until I was 3 and the ensuing malnutrition that comes along with a lifetime of cystic fibrosis...reactions1comment
Out of NowhereI think you would probably agree with me when I say that being a caregiver to someone with CF is really just...reactions1comment
Trying to Conceive with CF: My IUI ExperienceAfter our fertility testing was complete, we met with a Reproductive Endocrinologist to discuss the treatment plan and various success rates. I...reactionscomments
Adjusting to ChangesIf you’re on medication, then you’ll recognize this feeling. You meet with your doctor and they suggest taking a new prescription or...reactions2comments
