Articles

There has been a lot of talk about cleaning, disinfecting, and overall best hygiene practices this past year. For those living with cystic fibrosis (CF), cleaning and disinfecting has been...

Trikafta has changed the lives of many individuals and families in the CF community since it’s release. A lot of people with CF are finally feeling better and living different...

Perhaps you are thinking about situations where you may not be able to make decisions about your own healthcare. This might be because you have a chronic illness that may...

Receiving a phone call that your new child's newborn screening detected cystic fibrosis can be a frightening situation. Your doctor will probably advise you to bring your baby in for...

Whether it is your first child or your fourth, a new baby brings physical, mental, and emotional exhaustion. Mothers are dealing with fluctuating hormones and the recovery period after labor...

It's no secret that cystic fibrosis touches every area of our lives. Whether we are going to school, choosing colleges, entering the workforce, or building relationships, CF is there. When...

In the "Searching for Answers to Chronic Pain," I detailed the frustrating journey of living with chronic pain since late puberty. After the pain started severely impacting my quality of...

It is still early days when looking at the long-lasting effects trauma can have on babies and parents in newborn intensive care units (NICU). What has been identified as badly...

I was recently scrolling through Instagram and a post caught my eye. It was made by someone with thousands of followers and said something to the effect of how sad...

The word “will” can seem loaded when mentioned in casual conversation, and it might seem morbid to talk about or even unnecessary for the average person to think about. However...

Even though I have gone to roughly 140 or more cystic fibrosis clinics in my life so far, I still feel anxious before each one. If I’m sick then I’m...

I’ve never been shy in regards to talking about those whom I have met with cystic fibrosis and the impact they’ve had on my life. I have talked about losing...

Otitis media, more commonly known as middle ear infections, is a prevalent infection that usually occurs in childhood. In fact, otitis media is the most prevailing childhood infection in the...

There’s a reason why when our bodies are experiencing pain we try to make it go away--ice, Tylenol, warm baths, hugs, and kisses, etc. Pain is supposed to be a...

Better care and treatment for people living with cystic fibrosis (CF) means that people with CF have improved survival rates and live longer. This also means we are seeing the...

The U.S. Food and Drug Administration (FDA) has approved the expanded use of 3 cystic fibrosis (CF) drugs. These include: All 3 drugs can now be used for people with...

Many people hear cystic fibrosis (CF) and think of a disease that affects the lungs. While this is true, CF actually affects many systems in the body. CF affects nearly...

In our home, we are a home divided. We have fruit and vegetables and waffles and snack cakes. Anything my son wants, he usually gets. If he asks for something...

Being a caregiver to a loved one with CF inevitably affects the way you live your life. While we love the people we care for, caregiving can still be stressful...

Chronic illness requires a lot from a person. In CF, it takes a lot away from a person at a young, fragile age. Many CFers are riddled with traumatic memories...