The Trikafta Tidal Wave Of HopeEarlier this year, Cystic-Fibrosis.com conducted our 2nd Annual Cystic Fibrosis In America survey. In this survey, we surveyed 404 people with CF and 230 CF caregivers to learn more about...reactions3comments
CF-Related Diabetes Risk FactorsCystic fibrosis-related diabetes (CFRD) is one of the most common non-respiratory complications of cystic fibrosis (CF). It differs from Type 1 and 2 Diabetes, yet shares similar features of each...reactionscomments
Choosing To Send Our Daughter To Daycare: Part IOur daughter, Margo, has been in daycare since she was four months old. As two working parents, daycare was always a given for our family. Margo’s cystic fibrosis (CF) diagnosis...reactionscomments
CF Advocacy Package Giveaway Terms & ConditionsOfficial Rules, Terms and Conditions for the Cystic Fibrosis Advocacy Package Giveaway on Instagram NO PURCHASE NECESSARY TO ENTER OR WIN. A PURCHASE DOES NOT INCREASE YOUR CHANCES OF WINNING...reactionscomments
A Day In The Life: Pre-Teen Caregiver EditionWhen our son was first diagnosed with CF, what began as a new parent schedule shifted gears to a caregiver schedule. Everything in our life could be measured, lined up...reactionscomments
It's The Most Stressful Time Of The Year: Open EnrollmentThe end of the year is always a stressful time in our household--and not because of reasons you might assume. It’s not holiday stress from Thanksgiving or Christmas that makes...reactionscomments
Opening Up About Cystic FibrosisGrowing up I kept my CF hidden from everyone, to me it was a good thing that it was invisible because I was so scared of judgment and what my...reactionscomments
Caregiver Resources: Where Caregivers Can Go for SupportMillions of people are caring for loved ones who are sick or disabled. In fact, some 25 percent of U.S. adults report providing care or assistance to someone with a...reactionscomments
CF and Caregiver AnxietyI cannot think of a time that I was not anxious. I believe it is now a part of who I am. When I became a parent, it was increased...reactionscomments
Growing Up With a Sibling With CF: My Sister's PerspectiveI am very lucky to have grown up in a family that loved me for me--and my CF. Being the only one in both my immediate and extended families with...reactionscomments
Hair Loss and Cystic FibrosisHair loss can be disheartening no matter what the underlying cause is, as many of us have an emotional attachment to our hair. In some cases, our hair is tied...reactions3comments
Cystic Fibrosis Unsolicited AdviceLiving with CF can be challenging, and it certainly is not made any easier by all the unsolicited advice dished up by strangers. Many in the CF community shared that...reactions2comments
Being Prepared With Advanced PlanningAdvance directives aren’t something to be scared about doing and it’s not something to put off either. We each have preferences and, when the time comes, we can have our...reactionscomments
The Effect Stress Can Have On CF SymptomsIdentifying triggers for an infection flare-up has been a minefield I am still learning to navigate healthily. We have all heard psychological stress weakens the immune system. When we are...reactions4comments
Cystic Fibrosis Community on InstagramDid you know that you can find the Cystic-Fibrosis.com community on Instagram? In addition to participating in our interactive online community, we are excited to share the same great information...reactionscomments
Let's Go Camping (With Trikafta)A redemptive sense of freedom was gifted to me when I started taking Trikafta. As my lungs cleared away infection, it also made way for the things I couldn’t do...reactionscomments
My Journey To Becoming A CF Parent: Part IIRead Part I here. I will never forget the day we received the phone call. It was a Wednesday, and Rhett and I were both at work. The genetic counselor...reactionscomments
Community Views: How Does Being a Caregiver Impact Your Life?Most of us know what a caregiver does, but not everyone fully understands what it is like to be a caregiver until they are in that role. To start a...reactions1comment
Beyond Exhaustion: How Life Changes with FatigueFatigue: It’s not “just being tired”, and it’s an experience that individuals living with a chronic health condition know all too well. Fatigue can impact every aspect of daily life...reactions2comments
The Lung Bleed vs. The Lung PeriodBouts of hemoptysis (coughing up blood) that worsen during a monthly menstrual cycle are becoming a frequent problem for CF women. Could hormones be playing a part? I am a...reactions2comments
