Cystic Fibrosis Unsolicited AdviceLiving with CF can be challenging, and it certainly is not made any easier by all the unsolicited advice dished up by strangers. Many in the CF community shared that... By Editorial Team 3 min readBookmark for laterReactions 0 reactions Comments2 comments
Being Prepared With Advanced PlanningAdvance directives aren’t something to be scared about doing and it’s not something to put off either. We each have preferences and, when the time comes, we can have our... By Marieliz Landa2 min readBookmark for laterReactions 0 reactions Comments0 comments
The Effect Stress Can Have On CF SymptomsIdentifying triggers for an infection flare-up has been a minefield I am still learning to navigate healthily. We have all heard psychological stress weakens the immune system. When we are... By Emma Boniface3 min readBookmark for laterReactions 0 reactions Comments4 comments
Cystic Fibrosis Community on InstagramDid you know that you can find the Cystic-Fibrosis.com community on Instagram? In addition to participating in our interactive online community, we are excited to share the same great information... By Editorial Team 2 min readBookmark for laterReactions 0 reactions Comments0 comments
Let's Go Camping (With Trikafta)A redemptive sense of freedom was gifted to me when I started taking Trikafta. As my lungs cleared away infection, it also made way for the things I couldn’t do... By Janeil Whitworth3 min readBookmark for laterReactions 0 reactions Comments0 comments
My Journey To Becoming A CF Parent: Part IIRead Part I here. I will never forget the day we received the phone call. It was a Wednesday, and Rhett and I were both at work. The genetic counselor... By Meagan Brackeen3 min readBookmark for laterReactions 0 reactions Comments0 comments
Community Views: How Does Being a Caregiver Impact Your Life?Most of us know what a caregiver does, but not everyone fully understands what it is like to be a caregiver until they are in that role. To start a... By Editorial Team 4 min readBookmark for laterReactions 0 reactions Comments1 comments
Beyond Exhaustion: How Life Changes with FatigueFatigue: It’s not “just being tired”, and it’s an experience that individuals living with a chronic health condition know all too well. Fatigue can impact every aspect of daily life... By Editorial Team 2 min readBookmark for laterReactions 0 reactions Comments2 comments
The Lung Bleed vs. The Lung PeriodBouts of hemoptysis (coughing up blood) that worsen during a monthly menstrual cycle are becoming a frequent problem for CF women. Could hormones be playing a part? I am a... By Emma Boniface3 min readBookmark for laterReactions 0 reactions Comments2 comments
Tips For Communicating With Your CF Care TeamCommunication with your CF care team is more important than we realize. Sure, it’s necessary to report sickness and enlist their help for treatment--but that's just the tip of the... By Janeil Whitworth3 min readBookmark for laterReactions 0 reactions Comments0 comments
Cystic Fibrosis and Respiratory TherapyThis year, Respiratory Care Week will be celebrated throughout the United States during the week of October 25-31. If you or someone you love has cystic fibrosis (CF), you probably... By Editorial Team 3 min readBookmark for laterReactions 0 reactions Comments0 comments
Video: Tour of My Airway Clearance Treatment CartNo two people with CF are alike when it comes to symptoms, course of treatment, and outlook. Something we all have in common--daily airway clearance has to get done! Airway... By Janeil Whitworth1 min readBookmark for laterReactions 0 reactions Comments1 comments
Ibuprofen Use In Cystic FibrosisInflammation in cystic fibrosis (CF) is one of the ways that lung damage happens. Since death from CF is mostly due to loss of lung function, long-term treatment focuses on... By Editorial Team 2 min readBookmark for laterReactions 0 reactions Comments0 comments
My Journey To Becoming A CF ParentEvery CF parent has a diagnosis story--the process leading up to the diagnosis and the exact moment of learning of their child’s condition. For many people, the diagnosis comes within... By Meagan Brackeen4 min readBookmark for laterReactions 0 reactions Comments0 comments
Recognizing Caregiver BurnoutAs caregivers, we often get so caught up in the routines we have in place that we don’t realize just how much we are managing every day and how it... By Holly Williams2 min readBookmark for laterReactions 0 reactions Comments1 comments
How Has CF Impacted Your Romantic Relationship(s)?Those with cystic fibrosis know that it branches out into every area of their lives. Unfortunately, dating and relationships are no exception. Many people with cystic fibrosis worry about relationships... By Editorial Team 4 min readBookmark for laterReactions 0 reactions Comments0 comments
Voting With A Health Condition: What To KnowVoting is a fundamental American right, but it has special meaning for people with disabilities or health conditions. Until federal laws like the Americans with Disabilities Act (ADA) were enacted... By Editorial Team 4 min readBookmark for laterReactions 0 reactions Comments0 comments
Survivor’s GuiltOne of the hardest aspects of having CF is outliving the friends you make with CF. I know I fight mentally with the thought of, “When is it my turn?”... By Marieliz Landa2 min readBookmark for laterReactions 0 reactions Comments0 comments
Parenting While Managing A Chronic IllnessWhether or not you have a child, most people would agree that parenting is hard. Although there is no right or wrong way to raise a child, new trends, latest... By Editorial Team 4 min readBookmark for laterReactions 0 reactions Comments2 comments
Burkholderia Cepacia Complex and Cystic FibrosisLung infections and a decrease in lung function are the main reasons for lung transplants and death among people with cystic fibrosis (CF). One of the contributing factors to frequent... By Editorial Team 2 min readBookmark for laterReactions 0 reactions Comments0 comments