Adjusting to ChangesIf you’re on medication, then you’ll recognize this feeling. You meet with your doctor and they suggest taking a new prescription or...reactions2comments
Lung Transplants and CF For those with cystic fibrosis (CF) who continue to experience lung progression with treatment, a lung transplant may be an additional treatment...reactions9comments
Iron Supplementation in CF - Part 1Anemia, or iron deficiency, is one of the most common nutritional deficiencies in the world. Furthermore, people with cystic fibrosis (CF) are...reactionscomments
Owning My Trikafta Weight GainWhen I began taking Trikafta at the end of last year, I saw the scale do something I have never seen before--continually...reactions3comments
Nasal Polyp SurgeryNasal polyps are quite common in those of us with cystic fibrosis. It is not something I was even aware of because...reactions2comments
Becoming Mom: My Path to CF Motherhood (Part 2)My long, winding path to motherhood with cystic fibrosis continues from where we left off last. In case you missed the beginning...reactionscomments
Balancing a CF Diet and Toddler PickinessCystic fibrosis presents many daily physical, mental, and emotional challenges for patients and caregivers. As a CF caregiver, one of the most...reactions1comment
Tiny and Cute: Cystic Fibrosis Impacts My Body Image“I wish I could eat like you.” “You’re so pretty and thin.” “Everything looks good on your skinny frame.” “You are so...reactionscomments
Resources for Financial Support for Cystic Fibrosis PatientsCystic fibrosis costs a lot, it adds up between the medication, hospitalizations, surgeries, and time off work. I know my family and...reactionscomments
Tips for Parenting a Child With Cystic FibrosisParenting a child with cystic fibrosis is a big job, but it is not one you need to be overwhelmed by. The...reactionscomments
What's the "CF Gender Gap"?In the CF community, there’s an unusual pattern seen in the life expectancy between men and women with CF. Men with CF...reactionscomments
How Can Cystic Fibrosis Affect the Teeth?It might surprise you to know that people with cystic fibrosis (CF) generally have fewer cavities and cases of gum disease than...reactions2comments
Rare Disease Day®The last day of February is Rare Disease Day all around the world. It is a day to recognize and raise awareness...reactionscomments
What I Wish People Knew About CFIf you are reading this article, you probably know what cystic fibrosis is. You may have cystic fibrosis yourself and understand what...reactionscomments
Community Thoughts on TrikaftaThere is no question about it: Trikafta has been a game-changer for the cystic fibrosis community. Since its approval by the U.S...reactions1comment
Why Advocate?Advocacy, even for CF, used to be as foreign to me as most of the intricacies of the federal government. However, as...reactionscomments
Invisible DisabilityLiving with cystic fibrosis is living with a disease no one will really realize you have unless they know the details of...reactionscomments
Our Son Can Not Have ChildrenIt was after our son's second hernia repair surgery that it was confirmed. The nurse came out to the waiting area (not...reactionscomments
My Pet is a Part of My CF CareApart from the fun and joy animals bring us, animals can also be natural healers, especially when we welcome them into our...reactionscomments
Our Cleaning And Sanitizing RegimenBefore having a child with cystic fibrosis, I never realized how much attention towards cleaning and sanitization is necessary to keep patients...reactionscomments
