Articles

When our son was first diagnosed with CF, what began as a new parent schedule shifted gears to a caregiver schedule. Everything in our life could be measured, lined up...

The end of the year is always a stressful time in our household--and not because of reasons you might assume. It’s not holiday stress from Thanksgiving or Christmas that makes...

Growing up I kept my CF hidden from everyone, to me it was a good thing that it was invisible because I was so scared of judgment and what my...

Millions of people are caring for loved ones who are sick or disabled. In fact, some 25 percent of U.S. adults report providing care or assistance to someone with a...

I cannot think of a time that I was not anxious. I believe it is now a part of who I am. When I became a parent, it was increased...

I am very lucky to have grown up in a family that loved me for me--and my CF. Being the only one in both my immediate and extended families with...

Hair loss can be disheartening no matter what the underlying cause is, as many of us have an emotional attachment to our hair. In some cases, our hair is tied...

Living with CF can be challenging, and it certainly is not made any easier by all the unsolicited advice dished up by strangers. Many in the CF community shared that...

Advance directives aren’t something to be scared about doing and it’s not something to put off either. We each have preferences and, when the time comes, we can have our...

Identifying triggers for an infection flare-up has been a minefield I am still learning to navigate healthily. We have all heard psychological stress weakens the immune system. When we are...

Did you know that you can find the Cystic-Fibrosis.com community on Instagram? In addition to participating in our interactive online community, we are excited to share the same great information...

A redemptive sense of freedom was gifted to me when I started taking Trikafta. As my lungs cleared away infection, it also made way for the things I couldn’t do...

Read Part I here. I will never forget the day we received the phone call. It was a Wednesday, and Rhett and I were both at work. The genetic counselor...

Most of us know what a caregiver does, but not everyone fully understands what it is like to be a caregiver until they are in that role. To start a...

Fatigue: It’s not “just being tired”, and it’s an experience that individuals living with a chronic health condition know all too well. Fatigue can impact every aspect of daily life...

Bouts of hemoptysis (coughing up blood) that worsen during a monthly menstrual cycle are becoming a frequent problem for CF women. Could hormones be playing a part? I am a...

Communication with your CF care team is more important than we realize. Sure, it’s necessary to report sickness and enlist their help for treatment--but that's just the tip of the...

This year, Respiratory Care Week will be celebrated throughout the United States during the week of October 25-31. If you or someone you love has cystic fibrosis (CF), you probably...

No two people with CF are alike when it comes to symptoms, course of treatment, and outlook. Something we all have in common--daily airway clearance has to get done! Airway...

Inflammation in cystic fibrosis (CF) is one of the ways that lung damage happens. Since death from CF is mostly due to loss of lung function, long-term treatment focuses on...