Our Son Can Not Have ChildrenIt was after our son's second hernia repair surgery that it was confirmed. The nurse came out to the waiting area (not...reactionscomments
Kidney Stones and Cystic FibrosisAnyone who has had a kidney stone can tell you that it was one of the most painful events of their life...reactionscomments
Our Cleaning And Sanitizing RegimenBefore having a child with cystic fibrosis, I never realized how much attention towards cleaning and sanitization is necessary to keep patients...reactionscomments
Hearty Cheese Tortellini SoupIt’s winter here in Ohio, and that means it’s time for soup! All the soup! Soup is one of my favorite dishes...reactions2comments
5 Things I Have Learned Living With Cystic FibrosisThe hardest thing about having CF is the invisibility. We look like the picture of health – like we should be full...reactionscomments
Nine Ways To Make CF Care Easier And More FunCystic fibrosis care is overwhelming, monotonous, and exhausting most of the time. Often taking care of myself feels like a vicious, neverending...reactionscomments
Incorporating High Calorie Supplements Into Your Diet While Minimizing SugarsStruggling with weight gain throughout my lifetime has required daily attention to making sure I am consuming enough calories just to maintain...reactionscomments
COVID-19 Vaccines For People With Lung ConditionsPeople living with cystic fibrosis face a higher chance of serious illness from the virus that causes COVID-19. Having other long-term lung...reactionscomments
Quick Guide To Applying For Disability With CFApplying for Social Security Disability can be a daunting and overwhelming process for adults living with cystic fibrosis (CF) who are unable...reactions2comments
Does Ethnicity Impact Access To CF Treatment?It is no surprise that disparities in health care access have been present since the establishment of a health system. While these...reactionscomments
Myths & Facts About Living WillsA living will is known by several other names, including advanced directive, healthcare declaration, medical directive, and many more. There is often...reactionscomments
Interview With Julia RaeMost people in the cystic fibrosis community have heard of Julia Rae. Julia Rae is a singer, songwriter, actor, model, and a...reactionscomments
What I Want The Anti-Maskers To KnowImagine you could have a place in preventing a tragic incident from occurring. Think about how wonderful it could be if you...reactionscomments
Understanding My Experiences with CFNot too long ago, during one of my regular face time calls with my mom, I was explaining to her how frustrated...reactionscomments
Intussusception Saved My Life: CF Diagnosis StoryAround two-thirds of people living with CF are diagnosed before the age of 2. However, that’s not how my CF diagnosis story...reactionscomments
Things Not To Say To Someone With CFIt seems that many people with CF know someone who hasn't learned the rule: “If you cannot say anything nice, do not...reactionscomments
How CF Has Affected Our Family Dynamic It is a challenge for me to remember two things: what life was like before being a parent, and what life was...reactionscomments
How Technology Brings Both Convenience and Confusion: Results of the Connected Health SurveySometimes, it feels like we are surrounded by technology. Apps, devices, trackers, and gadgets are everywhere! In this digital age, though, everyone...reactionscomments
Nine Lessons 2020 Taught Us About DisabilityThe year 2020 taught us a lot about ourselves and overcoming adversaries. After the onset of COVID-19, many non-disabled people were faced...reactionscomments
Home IVsHome infusions (IVs) are something most of us with cystic fibrosis are accustomed to. It’s one of the best ways to receive...reactions3comments
