5 Things I Have Learned Living With Cystic FibrosisThe hardest thing about having CF is the invisibility. We look like the picture of health – like we should be full to the brim with endless energy. It is...reactionscomments
Nine Ways To Make CF Care Easier And More FunCystic fibrosis care is overwhelming, monotonous, and exhausting most of the time. Often taking care of myself feels like a vicious, neverending cycle of the same routine over and over...reactionscomments
Incorporating High Calorie Supplements Into Your Diet While Minimizing SugarsStruggling with weight gain throughout my lifetime has required daily attention to making sure I am consuming enough calories just to maintain my weight. For many years, really ever since...reactionscomments
COVID-19 Vaccines For People With Lung ConditionsPeople living with cystic fibrosis face a higher chance of serious illness from the virus that causes COVID-19. Having other long-term lung diseases like COPD and moderate-to-severe asthma may also...reactionscomments
Quick Guide To Applying For Disability With CFApplying for Social Security Disability can be a daunting and overwhelming process for adults living with cystic fibrosis (CF) who are unable to work because of their health status. If...reactions2comments
Does Ethnicity Impact Access To CF Treatment?It is no surprise that disparities in health care access have been present since the establishment of a health system. While these disparities are recognized, many reports continue to highlight...reactionscomments
Myths & Facts About Living WillsA living will is known by several other names, including advanced directive, healthcare declaration, medical directive, and many more. There is often confusion about what these words mean and why...reactionscomments
Interview With Julia RaeMost people in the cystic fibrosis community have heard of Julia Rae. Julia Rae is a singer, songwriter, actor, model, and a CFer who is a patient advocate for the...reactionscomments
What I Want The Anti-Maskers To KnowImagine you could have a place in preventing a tragic incident from occurring. Think about how wonderful it could be if you could prevent a mother from losing her child...reactionscomments
Understanding My Experiences with CFNot too long ago, during one of my regular face time calls with my mom, I was explaining to her how frustrated I was with the setbacks that living with...reactionscomments
Intussusception Saved My Life: CF Diagnosis StoryAround two-thirds of people living with CF are diagnosed before the age of 2. However, that’s not how my CF diagnosis story plays out at all. My diagnosis story is...reactionscomments
Things Not To Say To Someone With CFIt seems that many people with CF know someone who hasn't learned the rule: “If you cannot say anything nice, do not say anything at all.” Some people feel free...reactionscomments
How CF Has Affected Our Family Dynamic It is a challenge for me to remember two things: what life was like before being a parent, and what life was like before cystic fibrosis. In many ways, they...reactionscomments
How Technology Brings Both Convenience and Confusion: Results of the Connected Health SurveySometimes, it feels like we are surrounded by technology. Apps, devices, trackers, and gadgets are everywhere! In this digital age, though, everyone has a different level of comfort using technology...reactionscomments
Nine Lessons 2020 Taught Us About DisabilityThe year 2020 taught us a lot about ourselves and overcoming adversaries. After the onset of COVID-19, many non-disabled people were faced with unique challenges they have never experienced before...reactionscomments
Home IVsHome infusions (IVs) are something most of us with cystic fibrosis are accustomed to. It’s one of the best ways to receive IVs without having to do an entire 2-week...reactions3comments
How Is CF Mucus Different From Non-CF Mucus?When people without cystic fibrosis (CF) think of CF, they likely focus on the hallmark characteristic of the condition: mucus. It is known that CF mucus is thick and sticky...reactionscomments
Ways To Infuse IV Antibiotics At HomeStarting IV antibiotics for a CF exacerbation can be a real bummer! It's not always easy to put your life on hold to treat an infection. That's why I choose...reactionscomments
How To Build A Healthy Relationship With Your DoctorA good relationship with your doctor is essential when living with cystic fibrosis. CF patients often report feeling dismissed when talking to their doctors. On a recent social media Q&A...reactionscomments
Workplace Accommodations and Navigating Disability IssuesDepending on the nature of a person's chronic condition and how it impacts their daily life, they may or may not want to be in the workforce. Plus – and...reactions1comment
