Articles

A living will is known by several other names, including advanced directive, healthcare declaration, medical directive, and many more. There is often confusion about what these words mean and why...

Most people in the cystic fibrosis community have heard of Julia Rae. Julia Rae is a singer, songwriter, actor, model, and a CFer who is a patient advocate for the...

Imagine you could have a place in preventing a tragic incident from occurring. Think about how wonderful it could be if you could prevent a mother from losing her child...

Not too long ago, during one of my regular face time calls with my mom, I was explaining to her how frustrated I was with the setbacks that living with...

Around two-thirds of people living with CF are diagnosed before the age of 2. However, that’s not how my CF diagnosis story plays out at all. My diagnosis story is...

It seems that many people with CF know someone who hasn't learned the rule: “If you cannot say anything nice, do not say anything at all.” Some people feel free...

It is a challenge for me to remember two things: what life was like before being a parent, and what life was like before cystic fibrosis. In many ways, they...

Sometimes, it feels like we are surrounded by technology. Apps, devices, trackers, and gadgets are everywhere! In this digital age, though, everyone has a different level of comfort using technology...

The year 2020 taught us a lot about ourselves and overcoming adversaries. After the onset of COVID-19, many non-disabled people were faced with unique challenges they have never experienced before...

Home infusions (IVs) are something most of us with cystic fibrosis are accustomed to. It’s one of the best ways to receive IVs without having to do an entire 2-week...

When people without cystic fibrosis (CF) think of CF, they likely focus on the hallmark characteristic of the condition: mucus. It is known that CF mucus is thick and sticky...

Starting IV antibiotics for a CF exacerbation can be a real bummer! It's not always easy to put your life on hold to treat an infection. That's why I choose...

A good relationship with your doctor is essential when living with cystic fibrosis. CF patients often report feeling dismissed when talking to their doctors. On a recent social media Q&A...

Depending on the nature of a person's chronic condition and how it impacts their daily life, they may or may not want to be in the workforce. Plus – and...

There has been a lot of talk about cleaning, disinfecting, and overall best hygiene practices this past year. For those living with cystic fibrosis (CF), cleaning and disinfecting has been...

Trikafta has changed the lives of many individuals and families in the CF community since it’s release. A lot of people with CF are finally feeling better and living different...

Perhaps you are thinking about situations where you may not be able to make decisions about your own healthcare. This might be because you have a chronic illness that may...

Receiving a phone call that your new child's newborn screening detected cystic fibrosis can be a frightening situation. Your doctor will probably advise you to bring your baby in for...

Whether it is your first child or your fourth, a new baby brings physical, mental, and emotional exhaustion. Mothers are dealing with fluctuating hormones and the recovery period after labor...

It's no secret that cystic fibrosis touches every area of our lives. Whether we are going to school, choosing colleges, entering the workforce, or building relationships, CF is there. When...