My Life with Cystic FibrosisMy name is Craig Konowal, and I was diagnosed with CF at birth. I was able to get an early diagnosis because...reactionscomments
The Sweat Test: Confirming Your Child's DiagnosisReceiving a phone call that your new child's newborn screening detected cystic fibrosis can be a frightening situation. Your doctor will probably...reactionscomments
Clearing The Fog: Advice For New CF ParentsWhether it is your first child or your fourth, a new baby brings physical, mental, and emotional exhaustion. Mothers are dealing with...reactions1comment
Finding Answers To Chronic Pain: CF And Rheumatoid ArthritisIn the "Searching for Answers to Chronic Pain," I detailed the frustrating journey of living with chronic pain since late puberty. After...reactionscomments
Exploring Post Traumatic Stress Disorder in Cystic Fibrosis (Part 2)It is still early days when looking at the long-lasting effects trauma can have on babies and parents in newborn intensive care...reactionscomments
The Difficulty With CF Clinic NumbersEven though I have gone to roughly 140 or more cystic fibrosis clinics in my life so far, I still feel anxious...reactionscomments
You've Decided You Want to See a Therapist... Now What?It was a cool, dreary November day. My husband and I were at my cystic fibrosis clinic and, while we didn’t know...reactionscomments
MemoriesI’ve never been shy in regards to talking about those whom I have met with cystic fibrosis and the impact they’ve had...reactionscomments
You Judged Me For My Invisible Illness and You Didn't Even Know ItThe other day, a small card was left on my windshield at a local shopping plaza. It read, “Hey idiot! You absolutely...reactionscomments
The Link Between CF and Ear InfectionsOtitis media, more commonly known as middle ear infections, is a prevalent infection that usually occurs in childhood. In fact, otitis media...reactionscomments
The Microbiome and Cystic FibrosisIn recent years, scientists have become increasingly interested in our microbiome and how it impacts many conditions, from gastrointestinal issues to neurological...reactionscomments
Travel and Cystic FibrosisTraveling with cystic fibrosis can be challenging at times. However, CF is manageable with the right preparation and precautions. Although it may...reactionscomments
Managing a Hospital Stay as a CF CaregiverCystic fibrosis, in most instances, requires frequent hospital stays for everything from a “tune-up” to a full-blown lung exacerbation and much more...reactionscomments
Types of CFTR Modulators: Correctors, Potentiators, and AmplifiersCystic fibrosis (CF) is a disease caused by genetic mutations (changes) in a specific gene called the cystic fibrosis transmembrane conductor regulator...reactionscomments
Ostomy Types for Cystic FibrosisPeople with cystic fibrosis (CF) may experience intestinal blockages and intestinal dysmotility at any stage in their life. Dysmotility is when the...reactionscomments
Caring For An Ostomy BagIf you are new to having an ostomy, caring for it may seem a little scary. If your child is new to...reactionscomments
Ibuprofen Use In Cystic FibrosisInflammation in cystic fibrosis (CF) is one of the ways that lung damage happens. Since death from CF is mostly due to...reactionscomments
Does Trikafta Make Having a Cold Any Easier?When Trikafta was released almost a year and a half ago, a slew of people started recording how quickly they got over...reactionscomments
How Being A CF Caregiver Changes Our LivesBeing a caregiver to a loved one with CF inevitably affects the way you live your life. While we love the people...reactionscomments
What's The Deal With Fertility Testing And CF?As people with CF continue to live longer, healthier lives, couples are in the unique position to decide to become parents or...reactionscomments
