Gastrostomy Tubes (G-Tubes) and Cystic FibrosisGaining weight can increase energy and reduce complications for people with cystic fibrosis (CF). However, about 85 percent of people with cystic fibrosis cannot produce the pancreatic enzymes they need... By Editorial Team 4 min readBookmark for laterReactions 0 reactions Comments0 comments
How Has Cystic Fibrosis Affected Your Mental Health?Many of us are very familiar with the way cystic fibrosis (CF) can physically affect our bodies. However, in addition to cystic fibrosis impacting our lungs, pancreas, liver, sinuses, and... By Editorial Team 3 min readBookmark for laterReactions 0 reactions Comments0 comments
Relearning Treatment Compliance After TrikaftaIn my teenage years, I struggled heavily with CF treatment compliance. I had a very laid-back approach to my health that bordered on apathy. I would forget to do treatments... By Kynsie Riedel2 min readBookmark for laterReactions 0 reactions Comments1 comments
What Is Distal Intestinal Obstructive Syndrome (DIOS)?Distal intestinal obstruction syndrome (DIOS) is a condition where the small intestines get blocked by thickened stool. About 15 percent of people with cystic fibrosis (CF) experience DIOS. It happens... By Editorial Team 2 min readBookmark for laterReactions 0 reactions Comments0 comments
Living With CF: A Podcast Interview with Megan BarlowI recently spoke with Megan Barlow, one of the contributors here at Cystic-Fibrosis.com, who shared her experiences of life with CF and how she combines treatment, exercise, and her craftwork... By EmilyD1 min readBookmark for laterReactions 0 reactions Comments0 comments
What Has Been The Biggest Obstacle You Have Overcome With CF?Each person in the cystic fibrosis community has had to overcome their fair share of obstacles. These obstacles come and go throughout our lives but, together, we can overcome them!... By Editorial Team 3 min readBookmark for laterReactions 0 reactions Comments0 comments
Painful TruthThere’s a topic I usually don’t talk about because it was hard to come to terms with it. I found courage and strength to talk about this because I don’t... By Marieliz Landa3 min readBookmark for laterReactions 0 reactions Comments2 comments
Storing CF Medication On The GoAs a busy mother, I spend a lot of time multitasking and rushing out the door to some engagement or errand I have most certainly forgotten. In the midst of... By Janeil Whitworth3 min readBookmark for laterReactions 0 reactions Comments0 comments
6 Month Trikafta Update (Part 2)I’ve seen so many incredible improvements from Trikafta, as you may have read in Part 1. I expected Trikafta to primarily help my lungs, as other modifiers have, but I... By Kynsie Riedel4 min readBookmark for laterReactions 0 reactions Comments0 comments
Health Risks For Cystic Fibrosis CarriersCystic fibrosis (CF) is a genetic disease caused by two mutated copies of a gene called the cystic fibrosis transmembrane conductance regulator (CFTR). CF carriers have one mutated copy of... By Editorial Team 3 min readBookmark for laterReactions 0 reactions Comments3 comments
What I Wish People Knew About CFIf you are reading this article, you probably know what cystic fibrosis is. You may have cystic fibrosis yourself and understand what it is like to live with it every... By Editorial Team 1 min readBookmark for laterReactions 0 reactions Comments0 comments
The CF Caregiver: An Honest Morning RoutineIt's just about impossible to keep a steady daily routine when you have a baby with cystic fibrosis (or a baby at all, really). Here's what an honest morning routine... By Meghan Wilson5 min readBookmark for laterReactions 0 reactions Comments2 comments
Becoming Mom: My Path to CF Motherhood (Part 2)My long, winding path to motherhood with cystic fibrosis continues from where we left off last. In case you missed the beginning of this story, here's a summary: a pre-teen... By Janeil Whitworth3 min readBookmark for laterReactions 0 reactions Comments0 comments
5 Helpful Tips for CaregiversReceiving a cystic fibrosis diagnosis can be a life-altering experience, not only for the person with the diagnosis, but also for the spouse, child, parent or friend who becomes the... By Editorial Team 3 min readBookmark for laterReactions 0 reactions Comments0 comments
Nature's Impact on Our Physical & Mental HealthThere is growing evidence that spending time in nature can help people feel less depressed, anxious, or stressed. Maintaining our connection to nature can improve one’s quality of life and... By Editorial Team 2 min readBookmark for laterReactions 0 reactions Comments0 comments
With Our Son, CF Might Be the Least of Our ProblemsAs I watch my 20-month-old son spin around with his eyes closed, laughing the whole time and blissfully – maybe purposefully? – unaware of how close he somehow simultaneously is... By Steve Wilson3 min readBookmark for laterReactions 0 reactions Comments0 comments
Five Summertime Tips for Staying HealthySummertime is like a relieving deep breath for a lot of people in the cystic fibrosis community. During this season, the increased risk of seasonal flu and colds dies away... By Janeil Whitworth3 min readBookmark for laterReactions 0 reactions Comments0 comments
Sick All By MyselfIt’s stressful being sick with a genetic disease that causes a wide range of chronic symptoms. It’s even harder being the only one in the family who was seriously sick... By Marieliz Landa2 min readBookmark for laterReactions 0 reactions Comments0 comments
Planning for Motherhood: Practical ConsiderationsIn part one of this series, I shared some considerations to take into account before deciding to conceive with cystic fibrosis. Focusing mostly on health, they included: maximizing health status... By Janeil Whitworth3 min readBookmark for laterReactions 0 reactions Comments0 comments
6 Month Trikafta Update (Part 1)Six months ago I began taking Trikafta--a life-changing treatment for cystic fibrosis. While Trikafta is not a cure, I affectionately refer to it as my “silver bullet.” I’ve noticed so... By Kynsie Riedel4 min readBookmark for laterReactions 0 reactions Comments0 comments