Articles

One of the best things about growing up and finishing high school is the excitement of going to college. It was a different path for me because I did not...

Access to medicine is important. Drug regimens are part of treating many health conditions, and delays in taking drugs can have serious effects on health and well-being. Many people get...

People with cystic fibrosis (CF) may experience intestinal blockages and intestinal dysmotility at any stage in their life. Dysmotility is when the intestines do not function correctly to move bowel...

Let’s talk about exercising with cystic fibrosis. (Soft groan from the peanut gallery). Everyone’s aware of how important it is for both your physical and mental health to exercise regularly...

Our current life events in shutdown and quarantine remind me how twenty-five years ago when my son was diagnosed with cystic fibrosis, my world stopped. My immediate, “protective mom” reaction...

In January 1990, my parents sat staring anxiously at the person with a Ph.D. who was breaking the news; your beautiful baby girl has a genetic condition, it's called cystic...

Gaining weight can increase energy and reduce complications for people with cystic fibrosis (CF). However, about 85 percent of people with cystic fibrosis cannot produce the pancreatic enzymes they need...

Many of us are very familiar with the way cystic fibrosis (CF) can physically affect our bodies. However, in addition to cystic fibrosis impacting our lungs, pancreas, liver, sinuses, and...

In my teenage years, I struggled heavily with CF treatment compliance. I had a very laid-back approach to my health that bordered on apathy. I would forget to do treatments...

Distal intestinal obstruction syndrome (DIOS) is a condition where the small intestines get blocked by thickened stool. About 15 percent of people with cystic fibrosis (CF) experience DIOS. It happens...

I recently spoke with Megan Barlow, one of the contributors here at Cystic-Fibrosis.com, who shared her experiences of life with CF and how she combines treatment, exercise, and her craftwork...

Each person in the cystic fibrosis community has had to overcome their fair share of obstacles. These obstacles come and go throughout our lives but, together, we can overcome them!...

There’s a topic I usually don’t talk about because it was hard to come to terms with it. I found courage and strength to talk about this because I don’t...

As a busy mother, I spend a lot of time multitasking and rushing out the door to some engagement or errand I have most certainly forgotten. In the midst of...

I’ve seen so many incredible improvements from Trikafta, as you may have read in Part 1. I expected Trikafta to primarily help my lungs, as other modifiers have, but I...

Cystic fibrosis (CF) is a genetic disease caused by two mutated copies of a gene called the cystic fibrosis transmembrane conductance regulator (CFTR). CF carriers have one mutated copy of...

If you are reading this article, you probably know what cystic fibrosis is. You may have cystic fibrosis yourself and understand what it is like to live with it every...

It's just about impossible to keep a steady daily routine when you have a baby with cystic fibrosis (or a baby at all, really). Here's what an honest morning routine...

My long, winding path to motherhood with cystic fibrosis continues from where we left off last. In case you missed the beginning of this story, here's a summary: a pre-teen...

Receiving a cystic fibrosis diagnosis can be a life-altering experience, not only for the person with the diagnosis, but also for the spouse, child, parent or friend who becomes the...