CF While Being A MinorityOne thing I was told many, many times by various pulmonologists is CF is a “caucasian” disease. It’s primarily a disease you...reactionscomments
Caring For An Ostomy BagIf you are new to having an ostomy, caring for it may seem a little scary. If your child is new to...reactionscomments
Owning My Trikafta Weight GainWhen I began taking Trikafta at the end of last year, I saw the scale do something I have never seen before--continually...reactions3comments
Take the Connected Health Survey!The Connected Health Survey is now closed. Thank you for your interest!In the digital age, there are so many devices, websites, and...reactionscomments
Describing The Worst Days With Chronic PainIn September of 2019, Health Union (the parent company of Cystic-Fibrosis.com) partnered with the US Pain Foundation for our first ever Chronic...reactionscomments
How Cystic Fibrosis Affects MeToday I talk about how my cystic fibrosis affects me, from pills and nebulizers to physio and IVs. Here is a brief...reactionscomments
Choosing To LiveI have always been a very cautious person, but having cystic fibrosis has made me more anxious over the years. As I...reactionscomments
Nutrition Tips For Parents Of Children With CFA child with cystic fibrosis (CF) generally needs to eat more food than other children into their diet in order to stay...reactionscomments
CF and Infertility After Pregnancy*Trigger warning: This article topic involves pregnancy, infertility, and mildly graphic descriptions of cystic fibrosis-related medical issues including hemoptysis. My pregnancy with...reactionscomments
Infographic: Pain Management Treatment and CareIn September of 2019, Health Union (the parent company of Cystic-Fibrosis.com) partnered with the US Pain Foundation for our first ever Chronic...reactionscomments
College and Cystic FibrosisOne of the best things about growing up and finishing high school is the excitement of going to college. It was a...reactionscomments
Getting Your Medicine During Mail DelaysAccess to medicine is important. Drug regimens are part of treating many health conditions, and delays in taking drugs can have serious...reactionscomments
Ostomy Types for Cystic FibrosisPeople with cystic fibrosis (CF) may experience intestinal blockages and intestinal dysmotility at any stage in their life. Dysmotility is when the...reactionscomments
Celebrating The Benefits Of Exercise With TrikaftaLet’s talk about exercising with cystic fibrosis. (Soft groan from the peanut gallery). Everyone’s aware of how important it is for both...reactionscomments
Life with CF: An Interview and InsightOur current life events in shutdown and quarantine remind me how twenty-five years ago when my son was diagnosed with cystic fibrosis...reactionscomments
My CF Outlook On Life With ModulatorsIn January 1990, my parents sat staring anxiously at the person with a Ph.D. who was breaking the news; your beautiful baby...reactionscomments
Gastrostomy Tubes (G-Tubes) and Cystic FibrosisGaining weight can increase energy and reduce complications for people with cystic fibrosis (CF). However, about 85 percent of people with cystic...reactionscomments
How Has Cystic Fibrosis Affected Your Mental Health?Many of us are very familiar with the way cystic fibrosis (CF) can physically affect our bodies. However, in addition to cystic...reactions2comments
Relearning Treatment Compliance After TrikaftaIn my teenage years, I struggled heavily with CF treatment compliance. I had a very laid-back approach to my health that bordered...reactions1comment
What Is Distal Intestinal Obstructive Syndrome (DIOS)?Distal intestinal obstruction syndrome (DIOS) is a condition where the small intestines get blocked by thickened stool. About 15 percent of people...reactionscomments
