How Has CF Affected Your Hobbies & Passions?If you or a loved one has CF, you probably know that it can dictate what types of hobbies we can have. We asked our advocate team, "How has CF... By Editorial Team 3 min readBookmark for laterReactions 0 reactions Comments0 comments
The CF Sibling RelationshipRight now my kids are outside playing together in the sprinkler. I hear them laughing and having a great time out there. They are two years apart and, while they... By Misty Roussa3 min readBookmark for laterReactions 0 reactions Comments3 comments
My Pet is a Part of My CF CareApart from the fun and joy animals bring us, animals can also be natural healers, especially when we welcome them into our homes. There’s growing research showing pet ownership has... By Janeil Whitworth3 min readBookmark for laterReactions 0 reactions Comments0 comments
COVID-19 Updates, June 15: Solidarity Hydroxychloroquine Trials and COVID Vaccine DevelopmentMany of us are overwhelmed by the amount of information available on COVID-19. Keeping up with all of the news can be challenging. Here are some of the top developments... By Editorial Team 3 min readBookmark for laterReactions 0 reactions Comments0 comments
InsomniaInsomnia is so common with cystic fibrosis (CF). I find it a miracle when I can sleep for more than 4 to 5 hours at a time. Some days even... By Marieliz Landa2 min readBookmark for laterReactions 0 reactions Comments0 comments
Planning for Motherhood: Health ConsiderationsAs people with cystic fibrosis continue to live longer and healthier lives, adult milestones are becoming more attainable. For the first time, many men and women with CF are considering... By Janeil Whitworth3 min readBookmark for laterReactions 0 reactions Comments0 comments
Decision To PortOne of the difficult things about having CF is home infusions and or hospital stays. For me, hospital stays usually last a week or more. During admissions, there’s a constant... By Marieliz Landa3 min readBookmark for laterReactions 0 reactions Comments0 comments
Day In the Life of Someone with Chronic PainChronic pain is a close friend of cystic fibrosis - a particularly unwanted friend, that is. Although chronic pain is a relatively common complication of CF, it is not an... By Janeil Whitworth4 min readBookmark for laterReactions 0 reactions Comments0 comments
Please Don't Give Me "Sad Face"When you give me that look I know you mean well. I know you’re trying to show me that you sympathize. I know you might not be able to help... By Meghan Wilson4 min readBookmark for laterReactions 0 reactions Comments0 comments
Mask Giveaway Terms and ConditionsOfficial Rules, Terms and Conditions for 65 Roses Mask Giveaway NO PURCHASE NECESSARY TO ENTER OR WIN. A PURCHASE DOES NOT INCREASE YOUR CHANCES OF WINNING. VOID WHERE PROHIBITED. The... By Sarah Coff10 min readBookmark for laterReactions 0 reactions Comments0 comments
We Will Always Celebrate CF Awareness MonthHappy Cystic Fibrosis Awareness Month! It’s a special month for the CF community filled with advocacy and spotlighting our experiences. Although CF awareness month will be slightly different this year... By Janeil Whitworth3 min readBookmark for laterReactions 0 reactions Comments0 comments
Pain is Common & Constant: The Impact on Quality of LifeIn September of 2019, Health Union (the parent company of Cystic-Fibrosis.com) partnered with the US Pain Foundation for our first ever Chronic Pain in America survey to ask members of... By Editorial Team 2 min readBookmark for laterReactions 0 reactions Comments0 comments
Day In The Life Of A CF Tune-UpWhen living with cystic fibrosis, occasional worsening of CF symptoms is all too common. So common in fact, treating a flare of symptoms has a nickname in the cystic fibrosis... By Janeil Whitworth3 min readBookmark for laterReactions 0 reactions Comments0 comments
The (Virtual) Doctor Is In! Sharing Telehealth ExperiencesAs the COVID-19 pandemic continues, telehealth is being used by more and more people. Telehealth is also sometimes called telemedicine or virtual care. Whether you have been using telehealth for... By Editorial Team 1 min readBookmark for laterReactions 0 reactions Comments0 comments
Relationships with Cystic FibrosisI believe that having relationships and falling in love is very important for every person, but it’s harder to navigate when you have an illness that can shorten your life... By Marieliz Landa2 min readBookmark for laterReactions 0 reactions Comments0 comments
Social Distancing Spurs Telehealth SurgeThe technology needed for virtual healthcare has been around for decades. But virtual care has not been widely used in the United States until recently. The recent public health emergency... By Editorial Team 3 min readBookmark for laterReactions 0 reactions Comments0 comments
Thank You for Taking Our Survey!We appreciate you taking the time to answer all of our questions. Your responses will help us better understand life with cystic fibrosis. New here? We invite you to explore... By Editorial Team 1 min readBookmark for laterReactions 0 reactions Comments0 comments
How to Monitor Your Health with At-Home DevicesAt-home monitoring can help you better manage chronic health conditions. It can also aid in your recovery after medical procedures. Using this technology, you can regularly record your health data... By Editorial Team 3 min readBookmark for laterReactions 0 reactions Comments0 comments
A Thank You To All the Moms With Adult CF ChildrenTo All the Moms with Adult CF Children: Present from the very beginning, this is a thank you to all the moms with adult CF children. The ones who faced... By Janeil Whitworth3 min readBookmark for laterReactions 0 reactions Comments0 comments
Privacy Concerns When Going VirtualTelehealth has become a popular way to see a doctor. Today, you can get many health services remotely. And, some studies show you may get better care at a lower... By Editorial Team 4 min readBookmark for laterReactions 0 reactions Comments0 comments