Ask The Advocates: Unexpected CF SymptomsThere are symptoms that people with CF expect to experience, like frequent coughing and lung complications. However, CF can contribute to many...reactions1comment
Opening Up About Cystic FibrosisGrowing up I kept my CF hidden from everyone, to me it was a good thing that it was invisible because I...reactionscomments
Growing Up With a Sibling With CF: My Sister's PerspectiveI am very lucky to have grown up in a family that loved me for me--and my CF. Being the only one...reactionscomments
Being Prepared With Advanced PlanningAdvance directives aren’t something to be scared about doing and it’s not something to put off either. We each have preferences and...reactionscomments
The Effect Stress Can Have On CF SymptomsIdentifying triggers for an infection flare-up has been a minefield I am still learning to navigate healthily. We have all heard psychological...reactions4comments
Cystic Fibrosis Community on InstagramDid you know that you can find the Cystic-Fibrosis.com community on Instagram? In addition to participating in our interactive online community, we...reactionscomments
My Journey To Becoming A CF Parent: Part IIRead Part I here. I will never forget the day we received the phone call. It was a Wednesday, and Rhett and...reactionscomments
The Lung Bleed vs. The Lung PeriodBouts of hemoptysis (coughing up blood) that worsen during a monthly menstrual cycle are becoming a frequent problem for CF women. Could...reactions2comments
Tips For Communicating With Your CF Care TeamCommunication with your CF care team is more important than we realize. Sure, it’s necessary to report sickness and enlist their help...reactionscomments
Survivor’s GuiltOne of the hardest aspects of having CF is outliving the friends you make with CF. I know I fight mentally with...reactionscomments
Cystic-Fibrosis.com Community Year In ReviewSince Health Union (the parent company of Cystic-Fibrosis.com) launched this online community, our goal has always been to elevate the voices of...reactionscomments
CF While Being A MinorityOne thing I was told many, many times by various pulmonologists is CF is a “caucasian” disease. It’s primarily a disease you...reactionscomments
Telling Your Story May Be Good for Your Health“While writing about my health issues has not cured them, it has helped me develop better coping skills and even contributed to...reactionscomments
How Cystic Fibrosis Affects MeToday I talk about how my cystic fibrosis affects me, from pills and nebulizers to physio and IVs. Here is a brief...reactionscomments
Choosing To LiveI have always been a very cautious person, but having cystic fibrosis has made me more anxious over the years. As I...reactionscomments
College and Cystic FibrosisOne of the best things about growing up and finishing high school is the excitement of going to college. It was a...reactionscomments
Celebrating The Benefits Of Exercise With TrikaftaLet’s talk about exercising with cystic fibrosis. (Soft groan from the peanut gallery). Everyone’s aware of how important it is for both...reactionscomments
Musical Chest PT for CF, or How I Bond with My SonAlthough not by design, music – singing, really – has played a big role in my relationship with my children. Singing or...reactions1comment
Becoming Mom: My Path to CF Motherhood (Part 1)I distinctly remember the day I realized cystic fibrosis was the reason I wouldn’t go through pregnancy and become a mom. This...reactionscomments
What Are Digital Therapeutics?Digital therapeutics (DTx) first entered clinical discussions in the 1990s. The idea was that technology could improve healthcare access. It could help...reactionscomments
