What I Wish People Knew About CFIf you are reading this article, you probably know what cystic fibrosis is. You may have cystic fibrosis yourself and understand what it is like to live with it every...reactionscomments
The CF Caregiver: An Honest Morning RoutineIt's just about impossible to keep a steady daily routine when you have a baby with cystic fibrosis (or a baby at all, really). Here's what an honest morning routine...reactions2comments
Becoming Mom: My Path to CF Motherhood (Part 2)My long, winding path to motherhood with cystic fibrosis continues from where we left off last. In case you missed the beginning of this story, here's a summary: a pre-teen...reactionscomments
5 Helpful Tips for CaregiversReceiving a cystic fibrosis diagnosis can be a life-altering experience, not only for the person with the diagnosis, but also for the spouse, child, parent or friend who becomes the...reactionscomments
Nature's Impact on Our Physical & Mental HealthThere is growing evidence that spending time in nature can help people feel less depressed, anxious, or stressed. Maintaining our connection to nature can improve one’s quality of life and...reactionscomments
With Our Son, CF Might Be the Least of Our ProblemsAs I watch my 20-month-old son spin around with his eyes closed, laughing the whole time and blissfully – maybe purposefully? – unaware of how close he somehow simultaneously is...reactionscomments
Five Summertime Tips for Staying HealthySummertime is like a relieving deep breath for a lot of people in the cystic fibrosis community. During this season, the increased risk of seasonal flu and colds dies away...reactionscomments
Sick All By MyselfIt’s stressful being sick with a genetic disease that causes a wide range of chronic symptoms. It’s even harder being the only one in the family who was seriously sick...reactionscomments
Planning for Motherhood: Practical ConsiderationsIn part one of this series, I shared some considerations to take into account before deciding to conceive with cystic fibrosis. Focusing mostly on health, they included: maximizing health status...reactionscomments
6 Month Trikafta Update (Part 1)Six months ago I began taking Trikafta--a life-changing treatment for cystic fibrosis. While Trikafta is not a cure, I affectionately refer to it as my “silver bullet.” I’ve noticed so...reactionscomments
How Has CF Affected Your Hobbies & Passions?If you or a loved one has CF, you probably know that it can dictate what types of hobbies we can have. We asked our advocate team, "How has CF...reactionscomments
The CF Sibling RelationshipRight now my kids are outside playing together in the sprinkler. I hear them laughing and having a great time out there. They are two years apart and, while they...reactions3comments
My Pet is a Part of My CF CareApart from the fun and joy animals bring us, animals can also be natural healers, especially when we welcome them into our homes. There’s growing research showing pet ownership has...reactionscomments
COVID-19 Updates, June 15: Solidarity Hydroxychloroquine Trials and COVID Vaccine DevelopmentMany of us are overwhelmed by the amount of information available on COVID-19. Keeping up with all of the news can be challenging. Here are some of the top developments...reactionscomments
InsomniaInsomnia is so common with cystic fibrosis (CF). I find it a miracle when I can sleep for more than 4 to 5 hours at a time. Some days even...reactionscomments
Planning for Motherhood: Health ConsiderationsAs people with cystic fibrosis continue to live longer and healthier lives, adult milestones are becoming more attainable. For the first time, many men and women with CF are considering...reactionscomments
Decision To PortOne of the difficult things about having CF is home infusions and or hospital stays. For me, hospital stays usually last a week or more. During admissions, there’s a constant...reactionscomments
Day In the Life of Someone with Chronic PainChronic pain is a close friend of cystic fibrosis - a particularly unwanted friend, that is. Although chronic pain is a relatively common complication of CF, it is not an...reactionscomments
Please Don't Give Me "Sad Face"When you give me that look I know you mean well. I know you’re trying to show me that you sympathize. I know you might not be able to help...reactionscomments
Mask Giveaway Terms and ConditionsOfficial Rules, Terms and Conditions for 65 Roses Mask Giveaway NO PURCHASE NECESSARY TO ENTER OR WIN. A PURCHASE DOES NOT INCREASE YOUR CHANCES OF WINNING. VOID WHERE PROHIBITED. The...reactionscomments