Burkholderia Cepacia Complex and Cystic FibrosisLung infections and a decrease in lung function are the main reasons for lung transplants and death among people with cystic fibrosis (CF). One of the contributing factors to frequent... By Editorial Team 2 min readBookmark for laterReactions 0 reactions Comments0 comments
The Challenges And Perks To My Weight GainAll my life I struggled to keep my weight in a healthy range. I was always underweight and the smallest in my class. I’d hook up to my feeding pump... By Cheriz K.3 min readBookmark for laterReactions 0 reactions Comments0 comments
I'm Not Just Tired: Chronic Fatigue in CFIn my husband’s very affectionately true words, “When are you not tired?” According to many people living with cystic fibrosis: never. In a study conducted in 2012, participants with cystic... By Janeil Whitworth3 min readBookmark for laterReactions 0 reactions Comments12 comments
Cystic-Fibrosis.com Community Year In ReviewSince Health Union (the parent company of Cystic-Fibrosis.com) launched this online community, our goal has always been to elevate the voices of those affected by cystic fibrosis. Whether an article... By Dana I.3 min readBookmark for laterReactions 0 reactions Comments0 comments
CF While Being A MinorityOne thing I was told many, many times by various pulmonologists is CF is a “caucasian” disease. It’s primarily a disease you find in someone who isn’t me. I never... By Marieliz Landa2 min readBookmark for laterReactions 0 reactions Comments0 comments
Caring For An Ostomy BagIf you are new to having an ostomy, caring for it may seem a little scary. If your child is new to having an ostomy, that may feel even scarier... By Editorial Team 4 min readBookmark for laterReactions 0 reactions Comments0 comments
Owning My Trikafta Weight GainWhen I began taking Trikafta at the end of last year, I saw the scale do something I have never seen before--continually increase. Within seven days of starting this new... By Janeil Whitworth3 min readBookmark for laterReactions 0 reactions Comments2 comments
Take the Connected Health Survey!The Connected Health Survey is now closed. Thank you for your interest!In the digital age, there are so many devices, websites, and technologies related to health. From fitness trackers to... By Editorial Team 1 min readBookmark for laterReactions 0 reactions Comments0 comments
Describing The Worst Days With Chronic PainIn September of 2019, Health Union (the parent company of Cystic-Fibrosis.com) partnered with the US Pain Foundation for our first ever Chronic Pain in America survey to ask members of... By Editorial Team 1 min readBookmark for laterReactions 0 reactions Comments0 comments
How Cystic Fibrosis Affects MeToday I talk about how my cystic fibrosis affects me, from pills and nebulizers to physio and IVs. Here is a brief summary of my personal experience with CF. ... By Kate Eveling1 min readBookmark for laterReactions 0 reactions Comments0 comments
Choosing To LiveI have always been a very cautious person, but having cystic fibrosis has made me more anxious over the years. As I have grown older, I feel like I have... By Marieliz Landa2 min readBookmark for laterReactions 0 reactions Comments0 comments
Nutrition Tips For Parents Of Children With CFA child with cystic fibrosis (CF) generally needs to eat more food than other children into their diet in order to stay healthy. Cystic fibrosis, an inherited genetic disorder caused... By Editorial Team 3 min readBookmark for laterReactions 0 reactions Comments0 comments
CF and Infertility After Pregnancy*Trigger warning: This article topic involves pregnancy, infertility, and mildly graphic descriptions of cystic fibrosis-related medical issues including hemoptysis. My pregnancy with my daughter was one of the hardest things... By Kynsie Riedel5 min readBookmark for laterReactions 0 reactions Comments0 comments
Infographic: Pain Management Treatment and CareIn September of 2019, Health Union (the parent company of Cystic-Fibrosis.com) partnered with the US Pain Foundation for our first ever Chronic Pain in America survey to ask members of... By Editorial Team 2 min readBookmark for laterReactions 0 reactions Comments0 comments
College and Cystic FibrosisOne of the best things about growing up and finishing high school is the excitement of going to college. It was a different path for me because I did not... By Marieliz Landa3 min readBookmark for laterReactions 0 reactions Comments0 comments
Getting Your Medicine During Mail DelaysAccess to medicine is important. Drug regimens are part of treating many health conditions, and delays in taking drugs can have serious effects on health and well-being. Many people get... By Editorial Team 2 min readBookmark for laterReactions 0 reactions Comments0 comments
Ostomy Types for Cystic FibrosisPeople with cystic fibrosis (CF) may experience intestinal blockages and intestinal dysmotility at any stage in their life. Dysmotility is when the intestines do not function correctly to move bowel... By Editorial Team 4 min readBookmark for laterReactions 0 reactions Comments0 comments
Celebrating The Benefits Of Exercise With TrikaftaLet’s talk about exercising with cystic fibrosis. (Soft groan from the peanut gallery). Everyone’s aware of how important it is for both your physical and mental health to exercise regularly... By Janeil Whitworth3 min readBookmark for laterReactions 0 reactions Comments0 comments
Life with CF: An Interview and InsightOur current life events in shutdown and quarantine remind me how twenty-five years ago when my son was diagnosed with cystic fibrosis, my world stopped. My immediate, “protective mom” reaction... By Noreen Tarletsky5 min readBookmark for laterReactions 0 reactions Comments0 comments
My CF Outlook On Life With ModulatorsIn January 1990, my parents sat staring anxiously at the person with a Ph.D. who was breaking the news; your beautiful baby girl has a genetic condition, it's called cystic... By Emma Boniface3 min readBookmark for laterReactions 0 reactions Comments0 comments