Nine Ways To Make CF Care Easier And More FunCystic fibrosis care is overwhelming, monotonous, and exhausting most of the time. Often taking care of myself feels like a vicious, neverending...reactionscomments
Incorporating High Calorie Supplements Into Your Diet While Minimizing SugarsStruggling with weight gain throughout my lifetime has required daily attention to making sure I am consuming enough calories just to maintain...reactionscomments
Quick Guide To Applying For Disability With CFApplying for Social Security Disability can be a daunting and overwhelming process for adults living with cystic fibrosis (CF) who are unable...reactions2comments
Mornings are Tough with CF Part 2: Tips and TricksIn Part 1 of this article series, I discussed how mornings are not an easy part of the day for a lot...reactionscomments
Does Ethnicity Impact Access To CF Treatment?It is no surprise that disparities in health care access have been present since the establishment of a health system. While these...reactionscomments
The Reality Of Cystic Fibrosis: The Inaugural In America Survey FindingsAnyone affected by cystic fibrosis (CF) understands how challenging it can be. CF is a lifelong, genetic disease that affects 30,000 children...reactionscomments
Should I Go For It? Dating Someone with CF (Part 1)Wow! That girl is hot! She is also super cool. She dances, sings, does comedy, she likes a lot of the things...reactions1comment
AwakeI have no idea who goes through this, but I find myself fighting every night to just get to sleep! My problem...reactionscomments
Interview With Julia RaeMost people in the cystic fibrosis community have heard of Julia Rae. Julia Rae is a singer, songwriter, actor, model, and a...reactionscomments
Intussusception Saved My Life: CF Diagnosis StoryAround two-thirds of people living with CF are diagnosed before the age of 2. However, that’s not how my CF diagnosis story...reactionscomments
How CF Has Affected Our Family Dynamic It is a challenge for me to remember two things: what life was like before being a parent, and what life was...reactionscomments
Time Traveling With TrikaftaMuch like the entire cystic fibrosis community, I was eagerly awaiting my arrival of the recently approved CFTR modulator: Trikafta. Following the...reactions1comment
Preparing For A Colonoscopy When You Have Cystic FibrosisColonoscopies are important in helping to screen and prevent colon cancer for everyone, but especially so for those with cystic fibrosis (CF)...reactionscomments
InsomniaInsomnia is so common with cystic fibrosis (CF). I find it a miracle when I can sleep for more than 4 to...reactionscomments
My CF Outlook On Life With ModulatorsIn January 1990, my parents sat staring anxiously at the person with a Ph.D. who was breaking the news; your beautiful baby...reactionscomments
CF-Related Diabetes Risk FactorsCystic fibrosis-related diabetes (CFRD) is one of the most common non-respiratory complications of cystic fibrosis (CF). It differs from Type 1 and...reactionscomments
Cystic Fibrosis and Respiratory TherapyThis year, Respiratory Care Week will be celebrated throughout the United States during the week of October 25-31. If you or someone...reactionscomments
My Journey To Becoming A CF ParentEvery CF parent has a diagnosis story--the process leading up to the diagnosis and the exact moment of learning of their child’s...reactionscomments
Six Minor Ways Trikafta Has Significantly Changed My LifeTrikafta has changed the lives of many individuals and families in the CF community since it’s release. A lot of people with...reactionscomments
What to Expect at a Chest CT ScanCystic fibrosis (CF) is typically diagnosed by a sweat test or with genetic testing, but once a diagnosis has been made, a...reactionscomments
