Articles

Every CF parent has a diagnosis story--the process leading up to the diagnosis and the exact moment of learning of their child’s condition. For many people, the diagnosis comes within...

As caregivers, we often get so caught up in the routines we have in place that we don’t realize just how much we are managing every day and how it...

Those with cystic fibrosis know that it branches out into every area of their lives. Unfortunately, dating and relationships are no exception. Many people with cystic fibrosis worry about relationships...

Voting is a fundamental American right, but it has special meaning for people with disabilities or health conditions. Until federal laws like the Americans with Disabilities Act (ADA) were enacted...

One of the hardest aspects of having CF is outliving the friends you make with CF. I know I fight mentally with the thought of, “When is it my turn?”...

Whether or not you have a child, most people would agree that parenting is hard. Although there is no right or wrong way to raise a child, new trends, latest...

Lung infections and a decrease in lung function are the main reasons for lung transplants and death among people with cystic fibrosis (CF). One of the contributing factors to frequent...

All my life I struggled to keep my weight in a healthy range. I was always underweight and the smallest in my class. I’d hook up to my feeding pump...

In my husband’s very affectionately true words, “When are you not tired?” According to many people living with cystic fibrosis: never. In a study conducted in 2012, participants with cystic...

Since Health Union (the parent company of Cystic-Fibrosis.com) launched this online community, our goal has always been to elevate the voices of those affected by cystic fibrosis. Whether an article...

One thing I was told many, many times by various pulmonologists is CF is a “caucasian” disease. It’s primarily a disease you find in someone who isn’t me. I never...

If you are new to having an ostomy, caring for it may seem a little scary. If your child is new to having an ostomy, that may feel even scarier...

When I began taking Trikafta at the end of last year, I saw the scale do something I have never seen before--continually increase. Within seven days of starting this new...

The Connected Health Survey is now closed. Thank you for your interest!In the digital age, there are so many devices, websites, and technologies related to health. From fitness trackers to...

In September of 2019, Health Union (the parent company of Cystic-Fibrosis.com) partnered with the US Pain Foundation for our first ever Chronic Pain in America survey to ask members of...

Today I talk about how my cystic fibrosis affects me, from pills and nebulizers to physio and IVs. Here is a brief summary of my personal experience with CF.  ...

I have always been a very cautious person, but having cystic fibrosis has made me more anxious over the years. As I have grown older, I feel like I have...

A child with cystic fibrosis (CF) generally needs to eat more food than other children into their diet in order to stay healthy. Cystic fibrosis, an inherited genetic disorder caused...

*Trigger warning: This article topic involves pregnancy, infertility, and mildly graphic descriptions of cystic fibrosis-related medical issues including hemoptysis. My pregnancy with my daughter was one of the hardest things...

In September of 2019, Health Union (the parent company of Cystic-Fibrosis.com) partnered with the US Pain Foundation for our first ever Chronic Pain in America survey to ask members of...