Caregiver Month Self-Care GiveawayThe ______ Giveaway is now closed. Thank you for your interest! November is National Caregiver Month, which means it is time to uplift and celebrate the amazing people in our...Reactions0reactionsComments0 comments
Shopping Smarter for the Holiday SeasonThe holiday season is about to start! Each family has different traditions and beliefs around the holidays. But most people do see their close friends and family during this time...Reactions0reactionsComments0 comments
What Is Gene Therapy?Genes are the pieces of DNA that make us who we are. They determine our eye and hair color, how tall we will be, and if we are prone to...Reactions0reactionsComments0 comments
The Many Colors of Cystic Fibrosis: Beige (Part 2)In my last article, I discussed the impact of the color beige on my journey with cystic fibrosis (CF). Let’s continue talking about beige. You can read Part 1 of the...Reactions0reactionsComments0 comments
The Many Colors of Cystic Fibrosis: Beige (Part 1)If you haven’t read my columns before, allow me to reintroduce myself. My name is Nicole Kohr. I am a cystic fibrosis (CF) patient, a bilateral lung transplant recipient, and...Reactions0reactionsComments0 comments
Off to KindergartenWe are officially one month into kindergarten, and so far, we have had only positive experiences in Margo’s transition. She went from pre-K on a Friday to kindergarten on a...Reactions0reactionsComments0 comments
Ask the Health Leaders: Telehealth or In-Person?Technology has come a long way, and we now have the option to receive care from medical professionals in the comfort of our own homes. The convenience is undeniable. Schedules...Reactions0reactionsComments0 comments
Managing Time As An Adult With CFRecently, I was talking to my sister about her three kids starting school again. In addition to the new school year, we talked about how the oldest is going to...Reactions0reactionsComments0 comments
Updating Your Name When You Receive MedicareHappy October everyone! Today I wanted to talk about how to change your name after marriage. I was recently married in September and I have been working on getting my...Reactions0reactionsComments0 comments
Crawling Towards the CureYou know how when you’re running a race and you’re so tired you just want to stop, but then you see the finish line and it gives you the will...Reactions0reactionsComments0 comments
Topics I Hope to See Covered at the NACFCEvery year, I look forward to tuning into the North American Cystic Fibrosis Conference (NACFC) to learn more about the newest research and data conducted on cystic fibrosis from around...Reactions0reactionsComments0 comments
Living In The Trikafta EraMany of us are old hats when it comes to the bog standard CF stuff. So, this new territory that is the Trikafta Era feels almost like an illusion of...Reactions0reactionsComments0 comments
Switching DoctorsIn a previous article, I spoke about switching pharmacies. Changing to a new pharmacy needs planning and communication. But it can be done easily if everyone is on the same...Reactions0reactionsComments2 comments
Why Is Asking for Help So Difficult?Why as humans do we have such a difficult time admitting we need help? Maybe it’s because being vulnerable is an uncomfortable state for many people. Vulnerability opens us up...Reactions0reactionsComments1 comments
Individualized Health Plan: Medication and FoodIn my previous article, I detailed Margo’s Individualized Health Plan (IHP) and our initial meeting with the school nurse. We left the meeting so energized and felt completely comfortable that...Reactions0reactionsComments0 comments
Ask the Health Leaders: CF ProgressionThere is a progressive nature to cystic fibrosis (CF), and it is a reality of living with CF despite recent advances in treatment. We asked our health leaders to share...Reactions0reactionsComments0 comments
Creating A CF Individualized Health Plan (IHP)For the next step in our prep for Margo to start kindergarten, my husband and I met with the school nurse. We were both looking forward to this meeting as...Reactions0reactionsComments0 comments
Challenges of Being A Caregiver with CFCancer is an unwelcome yet frequent visitor that seems to always show up uninvited in my family. As a kid, I lost my dad to pancreatic cancer and watched my...Reactions0reactionsComments0 comments
Getting Ready for Cold and Flu Season (Part 2)In my previous article, I wrote about how to prepare for cold and flu season. I shared practical steps to keeping your home safe and how to practice healthy habits...Reactions0reactionsComments0 comments
Getting Ready for Cold and Flu Season (Part 1)Cold and flu season is coming up very soon. And in this two-part series, I’ll be sharing information with you on how to get you and your family ready for...Reactions0reactionsComments0 comments