PICC Lines and Ports for People With CFPeople with cystic fibrosis (CF) often need treatment with IV (intravenous) medications, most frequently antibiotics. Vascular access devices, including peripherally inserted central...reactionscomments
What It Means To Be A CF WarriorSome of the fiercest people I know have CF. The strength, determination and sheer willpower to fight for another breath is formidable...reactionscomments
Embracing Changes in CF ManagementIn my last article, I discussed making accommodations for the changes CF imposes on me and many other patients. However, those aren’t...reactionscomments
6 Month Trikafta Update (Part 2)I’ve seen so many incredible improvements from Trikafta, as you may have read in Part 1. I expected Trikafta to primarily help...reactionscomments
6 Month Trikafta Update (Part 1)Six months ago I began taking Trikafta--a life-changing treatment for cystic fibrosis. While Trikafta is not a cure, I affectionately refer to...reactionscomments
Sleep Issues and Cystic FibrosisSleep is a basic human need. We all need sleep, just as much as food and water, to stay healthy and fit...reactionscomments
CF Snacks My Five Year Old LovesI have yet to meet a parent whose child has a perfectly balanced and healthy diet 24/7. Sure, we would love that...reactionscomments
My CF Exacerbation Complication: AtelectasisLiving with CF, I know pain–all kinds of different types, locations, and degrees of pain. Pain from lung infections and coughing, abdominal...reactionscomments
Painsomnia: The Unspoken CF SymptomPainsomnia became more of an issue for me in my twenties when I felt it was a symptom often overlooked by CF...reactionscomments
Slow Trikafta Coverage Expands in CanadaTRIKAFTA® (elexacaftor/tezacaftor/ivacaftor and ivacaftor), Vertex’s newest CFTR modulator, has been available in the U.S. for those 6 and up with one F508del...reactionscomments
Where Do I Fit In?Having cystic fibrosis is challenging enough. It’s a daily cycle of medications and finding a balance in the day of when to...reactionscomments
Thousands of Feet ApartHaving cystic fibrosis means that I cannot be within 6 feet of another CFer. As I write this, it’s still hard for...reactionscomments
Prednisone FaceHaving cystic fibrosis involves taking so many medications and, unfortunately, each and every one of them has side effects. Each one takes...reactionscomments
Having an Emergency Preparedness PlanHaving a plan in case of an emergency or natural disaster is important and a good idea for anyone, but especially those...reactionscomments
Mom with CF: Worries of the WorldThe world has been heavy lately, if you haven’t noticed. Civil and governmental arrest in the Middle East, natural disasters peppering the...reactions3comments
What Lifestyle Changes Has Cystic Fibrosis Caused?We asked our advocates, "What changes have you had to make to your life/lifestyle because of cystic fibrosis?" Here's what they wanted...reactionscomments
My 25-Year Anniversary of CF DiagnosisThe 25th anniversary of my diagnosis. It crept up on me without my noticing. I was on a meeting a week or...reactionscomments
Getting Triggered By CF Medical TraumaI had cystic fibrosis (CF) exacerbations every other month for many years. The routine was pretty much the same. My doctors would...reactionscomments
Exploring Post Traumatic Stress Disorder in Cystic Fibrosis (Part 1)Living with cystic fibrosis can be physically debilitating and mentally destabilizing. We know there is an elevated level of depression and anxiety...reactions1comment
What to Say When Your Friend's Child is Diagnosed with CFFive years ago, when my daughter Caroline was two weeks old, she was diagnosed with cystic fibrosis (CF). Initially, we kept her...reactionscomments
