What Is the Social Health Network Community?Like our other Health Union condition communities, the Social Health Network brings people together to drive unique and impactful conversations about health. It also aims to expand opportunities for health...reactions2comments
National Caregiver Appreciation Month: Thank-You PostcardsWe are excited to participate in National Caregiver Appreciation Month this year, held each year in the month of November. As cystic fibrosis (CF) is a genetic condition and is...reactionscomments
Important Documents and Cystic FibrosisWhen you live with cystic fibrosis (CF) you are familiar with having hard conversations. We must talk to our doctors about what happens if a new medicine doesn’t work. Additionally...reactionscomments
Building Good Relationships With Our Care TeamsRelationships with our healthcare teams are integral to our health journey. This can feel especially true when living with cystic fibrosis (CF), as the doctors, nurses and other medical professionals...reactionscomments
Caregiver Month Self-Care GiveawayThe ______ Giveaway is now closed. Thank you for your interest! November is National Caregiver Month, which means it is time to uplift and celebrate the amazing people in our...reactionscomments
Shopping Smarter for the Holiday SeasonThe holiday season is about to start! Each family has different traditions and beliefs around the holidays. But most people do see their close friends and family during this time...reactionscomments
What Is Gene Therapy?Genes are the pieces of DNA that make us who we are. They determine our eye and hair color, how tall we will be, and if we are prone to...reactionscomments
The Many Colors of Cystic Fibrosis: Beige (Part 2)In my last article, I discussed the impact of the color beige on my journey with cystic fibrosis (CF). Let’s continue talking about beige. You can read Part 1 of the...reactionscomments
The Many Colors of Cystic Fibrosis: Beige (Part 1)If you haven’t read my columns before, allow me to reintroduce myself. My name is Nicole Kohr. I am a cystic fibrosis (CF) patient, a bilateral lung transplant recipient, and...reactionscomments
Off to KindergartenWe are officially one month into kindergarten, and so far, we have had only positive experiences in Margo’s transition. She went from pre-K on a Friday to kindergarten on a...reactionscomments
Ask the Health Leaders: Telehealth or In-Person?Technology has come a long way, and we now have the option to receive care from medical professionals in the comfort of our own homes. The convenience is undeniable. Schedules...reactionscomments
Managing Time As An Adult With CFRecently, I was talking to my sister about her three kids starting school again. In addition to the new school year, we talked about how the oldest is going to...reactionscomments
Updating Your Name When You Receive MedicareHappy October everyone! Today I wanted to talk about how to change your name after marriage. I was recently married in September and I have been working on getting my...reactionscomments
Crawling Towards the CureYou know how when you’re running a race and you’re so tired you just want to stop, but then you see the finish line and it gives you the will...reactionscomments
Topics I Hope to See Covered at the NACFCEvery year, I look forward to tuning into the North American Cystic Fibrosis Conference (NACFC) to learn more about the newest research and data conducted on cystic fibrosis from around...reactionscomments
Living In The Trikafta EraMany of us are old hats when it comes to the bog standard CF stuff. So, this new territory that is the Trikafta Era feels almost like an illusion of...reactionscomments
Switching DoctorsIn a previous article, I spoke about switching pharmacies. Changing to a new pharmacy needs planning and communication. But it can be done easily if everyone is on the same...reactions2comments
Why Is Asking for Help So Difficult?Why as humans do we have such a difficult time admitting we need help? Maybe it’s because being vulnerable is an uncomfortable state for many people. Vulnerability opens us up...reactions1comment
Individualized Health Plan: Medication and FoodIn my previous article, I detailed Margo’s Individualized Health Plan (IHP) and our initial meeting with the school nurse. We left the meeting so energized and felt completely comfortable that...reactionscomments
Ask the Health Leaders: CF ProgressionThere is a progressive nature to cystic fibrosis (CF), and it is a reality of living with CF despite recent advances in treatment. We asked our health leaders to share...reactionscomments
