Coping With the Weight of CFSaying cystic fibrosis (CF) has its obstacles is an understatement. As if the lung infections, gastrointestinal issues, diabetes, and all the other...reactionscomments
Did You See This NACFC Talk? Part 1I look forward to the North American Cystic Fibrosis Conference (NACFC) every year. So much so that this year I devoted a...reactionscomments
Birthdays Through the Lense of Cystic FibrosisIn light of my birthday in January, I’ve been thinking a lot about getting older. Living with cystic fibrosis (CF) has definitely...reactions4comments
Life Challenges and CF ComplicationsI’ve been in what one would call a funk for the past few months. It began with going from being at my...reactionscomments
Please Stop Asking CF Women If They Will Have More KidsAuthor’s note: The title of this article should really read, “Please Stop Asking Women if They Want More Kids”. This subject is...reactionscomments
Challenges of Living in a Rural CommunityToday I wanted to talk to you about something that is a personal obstacle for me when it comes to my healthcare:...reactions7comments
Ask the Health Leaders: CF TraitsPeople living with cystic fibrosis (CF) are often diagnosed at a young age and don't remember a time when they did not...reactionscomments
My 2023 CF Intentions and BeyondAlthough I tend to think of myself as a reasonably optimistic person, 2022 was a devastating year for me, personally. Between my...reactionscomments
A New Year of StoriesWhat would you do if you had a clean slate? If none of the things weighing you down existed? What would you...reactions3comments
Organizing CF MedicationsI have moved less than a handful of times in my life. Most of my moves have been since I got married...reactionscomments
Motherhood Before and After Life Saving TreatmentThere’s a four year age gap between my two boys–and for a very good reason. Once my eldest was born 5 years...reactions1comment
Ask the Health Leaders: Working With CF SpecialistsCystic fibrosis (CF) healthcare teams tackle a variety of health issues, and therefore can be made up of many different types of...reactionscomments
Talking With Work About Cystic FibrosisI have always enjoyed working. My parents noticed my work ethic when I was younger, and it has remained the same. My...reactionscomments
A Letter to Myself During My Diagnosis From the FutureDear Little Girl on the Day of Your Diagnosis, Hey, there! It’s great to see you. You look so sweet and innocent...reactions4comments
Setting New Year GoalsWith 2023 right around the corner, you will probably hear of people wanting to set New Year resolutions. A few examples are...reactions2comments
9 Ways CF Makes the Holidays UniqueThe holidays are some of the year’s most magical and memorable moments. Family and friend gatherings, festive decorations, and cozy winter wonderland...reactionscomments
2022 Cystic Fibrosis In America Findings: Hope for the Future, Honoring the PresentIn our 3rd Annual Cystic Fibrosis In America Survey, 345 people shared how the future of CF is hopeful and their goals...reactionscomments
Hospitalization Series: Packing the EssentialsPacking for vacation is fun. But packing for a hospitalization is not fun. And packing for something you aren't look forward to...reactionscomments
When Is the Right Time to Remove My Port?There’s been so many profound changes for individuals with cystic fibrosis (CF) over the past few years. Many of these changes are...reactions4comments
Hospitalization Series: Pre-Admission RoutineGetting ready to be admitted to the hospital for a cystic fibrosis (CF) tune-up often made me anxious. I knew the coming...reactionscomments
