Ask the Health Leaders: CF TraitsPeople living with cystic fibrosis (CF) are often diagnosed at a young age and don't remember a time when they did not live with this condition. As a result, it...reactionscomments
My 2023 CF Intentions and BeyondAlthough I tend to think of myself as a reasonably optimistic person, 2022 was a devastating year for me, personally. Between my mom’s very serious cancer diagnosis and navigating the...reactionscomments
A New Year of StoriesWhat would you do if you had a clean slate? If none of the things weighing you down existed? What would you do with that freedom? “It’s a new year...reactions3comments
Organizing CF MedicationsI have moved less than a handful of times in my life. Most of my moves have been since I got married. We have lived in a total of three...reactionscomments
Motherhood Before and After Life Saving TreatmentThere’s a four year age gap between my two boys–and for a very good reason. Once my eldest was born 5 years ago, life with CF really hit me hard...reactions1comment
Ask the Health Leaders: Working With CF SpecialistsCystic fibrosis (CF) healthcare teams tackle a variety of health issues, and therefore can be made up of many different types of healthcare professionals and doctors. Some examples include respiratory...reactionscomments
Talking With Work About Cystic FibrosisI have always enjoyed working. My parents noticed my work ethic when I was younger, and it has remained the same. My motivation for working has changed, but the love...reactionscomments
A Letter to Myself During My Diagnosis From the FutureDear Little Girl on the Day of Your Diagnosis, Hey, there! It’s great to see you. You look so sweet and innocent with your bleach blonde bob with bangs and...reactions4comments
Setting New Year GoalsWith 2023 right around the corner, you will probably hear of people wanting to set New Year resolutions. A few examples are to exercise more, to learn a new skill...reactions2comments
9 Ways CF Makes the Holidays UniqueThe holidays are some of the year’s most magical and memorable moments. Family and friend gatherings, festive decorations, and cozy winter wonderland weather can really make the season special. I...reactionscomments
2022 Cystic Fibrosis In America Findings: Hope for the Future, Honoring the PresentIn our 3rd Annual Cystic Fibrosis In America Survey, 345 people shared how the future of CF is hopeful and their goals feel more attainable with treatment advances. However, their...reactionscomments
Hospitalization Series: Packing the EssentialsPacking for vacation is fun. But packing for a hospitalization is not fun. And packing for something you aren't look forward to can be overwhelming. You tend to overpack if...reactionscomments
When Is the Right Time to Remove My Port?There’s been so many profound changes for individuals with cystic fibrosis (CF) over the past few years. Many of these changes are a direct result of the release of Trikafta...reactions4comments
Hospitalization Series: Pre-Admission RoutineGetting ready to be admitted to the hospital for a cystic fibrosis (CF) tune-up often made me anxious. I knew the coming weeks would be physically and mentally hard. One...reactionscomments
The Many Colors of Cystic Fibrosis: Black (Part 2)In my last article, I discussed the impact of the color black on my journey with cystic fibrosis (CF). Let’s continue talking about black. You can read Part 1 of the...reactionscomments
Do I See Myself As a Caregiver? Not Necessarily....The month of November has come and gone. As some may know, it is National Caregiver Appreciation Month as well. Cheriz and I were honored to be a part of...reactionscomments
The Many Colors of Cystic Fibrosis: Black (Part 1)If you haven’t read my columns before, allow me to reintroduce myself. My name is Nicole Kohr. I am a cystic fibrosis (CF) patient, a bilateral lung transplant recipient, and...reactionscomments
Important Documents: Writing Down Your WishesLiving with cystic fibrosis (CF) requires having a lot of conversations. Some of these conversations are with the children in your life about CF. Other conversations are with your doctor...reactionscomments
CF Hospitalization: Creating Habits & SchedulesLiving with cystic fibrosis (CF) can mean you are hospitalized a lot depending on your health. And if you aren’t hospitalized a lot, you probably have CF friends who are...reactionscomments
Surviving CF With "Hygge"“Hygge” (pronounced hoo-ga) is a popular Danish lifestyle that emphasizes creating a cozy and comforting environment to induce peace and happiness. Hygge is all about creating and savoring simple joys...reactionscomments
