Six Things You Don't Need to Apologize for with CFOnce upon a time, I apologized for being unreliable and someone once told me to stop apologizing. They said, “Your disease is...reactions2comments
Disability Visibility: The Super CF ChameleonMy favorite thing about having cystic fibrosis (CF) is that most often no one can actually tell that I have CF or...reactionscomments
What Is Antibiotic Resistance and How Is It Harmful to People With CF?Antibiotics are vital medicines for many people. They are drugs that fight infections caused by bacteria, by either killing the bacteria or...reactionscomments
Colorectal Cancer and Cystic FibrosisAdvances in the understanding and treatment of cystic fibrosis (CF) have led to longer life expectancies than ever before. This is a...reactionscomments
Why I Sobbed Registering My Son For KindergartenI do a lot of self-reflection humbly standing at my kitchen sink. Lost in the mundane task of dishwashing, I find it...reactionscomments
2023 CF Awareness Month: BFFsMay is Cystic Fibrosis Awareness Month, and we are celebrating BFFs (best fibrosis friends) in the cystic fibrosis (CF) community! All month...reactionscomments
Relearning Treatment Compliance After TrikaftaIn my teenage years, I struggled heavily with CF treatment compliance. I had a very laid-back approach to my health that bordered...reactions1comment
What it Feels Like to Be in the Transitional GenerationA recent article in the New York Times Opinion written by Dr. Daniela J. Lamas, a pulmonologist in Boston, detailed the story...reactionscomments
How Exercise Kept Me Out of the Hospital Until I Was 26I have always been active. Since I could remember, I’ve been involved in all different sports, by recommendation of my doctor from...reactionscomments
Experiencing Chronic Pain Due To Cystic FibrosisWhile waiting to begin Trikafta, my heart has felt a little heavy, mainly for reasons that I can’t explain. I think part...reactionscomments
Cystic Fibrosis (CF) Care TeamManaging treatment for cystic fibrosis (CF) is a team effort. Given the many ways living with CF can impact a person, it...reactionscomments
CF and Partner PTSDBeing a partner to someone who has cystic fibrosis (CF) can be hard. It can be exhausting, scary, and confusing. As someone...reactionscomments
How I Am Sleeping Through the Trikafta InsomniaSleeping has been a great difficulty since starting Trikafta. I am not alone, the Trikafta tribe are pretty much all in agreement...reactionscomments
CF and VeganismAn essential part of staying healthy with CF is the diet. Often CF patients are told to include high-fat, high-calorie foods. In...reactionscomments
Understanding Non-apparent Disabilities in the WorkplaceAbout 1 in 4 American adults live with a disability. Many people living with a disability are able to work and do...reactionscomments
Five Actions That Get in the Way of My AppetiteFor the first time, many people with CF have been able to focus less on gaining and maintaining weight and more on...reactionscomments
Feelings of Survivor's GuiltI hear a lot about survivor's guilt as a cystic fibrosis (CF) patient. I’ve had moments in my life I feel it...reactions4comments
Family DynamicsFamilies have many dynamics. There is a dynamic between the parents and children. The children in a family have their own dynamic...reactions3comments
Creating A CF Exercise Regime That FitsWe all hear the physios harp on about exercise but sometimes it can be daunting thinking about where to start. It took...reactionscomments
What Are Your Thoughts on Five Feet Apart?As someone in the cystic fibrosis community, you have probably heard about Five Feet Apart. Five Feet Apart is a book-turned-Blockbuster film...reactionscomments
