Motherhood Before and After Life Saving TreatmentThere’s a four year age gap between my two boys–and for a very good reason. Once my eldest was born 5 years ago, life with CF really hit me hard...Reactions0reactionsComments1 comments
Ask the Health Leaders: Working With CF SpecialistsCystic fibrosis (CF) healthcare teams tackle a variety of health issues, and therefore can be made up of many different types of healthcare professionals and doctors. Some examples include respiratory...Reactions0reactionsComments0 comments
Talking With Work About Cystic FibrosisI have always enjoyed working. My parents noticed my work ethic when I was younger, and it has remained the same. My motivation for working has changed, but the love...Reactions0reactionsComments0 comments
A Letter to Myself During My Diagnosis From the FutureDear Little Girl on the Day of Your Diagnosis, Hey, there! It’s great to see you. You look so sweet and innocent with your bleach blonde bob with bangs and...Reactions0reactionsComments4 comments
Setting New Year GoalsWith 2023 right around the corner, you will probably hear of people wanting to set New Year resolutions. A few examples are to exercise more, to learn a new skill...Reactions0reactionsComments2 comments
9 Ways CF Makes the Holidays UniqueThe holidays are some of the year’s most magical and memorable moments. Family and friend gatherings, festive decorations, and cozy winter wonderland weather can really make the season special. I...Reactions0reactionsComments0 comments
2022 Cystic Fibrosis In America Findings: Hope for the Future, Honoring the PresentIn our 3rd Annual Cystic Fibrosis In America Survey, 345 people shared how the future of CF is hopeful and their goals feel more attainable with treatment advances. However, their...Reactions0reactionsComments0 comments
Hospitalization Series: Packing the EssentialsPacking for vacation is fun. But packing for a hospitalization is not fun. And packing for something you aren't look forward to can be overwhelming. You tend to overpack if...Reactions0reactionsComments0 comments
When Is the Right Time to Remove My Port?There’s been so many profound changes for individuals with cystic fibrosis (CF) over the past few years. Many of these changes are a direct result of the release of Trikafta...Reactions0reactionsComments4 comments
Hospitalization Series: Pre-Admission RoutineGetting ready to be admitted to the hospital for a cystic fibrosis (CF) tune-up often made me anxious. I knew the coming weeks would be physically and mentally hard. One...Reactions0reactionsComments0 comments
The Many Colors of Cystic Fibrosis: Black (Part 2)In my last article, I discussed the impact of the color black on my journey with cystic fibrosis (CF). Let’s continue talking about black. You can read Part 1 of the...Reactions0reactionsComments0 comments
Do I See Myself As a Caregiver? Not Necessarily....The month of November has come and gone. As some may know, it is National Caregiver Appreciation Month as well. Cheriz and I were honored to be a part of...Reactions0reactionsComments0 comments
The Many Colors of Cystic Fibrosis: Black (Part 1)If you haven’t read my columns before, allow me to reintroduce myself. My name is Nicole Kohr. I am a cystic fibrosis (CF) patient, a bilateral lung transplant recipient, and...Reactions0reactionsComments0 comments
Important Documents: Writing Down Your WishesLiving with cystic fibrosis (CF) requires having a lot of conversations. Some of these conversations are with the children in your life about CF. Other conversations are with your doctor...Reactions0reactionsComments0 comments
CF Hospitalization: Creating Habits & SchedulesLiving with cystic fibrosis (CF) can mean you are hospitalized a lot depending on your health. And if you aren’t hospitalized a lot, you probably have CF friends who are...Reactions0reactionsComments0 comments
Surviving CF With "Hygge"“Hygge” (pronounced hoo-ga) is a popular Danish lifestyle that emphasizes creating a cozy and comforting environment to induce peace and happiness. Hygge is all about creating and savoring simple joys...Reactions0reactionsComments0 comments
What Is the Social Health Network Community?Like our other Health Union condition communities, the Social Health Network brings people together to drive unique and impactful conversations about health. It also aims to expand opportunities for health...Reactions0reactionsComments2 comments
National Caregiver Appreciation Month: Thank-You PostcardsWe are excited to participate in National Caregiver Appreciation Month this year, held each year in the month of November. As cystic fibrosis (CF) is a genetic condition and is...Reactions0reactionsComments0 comments
Important Documents and Cystic FibrosisWhen you live with cystic fibrosis (CF) you are familiar with having hard conversations. We must talk to our doctors about what happens if a new medicine doesn’t work. Additionally...Reactions0reactionsComments0 comments
Building Good Relationships With Our Care TeamsRelationships with our healthcare teams are integral to our health journey. This can feel especially true when living with cystic fibrosis (CF), as the doctors, nurses and other medical professionals...Reactions0reactionsComments0 comments
