Exploring Post Traumatic Stress Disorder in Cystic Fibrosis (Part 1)Living with cystic fibrosis can be physically debilitating and mentally destabilizing. We know there is an elevated level of depression and anxiety...reactions1comment
What to Say When Your Friend's Child is Diagnosed with CFFive years ago, when my daughter Caroline was two weeks old, she was diagnosed with cystic fibrosis (CF). Initially, we kept her...reactionscomments
A Happy Ending: My IVF JourneyIn late March 2020, I discovered two pieces of bad news. The initial transfer did not result in a pregnancy. I felt extremely...reactionscomments
Post Trikafta Flare-UpsReceiving the gift of Trikafta didn’t feel like a cure, it felt more along the lines of a promise. It felt like...reactionscomments
FDA Approves Trikafta®, Symdeko®, and Kalydeco® For Certain Rare MutationsThe U.S. Food and Drug Administration (FDA) has approved the expanded use of 3 cystic fibrosis (CF) drugs. These include: All 3...reactionscomments
Not Feeling Sick EnoughWhen asked in interviews for tv stations, newspapers and conversations about my CF, I tried to think of my absolute worst day...reactions1comment
Ask The Advocates: Importance Of Research and AdvocacyThe definition of advocacy is to support another by giving them a voice. This, I think, rings so true when being part...reactionscomments
Not Enough Hours in the DayMornings are usually the most hectic time in our household. On top of getting ourselves up and ready for work, we also...reactionscomments
Staphylococcus Aureus and Decreased Lung Function in Cystic FibrosisCystic fibrosis (CF) is caused by a defective protein. This protein affects how salt and water move in and out of cells...reactionscomments
I Forgot My Treatments and I Am OKSome things always go together, like cystic fibrosis (CF) and airway clearance. It’s no surprise that airway clearance is an important part...reactionscomments
Date Nights with Cystic FibrosisWhat did you do for Valentine's day? I feel like there are three groups of people when it comes to Valentine’s Day...reactionscomments
The Many Colors of Cystic Fibrosis: Grey (Part 2)In my previous article, I explained why grey is an essential color in my journey with cystic fibrosis (CF). Back to the...reactionscomments
Holiday Gift Guide for Adults With CFHo, ho, ho! It’s a good time to wrap up your holiday shopping (or maybe you're the type that needs to scramble...reactionscomments
CF Advocacy Package Giveaway Terms & ConditionsOfficial Rules, Terms and Conditions for the Cystic Fibrosis Advocacy Package Giveaway on Instagram NO PURCHASE NECESSARY TO ENTER OR WIN. A...reactionscomments
Ask the Advocates: Staying HydratedLiving with cystic fibrosis (CF), you learn how important hydration is and the best ways to get your body the necessary fluids...reactions1comment
Ask the Advocates: Judging An Invisible IllnessDuring cystic fibrosis (CF) awareness month this May, we strived to elevate and shine a light on CF community experiences. There are...reactions1comment
How I Applied "Atomic Habits" To My Life With CFIf you haven't already heard of it, Atomic Habits by James Clear is a book that talks about what habits are and...reactions6comments
Ask the Health Leaders: Dismissive DoctorsDoctors are trusted for medical advice, treatment plans, recommendations, and more. But it's possible that a medical professional on a healthcare team...reactionscomments
Chores That Wreak Havoc on My CF (Thank you, Husband!)Today, I want to talk to you about a few chores my husband does for me in light of having cystic fibrosis...reactionscomments
Almost to the End: An IVF JourneyHere we are! We’ve arrived at the final stages of my IVF journey. As mentioned in my previous articles outlining our experience...reactionscomments
