Articles

Why as humans do we have such a difficult time admitting we need help? Maybe it’s because being vulnerable is an uncomfortable state for many people. Vulnerability opens us up...

In my previous article, I detailed Margo’s Individualized Health Plan (IHP) and our initial meeting with the school nurse. We left the meeting so energized and felt completely comfortable that...

There is a progressive nature to cystic fibrosis (CF), and it is a reality of living with CF despite recent advances in treatment. We asked our health leaders to share...

For the next step in our prep for Margo to start kindergarten, my husband and I met with the school nurse. We were both looking forward to this meeting as...

Cancer is an unwelcome yet frequent visitor that seems to always show up uninvited in my family. As a kid, I lost my dad to pancreatic cancer and watched my...

In my previous article, I wrote about how to prepare for cold and flu season. I shared practical steps to keeping your home safe and how to practice healthy habits...

Cold and flu season is coming up very soon. And in this two-part series, I’ll be sharing information with you on how to get you and your family ready for...

When you live with CF, there are many appointments and routine tests completed to make sure you are healthy and thriving. Firstly, there are different tests to diagnose CF in...

As I wrote about in a previous blog post, having surgery is sometimes a part of life. And feelings of anxiety can come up when it is your turn to...

I was diagnosed with cystic fibrosis (CF) at an age where everything was already changing. I was 12, just on the cusp of my teenage years. It was quite a...

Having surgery is a part of life. Especially if you have a chronic illness. For example, as a CF patient, I have had many procedures. Each one was for a...

There’s no doubt that oral health impacts overall physical health. For many with cystic fibrosis (CF) our health can often affect our dental health as well. From the effects of...

Every person with CF has a unique health journey and faces different challenges or complications along the way. No story is the same– but the basic testing done to keep...

Cystic fibrosis (CF) isn’t always an invisible disease. Some of us have our tell-tale signs. Oxygen tanks. Insulin pumps. Chest scars. For me, I wear one of my signs as a...

Eating is my life . . .literally. Calories and the energy it provides serves as an important life line to my health and ability to fight infection. Everyone with CF...

I love celebrations. It doesn’t matter whether it’s a birthday, a wedding, graduation, or simply a surprise get-together to show someone love. No matter what, I love celebrations. Growing up...

My cystic fibrosis (CF) care center is an important piece of my life. I’m thankful for the relationships I have developed with each member of my care team. I grew...

No doubt, parenting has its ups and downs. It seems to ebb and flow from the greatest joy, to the most draining physical and mental responsibilities a person can have...

Most people love vacations. It’s an awesome break from the pressures of everyday life and a beautiful experience when getting to see new places. All vacations come with some stress...

As Margo has grown and become more aware that her cystic fibrosis (CF) is something that makes her different, she has started asking more difficult questions. Some of these questions...