Topics I Hope to See Covered at the NACFCEvery year, I look forward to tuning into the North American Cystic Fibrosis Conference (NACFC) to learn more about the newest research...reactionscomments
Living In The Trikafta EraMany of us are old hats when it comes to the bog standard CF stuff. So, this new territory that is the...reactionscomments
Switching DoctorsIn a previous article, I spoke about switching pharmacies. Changing to a new pharmacy needs planning and communication. But it can be...reactions2comments
Why Is Asking for Help So Difficult?Why as humans do we have such a difficult time admitting we need help? Maybe it’s because being vulnerable is an uncomfortable...reactions1comment
Individualized Health Plan: Medication and FoodIn my previous article, I detailed Margo’s Individualized Health Plan (IHP) and our initial meeting with the school nurse. We left the...reactionscomments
Ask the Health Leaders: CF ProgressionThere is a progressive nature to cystic fibrosis (CF), and it is a reality of living with CF despite recent advances in...reactionscomments
Creating A CF Individualized Health Plan (IHP)For the next step in our prep for Margo to start kindergarten, my husband and I met with the school nurse. We...reactionscomments
Challenges of Being A Caregiver with CFCancer is an unwelcome yet frequent visitor that seems to always show up uninvited in my family. As a kid, I lost...reactionscomments
Getting Ready for Cold and Flu Season (Part 2)In my previous article, I wrote about how to prepare for cold and flu season. I shared practical steps to keeping your...reactionscomments
Getting Ready for Cold and Flu Season (Part 1)Cold and flu season is coming up very soon. And in this two-part series, I’ll be sharing information with you on how...reactionscomments
Routine CF Screening 101When you live with CF, there are many appointments and routine tests completed to make sure you are healthy and thriving. Firstly...reactionscomments
Home Sweet Home: After SurgeryAs I wrote about in a previous blog post, having surgery is sometimes a part of life. And feelings of anxiety can...reactionscomments
The Limits of Chronic DiseaseI was diagnosed with cystic fibrosis (CF) at an age where everything was already changing. I was 12, just on the cusp...reactionscomments
Pre-Surgical Anxiety and What To DoHaving surgery is a part of life. Especially if you have a chronic illness. For example, as a CF patient, I have...reactionscomments
Easing the Financial Dent of Dental WorkThere’s no doubt that oral health impacts overall physical health. For many with cystic fibrosis (CF) our health can often affect our...reactions1comment
Routine CF Testing 101Every person with CF has a unique health journey and faces different challenges or complications along the way. No story is the...reactionscomments
Coming to Terms With Cystic FibrosisCystic fibrosis (CF) isn’t always an invisible disease. Some of us have our tell-tale signs. Oxygen tanks. Insulin pumps. Chest scars. For me...reactionscomments
Six Snacks That Make Me Want to EatEating is my life . . .literally. Calories and the energy it provides serves as an important life line to my health...reactions1comment
Celebration Preparation With LimitationsI love celebrations. It doesn’t matter whether it’s a birthday, a wedding, graduation, or simply a surprise get-together to show someone love...reactionscomments
Parenting With CF Through Tough StagesNo doubt, parenting has its ups and downs. It seems to ebb and flow from the greatest joy, to the most draining...reactionscomments
