Routine CF Screening 101When you live with CF, there are many appointments and routine tests completed to make sure you are healthy and thriving. Firstly, there are different tests to diagnose CF in...Reactions0reactionsComments0 comments
Home Sweet Home: After SurgeryAs I wrote about in a previous blog post, having surgery is sometimes a part of life. And feelings of anxiety can come up when it is your turn to...Reactions0reactionsComments0 comments
The Limits of Chronic DiseaseI was diagnosed with cystic fibrosis (CF) at an age where everything was already changing. I was 12, just on the cusp of my teenage years. It was quite a...Reactions0reactionsComments0 comments
Pre-Surgical Anxiety and What To DoHaving surgery is a part of life. Especially if you have a chronic illness. For example, as a CF patient, I have had many procedures. Each one was for a...Reactions0reactionsComments0 comments
Easing the Financial Dent of Dental WorkThere’s no doubt that oral health impacts overall physical health. For many with cystic fibrosis (CF) our health can often affect our dental health as well. From the effects of...Reactions0reactionsComments1 comments
Routine CF Testing 101Every person with CF has a unique health journey and faces different challenges or complications along the way. No story is the same– but the basic testing done to keep...Reactions0reactionsComments0 comments
Coming to Terms With Cystic FibrosisCystic fibrosis (CF) isn’t always an invisible disease. Some of us have our tell-tale signs. Oxygen tanks. Insulin pumps. Chest scars. For me, I wear one of my signs as a...Reactions0reactionsComments0 comments
Six Snacks That Make Me Want to EatEating is my life . . .literally. Calories and the energy it provides serves as an important life line to my health and ability to fight infection. Everyone with CF...Reactions0reactionsComments1 comments
Celebration Preparation With LimitationsI love celebrations. It doesn’t matter whether it’s a birthday, a wedding, graduation, or simply a surprise get-together to show someone love. No matter what, I love celebrations. Growing up...Reactions0reactionsComments0 comments
Thankful to Live Closer to My CF Care CenterMy cystic fibrosis (CF) care center is an important piece of my life. I’m thankful for the relationships I have developed with each member of my care team. I grew...Reactions0reactionsComments0 comments
Parenting With CF Through Tough StagesNo doubt, parenting has its ups and downs. It seems to ebb and flow from the greatest joy, to the most draining physical and mental responsibilities a person can have...Reactions0reactionsComments0 comments
Traveling With Some Extra BaggageMost people love vacations. It’s an awesome break from the pressures of everyday life and a beautiful experience when getting to see new places. All vacations come with some stress...Reactions0reactionsComments0 comments
Answering the Hard QuestionsAs Margo has grown and become more aware that her cystic fibrosis (CF) is something that makes her different, she has started asking more difficult questions. Some of these questions...Reactions0reactionsComments0 comments
Back to School Shopping List for a CF HouseholdBack to school season is just around the corner, and unfortunately, that means cold and flu season is also close behind. As much as I enjoy watching my son grow...Reactions0reactionsComments0 comments
My Body ImageHaving an illness that appears indistinguishable to the public, yet is crystal clear to myself, is challenging. Even with an invisible illness, I found that parts of my body that...Reactions0reactionsComments0 comments
Not Feeling Sick EnoughWhen asked in interviews for tv stations, newspapers and conversations about my CF, I tried to think of my absolute worst day. I wanted to make CF sound as horrible...Reactions0reactionsComments0 comments
How I Applied "Atomic Habits" To My Life With CFIf you haven't already heard of it, Atomic Habits by James Clear is a book that talks about what habits are and how they develop over time. Personally, I found...Reactions0reactionsComments4 comments
The Burden of BurnoutWhen your day to day life is an endless cycle with a plate that’s just too full to carry, eventually your arms have no choice but to collapse. It’s a...Reactions0reactionsComments0 comments
Where Mind and Body Meet - My Mental Health and CFWhen discussing cystic fibrosis (CF), people are overwhelmed to discover how many areas it affects in the body. Lungs, digestive system, pancreas, bones, reproductive system and so on. What always...Reactions0reactionsComments0 comments
The Middle: An IVF JourneyIn this series, I am detailing my experience with IVF and genetic testing. You can visit the first installment here! This was the most critical piece of IVF for us...Reactions0reactionsComments0 comments