Articles

Having an illness that appears indistinguishable to the public, yet is crystal clear to myself, is challenging. Even with an invisible illness, I found that parts of my body that...

When asked in interviews for tv stations, newspapers and conversations about my CF, I tried to think of my absolute worst day. I wanted to make CF sound as horrible...

If you haven't already heard of it, Atomic Habits by James Clear is a book that talks about what habits are and how they develop over time. Personally, I found...

When your day to day life is an endless cycle with a plate that’s just too full to carry, eventually your arms have no choice but to collapse. It’s a...

When discussing cystic fibrosis (CF), people are overwhelmed to discover how many areas it affects in the body. Lungs, digestive system, pancreas, bones, reproductive system and so on. What always...

In this series, I am detailing my experience with IVF and genetic testing. You can visit the first installment here! This was the most critical piece of IVF for us...

As the past two years came to a head and COVID-19 entered our house, I felt a break in my cool, calm, and collected response to sickness. What I feared...

Since I became a Community Advocate, I have wanted to write about my experience with IVF. However, I’ve put it off because of a few reasons. 1) This entire process...

They say motherhood is the hardest thing you’ll ever do. What they don’t divulge about motherhood is how physically and mentally demanding and just plain confusing it can be alongside...

Trikafta is "pure magic" in a blister pack. "The golden ticket, the sunshine pill, the miracle". The commentary I heard from consumers of this drug was astronomical in comparison to...

We asked our health leaders: Do you feel that sharing your (or your loved ones) journey with CF has been healing? If so, do you have any tips for others...

Doctors are trusted for medical advice, treatment plans, recommendations, and more. But it's possible that a medical professional on a healthcare team, or specifically on a CF care team, may...

In the fall of 2019 something amazing happened to the CF community: the newest CFTR modulator, Trikafta, became available. Many lives were changed and the CF community celebrated (rightly so)...

Generally – at least I think this is true – breathing in and out is NOT supposed to hurt. In fact, with a healthy set of lungs breathing in and...

I spent my life essentially being a patient. I was diagnosed with cystic fibrosis (CF) at age 12, after dealing with a difficult cough for almost two years. From there...

I was fortunate to not struggle with mental health when I was growing up. It wasn’t until I was an adult that I started to have struggles with anxiety. I...

Technology.  Can't live with it, can’t live without it. When you think of technological advances most people think of the many blessings that help us thrive more now than ever...

Support from family and friends can be a game-changer when living with cystic fibrosis (CF). It can look different for each person, and change over time to fit the needs...

In another blog I wrote recently, I talked about my two year anniversary since I began taking Trikafta. All in all, it was another regular day of taking care of...

One of the biggest struggles living with cystic fibrosis (CF) is managing the daily slog of treatment. This is the most common issue in CF care and one that many...