Parenting With CF Through Tough StagesNo doubt, parenting has its ups and downs. It seems to ebb and flow from the greatest joy, to the most draining...reactionscomments
Traveling With Some Extra BaggageMost people love vacations. It’s an awesome break from the pressures of everyday life and a beautiful experience when getting to see...reactionscomments
Answering the Hard QuestionsAs Margo has grown and become more aware that her cystic fibrosis (CF) is something that makes her different, she has started...reactionscomments
Back to School Shopping List for a CF HouseholdBack to school season is just around the corner, and unfortunately, that means cold and flu season is also close behind. As...reactionscomments
My Body ImageHaving an illness that appears indistinguishable to the public, yet is crystal clear to myself, is challenging. Even with an invisible illness...reactionscomments
Not Feeling Sick EnoughWhen asked in interviews for tv stations, newspapers and conversations about my CF, I tried to think of my absolute worst day...reactions1comment
How I Applied "Atomic Habits" To My Life With CFIf you haven't already heard of it, Atomic Habits by James Clear is a book that talks about what habits are and...reactions6comments
The Burden of BurnoutWhen your day to day life is an endless cycle with a plate that’s just too full to carry, eventually your arms...reactionscomments
Where Mind and Body Meet - My Mental Health and CFWhen discussing cystic fibrosis (CF), people are overwhelmed to discover how many areas it affects in the body. Lungs, digestive system, pancreas...reactionscomments
The Middle: An IVF JourneyIn this series, I am detailing my experience with IVF and genetic testing. You can visit the first installment here! This was...reactionscomments
Confession: Dealing With COVID Medical AnxietyAs the past two years came to a head and COVID-19 entered our house, I felt a break in my cool, calm...reactionscomments
The Beginning: An IVF JourneySince I became a Community Advocate, I have wanted to write about my experience with IVF. However, I’ve put it off because...reactions2comments
Four Hard Truths Of Being A New Mom With CFThey say motherhood is the hardest thing you’ll ever do. What they don’t divulge about motherhood is how physically and mentally demanding...reactionscomments
How Trikafta Changed My LifeTrikafta is "pure magic" in a blister pack. "The golden ticket, the sunshine pill, the miracle". The commentary I heard from consumers...reactions4comments
Ask the Health Leaders: Sharing Your StoryWe asked our health leaders: Do you feel that sharing your (or your loved ones) journey with CF has been healing? If...reactionscomments
Ask the Health Leaders: Dismissive DoctorsDoctors are trusted for medical advice, treatment plans, recommendations, and more. But it's possible that a medical professional on a healthcare team...reactionscomments
Five Reasons to Join Research in the Post-Trikafta EraIn the fall of 2019 something amazing happened to the CF community: the newest CFTR modulator, Trikafta, became available. Many lives were...reactionscomments
Don't Ignore Me! Signed, PneumoniaGenerally – at least I think this is true – breathing in and out is NOT supposed to hurt. In fact, with...reactions2comments
Caregiver and PatientI spent my life essentially being a patient. I was diagnosed with cystic fibrosis (CF) at age 12, after dealing with a...reactionscomments
Mental Health Side EffectsI was fortunate to not struggle with mental health when I was growing up. It wasn’t until I was an adult that...reactionscomments
