Articles

As the past two years came to a head and COVID-19 entered our house, I felt a break in my cool, calm, and collected response to sickness. What I feared...

Since I became a Community Advocate, I have wanted to write about my experience with IVF. However, I’ve put it off because of a few reasons. 1) This entire process...

They say motherhood is the hardest thing you’ll ever do. What they don’t divulge about motherhood is how physically and mentally demanding and just plain confusing it can be alongside...

Trikafta is "pure magic" in a blister pack. "The golden ticket, the sunshine pill, the miracle". The commentary I heard from consumers of this drug was astronomical in comparison to...

We asked our health leaders: Do you feel that sharing your (or your loved ones) journey with CF has been healing? If so, do you have any tips for others...

Doctors are trusted for medical advice, treatment plans, recommendations, and more. But it's possible that a medical professional on a healthcare team, or specifically on a CF care team, may...

In the fall of 2019 something amazing happened to the CF community: the newest CFTR modulator, Trikafta, became available. Many lives were changed and the CF community celebrated (rightly so)...

Generally – at least I think this is true – breathing in and out is NOT supposed to hurt. In fact, with a healthy set of lungs breathing in and...

I spent my life essentially being a patient. I was diagnosed with cystic fibrosis (CF) at age 12, after dealing with a difficult cough for almost two years. From there...

I was fortunate to not struggle with mental health when I was growing up. It wasn’t until I was an adult that I started to have struggles with anxiety. I...

Technology.  Can't live with it, can’t live without it. When you think of technological advances most people think of the many blessings that help us thrive more now than ever...

Support from family and friends can be a game-changer when living with cystic fibrosis (CF). It can look different for each person, and change over time to fit the needs...

In another blog I wrote recently, I talked about my two year anniversary since I began taking Trikafta. All in all, it was another regular day of taking care of...

One of the biggest struggles living with cystic fibrosis (CF) is managing the daily slog of treatment. This is the most common issue in CF care and one that many...

Smoking is a risky behavior that can cause long term health problems for both healthy people and people living with CF. Even with all the wealth of information about the...

Our family is taking a trip in a couple weeks to visit family. This is an especially meaningful trip for us as it is the first time to travel home...

I’ve found myself saying this a few times in recent weeks and so I figured it warranted writing about. “Don’t compare yourself or your progress to anyone but yourself a...

Many people think of cystic fibrosis (CF) as a lung condition. This is because most CF symptoms happen as a result of lung problems. But people with CF can also...

As a person living with cystic fibrosis (CF), I know my life is hard. I know I go through so many things that an average person would not understand. I...

Margo was born almost five years ago, and in that time, my husband and I have only spent a handful of nights away from her. She has spent the night...