The Beginning: An IVF JourneySince I became a Community Advocate, I have wanted to write about my experience with IVF. However, I’ve put it off because...reactions2comments
A Lid for Every Pot: Dating with Cystic FibrosisNavigating the dating scene is hard. It was hard when our parents dated and when their parents dated. And it is still...reactions2comments
Did You See This NACFC Talk? Part 2The range of topics and novel presentations at the 2022 North American Cystic Fibrosis Conference (NACFC) in Philadelphia, PA was impressive. I’m...reactionscomments
The Many Colors of Cystic Fibrosis: Grey (Part 1)My journey with cystic fibrosis (CF) has been very colorful. I’ve had to expel and capture my green, sticky mucus. I walked...reactionscomments
Navigating Weather With Cystic FibrosisJust as each individual’s journey with cystic fibrosis (CF) can vary, so can their response to different environmental factors. Some may enjoy...reactions2comments
Did You See This NACFC Talk? Part 1I look forward to the North American Cystic Fibrosis Conference (NACFC) every year. So much so that this year I devoted a...reactionscomments
Coping With the Weight of CFSaying cystic fibrosis (CF) has its obstacles is an understatement. As if the lung infections, gastrointestinal issues, diabetes, and all the other...reactionscomments
Birthdays Through the Lense of Cystic FibrosisIn light of my birthday in January, I’ve been thinking a lot about getting older. Living with cystic fibrosis (CF) has definitely...reactions4comments
How Has CF Impacted Your Romantic Relationship(s)?Those with cystic fibrosis know that it branches out into every area of their lives. Unfortunately, dating and relationships are no exception...reactionscomments
Nutrition Tips For Parents Of Children With CFA child with cystic fibrosis (CF) generally needs to eat more food than other children into their diet in order to stay...reactionscomments
How Is CF Mucus Different From Non-CF Mucus?When people without cystic fibrosis (CF) think of CF, they likely focus on the hallmark characteristic of the condition: mucus. It is...reactionscomments
Postural Drainage and PercussionPostural drainage and percussion (PD&P) are often used together to help clear the lungs and airway in cystic fibrosis (CF). Postural drainage...reactionscomments
50 is the New 25: Life Expectancy With CFAt the NACFC (North American CF Conference) in October 2021, some very exciting news was announced for people and families living with...reactions3comments
Life Challenges and CF ComplicationsI’ve been in what one would call a funk for the past few months. It began with going from being at my...reactionscomments
Challenges of Living in a Rural CommunityToday I wanted to talk to you about something that is a personal obstacle for me when it comes to my healthcare:...reactions7comments
Ask the Health Leaders: CF TraitsPeople living with cystic fibrosis (CF) are often diagnosed at a young age and don't remember a time when they did not...reactionscomments
My 2023 CF Intentions and BeyondAlthough I tend to think of myself as a reasonably optimistic person, 2022 was a devastating year for me, personally. Between my...reactionscomments
A New Year of StoriesWhat would you do if you had a clean slate? If none of the things weighing you down existed? What would you...reactions3comments
Organizing CF MedicationsI have moved less than a handful of times in my life. Most of my moves have been since I got married...reactionscomments
Ask the Health Leaders: Working With CF SpecialistsCystic fibrosis (CF) healthcare teams tackle a variety of health issues, and therefore can be made up of many different types of...reactionscomments
