A New Screening Tool for CF in Non-White PeopleFebruary is Black History Month. As health advocates, it’s important that we engage in dialogue on how health disparities exist for minorities across the globe. While cystic fibrosis (CF) is... By Canadian Pharmacist2 min readBookmark for laterReactions 0 reactions Comments0 comments
Navigating a Pandemic with Kids Under 5Navigating the pandemic with two kids under five is no joke. I feel like I’m in a game of dodgeball and am just ducking and pivoting to narrowly escape the... By Meagan Brackeen3 min readBookmark for laterReactions 0 reactions Comments0 comments
Passport, Pills, Plan: The Ultimate CF Jet Setter GuidePlanning a weekend break, a long haul trip or just a family holiday has always been difficult with CF. After Covid, many patients are struggling with traveling again due to... By Emma Boniface2 min readBookmark for laterReactions 0 reactions Comments2 comments
Strategies for Coping With a Rare Disease Like Cystic FibrosisWhen you are diagnosed with a rare disease like cystic fibrosis, you might feel overwhelmed about what to expect. Because few people have your disease, there may be a lack... By Editorial Team 3 min readBookmark for laterReactions 0 reactions Comments0 comments
Can Women With CF Successfully Breastfeed?As more women with CF reach childbearing age and start families of their own, the question of how to feed their baby is becoming much more commonplace. Many new CF... By Janeil Whitworth2 min readBookmark for laterReactions 0 reactions Comments0 comments
Setting Boundaries For Your HealthI was talking to someone about relationships recently. More specifically, we were talking about how hard boundaries can be, but how they can help relationships so much. At one point... By Katelyn Harlow4 min readBookmark for laterReactions 0 reactions Comments0 comments
Ask the Advocates: CF AdvocacyThere are so many ways to get involved with cystic fibrosis advocacy and research – from talking to loved ones about life with CF to donating to CF foundations, and... By Editorial Team 4 min readBookmark for laterReactions 0 reactions Comments0 comments
The Role of Community Pharmacist in Your CF JourneyNumerous healthcare professionals are involved in CF care. Most often, people don’t think of their pharmacist as part of their CF team. There are many reasons for this; one reason... By Canadian Pharmacist2 min readBookmark for laterReactions 0 reactions Comments0 comments
50 is the New 25: Life Expectancy With CFAt the NACFC (North American CF Conference) in October 2021, some very exciting news was announced for people and families living with CF. During the first plenary session, it was... By Janeil Whitworth2 min readBookmark for laterReactions 0 reactions Comments3 comments
Effects of COVID-19 on Anxiety Levels of Children with CF and Their PeersWhen the COVID-19 pandemic broke out in March 2020, nearly everyone had increased anxiety and stress. Fears of getting sick, dying, or feeling helpless were common. COVID-19 is a respiratory... By Editorial Team 3 min readBookmark for laterReactions 0 reactions Comments0 comments
The Many Colors of Cystic Fibrosis: ClearIf you haven’t had a chance to read my previous articles, just know that I’ve always been inspired by the colors of Joseph’s Technicolor Dreamcoat. While I viewed them in... By Nicole Kohr2 min readBookmark for laterReactions 0 reactions Comments0 comments
Ask the Advocates: DIOSDistal intestinal obstruction syndrome (DIOS) is a condition where the small intestines get blocked by thickened stool. About 15 percent of people with cystic fibrosis (CF) experience DIOS. It happens... By Editorial Team 1 min readBookmark for laterReactions 0 reactions Comments0 comments
Dealing with Depression and Anxiety in CFCystic fibrosis (CF) brings its own sets of challenges that are unique to us as patients. I know everybody deals with depression and anxiety in their own ways, and have... By Marieliz Landa3 min readBookmark for laterReactions 0 reactions Comments0 comments
6 Tips for Staying on Top of TreatmentLiving with a long-term health condition requires us to stay on top of everything: doctor’s appointments, new symptoms, insurance, and, of course, managing treatment – all while taking care of... By Editorial Team 2 min readBookmark for laterReactions 0 reactions Comments0 comments
Decompression After the HolidaysThe excitement, or dread, that surrounds the holiday season is hard to ignore. People are busy. Shops are open late. Lines are long. And sometimes people can get overwhelmed. During... By Katelyn Harlow3 min readBookmark for laterReactions 0 reactions Comments2 comments
What's New in Clinical TrialsThe CF community has seen the advent of disease altering treatments in the last few years and a spurred interest from researchers and companies for bringing even better therapies that... By Ella Balasa2 min readBookmark for laterReactions 0 reactions Comments0 comments
Ask the Advocates: COVID-19We asked our advocates on Cystic-Fibrosis.com to share their perspectives on the COVID-19 pandemic, and how their lives have been impacted so far. Life has changed in some ways and... By Editorial Team 5 min readBookmark for laterReactions 0 reactions Comments0 comments
Your Voice Matters - Advocating for Cystic FibrosisWhen I stepped out of my comfort zone and started raising awareness, I never thought I would actually teach someone about cystic fibrosis. And it was very naive of me... By Kate Eveling2 min readBookmark for laterReactions 0 reactions Comments0 comments
Study Finds People of Color with CF Have Worse Lung FunctionA published study finds that certain people of color with cystic fibrosis (CF) have poorer lung function than white people with the condition. In our 2020 Cystic Fibrosis In America... By Editorial Team 3 min readBookmark for laterReactions 0 reactions Comments0 comments
Labor and Delivery With CFEntering into parenthood with CF can be an exciting and anxious time for many couples. However, first you need to give birth to welcome your precious baby. Labor and delivery... By Janeil Whitworth3 min readBookmark for laterReactions 0 reactions Comments0 comments