IV Antibiotics: Hospital or Home?A big box was dropped on my doorstep filled with the most unexciting gifts: IV antibiotics. After a small bout of hemoptysis at the end of my pregnancy, my CF...reactionscomments
The Many Colors of Cystic Fibrosis: Brown (Part 2)In my previous article, I detailed my journey with gastrointestinal issues including pancreatic insufficiency, malnutrition, and dumping syndrome. In 2017, we began to address a new issue: gastroparesis. Back to...reactionscomments
Take the Health and Media Habits Survey!The Media Habits Survey is now closed. Thank you for your interest! Managing a chronic condition is not easy and can be physically and mentally exhausting. What types of media...reactionscomments
The Many Colors of Cystic Fibrosis: Brown (Part 1)If you haven’t read my previous article, “The Many Colors of Cystic Fibrosis: Clear”, just know that I am a huge fan of Joseph and the Technicolor Dreamcoat”. Now it’s...reactionscomments
Thank You CF: The Positives of Marrying Someone with Cystic Fibrosis"Are you sure you want to commit to this?" "What happens if she gets really sick or dies at a young age?" "What happens when you have kids and she...reactionscomments
Trikafta and Life Without My CF CoughBefore Trikafta, it was difficult to imagine life without… a cough. That cough. The cough we all know too well. I believe everyone who lives with a chronic illness hope...reactionscomments
Attending Physical Therapy for CF Back PainAs people with cystic fibrosis (CF) continue to live longer lives, unique challenges arise such as musculoskeletal issues like back pain. Anyone who has dealt with chronic back pain knows...reactions1comment
Breaking The SilenceFor the longest while, I have been debating what the topic of my first post on here should be. I don’t want to be too graphic, I don’t want to...reactions2comments
Ask the Advocates: Notable Changes in Your CF JourneyCystic fibrosis (CF) has had many advances over the years in treatment, research and awareness. Each CF patient has a unique journey to travel, with notable changes along the way...reactionscomments
Honoring the CF Experience: Invisible IllnessLiving with an illness like cystic fibrosis (CF), the symptoms can often be "invisible" to others. Many people who have not been impacted with chronic illness in their own lives...reactions1comment
Cystic Fibrosis Changed My Personality And This Is HowCystic fibrosis has pushed me to my limits and then compelled me to go past them; time and time again. My perspective on life has been altered in many ways...reactions1comment
Helping My Child Cope with Medical AnxietyMy daughter Caroline was two years old when we noticed she was developing medical anxiety. Most children do not enjoy going to the doctor and many tend to get nervous...reactionscomments
A New Screening Tool for CF in Non-White PeopleFebruary is Black History Month. As health advocates, it’s important that we engage in dialogue on how health disparities exist for minorities across the globe. While cystic fibrosis (CF) is...reactionscomments
Navigating a Pandemic with Kids Under 5Navigating the pandemic with two kids under five is no joke. I feel like I’m in a game of dodgeball and am just ducking and pivoting to narrowly escape the...reactionscomments
Passport, Pills, Plan: The Ultimate CF Jet Setter GuidePlanning a weekend break, a long haul trip or just a family holiday has always been difficult with CF. After Covid, many patients are struggling with traveling again due to...reactions2comments
Strategies for Coping With a Rare Disease Like Cystic FibrosisWhen you are diagnosed with a rare disease like cystic fibrosis, you might feel overwhelmed about what to expect. Because few people have your disease, there may be a lack...reactionscomments
Can Women With CF Successfully Breastfeed?As more women with CF reach childbearing age and start families of their own, the question of how to feed their baby is becoming much more commonplace. Many new CF...reactionscomments
Setting Boundaries For Your HealthI was talking to someone about relationships recently. More specifically, we were talking about how hard boundaries can be, but how they can help relationships so much. At one point...reactionscomments
Ask the Advocates: CF AdvocacyThere are so many ways to get involved with cystic fibrosis advocacy and research – from talking to loved ones about life with CF to donating to CF foundations, and...reactionscomments
The Role of Community Pharmacist in Your CF JourneyNumerous healthcare professionals are involved in CF care. Most often, people don’t think of their pharmacist as part of their CF team. There are many reasons for this; one reason...reactionscomments
