Living

Before Trikafta, it was difficult to imagine life without… a cough. That cough. The cough we all know too well. I believe everyone who lives with a chronic illness hope...

As people with cystic fibrosis (CF) continue to live longer lives, unique challenges arise such as musculoskeletal issues like back pain. Anyone who has dealt with chronic back pain knows...

For the longest while, I have been debating what the topic of my first post on here should be. I don’t want to be too graphic, I don’t want to...

Cystic fibrosis (CF) has had many advances over the years in treatment, research and awareness. Each CF patient has a unique journey to travel, with notable changes along the way...

Living with an illness like cystic fibrosis (CF), the symptoms can often be "invisible" to others. Many people who have not been impacted with chronic illness in their own lives...

Cystic fibrosis has pushed me to my limits and then compelled me to go past them; time and time again. My perspective on life has been altered in many ways...

My daughter Caroline was two years old when we noticed she was developing medical anxiety. Most children do not enjoy going to the doctor and many tend to get nervous...

February is Black History Month. As health advocates, it’s important that we engage in dialogue on how health disparities exist for minorities across the globe. While cystic fibrosis (CF) is...

Navigating the pandemic with two kids under five is no joke. I feel like I’m in a game of dodgeball and am just ducking and pivoting to narrowly escape the...

Planning a weekend break, a long haul trip or just a family holiday has always been difficult with CF. After Covid, many patients are struggling with traveling again due to...

When you are diagnosed with a rare disease like cystic fibrosis, you might feel overwhelmed about what to expect. Because few people have your disease, there may be a lack...

As more women with CF reach childbearing age and start families of their own, the question of how to feed their baby is becoming much more commonplace. Many new CF...

I was talking to someone about relationships recently. More specifically, we were talking about how hard boundaries can be, but how they can help relationships so much. At one point...

There are so many ways to get involved with cystic fibrosis advocacy and research – from talking to loved ones about life with CF to donating to CF foundations, and...

Numerous healthcare professionals are involved in CF care. Most often, people don’t think of their pharmacist as part of their CF team. There are many reasons for this; one reason...

At the NACFC (North American CF Conference) in October 2021, some very exciting news was announced for people and families living with CF. During the first plenary session, it was...

When the COVID-19 pandemic broke out in March 2020, nearly everyone had increased anxiety and stress. Fears of getting sick, dying, or feeling helpless were common. COVID-19 is a respiratory...

If you haven’t had a chance to read my previous articles, just know that I’ve always been inspired by the colors of Joseph’s Technicolor Dreamcoat. While I viewed them in...

Distal intestinal obstruction syndrome (DIOS) is a condition where the small intestines get blocked by thickened stool. About 15 percent of people with cystic fibrosis (CF) experience DIOS. It happens...

Cystic fibrosis (CF) brings its own sets of challenges that are unique to us as patients. I know everybody deals with depression and anxiety in their own ways, and have...