Coming to Terms With Cystic FibrosisCystic fibrosis (CF) isn’t always an invisible disease. Some of us have our tell-tale signs. Oxygen tanks. Insulin pumps. Chest scars. For me...reactionscomments
What to Know Before Starting Your Treatment with TrikaftaThere has been a lot of talk about Trikafta over the past year. Many people have claimed that Trikafta has positively impacted...reactions1comment
Routine CF Testing 101Every person with CF has a unique health journey and faces different challenges or complications along the way. No story is the...reactionscomments
Six Snacks That Make Me Want to EatEating is my life . . .literally. Calories and the energy it provides serves as an important life line to my health...reactions1comment
Dealing With GuiltHaving cystic fibrosis means dealing with hard concepts and lots of emotions. Feeling sick, scared, angry, hurt, sad, grieving those we lost...reactionscomments
Celebration Preparation With LimitationsI love celebrations. It doesn’t matter whether it’s a birthday, a wedding, graduation, or simply a surprise get-together to show someone love...reactionscomments
Thankful to Live Closer to My CF Care CenterMy cystic fibrosis (CF) care center is an important piece of my life. I’m thankful for the relationships I have developed with...reactions1comment
Parenting With CF Through Tough StagesNo doubt, parenting has its ups and downs. It seems to ebb and flow from the greatest joy, to the most draining...reactionscomments
Traveling With Some Extra BaggageMost people love vacations. It’s an awesome break from the pressures of everyday life and a beautiful experience when getting to see...reactionscomments
Answering the Hard QuestionsAs Margo has grown and become more aware that her cystic fibrosis (CF) is something that makes her different, she has started...reactionscomments
Back to School Shopping List for a CF HouseholdBack to school season is just around the corner, and unfortunately, that means cold and flu season is also close behind. As...reactionscomments
My Body ImageHaving an illness that appears indistinguishable to the public, yet is crystal clear to myself, is challenging. Even with an invisible illness...reactionscomments
The Burden of BurnoutWhen your day to day life is an endless cycle with a plate that’s just too full to carry, eventually your arms...reactionscomments
Where Mind and Body Meet - My Mental Health and CFWhen discussing cystic fibrosis (CF), people are overwhelmed to discover how many areas it affects in the body. Lungs, digestive system, pancreas...reactionscomments
The Middle: An IVF JourneyIn this series, I am detailing my experience with IVF and genetic testing. You can visit the first installment here! This was...reactionscomments
Confession: Dealing With COVID Medical AnxietyAs the past two years came to a head and COVID-19 entered our house, I felt a break in my cool, calm...reactionscomments
Four Hard Truths Of Being A New Mom With CFThey say motherhood is the hardest thing you’ll ever do. What they don’t divulge about motherhood is how physically and mentally demanding...reactionscomments
How Trikafta Changed My LifeTrikafta is "pure magic" in a blister pack. "The golden ticket, the sunshine pill, the miracle". The commentary I heard from consumers...reactions4comments
Five Reasons to Join Research in the Post-Trikafta EraIn the fall of 2019 something amazing happened to the CF community: the newest CFTR modulator, Trikafta, became available. Many lives were...reactionscomments
Do You Smell That? CF and Loss of SmellThere are so many wonderful (and gag-worthy) smells we experience in our day-to-day lives. Freshly baked cookies, a bouquet of roses, sunscreen...reactions1comment
