Mental Health EmergenciesMental health emergencies can look different for different people. They all can put you at risk of losing your life, getting into...reactionscomments
May MadnessIn May we celebrate many things. Mothers. Cinco de Mayo. Memorial Day. The arrival of new growth and warmer days. We also...reactionscomments
First Child-Free VacationMargo was born almost five years ago, and in that time, my husband and I have only spent a handful of nights...reactionscomments
Thank You! To My CF CaregiversAs a person living with cystic fibrosis (CF), I know my life is hard. I know I go through so many things...reactionscomments
The Many Colors of Cystic Fibrosis: Purple (Part 1)May is cystic fibrosis awareness month, which is represented by the color purple. Purple is rarely seen in a hospital setting, so...reactions1comment
Ask the Advocates: Privacy In PublicCystic fibrosis (CF) can go hand-in-hand with uncomfortable symptoms that are difficult to resolve or mask in public. For example, symptoms like...reactionscomments
Caregiver and PatientI spent my life essentially being a patient. I was diagnosed with cystic fibrosis (CF) at age 12, after dealing with a...reactionscomments
Don't Ignore Me! Signed, PneumoniaGenerally – at least I think this is true – breathing in and out is NOT supposed to hurt. In fact, with...reactions2comments
Mental Health Side EffectsI was fortunate to not struggle with mental health when I was growing up. It wasn’t until I was an adult that...reactionscomments
The Power of TechnologyTechnology. Can't live with it, can’t live without it. When you think of technological advances most people think of the many blessings...reactionscomments
Ask the Health Leaders: Family and Friend SupportSupport from family and friends can be a game-changer when living with cystic fibrosis (CF). It can look different for each person...reactionscomments
Learning Who I Am AgainIn another blog I wrote recently, I talked about my two year anniversary since I began taking Trikafta. All in all, it...reactionscomments
Everything You Have Always Wanted To Know About Keeping A Treatment DiaryOne of the biggest struggles living with cystic fibrosis (CF) is managing the daily slog of treatment. This is the most common...reactionscomments
My Thoughts About Smoking in CF FamiliesSmoking is a risky behavior that can cause long term health problems for both healthy people and people living with CF. Even...reactions7comments
Ready for TakeoffOur family is taking a trip in a couple weeks to visit family. This is an especially meaningful trip for us as...reactionscomments
Becoming Your Own ChampionI’ve found myself saying this a few times in recent weeks and so I figured it warranted writing about. “Don’t compare yourself...reactionscomments
The Many Colors of Cystic Fibrosis: Yellow (Part 2)In my last article, I discussed the impact of the color yellow on my journey with cystic fibrosis. Let’s continue talking about...reactionscomments
Helping My Child Cope with Medical AnxietyMy daughter Caroline was two years old when we noticed she was developing medical anxiety. Most children do not enjoy going to...reactionscomments
Traveling with Cystic FibrosisNot to be a downer, but traveling with CF is a headache. Regardless, I have been incredibly lucky to have gotten to...reactionscomments
Community Views: The Unspoken Emotional Impact of Cystic FibrosisLiving with cystic fibrosis (CF) is challenging in so many ways. When we talk about CF, we tend to talk about the...reactionscomments
