Community Views: Feelings About Increases in Life ExpectancyThanks to medical advancements and recent breakthroughs in treatment options, people with cystic fibrosis (CF) are living longer and healthier lives than ever before. A few decades ago, few people... By Editorial Team 3 min readBookmark for laterReactions 0 reactions Comments0 comments
Surviving Survivor's Guilt (Part Two)In Part One of this series, I shared what survivor’s guilt is. I also shared some common symptoms of survivor’s guilt. We talked about how survivor’s guilt is a normal... By Katelyn Harlow3 min readBookmark for laterReactions 0 reactions Comments0 comments
Small Intestinal Bacterial Overgrowth (SIBO) in CFApproximately 30-40% of people with CF have a GI complication called Small Intestinal Bacterial Overgrowth (SIBO). Although SIBO isn’t generally talked about a lot in the CF community, it is... By Janeil Whitworth2 min readBookmark for laterReactions 0 reactions Comments0 comments
Alternative Treatments for CFCystic fibrosis (CF) affects more than just the lungs, and it is always important to follow the advice of your CF care team. However, alternative treatments can bring additional comfort... By Editorial Team 3 min readBookmark for laterReactions 0 reactions Comments0 comments
Honoring Your CF ScarsPICC line and port scars, meconium ileus surgery scars, lung transplant scars, and G-tube scars - that’s just the beginning of the permanent marks CF can leave on the body... By Janeil Whitworth2 min readBookmark for laterReactions 0 reactions Comments0 comments
Surviving Survivor's Guilt (Part One)Not too long ago, I read an article about people who live with a chronic illness. In this article, it spoke about how people who are chronically ill juggle a... By Katelyn Harlow4 min readBookmark for laterReactions 0 reactions Comments0 comments
Community Views: How to Describe CF to Someone Who Has Never Heard of ItWhen life with cystic fibrosis (CF) is all you know, it can be challenging to describe this reality to people who know little or nothing about it. To learn more... By Editorial Team 2 min readBookmark for laterReactions 0 reactions Comments0 comments
Stories From Our CF Community: CF Care TeamPeople living with cystic fibrosis (CF) have unique needs that require comprehensive care from infancy to adulthood. A care team that includes different doctors and care providers ensures that people... By Editorial Team 3 min readBookmark for laterReactions 0 reactions Comments5 comments
Holiday Gift Guide for Adults With CFHo, ho, ho! It’s a good time to wrap up your holiday shopping (or maybe you're the type that needs to scramble and start shopping) as the end of the... By Janeil Whitworth3 min readBookmark for laterReactions 0 reactions Comments0 comments
The Many Colors Of Cystic Fibrosis: Green"Joseph and the Technicolor Dreamcoat" is a very popular musical this time of year. I always loved gazing at the coat in admiration and wondering how those colors applied to... By Nicole Kohr3 min readBookmark for laterReactions 0 reactions Comments1 comments
My Holiday Gift Guide for Children With CFWith the holidays right around the corner, now is the perfect time to start purchasing gifts for your friends and families, especially those little ones living with CF. Full disclosure... By Janeil Whitworth3 min readBookmark for laterReactions 0 reactions Comments0 comments
Hiking Safely With CFI married into a family that loves being outdoors--camping, mountain biking, running, hiking, you name it--they do it all. At first, this was totally intimidating because I didn’t grow up... By Janeil Whitworth3 min readBookmark for laterReactions 0 reactions Comments1 comments
Staying Active with CFStaying active can feel like a balancing act, especially as a person living with cystic fibrosis (CF). Sure, there are plenty of fun ways to get your body moving. But... By Editorial Team 5 min readBookmark for laterReactions 0 reactions Comments0 comments
Self-CareHave you ever heard of the term “self-care”? I have heard a lot about self-care recently, especially during the pandemic. During the pandemic, a time when so many people were... By Katelyn Harlow4 min readBookmark for laterReactions 0 reactions Comments0 comments
CF Coloring Book Giveaway Terms and ConditionsOfficial Rules, Terms and Conditions for the CF Coloring Book Giveaway NO PURCHASE NECESSARY TO ENTER OR WIN. A PURCHASE DOES NOT INCREASE YOUR CHANCES OF WINNING. VOID WHERE PROHIBITED... By Editorial Team 9 min readBookmark for laterReactions 0 reactions Comments0 comments
Stories from Our CF Community: InfertilityLiving with cystic fibrosis (CF) includes many challenges, including infertility. Infertility affects about 98 percent of men with CF, and women with CF may be less fertile than other women... By Editorial Team 3 min readBookmark for laterReactions 0 reactions Comments0 comments
Ask The Advocates: Importance Of Research and AdvocacyThe definition of advocacy is to support another by giving them a voice. This, I think, rings so true when being part of the current CF community. Sometimes we are... By Emma Boniface2 min readBookmark for laterReactions 0 reactions Comments0 comments
CF and Sex 101: Reproduction and Sexual FunctionSex is a normal, fun, and important part of our lives as humans. Whether you have CF or not, you have the right to connect with others and enjoy intimacy... By Janeil Whitworth3 min readBookmark for laterReactions 0 reactions Comments0 comments
Opioids for Cystic Fibrosis Pain: Benefits, Risks, and ConcernsResearch shows that more than 75 percent of adults with cystic fibrosis (CF) live with chronic pain. Many use prescription opioids to help reduce this pain. In 2021, researchers developed... By Editorial Team 3 min readBookmark for laterReactions 0 reactions Comments2 comments
How to Talk to Kids About IllnessCreating a good relationship with our nieces and nephews has been so important to me and my husband. One of the ways we have helped to foster that healthy relationship... By Katelyn Harlow3 min readBookmark for laterReactions 0 reactions Comments0 comments