Strategies for Coping With a Rare Disease Like Cystic FibrosisWhen you are diagnosed with a rare disease like cystic fibrosis, you might feel overwhelmed about what to expect. Because few people...reactionscomments
Can Women With CF Successfully Breastfeed?As more women with CF reach childbearing age and start families of their own, the question of how to feed their baby...reactionscomments
Setting Boundaries For Your HealthI was talking to someone about relationships recently. More specifically, we were talking about how hard boundaries can be, but how they...reactionscomments
Ask the Advocates: CF AdvocacyThere are so many ways to get involved with cystic fibrosis advocacy and research – from talking to loved ones about life...reactionscomments
The Role of Community Pharmacist in Your CF JourneyNumerous healthcare professionals are involved in CF care. Most often, people don’t think of their pharmacist as part of their CF team...reactionscomments
50 is the New 25: Life Expectancy With CFAt the NACFC (North American CF Conference) in October 2021, some very exciting news was announced for people and families living with...reactions3comments
Effects of COVID-19 on Anxiety Levels of Children with CF and Their PeersWhen the COVID-19 pandemic broke out in March 2020, nearly everyone had increased anxiety and stress. Fears of getting sick, dying, or...reactionscomments
The Many Colors of Cystic Fibrosis: ClearIf you haven’t had a chance to read my previous articles, just know that I’ve always been inspired by the colors of...reactionscomments
Ask the Advocates: DIOSDistal intestinal obstruction syndrome (DIOS) is a condition where the small intestines get blocked by thickened stool. About 15 percent of people...reactionscomments
Dealing with Depression and Anxiety in CFCystic fibrosis (CF) brings its own sets of challenges that are unique to us as patients. I know everybody deals with depression...reactions2comments
6 Tips for Staying on Top of TreatmentLiving with a long-term health condition requires us to stay on top of everything: doctor’s appointments, new symptoms, insurance, and, of course...reactionscomments
Decompression After the HolidaysThe excitement, or dread, that surrounds the holiday season is hard to ignore. People are busy. Shops are open late. Lines are...reactions2comments
What's New in Clinical TrialsThe CF community has seen the advent of disease altering treatments in the last few years and a spurred interest from researchers...reactionscomments
Ask the Advocates: COVID-19We asked our advocates on Cystic-Fibrosis.com to share their perspectives on the COVID-19 pandemic, and how their lives have been impacted so...reactionscomments
Your Voice Matters - Advocating for Cystic FibrosisWhen I stepped out of my comfort zone and started raising awareness, I never thought I would actually teach someone about cystic...reactionscomments
Study Finds People of Color with CF Have Worse Lung FunctionA published study finds that certain people of color with cystic fibrosis (CF) have poorer lung function than white people with the...reactionscomments
Labor and Delivery With CFEntering into parenthood with CF can be an exciting and anxious time for many couples. However, first you need to give birth...reactionscomments
What is Eating Fatigue in CF?For decades, many people living with cystic fibrosis struggled to gain and maintain their weight. Once enzymes were introduced in the 1950s...reactions1comment
Community Views: Feelings About Increases in Life ExpectancyThanks to medical advancements and recent breakthroughs in treatment options, people with cystic fibrosis (CF) are living longer and healthier lives than...reactionscomments
Surviving Survivor's Guilt (Part Two)In Part One of this series, I shared what survivor’s guilt is. I also shared some common symptoms of survivor’s guilt. We...reactionscomments
