Living

At the NACFC (North American CF Conference) in October 2021, some very exciting news was announced for people and families living with CF. During the first plenary session, it was...

When the COVID-19 pandemic broke out in March 2020, nearly everyone had increased anxiety and stress. Fears of getting sick, dying, or feeling helpless were common. COVID-19 is a respiratory...

If you haven’t had a chance to read my previous articles, just know that I’ve always been inspired by the colors of Joseph’s Technicolor Dreamcoat. While I viewed them in...

Distal intestinal obstruction syndrome (DIOS) is a condition where the small intestines get blocked by thickened stool. About 15 percent of people with cystic fibrosis (CF) experience DIOS. It happens...

Cystic fibrosis (CF) brings its own sets of challenges that are unique to us as patients. I know everybody deals with depression and anxiety in their own ways, and have...

Living with a long-term health condition requires us to stay on top of everything: doctor’s appointments, new symptoms, insurance, and, of course, managing treatment – all while taking care of...

The excitement, or dread, that surrounds the holiday season is hard to ignore. People are busy. Shops are open late. Lines are long. And sometimes people can get overwhelmed. During...

The CF community has seen the advent of disease altering treatments in the last few years and a spurred interest from researchers and companies for bringing even better therapies that...

We asked our advocates on Cystic-Fibrosis.com to share their perspectives on the COVID-19 pandemic, and how their lives have been impacted so far. Life has changed in some ways and...

When I stepped out of my comfort zone and started raising awareness, I never thought I would actually teach someone about cystic fibrosis. And it was very naive of me...

A published study finds that certain people of color with cystic fibrosis (CF) have poorer lung function than white people with the condition. In our 2020 Cystic Fibrosis In America...

Entering into parenthood with CF can be an exciting and anxious time for many couples. However, first you need to give birth to welcome your precious baby. Labor and delivery...

For decades, many people living with cystic fibrosis struggled to gain and maintain their weight. Once enzymes were introduced in the 1950s, weight gain and the absorption of nutrients from...

Thanks to medical advancements and recent breakthroughs in treatment options, people with cystic fibrosis (CF) are living longer and healthier lives than ever before. A few decades ago, few people...

In Part One of this series, I shared what survivor’s guilt is. I also shared some common symptoms of survivor’s guilt. We talked about how survivor’s guilt is a normal...

Approximately 30-40% of people with CF have a GI complication called Small Intestinal Bacterial Overgrowth (SIBO). Although SIBO isn’t generally talked about a lot in the CF community, it is...

Cystic fibrosis (CF) affects more than just the lungs, and it is always important to follow the advice of your CF care team. However, alternative treatments can bring additional comfort...

PICC line and port scars, meconium ileus surgery scars, lung transplant scars, and G-tube scars - that’s just the beginning of the permanent marks CF can leave on the body...

Not too long ago, I read an article about people who live with a chronic illness. In this article, it spoke about how people who are chronically ill juggle a...

When life with cystic fibrosis (CF) is all you know, it can be challenging to describe this reality to people who know little or nothing about it. To learn more...