Blood Glucose Monitoring Devices for CF-Related Diabetes: Part 2In Part 1 of the article, we discussed the prevalence of CF-related diabetes (CFRD) and the role of blood glucose monitoring. In this part, I will outline the two main...Reactions0reactionsComments0 comments
My Two CF Birth Stories: Part TwoIn Part One of this series, I reminisced about the birth of our first son as a new mom with cystic fibrosis. Now, that little boy is four years old...Reactions0reactionsComments0 comments
Parenting With Cystic FibrosisThe balance of being a provider and needing providing wasn’t something I thought about until I became a mother. Diagnosed with CF at age 12, most of my teenage years...Reactions0reactionsComments1 comments
Blood Glucose Monitoring Devices for CF-Related Diabetes: Part 1Cystic fibrosis (CF)-related diabetes is a common complication of CF. The treatment of CF-related diabetes (CFRD) is important as diabetes is associated with worsening lung function, increased risk of infections...Reactions0reactionsComments0 comments
Staying Organized with CFHello everyone! For my first article I’m beginning with something I have struggled with a lot when it comes to advocating for my own health and being my own caregiver:...Reactions0reactionsComments3 comments
PleurisyCystic fibrosis (CF) is a chronic disease that primarily impacts the lungs. Lung infections are more severe with lung disease. They cause symptoms to worsen. The risk of hospitalization for...Reactions0reactionsComments0 comments
Cystic-Fibrosis.com Giveaway Terms and ConditionsThese Official Rules apply to any giveaway (or “Promotion”) published on Cystic-Fibrosis.com, a Health Union (“Health Union” or “We”) owned and operated website. For conflicts between the Promotional giveaway article...Reactions0reactionsComments0 comments
Breastfeeding My Baby on TrikaftaWith an exciting uptick of women with CF having children, naturally there’s been an increase in women deciding how to feed their babies. For various reasons, many women with CF...Reactions0reactionsComments0 comments
My Two CF Birth Stories: Part OneThere’s days where I wish August 4th, 1995 could peek into the future and see me now 26 years after my cystic fibrosis diagnosis. So much has changed in life...Reactions0reactionsComments0 comments
My Scars Are Proof I'm LuckyI used to joke that I was the board game “Operation” because my body was covered in scars. By age 18, I had over a dozen surgical scars across me...Reactions0reactionsComments0 comments
CF and KindergartenOur daughter, Margo, will be starting kindergarten in the fall. On one hand, this makes complete sense to me, and on the other, I’m in complete disbelief. How is she...Reactions0reactionsComments0 comments
Two Years of TrikaftaThis March marks two years since I started taking Trikafta. I remember getting the package in the mail. It was just a couple of weeks after the pandemic had started...Reactions0reactionsComments1 comments
Hospitalization HacksHello there! For my first article, I thought I'd start with something I have a lot of experience with: getting hospitalized. Below I will share with you some of my...Reactions0reactionsComments2 comments
This or That: CF EditionWe all have different preferences, which is what makes us unique! Playing This or That can be a fun way to learn more about our community and your unique differences...Reactions0reactionsComments0 comments
What Are Patient Support Programs?If you are prescribed a high-cost drug, chances are, you have had experience with patient support programs. Patient support programs, or PSPs, are programs funded by the manufacturer of a...Reactions0reactionsComments0 comments
IV Antibiotics: Hospital or Home?A big box was dropped on my doorstep filled with the most unexciting gifts: IV antibiotics. After a small bout of hemoptysis at the end of my pregnancy, my CF...Reactions0reactionsComments0 comments
The Many Colors of Cystic Fibrosis: Brown (Part 2)In my previous article, I detailed my journey with gastrointestinal issues including pancreatic insufficiency, malnutrition, and dumping syndrome. In 2017, we began to address a new issue: gastroparesis. Back to...Reactions0reactionsComments0 comments
Take the Health and Media Habits Survey!The Media Habits Survey is now closed. Thank you for your interest! Managing a chronic condition is not easy and can be physically and mentally exhausting. What types of media...Reactions0reactionsComments0 comments
The Many Colors of Cystic Fibrosis: Brown (Part 1)If you haven’t read my previous article, “The Many Colors of Cystic Fibrosis: Clear”, just know that I am a huge fan of Joseph and the Technicolor Dreamcoat”. Now it’s...Reactions0reactionsComments0 comments
Thank You CF: The Positives of Marrying Someone with Cystic Fibrosis"Are you sure you want to commit to this?" "What happens if she gets really sick or dies at a young age?" "What happens when you have kids and she...Reactions0reactionsComments0 comments