Individualized Health Plan: Medication and FoodIn my previous article, I detailed Margo’s Individualized Health Plan (IHP) and our initial meeting with the school nurse. We left the...reactionscomments
Ask the Health Leaders: CF ProgressionThere is a progressive nature to cystic fibrosis (CF), and it is a reality of living with CF despite recent advances in...reactions2comments
A Thank You To All the Moms With Adult CF ChildrenTo All the Moms with Adult CF Children: Present from the very beginning, this is a thank you to all the moms...reactionscomments
My First Week on TrikaftaI started Trikafta on November, 26th 2019: the week of Thanksgiving. I kept a detailed log of how I felt each day...reactionscomments
CF and Infertility After Pregnancy*Trigger warning: This article topic involves pregnancy, infertility, and mildly graphic descriptions of cystic fibrosis-related medical issues including hemoptysis. My pregnancy with...reactionscomments
Staying Active with CFStaying active can feel like a balancing act, especially as a person living with cystic fibrosis (CF). Sure, there are plenty of...reactionscomments
Creating A CF Individualized Health Plan (IHP)For the next step in our prep for Margo to start kindergarten, my husband and I met with the school nurse. We...reactionscomments
Family Activities with CF Involve More PlanningEvery year before winter hits, we like to enjoy the outdoors and go out with a BANG! My husband and I foster...reactionscomments
My Morning Routine - Investing in My Health & MyselfBeing a mother is a full-time job. Managing cystic fibrosis is a full-time job. Adding those two things together felt, at times...reactionscomments
The Many Colors of Cystic Fibrosis: Red (Part 1)If you haven’t read my previous article, “The Many Colors of Cystic Fibrosis: Blue,” you need to know that I am a...reactionscomments
Blood Glucose Monitoring Devices for CF-Related Diabetes: Part 1Cystic fibrosis (CF)-related diabetes is a common complication of CF. The treatment of CF-related diabetes (CFRD) is important as diabetes is associated...reactionscomments
Getting Ready for Cold and Flu Season (Part 1)Cold and flu season is coming up very soon. And in this two-part series, I’ll be sharing information with you on how...reactionscomments
Challenges of Being A Caregiver with CFCancer is an unwelcome yet frequent visitor that seems to always show up uninvited in my family. As a kid, I lost...reactionscomments
Getting Ready for Cold and Flu Season (Part 2)In my previous article, I wrote about how to prepare for cold and flu season. I shared practical steps to keeping your...reactionscomments
Routine CF Screening 101When you live with CF, there are many appointments and routine tests completed to make sure you are healthy and thriving. Firstly...reactionscomments
Home Sweet Home: After SurgeryAs I wrote about in a previous blog post, having surgery is sometimes a part of life. And feelings of anxiety can...reactionscomments
Easing the Financial Dent of Dental WorkThere’s no doubt that oral health impacts overall physical health. For many with cystic fibrosis (CF) our health can often affect our...reactions1comment
The Limits of Chronic DiseaseI was diagnosed with cystic fibrosis (CF) at an age where everything was already changing. I was 12, just on the cusp...reactionscomments
Tips for Overcoming Hyponatremia Occasionally, people with cystic fibrosis (CF) can experience electrolyte imbalances. These electrolyte imbalances include hyponatremia, hypochloremia, hypokalemia, and metabolic alkalosis. Collectively, these...reactions1comment
Pre-Surgical Anxiety and What To DoHaving surgery is a part of life. Especially if you have a chronic illness. For example, as a CF patient, I have...reactionscomments
