My Two CF Birth Stories: Part OneThere’s days where I wish August 4th, 1995 could peek into the future and see me now 26 years after my cystic fibrosis diagnosis. So much has changed in life... By Janeil Whitworth4 min readBookmark for laterReactions 0 reactions Comments0 comments
My Scars Are Proof I'm LuckyI used to joke that I was the board game “Operation,” because my body is covered in scars. By age 18 I had over a dozen surgical scars across me... By Cheriz K.2 min readBookmark for laterReactions 0 reactions Comments0 comments
CF and KindergartenOur daughter, Margo, will be starting kindergarten in the fall. On one hand, this makes complete sense to me, and on the other, I’m in complete disbelief. How is she... By Meagan Brackeen3 min readBookmark for laterReactions 0 reactions Comments0 comments
Two Years of TrikaftaThis March marks two years since I started taking Trikafta. I remember getting the package in the mail. It was just a couple of weeks after the pandemic had started... By Katelyn Harlow4 min readBookmark for laterReactions 0 reactions Comments1 comments
Hospitalization HacksHello there! For my first article, I thought I'd start with something I have a lot of experience with: getting hospitalized. Below I will share with you some of my... By Moriah Frisbie3 min readBookmark for laterReactions 0 reactions Comments2 comments
This or That: CF EditionWe all have different preferences, which is what makes us unique! Playing This or That can be a fun way to learn more about our community and your unique differences... By Editorial Team 1 min readBookmark for laterReactions 0 reactions Comments0 comments
What Are Patient Support Programs?If you are prescribed a high-cost drug, chances are, you have had experience with patient support programs. Patient support programs, or PSPs, are programs funded by the manufacturer of a... By Canadian Pharmacist2 min readBookmark for laterReactions 0 reactions Comments0 comments
IV Antibiotics: Hospital or Home?A big box was dropped on my doorstep filled with the most unexciting gifts: IV antibiotics. After a small bout of hemoptysis at the end of my pregnancy, my CF... By Janeil Whitworth3 min readBookmark for laterReactions 0 reactions Comments0 comments
The Many Colors of Cystic Fibrosis: Brown (Part 2)In my previous article, I detailed my journey with gastrointestinal issues including pancreatic insufficiency, malnutrition, and dumping syndrome. In 2017, we began to address a new issue: gastroparesis. Back to... By Nicole Kohr2 min readBookmark for laterReactions 0 reactions Comments0 comments
Take the Health and Media Habits Survey!The Media Habits Survey is now closed. Thank you for your interest! Managing a chronic condition is not easy and can be physically and mentally exhausting. What types of media... By Editorial Team 1 min readBookmark for laterReactions 0 reactions Comments0 comments
The Many Colors of Cystic Fibrosis: Brown (Part 1)If you haven’t read my previous article, “The Many Colors of Cystic Fibrosis: Clear”, just know that I am a huge fan of Joseph and the Technicolor Dreamcoat”. Now it’s... By Nicole Kohr2 min readBookmark for laterReactions 0 reactions Comments0 comments
Thank You CF: The Positives of Marrying Someone with Cystic Fibrosis"Are you sure you want to commit to this?" "What happens if she gets really sick or dies at a young age?" "What happens when you have kids and she... By Andrew Loebach3 min readBookmark for laterReactions 0 reactions Comments0 comments
Trikafta and Life Without My CF CoughBefore Trikafta, it was difficult to imagine life without… a cough. That cough. The cough we all know too well. I believe everyone who lives with a chronic illness hope... By Emma Boniface2 min readBookmark for laterReactions 0 reactions Comments0 comments
Attending Physical Therapy for CF Back PainAs people with cystic fibrosis (CF) continue to live longer lives, unique challenges arise such as musculoskeletal issues like back pain. Anyone who has dealt with chronic back pain knows... By Janeil Whitworth3 min readBookmark for laterReactions 0 reactions Comments1 comments
Breaking The SilenceFor the longest while, I have been debating what the topic of my first post on here should be. I don’t want to be too graphic, I don’t want to... By Kadeem Morgan3 min readBookmark for laterReactions 0 reactions Comments2 comments
Ask the Advocates: Notable Changes in Your CF JourneyCystic fibrosis (CF) has had many advances over the years in treatment, research and awareness. Each CF patient has a unique journey to travel, with notable changes along the way... By Editorial Team 4 min readBookmark for laterReactions 0 reactions Comments0 comments
Honoring the CF Experience: Invisible IllnessLiving with an illness like cystic fibrosis (CF), the symptoms can often be "invisible" to others. Many people who have not been impacted with chronic illness in their own lives... By Editorial Team 1 min readBookmark for laterReactions 0 reactions Comments1 comments
Cystic Fibrosis Changed My Personality And This Is HowCystic fibrosis has pushed me to my limits and then compelled me to go past them; time and time again. My perspective on life has been altered in many ways... By Emma Boniface2 min readBookmark for laterReactions 0 reactions Comments1 comments
Helping My Child Cope with Medical AnxietyMy daughter Caroline was two years old when we noticed she was developing medical anxiety. Most children do not enjoy going to the doctor and many tend to get nervous... By Holly Williams6 min readBookmark for laterReactions 0 reactions Comments0 comments
A New Screening Tool for CF in Non-White PeopleFebruary is Black History Month. As health advocates, it’s important that we engage in dialogue on how health disparities exist for minorities across the globe. While cystic fibrosis (CF) is... By Canadian Pharmacist2 min readBookmark for laterReactions 0 reactions Comments0 comments