Living

Cystic fibrosis (CF) is an inherited condition that affects the lungs and digestive system. But CF can affect the bones and joints as well. People with CF are at an...

Mental health emergencies can look different for different people. They all can put you at risk of losing your life, getting into legal trouble, losing family, or having a serious...

This giveaway is now closed. Thank you for your interest! Living with cystic fibrosis (CF) or caring for a loved one with CF can cause a lot of unwanted stress...

Family vacations are meant to be filled with fun, excitement, close bonding, and laughter. Being someone who does not have CF, I had a very different view on how planning...

Dust, fumes, mold, and bacteria, oh my! Our homes are filled with many irritants that can harm our respiratory systems. However, those same irritants do need to be cleaned and...

In Part 1 of the article, we discussed the prevalence of CF-related diabetes (CFRD) and the role of blood glucose monitoring. In this part, I will outline the two main...

In Part One of this series, I reminisced about the birth of our first son as a new mom with cystic fibrosis. Now, that little boy is four years old...

The balance of being a provider and needing providing wasn’t something I thought about until I became a mother. Diagnosed with CF at age 12, most of my teenage years...

Cystic fibrosis (CF)-related diabetes is a common complication of CF. The treatment of CF-related diabetes (CFRD) is important as diabetes is associated with worsening lung function, increased risk of infections...

Hello everyone! For my first article I’m beginning with something I have struggled with a lot when it comes to advocating for my own health and being my own caregiver:...

Cystic fibrosis (CF) is a chronic disease that primarily impacts the lungs. Lung infections are more severe with lung disease. They cause symptoms to worsen. The risk of hospitalization for...

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With an exciting uptick of women with CF having children, naturally there’s been an increase in women deciding how to feed their babies. For various reasons, many women with CF...

There’s days where I wish August 4th, 1995 could peek into the future and see me now 26 years after my cystic fibrosis diagnosis. So much has changed in life...

I used to joke that I was the board game “Operation” because my body was covered in scars. By age 18, I had over a dozen surgical scars across me...

Our daughter, Margo, will be starting kindergarten in the fall. On one hand, this makes complete sense to me, and on the other, I’m in complete disbelief. How is she...

This March marks two years since I started taking Trikafta. I remember getting the package in the mail. It was just a couple of weeks after the pandemic had started...

Hello there! For my first article, I thought I'd start with something I have a lot of experience with: getting hospitalized. Below I will share with you some of my...

We all have different preferences, which is what makes us unique! Playing This or That can be a fun way to learn more about our community and your unique differences...

If you are prescribed a high-cost drug, chances are, you have had experience with patient support programs. Patient support programs, or PSPs, are programs funded by the manufacturer of a...