Living

I married into a family that loves being outdoors--camping, mountain biking, running, hiking, you name it--they do it all. At first, this was totally intimidating because I didn’t grow up...

Staying active can feel like a balancing act, especially as a person living with cystic fibrosis (CF). Sure, there are plenty of fun ways to get your body moving. But...

Have you ever heard of the term “self-care”? I have heard a lot about self-care recently, especially during the pandemic. During the pandemic, a time when so many people were...

Official Rules, Terms and Conditions for the CF Coloring Book Giveaway NO PURCHASE NECESSARY TO ENTER OR WIN. A PURCHASE DOES NOT INCREASE YOUR CHANCES OF WINNING. VOID WHERE PROHIBITED...

Living with cystic fibrosis (CF) includes many challenges, including infertility. Infertility affects about 98 percent of men with CF, and women with CF may be less fertile than other women...

The definition of advocacy is to support another by giving them a voice. This, I think, rings so true when being part of the current CF community. Sometimes we are...

Sex is a normal, fun, and important part of our lives as humans. Whether you have CF or not, you have the right to connect with others and enjoy intimacy...

Research shows that more than 75 percent of adults with cystic fibrosis (CF) live with chronic pain. Many use prescription opioids to help reduce this pain. In 2021, researchers developed...

Creating a good relationship with our nieces and nephews has been so important to me and my husband. One of the ways we have helped to foster that healthy relationship...

Have you read my most recent post, “The Many Colors of Cystic Fibrosis: Red (Part 1)?” If not, just know that I am a huge fan of “Joseph and the...

My daughter, Margo, recently had her quarterly CF clinic appointment, so I am going to take you through our typical routine. One thing I’ve found in talking with other CF...

TRIKAFTA® (elexacaftor/tezacaftor/ivacaftor and ivacaftor), Vertex’s newest CFTR modulator, has been available in the U.S. for those 6 and up with one F508del mutation for some time now. This astounding medication...

The nature of cystic fibrosis (CF) can mean frequent hospital visits and medical care. Many people report that living with CF sometimes feels like you are a patient first and...

If you haven’t read my previous article, “The Many Colors of Cystic Fibrosis: Blue,” you need to know that I am a huge theater nerd. Joseph and the Technicolor Dreamcoat...

The world has been heavy lately, if you haven’t noticed. Civil and governmental arrest in the Middle East, natural disasters peppering the globe in destruction, and the ever on-going debate...

This giveaway is now closed. Thank you for your interest! When you are a caregiver for a loved one with cystic fibrosis (CF), you have an immeasurable impact on their...

Living with cystic fibrosis (CF) is challenging in so many ways. When we talk about CF, we tend to talk about the ongoing doctor visits or the physical aspects of...

Getting better sleep is something that most people want. Whether it is better quality or more sleep, it is common to know someone who struggles falling asleep and staying asleep...

Cystic fibrosis (CF) is a chronic, life-long condition with several ups and downs. Between the initial diagnosis, hospital stays, managing difficult symptoms, daily treatments, and the emotional strain of CF...

Vitamins are so widely used that more than half of adults in America head to their medicine cabinet daily to take them or other dietary supplements. I know this is...