Stories From Our CF Community: CF Care TeamPeople living with cystic fibrosis (CF) have unique needs that require comprehensive care from infancy to adulthood. A care team that includes different doctors and care providers ensures that people...reactions5comments
Holiday Gift Guide for Adults With CFHo, ho, ho! It’s a good time to wrap up your holiday shopping (or maybe you're the type that needs to scramble and start shopping) as the end of the...reactionscomments
The Many Colors Of Cystic Fibrosis: Green"Joseph and the Technicolor Dreamcoat" is a very popular musical this time of year. I always loved gazing at the coat in admiration and wondering how those colors applied to...reactions1comment
My Holiday Gift Guide for Children With CFWith the holidays right around the corner, now is the perfect time to start purchasing gifts for your friends and families, especially those little ones living with CF. Full disclosure...reactionscomments
Hiking Safely With CFI married into a family that loves being outdoors--camping, mountain biking, running, hiking, you name it--they do it all. At first, this was totally intimidating because I didn’t grow up...reactions1comment
Staying Active with CFStaying active can feel like a balancing act, especially as a person living with cystic fibrosis (CF). Sure, there are plenty of fun ways to get your body moving. But...reactionscomments
Self-CareHave you ever heard of the term “self-care”? I have heard a lot about self-care recently, especially during the pandemic. During the pandemic, a time when so many people were...reactionscomments
CF Coloring Book Giveaway Terms and ConditionsOfficial Rules, Terms and Conditions for the CF Coloring Book Giveaway NO PURCHASE NECESSARY TO ENTER OR WIN. A PURCHASE DOES NOT INCREASE YOUR CHANCES OF WINNING. VOID WHERE PROHIBITED...reactionscomments
Stories from Our CF Community: InfertilityLiving with cystic fibrosis (CF) includes many challenges, including infertility. Infertility affects about 98 percent of men with CF, and women with CF may be less fertile than other women...reactionscomments
Ask The Advocates: Importance Of Research and AdvocacyThe definition of advocacy is to support another by giving them a voice. This, I think, rings so true when being part of the current CF community. Sometimes we are...reactionscomments
CF and Sex 101: Reproduction and Sexual FunctionSex is a normal, fun, and important part of our lives as humans. Whether you have CF or not, you have the right to connect with others and enjoy intimacy...reactionscomments
Opioids for Cystic Fibrosis Pain: Benefits, Risks, and ConcernsResearch shows that more than 75 percent of adults with cystic fibrosis (CF) live with chronic pain. Many use prescription opioids to help reduce this pain. In 2021, researchers developed...reactions2comments
How to Talk to Kids About IllnessCreating a good relationship with our nieces and nephews has been so important to me and my husband. One of the ways we have helped to foster that healthy relationship...reactionscomments
The Many Colors of Cystic Fibrosis: Red (Part 2)Have you read my most recent post, “The Many Colors of Cystic Fibrosis: Red (Part 1)?” If not, just know that I am a huge fan of “Joseph and the...reactionscomments
A Day in a CF Patient's Life: Clinic VisitMy daughter, Margo, recently had her quarterly CF clinic appointment, so I am going to take you through our typical routine. One thing I’ve found in talking with other CF...reactionscomments
Slow Trikafta Coverage Expands in CanadaTRIKAFTA® (elexacaftor/tezacaftor/ivacaftor and ivacaftor), Vertex’s newest CFTR modulator, has been available in the U.S. for those 6 and up with one F508del mutation for some time now. This astounding medication...reactionscomments
Person Before Patient Survey Results: Getting to Know Our Community MembersThe nature of cystic fibrosis (CF) can mean frequent hospital visits and medical care. Many people report that living with CF sometimes feels like you are a patient first and...reactionscomments
The Many Colors of Cystic Fibrosis: Red (Part 1)If you haven’t read my previous article, “The Many Colors of Cystic Fibrosis: Blue,” you need to know that I am a huge theater nerd. Joseph and the Technicolor Dreamcoat...reactionscomments
Mom with CF: Worries of the WorldThe world has been heavy lately, if you haven’t noticed. Civil and governmental arrest in the Middle East, natural disasters peppering the globe in destruction, and the ever on-going debate...reactionscomments
Caregiver Awareness Month Giveaway (Now Closed)This giveaway is now closed. Thank you for your interest! When you are a caregiver for a loved one with cystic fibrosis (CF), you have an immeasurable impact on their...reactionscomments
