Opioids for Cystic Fibrosis Pain: Benefits, Risks, and ConcernsResearch shows that more than 75 percent of adults with cystic fibrosis (CF) live with chronic pain. Many use prescription opioids to help reduce this pain. In 2021, researchers developed... By Editorial Team 3 min readBookmark for laterReactions 0 reactions Comments2 comments
How to Talk to Kids About IllnessCreating a good relationship with our nieces and nephews has been so important to me and my husband. One of the ways we have helped to foster that healthy relationship... By Katelyn Harlow3 min readBookmark for laterReactions 0 reactions Comments0 comments
The Many Colors of Cystic Fibrosis: Red (Part 2)Have you read my most recent post, “The Many Colors of Cystic Fibrosis: Red (Part 1)?” If not, just know that I am a huge fan of “Joseph and the... By Nicole Kohr3 min readBookmark for laterReactions 0 reactions Comments0 comments
A Day in a CF Patient's Life: Clinic VisitMy daughter, Margo, recently had her quarterly CF clinic appointment, so I am going to take you through our typical routine. One thing I’ve found in talking with other CF... By Meagan Brackeen4 min readBookmark for laterReactions 0 reactions Comments0 comments
Slow Trikafta Coverage Expands in CanadaTRIKAFTA® (elexacaftor/tezacaftor/ivacaftor and ivacaftor), Vertex’s newest CFTR modulator, has been available in the U.S. for those 6 and up with one F508del mutation for some time now. This astounding medication... By Janeil Whitworth2 min readBookmark for laterReactions 0 reactions Comments0 comments
Person Before Patient Survey Results: Getting to Know Our Community MembersThe nature of cystic fibrosis (CF) can mean frequent hospital visits and medical care. Many people report that living with CF sometimes feels like you are a patient first and... By Editorial Team 3 min readBookmark for laterReactions 0 reactions Comments0 comments
The Many Colors of Cystic Fibrosis: Red (Part 1)If you haven’t read my previous article, “The Many Colors of Cystic Fibrosis: Blue,” you need to know that I am a huge theater nerd. Joseph and the Technicolor Dreamcoat... By Nicole Kohr3 min readBookmark for laterReactions 0 reactions Comments0 comments
Mom with CF: Worries of the WorldThe world has been heavy lately, if you haven’t noticed. Civil and governmental arrest in the Middle East, natural disasters peppering the globe in destruction, and the ever on-going debate... By Janeil Whitworth2 min readBookmark for laterReactions 0 reactions Comments0 comments
Caregiver Awareness Month Giveaway (Now Closed)This giveaway is now closed. Thank you for your interest! When you are a caregiver for a loved one with cystic fibrosis (CF), you have an immeasurable impact on their... By Editorial Team 1 min readBookmark for laterReactions 0 reactions Comments0 comments
Community Views: The Unspoken Emotional Impact of Cystic FibrosisLiving with cystic fibrosis (CF) is challenging in so many ways. When we talk about CF, we tend to talk about the ongoing doctor visits or the physical aspects of... By Editorial Team 2 min readBookmark for laterReactions 0 reactions Comments0 comments
Better SleepGetting better sleep is something that most people want. Whether it is better quality or more sleep, it is common to know someone who struggles falling asleep and staying asleep... By Katelyn Harlow4 min readBookmark for laterReactions 0 reactions Comments0 comments
What Is One Life Lesson CF Has Taught You?Cystic fibrosis (CF) is a chronic, life-long condition with several ups and downs. Between the initial diagnosis, hospital stays, managing difficult symptoms, daily treatments, and the emotional strain of CF... By Editorial Team 2 min readBookmark for laterReactions 0 reactions Comments0 comments
All About Fat-Soluble Vitamins In CFVitamins are so widely used that more than half of adults in America head to their medicine cabinet daily to take them or other dietary supplements. I know this is... By Janeil Whitworth3 min readBookmark for laterReactions 0 reactions Comments0 comments
Unique Challenges of Second Trimester CF PregnancyThe second trimester of pregnancy is often thought of as the golden period for many moms-to-be. After a rough few months of morning sickness, food aversions, and fatigue that is... By Janeil Whitworth2 min readBookmark for laterReactions 0 reactions Comments0 comments
Be Involved in Your CF CareHaving cystic fibrosis has taught me the invaluable lesson: Learning to value myself when it comes to my own health. I believe it is easy to get lost in the... By Marieliz Landa3 min readBookmark for laterReactions 0 reactions Comments0 comments
My Experience: COVID Vaccine BoosterWhat can truly be said about needing a third vaccine? In my view, it is scary to be in a world where a different COVID variant can cause damage, because... By Marieliz Landa2 min readBookmark for laterReactions 0 reactions Comments0 comments
Depression and Anxiety in People Living with Cystic FibrosisLiving with cystic fibrosis (CF) can bring many challenges. While the physical symptoms of CF are often discussed, the toll that the condition takes on mental health is just as... By Editorial Team 3 min readBookmark for laterReactions 0 reactions Comments0 comments
Join the Cystic-Fibrosis.com Advocate TeamWould you like to share your experience with CF and help others who are also living or caring for someone with the condition? We’re looking to add new voices to... By Editorial Team 1 min readBookmark for laterReactions 0 reactions Comments0 comments
Taking A ChanceOne of the most frightening things for me to do was travel, because I was always so scared to do anything. I always put my CF as an excuse to... By Marieliz Landa2 min readBookmark for laterReactions 0 reactions Comments1 comments
Community Views: What Nobody Talks About with Cystic FibrosisWhile many people have heard of cystic fibrosis (CF) and may even know a little about the condition, very few fully understand what life with CF entails. Even the friends... By Editorial Team 2 min readBookmark for laterReactions 0 reactions Comments0 comments