Morning TreatmentsGrowing up, treatments were never my favorite time of the day. Especially morning treatments. While I looked forward to the relief that...reactionscomments
Transferring PharmaciesMoving can be a stressful. Coordinating leases, installations, and packing your life into boxes can feel like a lot. If you have...reactionscomments
Take the Managing Treatment and Medication SurveyThe Managing Treatment and Medication Survey is now closed. Thank you for your interest! Treatment is a big part of managing a...reactionscomments
HidingOne of the difficult parts of having this disease is pretending that you are okay when you are not. I believe at...reactions2comments
Why Are Fat-Soluble Vitamins Important in CF?Vitamins A, D,E, and K, or fat-soluble vitamins, play an important role in making sure people with CF are growing and healthy...reactionscomments
Are Your Friends and Family Supportive of Your CF?It is no secret that living with cystic fibrosis (CF) can be time-consuming, frustrating, or even flat-out difficult. Due to the day-to-day...reactionscomments
The Many Colors of Cystic Fibrosis: BlueJoseph and the Technicolor Dream coat is one of my favorite shows. I see it every Christmas. One of my favorite songs...reactionscomments
CF Book Review: Breath From SaltIf you have CF, have a loved one with CF, or are just interested in science or the business model of disease...reactionscomments
Nasal Pressure Headaches/MigrainesNasal pressure from blocked nasal passages is bad enough but the accompanying headache increases it to terrible. In my case, my sinuses...reactions2comments
How Can CF Affect Oral Health?It’s been ingrained into us since early childhood and the days of blue bubblegum toothpaste how important it is to take care...reactionscomments
Complementary Therapies To Help Manage CF SymptomsI have been a huge fan of alternative medicine and complementary therapies to help manage my cystic fibrosis journey. Here I share...reactionscomments
Peripheral Neuropathy (Feet)I have painful feet. I was shocked when the doctor told me that I have peripheral neuropathy, but it explained why I...reactions4comments
Supplemental Oxygen on FlightsThe topic of travel may not be at the forefront of your thoughts these days. However, the approaching warm weather may have...reactions1comment
Three Ways to Sanitize Nebulizer CupsAn important step in airway clearance is the maintenance and cleaning of nebulizer cups used to nebulizer inhaled medications. Since I care...reactionscomments
Is Airline Travel Safe in the Post-COVID Era with CF?As the newly vaccinated US begins emerging from the terrible control of COVID-19, many people are eager to dust off their suitcases...reactionscomments
Smell the RosesI have written about my sinus surgeries due to nasal polyps. Nasal polyps and sinus surgeries are routine for those of us...reactions2comments
CF Resilience PlaylistMusic helps us deal with difficult times and process emotions we otherwise would not have words for. It can invoke feelings in...reactionscomments
Creating a New RoutineMost people have a routine of some sort, even if they are unaware, and it varies from person to person depending on...reactionscomments
Starting Treatment with Inhaled Amikacin (Arikayce)People with cystic fibrosis (CF) are no strangers to antibiotics. Some antibiotics are well-known in the CF sphere as they are commonly...reactionscomments
Depression Is Where I Was Finally Able to Accept CFI can’t remember the first time I experienced depression, but I know the black dog has been my friend for many years...reactions2comments