Breastfeeding My Baby on TrikaftaWith an exciting uptick of women with CF having children, naturally there’s been an increase in women deciding how to feed their...reactionscomments
Connecting With CF PeersWe asked our advocates, "What methods do you use to connect with your CF peers? How do you feel about these methods?"...reactionscomments
CF Diet ManagementWe asked our advocates, "What practices have you applied to CF diet management?" Here's what we heard! Response from Cheriz K I...reactionscomments
Understanding CFWe asked our advocates, "How old were you when you felt you truly understood what cystic fibrosis is? How did you feel...reactionscomments
How Has CF Impacted Your Friendships?It's no secret that cystic fibrosis touches every area of our lives. Whether we are going to school, choosing colleges, entering the...reactionscomments
Alternative Treatments for CFCystic fibrosis (CF) affects more than just the lungs, and it is always important to follow the advice of your CF care...reactionscomments
What Does Advocacy Mean to You? (Part 1)Advocacy is a pillar of the cystic fibrosis community, and we are a small but mighty group. There are lots of ways...reactionscomments
CF and KindergartenOur daughter, Margo, will be starting kindergarten in the fall. On one hand, this makes complete sense to me, and on the...reactionscomments
Talking To My Young Child About CF (Part 1)Even at the young age of two, I can sense my son is beginning to understand the role cystic fibrosis plays in...reactionscomments
Ask the Advocates: Notable Changes in Your CF JourneyCystic fibrosis (CF) has had many advances over the years in treatment, research and awareness. Each CF patient has a unique journey...reactionscomments
Trikafta and Life Without My CF CoughBefore Trikafta, it was difficult to imagine life without… a cough. That cough. The cough we all know too well. I believe...reactionscomments
Thank You CF: The Positives of Marrying Someone with Cystic Fibrosis"Are you sure you want to commit to this?" "What happens if she gets really sick or dies at a young age?"...reactionscomments
Thank You for Taking Our Survey!We appreciate you taking the time to answer all of our questions. Your responses will help us better understand life with cystic...reactionscomments
Attending Physical Therapy for CF Back PainAs people with cystic fibrosis (CF) continue to live longer lives, unique challenges arise such as musculoskeletal issues like back pain. Anyone...reactions1comment
Honoring the CF Experience: Invisible IllnessLiving with an illness like cystic fibrosis (CF), the symptoms can often be "invisible" to others. Many people who have not been...reactions1comment
I'm Not Just Tired: Chronic Fatigue in CFIn my husband’s very affectionately true words, “When are you not tired?” According to many people living with cystic fibrosis: never. In...reactions16comments
Five Summertime Tips for Staying HealthySummertime is like a relieving deep breath for a lot of people in the cystic fibrosis community. During this season, the increased...reactionscomments
Tips To Gain And Maintain WeightLooking from the outside-in, many people might assume being chronically thin is a positive side effect of cystic fibrosis. That’s what everybody...reactionscomments
Day In The Life Of A CF Tune-UpWhen living with cystic fibrosis, occasional worsening of CF symptoms is all too common. So common in fact, treating a flare of...reactionscomments
Hair Loss and Cystic FibrosisHair loss can be disheartening no matter what the underlying cause is, as many of us have an emotional attachment to our...reactions3comments
