Why Are Fat-Soluble Vitamins Important in CF?Vitamins A, D,E, and K, or fat-soluble vitamins, play an important role in making sure people with CF are growing and healthy. From helping the body fight off dangerous bacteria...reactionscomments
Are Your Friends and Family Supportive of Your CF?It is no secret that living with cystic fibrosis (CF) can be time-consuming, frustrating, or even flat-out difficult. Due to the day-to-day challenges of living with a chronic condition like...reactionscomments
The Many Colors of Cystic Fibrosis: BlueJoseph and the Technicolor Dream coat is one of my favorite shows. I see it every Christmas. One of my favorite songs, “Joseph Coat”, describes all of the colors on...reactionscomments
CF Book Review: Breath From SaltIf you have CF, have a loved one with CF, or are just interested in science or the business model of disease non-profits, Breath from Salt: A Deadly Genetic Disease...reactionscomments
Nasal Pressure Headaches/MigrainesNasal pressure from blocked nasal passages is bad enough but the accompanying headache increases it to terrible. In my case, my sinuses inflame very easily and while I have always...reactions2comments
How Can CF Affect Oral Health?It’s been ingrained into us since early childhood and the days of blue bubblegum toothpaste how important it is to take care of your oral health by brushing and flossing...reactionscomments
Complementary Therapies To Help Manage CF SymptomsI have been a huge fan of alternative medicine and complementary therapies to help manage my cystic fibrosis journey. Here I share some of my top-rated add on's. Antibiotics especially...reactionscomments
Peripheral Neuropathy (Feet)I have painful feet. I was shocked when the doctor told me that I have peripheral neuropathy, but it explained why I could not walk without being in horrible pain...reactions4comments
Supplemental Oxygen on FlightsThe topic of travel may not be at the forefront of your thoughts these days. However, the approaching warm weather may have some people scouring for flight and destination deals...reactions1comment
Three Ways to Sanitize Nebulizer CupsAn important step in airway clearance is the maintenance and cleaning of nebulizer cups used to nebulizer inhaled medications. Since I care about my overall lung health and work so...reactionscomments
Is Airline Travel Safe in the Post-COVID Era with CF?As the newly vaccinated US begins emerging from the terrible control of COVID-19, many people are eager to dust off their suitcases and passports and finally start traveling again. After...reactionscomments
Smell the RosesI have written about my sinus surgeries due to nasal polyps. Nasal polyps and sinus surgeries are routine for those of us with cystic fibrosis. Polyps are usually a problem...reactions2comments
CF Resilience PlaylistMusic helps us deal with difficult times and process emotions we otherwise would not have words for. It can invoke feelings in us that we were not currently experiencing, such...reactionscomments
Creating a New RoutineMost people have a routine of some sort, even if they are unaware, and it varies from person to person depending on their specific needs and goals. For example, when...reactionscomments
Starting Treatment with Inhaled Amikacin (Arikayce)People with cystic fibrosis (CF) are no strangers to antibiotics. Some antibiotics are well-known in the CF sphere as they are commonly used. One less-known antibiotic is amikacin, which is...reactionscomments
Depression Is Where I Was Finally Able to Accept CFI can’t remember the first time I experienced depression, but I know the black dog has been my friend for many years. Being at my most destructive when I was...reactions2comments
Does CF Cause Kidney Stones?Have you ever passed a dreaded kidney stone? If you have, then you know having a kidney stone is not a fun experience. Pretty painful and annoying? Yes. Fun? Not...reactionscomments
Mornings are Tough with CF Part 2: Tips and TricksIn Part 1 of this article series, I discussed how mornings are not an easy part of the day for a lot of people living with CF. Due to fatigue...reactionscomments
Take the Person Before Patient SurveyThe Person Before Patient Survey is now closed. Thank you for your interest! What makes us the people we are? Living with a serious health condition like cystic fibrosis can...reactionscomments
Lung Transplants and CF For those with cystic fibrosis (CF) who continue to experience lung progression with treatment, a lung transplant may be an additional treatment option to prevent respiratory failure. From the period...reactions9comments
