Looking For Answers To Chronic Pain: Part 1There’s a reason why when our bodies are experiencing pain we try to make it go away--ice, Tylenol, warm baths, hugs, and kisses, etc. Pain is supposed to be a... By Janeil Whitworth3 min readBookmark for laterReactions 0 reactions Comments0 comments
Dietary Concerns and the Non-CF SiblingIn our home, we are a home divided. We have fruit and vegetables and waffles and snack cakes. Anything my son wants, he usually gets. If he asks for something... By Misty Roussa2 min readBookmark for laterReactions 0 reactions Comments1 comments
Growing Into The Patient I Never Thought I Would BeChronic illness requires a lot from a person. In CF, it takes a lot away from a person at a young, fragile age. Many CFers are riddled with traumatic memories... By Emma Boniface3 min readBookmark for laterReactions 0 reactions Comments0 comments
Exploring Post Traumatic Stress Disorder in Cystic Fibrosis (Part 1)Living with cystic fibrosis can be physically debilitating and mentally destabilizing. We know there is an elevated level of depression and anxiety within the CF population, but little research has... By Emma Boniface4 min readBookmark for laterReactions 0 reactions Comments1 comments
What's The Deal With Fertility Testing And CF?As people with CF continue to live longer, healthier lives, couples are in the unique position to decide to become parents or not. Growing a family is such an exciting... By Janeil Whitworth3 min readBookmark for laterReactions 0 reactions Comments0 comments
CF-Related Diabetes Risk FactorsCystic fibrosis-related diabetes (CFRD) is one of the most common non-respiratory complications of cystic fibrosis (CF). It differs from Type 1 and 2 Diabetes, yet shares similar features of each... By Canadian Pharmacist2 min readBookmark for laterReactions 0 reactions Comments0 comments
It's The Most Stressful Time Of The Year: Open EnrollmentThe end of the year is always a stressful time in our household--and not because of reasons you might assume. It’s not holiday stress from Thanksgiving or Christmas that makes... By Janeil Whitworth3 min readBookmark for laterReactions 0 reactions Comments0 comments
Growing Up With a Sibling With CF: My Sister's PerspectiveI am very lucky to have grown up in a family that loved me for me--and my CF. Being the only one in both my immediate and extended families with... By Janeil Whitworth4 min readBookmark for laterReactions 0 reactions Comments0 comments
Hair Loss and Cystic FibrosisHair loss can be disheartening no matter what the underlying cause is, as many of us have an emotional attachment to our hair. In some cases, our hair is tied... By Canadian Pharmacist2 min readBookmark for laterReactions 0 reactions Comments3 comments
Cystic Fibrosis Unsolicited AdviceLiving with CF can be challenging, and it certainly is not made any easier by all the unsolicited advice dished up by strangers. Many in the CF community shared that... By Editorial Team 3 min readBookmark for laterReactions 0 reactions Comments2 comments
Being Prepared With Advanced PlanningAdvance directives aren’t something to be scared about doing and it’s not something to put off either. We each have preferences and, when the time comes, we can have our... By Marieliz Landa2 min readBookmark for laterReactions 0 reactions Comments0 comments
The Effect Stress Can Have On CF SymptomsIdentifying triggers for an infection flare-up has been a minefield I am still learning to navigate healthily. We have all heard psychological stress weakens the immune system. When we are... By Emma Boniface3 min readBookmark for laterReactions 0 reactions Comments4 comments
Let's Go Camping (With Trikafta)A redemptive sense of freedom was gifted to me when I started taking Trikafta. As my lungs cleared away infection, it also made way for the things I couldn’t do... By Janeil Whitworth3 min readBookmark for laterReactions 0 reactions Comments0 comments
The Lung Bleed vs. The Lung PeriodBouts of hemoptysis (coughing up blood) that worsen during a monthly menstrual cycle are becoming a frequent problem for CF women. Could hormones be playing a part? I am a... By Emma Boniface3 min readBookmark for laterReactions 0 reactions Comments2 comments
Tips For Communicating With Your CF Care TeamCommunication with your CF care team is more important than we realize. Sure, it’s necessary to report sickness and enlist their help for treatment--but that's just the tip of the... By Janeil Whitworth3 min readBookmark for laterReactions 0 reactions Comments0 comments
My Journey To Becoming A CF ParentEvery CF parent has a diagnosis story--the process leading up to the diagnosis and the exact moment of learning of their child’s condition. For many people, the diagnosis comes within... By Meagan Brackeen4 min readBookmark for laterReactions 0 reactions Comments0 comments
Recognizing Caregiver BurnoutAs caregivers, we often get so caught up in the routines we have in place that we don’t realize just how much we are managing every day and how it... By Holly Williams2 min readBookmark for laterReactions 0 reactions Comments1 comments
How Has CF Impacted Your Romantic Relationship(s)?Those with cystic fibrosis know that it branches out into every area of their lives. Unfortunately, dating and relationships are no exception. Many people with cystic fibrosis worry about relationships... By Editorial Team 4 min readBookmark for laterReactions 0 reactions Comments0 comments
Survivor’s GuiltOne of the hardest aspects of having CF is outliving the friends you make with CF. I know I fight mentally with the thought of, “When is it my turn?”... By Marieliz Landa2 min readBookmark for laterReactions 0 reactions Comments0 comments
Parenting While Managing A Chronic IllnessWhether or not you have a child, most people would agree that parenting is hard. Although there is no right or wrong way to raise a child, new trends, latest... By Editorial Team 4 min readBookmark for laterReactions 0 reactions Comments2 comments