Understanding My Experiences with CFNot too long ago, during one of my regular face time calls with my mom, I was explaining to her how frustrated...reactionscomments
Intussusception Saved My Life: CF Diagnosis StoryAround two-thirds of people living with CF are diagnosed before the age of 2. However, that’s not how my CF diagnosis story...reactionscomments
Things Not To Say To Someone With CFIt seems that many people with CF know someone who hasn't learned the rule: “If you cannot say anything nice, do not...reactionscomments
How Technology Brings Both Convenience and Confusion: Results of the Connected Health SurveySometimes, it feels like we are surrounded by technology. Apps, devices, trackers, and gadgets are everywhere! In this digital age, though, everyone...reactionscomments
Nine Lessons 2020 Taught Us About DisabilityThe year 2020 taught us a lot about ourselves and overcoming adversaries. After the onset of COVID-19, many non-disabled people were faced...reactionscomments
Home IVsHome infusions (IVs) are something most of us with cystic fibrosis are accustomed to. It’s one of the best ways to receive...reactions3comments
How Is CF Mucus Different From Non-CF Mucus?When people without cystic fibrosis (CF) think of CF, they likely focus on the hallmark characteristic of the condition: mucus. It is...reactionscomments
How To Build A Healthy Relationship With Your DoctorA good relationship with your doctor is essential when living with cystic fibrosis. CF patients often report feeling dismissed when talking to...reactionscomments
Cleaning And Disinfecting Your Home For Cystic FibrosisThere has been a lot of talk about cleaning, disinfecting, and overall best hygiene practices this past year. For those living with...reactions2comments
Six Minor Ways Trikafta Has Significantly Changed My LifeTrikafta has changed the lives of many individuals and families in the CF community since it’s release. A lot of people with...reactionscomments
How Has CF Impacted Your Friendships?It's no secret that cystic fibrosis touches every area of our lives. Whether we are going to school, choosing colleges, entering the...reactionscomments
Finding Answers To Chronic Pain: CF And Rheumatoid ArthritisIn the "Searching for Answers to Chronic Pain," I detailed the frustrating journey of living with chronic pain since late puberty. After...reactionscomments
Exploring Post Traumatic Stress Disorder in Cystic Fibrosis (Part 2)It is still early days when looking at the long-lasting effects trauma can have on babies and parents in newborn intensive care...reactionscomments
The Difficulty With CF Clinic NumbersEven though I have gone to roughly 140 or more cystic fibrosis clinics in my life so far, I still feel anxious...reactionscomments
MemoriesI’ve never been shy in regards to talking about those whom I have met with cystic fibrosis and the impact they’ve had...reactionscomments
The Link Between CF and Ear InfectionsOtitis media, more commonly known as middle ear infections, is a prevalent infection that usually occurs in childhood. In fact, otitis media...reactionscomments
Looking For Answers To Chronic Pain: Part 1There’s a reason why when our bodies are experiencing pain we try to make it go away--ice, Tylenol, warm baths, hugs, and...reactionscomments
Dietary Concerns and the Non-CF SiblingIn our home, we are a home divided. We have fruit and vegetables and waffles and snack cakes. Anything my son wants...reactions1comment
Growing Into The Patient I Never Thought I Would BeChronic illness requires a lot from a person. In CF, it takes a lot away from a person at a young, fragile...reactionscomments
Exploring Post Traumatic Stress Disorder in Cystic Fibrosis (Part 1)Living with cystic fibrosis can be physically debilitating and mentally destabilizing. We know there is an elevated level of depression and anxiety...reactions1comment
