Nine Lessons 2020 Taught Us About DisabilityThe year 2020 taught us a lot about ourselves and overcoming adversaries. After the onset of COVID-19, many non-disabled people were faced with unique challenges they have never experienced before...reactionscomments
Home IVsHome infusions (IVs) are something most of us with cystic fibrosis are accustomed to. It’s one of the best ways to receive IVs without having to do an entire 2-week...reactions3comments
How Is CF Mucus Different From Non-CF Mucus?When people without cystic fibrosis (CF) think of CF, they likely focus on the hallmark characteristic of the condition: mucus. It is known that CF mucus is thick and sticky...reactionscomments
How To Build A Healthy Relationship With Your DoctorA good relationship with your doctor is essential when living with cystic fibrosis. CF patients often report feeling dismissed when talking to their doctors. On a recent social media Q&A...reactionscomments
Cleaning And Disinfecting Your Home For Cystic FibrosisThere has been a lot of talk about cleaning, disinfecting, and overall best hygiene practices this past year. For those living with cystic fibrosis (CF), cleaning and disinfecting has been...reactions2comments
Six Minor Ways Trikafta Has Significantly Changed My LifeTrikafta has changed the lives of many individuals and families in the CF community since it’s release. A lot of people with CF are finally feeling better and living different...reactionscomments
How Has CF Impacted Your Friendships?It's no secret that cystic fibrosis touches every area of our lives. Whether we are going to school, choosing colleges, entering the workforce, or building relationships, CF is there. When...reactionscomments
Finding Answers To Chronic Pain: CF And Rheumatoid ArthritisIn the "Searching for Answers to Chronic Pain," I detailed the frustrating journey of living with chronic pain since late puberty. After the pain started severely impacting my quality of...reactionscomments
Exploring Post Traumatic Stress Disorder in Cystic Fibrosis (Part 2)It is still early days when looking at the long-lasting effects trauma can have on babies and parents in newborn intensive care units (NICU). What has been identified as badly...reactionscomments
The Difficulty With CF Clinic NumbersEven though I have gone to roughly 140 or more cystic fibrosis clinics in my life so far, I still feel anxious before each one. If I’m sick then I’m...reactionscomments
MemoriesI’ve never been shy in regards to talking about those whom I have met with cystic fibrosis and the impact they’ve had on my life. I have talked about losing...reactionscomments
The Link Between CF and Ear InfectionsOtitis media, more commonly known as middle ear infections, is a prevalent infection that usually occurs in childhood. In fact, otitis media is the most prevailing childhood infection in the...reactionscomments
Looking For Answers To Chronic Pain: Part 1There’s a reason why when our bodies are experiencing pain we try to make it go away--ice, Tylenol, warm baths, hugs, and kisses, etc. Pain is supposed to be a...reactionscomments
Dietary Concerns and the Non-CF SiblingIn our home, we are a home divided. We have fruit and vegetables and waffles and snack cakes. Anything my son wants, he usually gets. If he asks for something...reactions1comment
Growing Into The Patient I Never Thought I Would BeChronic illness requires a lot from a person. In CF, it takes a lot away from a person at a young, fragile age. Many CFers are riddled with traumatic memories...reactionscomments
Exploring Post Traumatic Stress Disorder in Cystic Fibrosis (Part 1)Living with cystic fibrosis can be physically debilitating and mentally destabilizing. We know there is an elevated level of depression and anxiety within the CF population, but little research has...reactions1comment
What's The Deal With Fertility Testing And CF?As people with CF continue to live longer, healthier lives, couples are in the unique position to decide to become parents or not. Growing a family is such an exciting...reactionscomments
CF-Related Diabetes Risk FactorsCystic fibrosis-related diabetes (CFRD) is one of the most common non-respiratory complications of cystic fibrosis (CF). It differs from Type 1 and 2 Diabetes, yet shares similar features of each...reactionscomments
It's The Most Stressful Time Of The Year: Open EnrollmentThe end of the year is always a stressful time in our household--and not because of reasons you might assume. It’s not holiday stress from Thanksgiving or Christmas that makes...reactionscomments
Growing Up With a Sibling With CF: My Sister's PerspectiveI am very lucky to have grown up in a family that loved me for me--and my CF. Being the only one in both my immediate and extended families with...reactionscomments