Parenting While Managing A Chronic IllnessWhether or not you have a child, most people would agree that parenting is hard. Although there is no right or wrong way to raise a child, new trends, latest... By Editorial Team 4 min readBookmark for laterReactions 0 reactions Comments2 comments
The Challenges And Perks To My Weight GainAll my life I struggled to keep my weight in a healthy range. I was always underweight and the smallest in my class. I’d hook up to my feeding pump... By Cheriz K.3 min readBookmark for laterReactions 0 reactions Comments0 comments
I'm Not Just Tired: Chronic Fatigue in CFIn my husband’s very affectionately true words, “When are you not tired?” According to many people living with cystic fibrosis: never. In a study conducted in 2012, participants with cystic... By Janeil Whitworth3 min readBookmark for laterReactions 0 reactions Comments12 comments
Cystic-Fibrosis.com Community Year In ReviewSince Health Union (the parent company of Cystic-Fibrosis.com) launched this online community, our goal has always been to elevate the voices of those affected by cystic fibrosis. Whether an article... By Dana I.3 min readBookmark for laterReactions 0 reactions Comments0 comments
CF While Being A MinorityOne thing I was told many, many times by various pulmonologists is CF is a “caucasian” disease. It’s primarily a disease you find in someone who isn’t me. I never... By Marieliz Landa2 min readBookmark for laterReactions 0 reactions Comments0 comments
Owning My Trikafta Weight GainWhen I began taking Trikafta at the end of last year, I saw the scale do something I have never seen before--continually increase. Within seven days of starting this new... By Janeil Whitworth3 min readBookmark for laterReactions 0 reactions Comments2 comments
Take the Connected Health Survey!The Connected Health Survey is now closed. Thank you for your interest!In the digital age, there are so many devices, websites, and technologies related to health. From fitness trackers to... By Editorial Team 1 min readBookmark for laterReactions 0 reactions Comments0 comments
Choosing To LiveI have always been a very cautious person, but having cystic fibrosis has made me more anxious over the years. As I have grown older, I feel like I have... By Marieliz Landa2 min readBookmark for laterReactions 0 reactions Comments0 comments
CF and Infertility After Pregnancy*Trigger warning: This article topic involves pregnancy, infertility, and mildly graphic descriptions of cystic fibrosis-related medical issues including hemoptysis. My pregnancy with my daughter was one of the hardest things... By Kynsie Riedel5 min readBookmark for laterReactions 0 reactions Comments0 comments
College and Cystic FibrosisOne of the best things about growing up and finishing high school is the excitement of going to college. It was a different path for me because I did not... By Marieliz Landa3 min readBookmark for laterReactions 0 reactions Comments0 comments
Celebrating The Benefits Of Exercise With TrikaftaLet’s talk about exercising with cystic fibrosis. (Soft groan from the peanut gallery). Everyone’s aware of how important it is for both your physical and mental health to exercise regularly... By Janeil Whitworth3 min readBookmark for laterReactions 0 reactions Comments0 comments
Life with CF: An Interview and InsightOur current life events in shutdown and quarantine remind me how twenty-five years ago when my son was diagnosed with cystic fibrosis, my world stopped. My immediate, “protective mom” reaction... By Noreen Tarletsky5 min readBookmark for laterReactions 0 reactions Comments0 comments
My CF Outlook On Life With ModulatorsIn January 1990, my parents sat staring anxiously at the person with a Ph.D. who was breaking the news; your beautiful baby girl has a genetic condition, it's called cystic... By Emma Boniface3 min readBookmark for laterReactions 0 reactions Comments0 comments
Relearning Treatment Compliance After TrikaftaIn my teenage years, I struggled heavily with CF treatment compliance. I had a very laid-back approach to my health that bordered on apathy. I would forget to do treatments... By Kynsie Riedel2 min readBookmark for laterReactions 0 reactions Comments1 comments
Painful TruthThere’s a topic I usually don’t talk about because it was hard to come to terms with it. I found courage and strength to talk about this because I don’t... By Marieliz Landa3 min readBookmark for laterReactions 0 reactions Comments2 comments
Storing CF Medication On The GoAs a busy mother, I spend a lot of time multitasking and rushing out the door to some engagement or errand I have most certainly forgotten. In the midst of... By Janeil Whitworth3 min readBookmark for laterReactions 0 reactions Comments0 comments
6 Month Trikafta Update (Part 2)I’ve seen so many incredible improvements from Trikafta, as you may have read in Part 1. I expected Trikafta to primarily help my lungs, as other modifiers have, but I... By Kynsie Riedel4 min readBookmark for laterReactions 0 reactions Comments0 comments
Becoming Mom: My Path to CF Motherhood (Part 2)My long, winding path to motherhood with cystic fibrosis continues from where we left off last. In case you missed the beginning of this story, here's a summary: a pre-teen... By Janeil Whitworth3 min readBookmark for laterReactions 0 reactions Comments0 comments
5 Helpful Tips for CaregiversReceiving a cystic fibrosis diagnosis can be a life-altering experience, not only for the person with the diagnosis, but also for the spouse, child, parent or friend who becomes the... By Editorial Team 3 min readBookmark for laterReactions 0 reactions Comments0 comments
Five Summertime Tips for Staying HealthySummertime is like a relieving deep breath for a lot of people in the cystic fibrosis community. During this season, the increased risk of seasonal flu and colds dies away... By Janeil Whitworth3 min readBookmark for laterReactions 0 reactions Comments0 comments