Living

A redemptive sense of freedom was gifted to me when I started taking Trikafta. As my lungs cleared away infection, it also made way for the things I couldn’t do...

Bouts of hemoptysis (coughing up blood) that worsen during a monthly menstrual cycle are becoming a frequent problem for CF women. Could hormones be playing a part? I am a...

Communication with your CF care team is more important than we realize. Sure, it’s necessary to report sickness and enlist their help for treatment--but that's just the tip of the...

Every CF parent has a diagnosis story--the process leading up to the diagnosis and the exact moment of learning of their child’s condition. For many people, the diagnosis comes within...

As caregivers, we often get so caught up in the routines we have in place that we don’t realize just how much we are managing every day and how it...

Those with cystic fibrosis know that it branches out into every area of their lives. Unfortunately, dating and relationships are no exception. Many people with cystic fibrosis worry about relationships...

One of the hardest aspects of having CF is outliving the friends you make with CF. I know I fight mentally with the thought of, “When is it my turn?”...

Whether or not you have a child, most people would agree that parenting is hard. Although there is no right or wrong way to raise a child, new trends, latest...

All my life I struggled to keep my weight in a healthy range. I was always underweight and the smallest in my class. I’d hook up to my feeding pump...

In my husband’s very affectionately true words, “When are you not tired?” According to many people living with cystic fibrosis: never. In a study conducted in 2012, participants with cystic...

Since Health Union (the parent company of Cystic-Fibrosis.com) launched this online community, our goal has always been to elevate the voices of those affected by cystic fibrosis. Whether an article...

One thing I was told many, many times by various pulmonologists is CF is a “caucasian” disease. It’s primarily a disease you find in someone who isn’t me. I never...

When I began taking Trikafta at the end of last year, I saw the scale do something I have never seen before--continually increase. Within seven days of starting this new...

The Connected Health Survey is now closed. Thank you for your interest!In the digital age, there are so many devices, websites, and technologies related to health. From fitness trackers to...

I have always been a very cautious person, but having cystic fibrosis has made me more anxious over the years. As I have grown older, I feel like I have...

*Trigger warning: This article topic involves pregnancy, infertility, and mildly graphic descriptions of cystic fibrosis-related medical issues including hemoptysis. My pregnancy with my daughter was one of the hardest things...

One of the best things about growing up and finishing high school is the excitement of going to college. It was a different path for me because I did not...

Let’s talk about exercising with cystic fibrosis. (Soft groan from the peanut gallery). Everyone’s aware of how important it is for both your physical and mental health to exercise regularly...

Our current life events in shutdown and quarantine remind me how twenty-five years ago when my son was diagnosed with cystic fibrosis, my world stopped. My immediate, “protective mom” reaction...

In January 1990, my parents sat staring anxiously at the person with a Ph.D. who was breaking the news; your beautiful baby girl has a genetic condition, it's called cystic...