Articles

In early 2019, a movie began showing in theaters across the country called Five Feet Apart. The previews that aired on television showed two teenagers falling in love. Both of...

When I learned about Trikafta, I was thrilled and moved to tears. It was a bittersweet moment for me. I was happy beyond belief for the CF community. I was...

When you’re dealing with a major health issue or condition, it’s helpful to know that in addition to standard treatment, complementary or alternative medicine, clinical trials may provide another treatment...

Thousands of clinical trials occur each year. Learning about clinical trials can feel like you are learning a new language. The good news is that there are lots of resources...

If you take any inhaled respiratory medications, chances are you take them with a metered-dose inhaler, which is also referred to as an MDI. An MDI is a pressurized canister...

Informed consent is the term that signifies a person has been given information regarding all possible consequences for a treatment, including both potential risks and benefits. While informed consent frequently...

Brrrrrr. It’s freezing outside. Whenever the winter season comes around, I think why in the world do I not live in a warmer climate? I don’t like the cold and it...

As people with cystic fibrosis continue to live longer, healthier lives additional complications arise and require care alongside typical CF routines. One of those complications is cystic fibrosis-related arthritis (CFA). CFA...

Having a plan in case of an emergency or natural disaster is important and a good idea for anyone, but especially those with chronic health conditions, including CF. If you...

The other day, a small card was left on my windshield at a local shopping plaza. It read, “Hey idiot! You absolutely suck at parking! Learn how to drive you...

When people hear me say that I have cystic fibrosis they usually say “oh that’s a lung disease, right?”  Which is true. CF very much affects the lungs, with lung...

While waiting to begin Trikafta, my heart has felt a little heavy, mainly for reasons that I can’t explain. I think part of it is that I don’t want to...

In Part 1 of this series, I shared some practical tips to help my young child begin to process his experience and understanding of cystic fibrosis. We discussed our family’s...

As this community and our sister communities grow, one universal truth is clear: people are more than just their diagnoses. As 2019 comes to a close and a new year...

“I wish I could eat like you.” “You’re so pretty and thin.” “Everything looks good on your skinny frame.” “You are so tiny and cute.” These are all things said...

Cystic fibrosis, in most instances, requires frequent hospital stays for everything from a “tune-up” to a full-blown lung exacerbation and much more. Often, this demands that a parent is courtside...

I started Trikafta on November, 26th 2019: the week of Thanksgiving. I kept a detailed log of how I felt each day for my first week so that I could...

Advances in the understanding and treatment of cystic fibrosis (CF) have led to longer life expectancies than ever before. This is a positive development within the world of CF. But...

With the holidays quickly approaching, I reminded of some of my favorite seasonal traditions: Making pie crust from my great grandmother’s recipe, icing sugar cookies, building gingerbread houses, and sipping...

On August 25th, 2017, I walked down the aisle at the top of a mountain to commit to a lifetime with my cystic fibrosis caregiver husband, Kyle. In our handwritten...