Waiting for TrikaftaIt’s been several weeks since the FDA announced the approval of Trikafta for use in 90% of cystic fibrosis patients. This news...reactionscomments
My Port Gives Me a Piece of FreedomThere are moments throughout my day living with cystic fibrosis that I sit back and watch my freedom slip away. Like water...reactionscomments
Winter WorriesBrrrrrr. It’s freezing outside. Whenever the winter season comes around, I think why in the world do I not live in a...reactions3comments
Cystic Fibrosis-Related Arthritis: Who, What, Why, and How?As people with cystic fibrosis continue to live longer, healthier lives additional complications arise and require care alongside typical CF routines. One of...reactions3comments
The Second COVID Vaccine Wasn’t Easy But It Was Worth ItA quick month flew by before it was time to receive my second COVID vaccination. (Well, I guess as quick as a...reactionscomments
Receiving My First Dose of the COVID-19 Vaccine with CFEvery Thursday, I tried to tune into Ohio’s Governor, Mike Dewine's press conference to the public about COVID-19 updates. Mostly, I was...reactions1comment
Making Connections in the CF CommunityWhen I first had my daughter, one of the things that truly made me feel energized was connecting with other new moms...reactions4comments
Finding Credible Health InformationThere’s a lot of health information available on the internet these days. From personal blogs to online magazines to government websites and...reactions1comment
All About My Partner's CF Carrier TestingCF genetic testing is an important step in both the diagnosis of CF as well as determining if someone carries the CF...reactionscomments
Community Views: What People With Cystic Fibrosis Do Not Talk AboutSo much of the pain of cystic fibrosis is invisible. The diagnosis itself is not one that outsiders can visibly see, so...reactionscomments
My WalkerIt all started a few years ago when I started having joint pains. It was as random as can be and I...reactionscomments
Four Lifestyle Changes That Improved My CFHow many times have you heard the following advice: you should drink more water, eat lots of fruits and vegetables, and make...reactionscomments
Preparing My Advance Directive at 28I'm sitting in an exam room and the nurse asks me, "Do you happen to have an advance directive or power of...reactionscomments
Caregiver Resources: Where Caregivers Can Go for SupportMillions of people are caring for loved ones who are sick or disabled. In fact, some 25 percent of U.S. adults report...reactionscomments
A Fall Preparation Guide: Entering the Season With an Attitude of GratitudeI’ll admit it. Fall has never been my favorite season. The falling leaves carry with them a very heavy weight for me...reactions1comment
Eight Weirdly Unique Experiences of Having CFLiving with CF can be wildly unique, silly, uncomfortable, and frankly, bizarre at times. Being in the CF community feels like a...reactionscomments
10 Things That Are Essential for a Hospital AdmissionHaving just completed a 2-week stint in hospital for a lung tune-up, I wanted to share what I wouldn’t leave home without...reactionscomments
How To Practice Safe Medication DisposalToday more people are aware that old and unused drugs can be dangerous to keep around the house. Leftover drugs may be...reactionscomments
Allowing Our Child to Experience NormalFinding out that your baby has CF is such a scary, unsettling time. Your mind goes to the one thing that you...reactions2comments
Managing CFRD With a Continuous Glucose MonitorBeing diagnosed with diabetes on top of cystic fibrosis can often be a disappointing and hard transition to process. Unfortunately, it happens...reactionscomments
