Dealing With GuiltHaving cystic fibrosis means dealing with hard concepts and lots of emotions. Feeling sick, scared, angry, hurt, sad, grieving those we lost...reactionscomments
Healthcare Obstacles & the LGBTQ+ CommunityEditor’s Note: LGBTQ+ stands for people who identify as lesbian, gay, bisexual, transgender, or queer. To learn more about gender identity, check...reactionscomments
CF Diet ManagementWe asked our advocates, "What practices have you applied to CF diet management?" Here's what we heard! Response from Cheriz K I...reactionscomments
Not So MotherhoodOver the course of my life, I’ve noticed changes to myself that - frankly - I’ve ignored. These are changes due to...reactionscomments
Rare Disease Day®The last day of February is Rare Disease Day all around the world. It is a day to recognize and raise awareness...reactionscomments
Connecting With CF PeersWe asked our advocates, "What methods do you use to connect with your CF peers? How do you feel about these methods?"...reactionscomments
Time Traveling With TrikaftaMuch like the entire cystic fibrosis community, I was eagerly awaiting my arrival of the recently approved CFTR modulator: Trikafta. Following the...reactions1comment
Tips for Overcoming DehydrationFor those of us with cystic fibrosis, our bodies put us through a lot every day because of those two mutated CFTR...reactionscomments
My Port Gives Me a Piece of FreedomThere are moments throughout my day living with cystic fibrosis that I sit back and watch my freedom slip away. Like water...reactionscomments
What Lifestyle Changes Has Cystic Fibrosis Caused?We asked our advocates, "What changes have you had to make to your life/lifestyle because of cystic fibrosis?" Here's what they wanted...reactionscomments
The 6-Foot Rule for Cystic FibrosisIn early 2019, a movie began showing in theaters across the country called Five Feet Apart. The previews that aired on television...reactions6comments
The Other 10 PercentWhen I learned about Trikafta, I was thrilled and moved to tears. It was a bittersweet moment for me. I was happy...reactionscomments
Clinical Trials as a Treatment OptionWhen you’re dealing with a major health issue or condition, it’s helpful to know that in addition to standard treatment, complementary or...reactionscomments
10 Things You Should Know About Clinical TrialsThousands of clinical trials occur each year. Learning about clinical trials can feel like you are learning a new language. The good...reactionscomments
What is a Metered-Dose Inhaler and How Does it Work?If you take any inhaled respiratory medications, chances are you take them with a metered-dose inhaler, which is also referred to as...reactionscomments
The Clinical Trial Consent Form: Understanding Your Rights & ResponsibilitiesInformed consent is the term that signifies a person has been given information regarding all possible consequences for a treatment, including both...reactionscomments
Winter WorriesBrrrrrr. It’s freezing outside. Whenever the winter season comes around, I think why in the world do I not live in a...reactions3comments
Cystic Fibrosis-Related Arthritis: Who, What, Why, and How?As people with cystic fibrosis continue to live longer, healthier lives additional complications arise and require care alongside typical CF routines. One of...reactions1comment
Having an Emergency Preparedness PlanHaving a plan in case of an emergency or natural disaster is important and a good idea for anyone, but especially those...reactionscomments
You Judged Me For My Invisible Illness and You Didn't Even Know ItThe other day, a small card was left on my windshield at a local shopping plaza. It read, “Hey idiot! You absolutely...reactionscomments
