Motherhood Before and After Life Saving TreatmentThere’s a four year age gap between my two boys–and for a very good reason. Once my eldest was born 5 years...reactions1comment
National Caregiver Appreciation Month: Thank-You PostcardsWe are excited to participate in National Caregiver Appreciation Month this year, held each year in the month of November. As cystic...reactionscomments
Talking With Work About Cystic FibrosisI have always enjoyed working. My parents noticed my work ethic when I was younger, and it has remained the same. My...reactionscomments
Setting New Year GoalsWith 2023 right around the corner, you will probably hear of people wanting to set New Year resolutions. A few examples are...reactions2comments
9 Ways CF Makes the Holidays UniqueThe holidays are some of the year’s most magical and memorable moments. Family and friend gatherings, festive decorations, and cozy winter wonderland...reactionscomments
Hospitalization Series: Packing the EssentialsPacking for vacation is fun. But packing for a hospitalization is not fun. And packing for something you aren't look forward to...reactionscomments
2022 Cystic Fibrosis In America Findings: Hope for the Future, Honoring the PresentIn our 3rd Annual Cystic Fibrosis In America Survey, 345 people shared how the future of CF is hopeful and their goals...reactionscomments
When Is the Right Time to Remove My Port?There’s been so many profound changes for individuals with cystic fibrosis (CF) over the past few years. Many of these changes are...reactions4comments
Hospitalization Series: Pre-Admission RoutineGetting ready to be admitted to the hospital for a cystic fibrosis (CF) tune-up often made me anxious. I knew the coming...reactionscomments
The Many Colors of Cystic Fibrosis: Black (Part 2)In my last article, I discussed the impact of the color black on my journey with cystic fibrosis (CF). Let’s continue talking about...reactionscomments
Do I See Myself As a Caregiver? Not Necessarily....The month of November has come and gone. As some may know, it is National Caregiver Appreciation Month as well. Cheriz and...reactionscomments
The Many Colors of Cystic Fibrosis: Black (Part 1)If you haven’t read my columns before, allow me to reintroduce myself. My name is Nicole Kohr. I am a cystic fibrosis...reactionscomments
Important Documents: Writing Down Your WishesLiving with cystic fibrosis (CF) requires having a lot of conversations. Some of these conversations are with the children in your life...reactionscomments
CF Hospitalization: Creating Habits & SchedulesLiving with cystic fibrosis (CF) can mean you are hospitalized a lot depending on your health. And if you aren’t hospitalized a...reactionscomments
Caregiver Month Self-Care GiveawayThe ______ Giveaway is now closed. Thank you for your interest! November is National Caregiver Month, which means it is time to...reactionscomments
Surviving CF With "Hygge"“Hygge” (pronounced hoo-ga) is a popular Danish lifestyle that emphasizes creating a cozy and comforting environment to induce peace and happiness. Hygge...reactionscomments
What Is the Social Health Network Community?Like our other Health Union condition communities, the Social Health Network brings people together to drive unique and impactful conversations about health...reactions2comments
Important Documents and Cystic FibrosisWhen you live with cystic fibrosis (CF) you are familiar with having hard conversations. We must talk to our doctors about what...reactionscomments
Interview with Terrence Ho: End-of-Life Doula (Part I)Terrence Ho is an end-of-life doula, working with families and loved ones of those nearing death to bring support and preparation to...reactionscomments
Interview with Terrence Ho: End-of-Life Doula (Part II)Terrence Ho is an end-of-life doula, working with families and loved ones of those nearing death to bring support and preparation to...reactionscomments
