The Power of TechnologyTechnology. Can't live with it, can’t live without it. When you think of technological advances most people think of the many blessings...reactionscomments
Ask the Health Leaders: Family and Friend SupportSupport from family and friends can be a game-changer when living with cystic fibrosis (CF). It can look different for each person...reactionscomments
Learning Who I Am AgainIn another blog I wrote recently, I talked about my two year anniversary since I began taking Trikafta. All in all, it...reactionscomments
Everything You Have Always Wanted To Know About Keeping A Treatment DiaryOne of the biggest struggles living with cystic fibrosis (CF) is managing the daily slog of treatment. This is the most common...reactionscomments
My Thoughts About Smoking in CF FamiliesSmoking is a risky behavior that can cause long term health problems for both healthy people and people living with CF. Even...reactions7comments
Ready for TakeoffOur family is taking a trip in a couple weeks to visit family. This is an especially meaningful trip for us as...reactionscomments
Becoming Your Own ChampionI’ve found myself saying this a few times in recent weeks and so I figured it warranted writing about. “Don’t compare yourself...reactionscomments
GastroparesisMany people think of cystic fibrosis (CF) as a lung condition. This is because most CF symptoms happen as a result of...reactionscomments
Thank You! To My CF CaregiversAs a person living with cystic fibrosis (CF), I know my life is hard. I know I go through so many things...reactionscomments
First Child-Free VacationMargo was born almost five years ago, and in that time, my husband and I have only spent a handful of nights...reactionscomments
The Many Colors of Cystic Fibrosis: Yellow (Part 2)In my last article, I discussed the impact of the color yellow on my journey with cystic fibrosis. Let’s continue talking about...reactionscomments
The 2024 Social Health Awards ProgramEditorial Note: Nominations for 2024 are now closed. We are very excited to announce the launch of the 2024 Social Health Awards...reactionscomments
Traveling with Cystic FibrosisNot to be a downer, but traveling with CF is a headache. Regardless, I have been incredibly lucky to have gotten to...reactionscomments
Tips for Summer Caregivers for Kiddos with CFSummer is here and that means your kiddos with CF are home for the next few months from school. Just when you...reactionscomments
The Many Colors of Cystic Fibrosis: Yellow (Part 1)When I was a child, I fell in love with the show Joseph and the Technicolor Dreamcoat and its colorful set design...reactions2comments
Ask the Advocates: Staying HydratedLiving with cystic fibrosis (CF), you learn how important hydration is and the best ways to get your body the necessary fluids...reactions1comment
Lessons From the Other Side of the Hospital BedLike many people with chronic illness, I often find myself to be the one laying in the hospital bed. The hospital is...reactionscomments
Having An Emotional Support AnimalBack in 2017, my dad surprised me with a puppy; a 2-month-old, adorable pitbull who I named Harley. At the time, I...reactionscomments
Yes, I Am DisabledYes, I am disabled. I’ve always envisioned myself as a strong, capable, and independent person. I always told myself that I was...reactionscomments
Beating The CF Belly BloatCystic fibrosis (CF) belly equals CF bloat. One of the most uncomfortable feelings and, often complained about amongst the global patient cohort...reactions3comments
