Articles

In my last article, I discussed the impact of the color yellow on my journey with cystic fibrosis. Let’s continue talking about yellow! Yellow awareness ribbons allow me to expand...

Editorial Note: Nominations for 2024 are now closed. We are very excited to announce the launch of the 2024 Social Health Awards program! The Social Health Awards is an awards...

Not to be a downer, but traveling with CF is a headache. Regardless, I have been incredibly lucky to have gotten to visit so many countries across North America. Salt...

Summer is here and that means your kiddos with CF are home for the next few months from school. Just when you finally feel comfortable releasing control the school year...

When I was a child, I fell in love with the show Joseph and the Technicolor Dreamcoat and its colorful set design. Since that first viewing, I’ve realized that my...

Living with cystic fibrosis (CF), you learn how important hydration is and the best ways to get your body the necessary fluids. We asked our patient leaders to share their...

Like many people with chronic illness, I often find myself to be the one laying in the hospital bed. The hospital is a familiar place for me living with CF...

Back in 2017, my dad surprised me with a puppy; a 2-month-old, adorable pitbull who I named Harley. At the time, I was struggling a great deal with depression, even...

Yes, I am disabled. I’ve always envisioned myself as a strong, capable, and independent person. I always told myself that I was never going to let my cystic fibrosis (CF)...

Cystic fibrosis (CF) belly equals CF bloat. One of the most uncomfortable feelings and, often complained about amongst the global patient cohort. I spent some time looking into what causes...

When the COVID pandemic began in earnest, our younger son, who has cystic fibrosis, was not quite 18 months old. He was still quite the novice in the walking, talking...

Even after living with CF for 31 years, it seems like everyday I learn something new about this disease. CF is such a weird, unique, and frankly, surprising disease when...

During cystic fibrosis (CF) awareness month this May, we strived to elevate and shine a light on CF community experiences. There are many parts of living with CF that are...

May is Cystic Fibrosis Awareness Month, a special month for the CF community and Emily's Entourage. It is a month for spreading awareness, raising money for research, connecting through advocacy...

Three hours pass and you’re sitting in an exam room watching the clock hands slowly tick away. You’re tired, hungry, and sick of talking about mucus and poop. Someone knocks...

Cystic fibrosis (CF) can go hand-in-hand with uncomfortable symptoms that are difficult to resolve or mask in public. For example, symptoms like bloating or bowel issues. When all you want...

In my previous article, I explained the importance of the color purple, including the annual Great Strides walk. Let's continue to unpack the impact that purple has on my journey...

May is cystic fibrosis awareness month, which is represented by the color purple. Purple is rarely seen in a hospital setting, so I always make sure to include it in...

The PASTEUR Act is a bill in Congress. It aims to address the growing problem of antibiotic resistance. The act will encourage research on new antibiotics and how to use...

One of the resources I wished was available when I was a kid was a multitude of children's books explaining CF. Back in the early 90s, there really weren't any...