CF Friendship: Interview With Kadeem and SarahAs Cystic Fibrosis (CF) Awareness Month comes to a close at the end of May, we wanted to end our month here at Cystic-Fibrosis.com by shining another light on CF...Reactions0reactionsComments0 comments
Interview with Terrence Ho: End-of-Life Doula (Part II)Terrence Ho is an end-of-life doula, working with families and loved ones of those nearing death to bring support and preparation to the end-of-life process. In Part II of Cystic-Fibrosis.com's...Reactions0reactionsComments0 comments
Interview with Terrence Ho: End-of-Life Doula (Part I)Terrence Ho is an end-of-life doula, working with families and loved ones of those nearing death to bring support and preparation to the end-of-life process. In Part I of Cystic-Fibrosis.com's...Reactions0reactionsComments0 comments
Interview with Emily Lyons, CF Advocate and EntrepreneurEmily is the founder and CEO of North America's top event staffing, the multi-award-winning Femme Fatale Media Group. Emily has gone on to launch and scale several other successful companies...Reactions0reactionsComments0 comments
Cystic Fibrosis and COVID-19Since late 2019, COVID-19 has become a household name. It has changed many aspects of daily life. Especially for those living with chronic conditions. "Quarantine," "social distancing," and "herd immunity"...Reactions0reactionsComments0 comments
Interview with Emily Kramer-Golinkoff of Emily's EntourageWe sat down with Emily Kramer-Golinkoff, Co-Founder of Emily's Entourage and internationally recognized patient advocate and speaker. We chatted about her organization, her accomplishments, role models in the CF community...Reactions0reactionsComments0 comments
The Final 10%: Take The 2022 Survey From Emily's EntourageEmily’s Entourage is conducting a survey about the “final 10%” of the CF community that does not benefit from currently available CFTR modulators. If you are part of the final...Reactions0reactionsComments0 comments
Telling Your Story May Be Good for Your Health“While writing about my health issues has not cured them, it has helped me develop better coping skills and even contributed to better management of my symptoms (and I could...Reactions0reactionsComments0 comments
Interview With Nicole Kohr, Author and CF AdvocateNicole Kohr is so many things; she is a daughter, an author, a comedian, a partner, a dog parent, a patient representative, and more. Oh, and she has cystic fibrosis...Reactions0reactionsComments1 comments
CF Awareness Month: Closer to a CureMay is cystic fibrosis (CF) awareness month! Throughout May, we will be sharing simple ways to get involved with advocacy and awareness efforts for CF such as volunteering with a...Reactions0reactionsComments0 comments
Community Thoughts on TrikaftaThere is no question about it: Trikafta has been a game-changer for the cystic fibrosis community. Since its approval by the U.S. Food and Drug Administration (FDA) in October 2019...Reactions0reactionsComments1 comments
Interview With Julia RaeMost people in the cystic fibrosis community have heard of Julia Rae. Julia Rae is a singer, songwriter, actor, model, and a CFer who is a patient advocate for the...Reactions0reactionsComments0 comments
Cystic Fibrosis Community on InstagramDid you know that you can find the Cystic-Fibrosis.com community on Instagram? In addition to participating in our interactive online community, we are excited to share the same great information...Reactions0reactionsComments0 comments
Rare Disease Day®The last day of February is Rare Disease Day all around the world. It is a day to recognize and raise awareness about rare diseases and how they impact patients...Reactions0reactionsComments0 comments
