Stories

I had breathing issues from the time I was 9. I had my ups and downs. In my late teens, I was told I had Bronchiectasis. In my late 30s...

Until I read about salty skin, I never put it all together! Brain fog, constant sinus infections, my throat is always making me cough, normally at night and mornings, my...

After having four children we decided that four was plenty enough for us. So during our fourth child's birth we decided to have surgery to prevent further pregnancies, soon after...

A family of 3 girls, the youngest had CF, the middle child and I, the oldest, are carriers. She was not diagnosed until she was 3 years old in 1973...

Hello readers! My name is Kija and I have had CF since birth. I am 18 years old and I am currently 10 weeks pregnant! I’ve also started Trikafta around...

Hi everyone, I'm Morgan. A few months ago I started Trikafta, and literally changed everything. For about a year and a half, I had suffered severe, frequent coughing episodes which...

Stephanie was a fighter. She loved to travel. She went to college in the U.K. She was an amazing young lady. I miss her every day with all my HEART!!💜...

My name is Megan and I was diagnosed with cystic fibrosis when I was 1 year and 1 month old. I was diagnosed with CF-related diabetes when I was 10...

My daughter Caroline is two years old. She is brimming with joy and curiosity. She seeks out adventure everywhere she goes. She is strong-willed and confident in a sea of...

I met my boyfriend in college almost 2 years ago. I always wondered why he cleared his throat so often and why he would make me wait in the living...

I am 44 going on 45 this year, I have cystic fibrosis and multiple sclerosis and had thyroid cancer. I live in Fairmont, WV. Also, my docs found out there...

I started getting IV's frequently in 1990. I was blowing them left and right due to meds. I started getting picc lines. I did many home IV's back then. Then...

I have CF and also grew up with a friend that has CF. We lived in a small town of about 2,400 people. It's a kind of town where everyone...

I am the proud mama to Karlee, 15, and Maximus, 14, who both have Cystic Fibrosis. CF has never defined who they are, rather given them the strength to persevere...

I am 47 and was recently diagnosed with Fibromyalgia. I have been experiencing pain in my back, arms, hands, and hips. I was told to find a Rheumatologist. They then...

I am a Grandma with an incredible 16-month-old CF warrior! My heroes are his parents, who have absolutely turned their lives upside down, to not only protect their amazing little...

Hello, my name is David. I have cystic fibrosis and other massive major medical conditions. Today I am writing you this story to tell you about public schools in the...

I find having cf is hard sometimes with relationships. As I've been seeing my partner now 8 months she has a 9-month-old son who I've taken on as mine. I...

I spent the last 14 months trying to figure out how to deal with seeing myself in a different way. Living with a terminal illness, like cystic fibrosis, was always...

Hi my name is Kristian and I was born in Hahn Germany because my dad is in the Air Force. When I was born my dad and I were transferred...