Stories

My daughter Caroline is two years old. She is brimming with joy and curiosity. She seeks out adventure everywhere she goes. She is strong-willed and confident in a sea of...

I met my boyfriend in college almost 2 years ago. I always wondered why he cleared his throat so often and why he would make me wait in the living...

I am 44 going on 45 this year, I have cystic fibrosis and multiple sclerosis and had thyroid cancer. I live in Fairmont, WV. Also, my docs found out there...

I started getting IV's frequently in 1990. I was blowing them left and right due to meds. I started getting picc lines. I did many home IV's back then. Then...

I have CF and also grew up with a friend that has CF. We lived in a small town of about 2,400 people. It's a kind of town where everyone...

I am the proud mama to Karlee, 15, and Maximus, 14, who both have Cystic Fibrosis. CF has never defined who they are, rather given them the strength to persevere...

I am 47 and was recently diagnosed with Fibromyalgia. I have been experiencing pain in my back, arms, hands, and hips. I was told to find a Rheumatologist. They then...

I am a Grandma with an incredible 16-month-old CF warrior! My heroes are his parents, who have absolutely turned their lives upside down, to not only protect their amazing little...

Hello, my name is David. I have cystic fibrosis and other massive major medical conditions. Today I am writing you this story to tell you about public schools in the...

I find having cf is hard sometimes with relationships. As I've been seeing my partner now 8 months she has a 9-month-old son who I've taken on as mine. I...

I spent the last 14 months trying to figure out how to deal with seeing myself in a different way. Living with a terminal illness, like cystic fibrosis, was always...

Hi my name is Kristian and I was born in Hahn Germany because my dad is in the Air Force. When I was born my dad and I were transferred...

I was diagnosed with CF at 3 months old, so I have known all of my life that I have had it. Also, due to some things that happened in...

Almost 10 years ago our family was introduced to cystic fibrosis when our 14 year-old son, Jon was diagnosed with the disease after having several massive pancreatitis attacks. From there...

My name is Jesse and I'm 29 years old. I am a double Delta508, and I was diagnosed with cystic fibrosis at age 2 after my sister passed away at...

I don't have CF but I'm married to a man with it. He was born with it, he has Delta F508. Thankfully, he's healthier than most but he also doesn't...

I was not diagnosed until I was 7 years old. So far I have been blessed with a mild case of the disease, only having to be hospitalized once or...

Cystic fibrosis is different for every patient and should be treated based on the patient, not some textbook description of what the disease might be. Lung function can also be...

At Cystic-Fibrosis.com, we believe that we are stronger together than we are alone. Living with cystic fibrosis can be a challenge, but the more we share and support one another...