New diagnosis / Any information / KaftrioHi, my partner and I have just had our first child, (a little boy) and unfortunately he's been diagnosed with CF. He had meconium ileus at birth, very low enzyme...Reactions 0 reactions Comments1 repliesCopingDiagnosisTrikafta
Gut problems I’m 52, was diagnosed at birth with CF. Last 1.5 years many issues with a regular blockage in left quadrant in intestines. Regularly do magnesium citrate to clean out (...Reactions 0 reactions Comments1 repliesCoping
coping with CF As my CF advances, I notice my limitations. My breathing has become much harder. I now have to use oxygen more often. I am notcing more pain in between my...Reactions 0 reactions Comments1 repliesDiagnosisCoping
The Challenges of Managing CFManaging cystic fibrosis can often require hours of treatment each day, hospital visits, etc. It's extremely challenging to manage CF, even when you're feeling well. Share any tips you have...Reactions 0 reactions Comments3 repliesDaily TreatmentCoping