CF osteoprosisHello, so does anyone else find it so hard to keep your back straight. It's so hard for me because it's so tiring and take so much energy to keep...Reactions 0 reactions Comments5 repliesCopingDiet & NutritionTips & Advice
HouseworkHello, I'm not sure if any of you can relate but cf makes it hard to do house work. I mean, it's emberressing but the fact is right now, I'm...Reactions 0 reactions Comments0 repliesCopingFriends & FamilyTips & Advice
CF Care is Awful while struggling with LungsI am close to a CFF-approved care center but the care is awful... I was a case number and not much more to them. I tried Trikafta but my liver...Reactions 0 reactions Comments1 repliesCopingInsurance & Disability
Has anyone ever experienced being left out of a will because you had CF?Has anyone ever been left out of inheriting anything because you have CF and your relative believe "your just going to pass away any way" or "they aren't long for...Reactions 0 reactions Comments0 repliesCopingCostDepression
CF GutHi All, I am 61 years old, diagnosed with CF at age 5 and am 20 years post bilateral lung transplant. I have struggled with my gut my whole life...Reactions 0 reactions Comments2 repliesCoping
Texting buddies CF palsAnyone interested in staying connected and becoming friends over time sharing stories and just been a great support for one another and if and when give advice if ever needed...Reactions 0 reactions Comments2 repliesAwarenessCopingDepression
Winter with CFWhen the temperatures fall, it's not uncommon for anxiety to rise in people with CF. What changes do you make to you or your family's routines in the colder months?...Reactions 0 reactions Comments4 repliesDaily TreatmentCopingWeather
Benefits PIP Whilst having CF is there only two benefits you can claim i.e p.i.p and ESA or is there other things and grants out there anyone knows about that could help...Reactions 0 reactions Comments1 repliesCopingCost
Far Apart, but Close in HeartPeople living with cystic fibrosis are required to stay at least 6-feet apart from each other. Do you make an effort to stay connected with CFers other ways? If so...Reactions 0 reactions Comments3 repliesCopingTips & Advice
New diagnosis / Any information / KaftrioHi, my partner and I have just had our first child, (a little boy) and unfortunately he's been diagnosed with CF. He had meconium ileus at birth, very low enzyme...Reactions 0 reactions Comments1 repliesTrikaftaCopingDiagnosis
