Living

Back in 2017, my dad surprised me with a puppy; a 2-month-old, adorable pitbull who I named Harley. At the time, I was struggling a great deal with depression, even...

Yes, I am disabled. I’ve always envisioned myself as a strong, capable, and independent person. I always told myself that I was never going to let my cystic fibrosis (CF)...

Cystic fibrosis (CF) belly equals CF bloat. One of the most uncomfortable feelings and, often complained about amongst the global patient cohort. I spent some time looking into what causes...

When the COVID pandemic began in earnest, our younger son, who has cystic fibrosis, was not quite 18 months old. He was still quite the novice in the walking, talking...

Even after living with CF for 31 years, it seems like everyday I learn something new about this disease. CF is such a weird, unique, and frankly, surprising disease when...

During cystic fibrosis (CF) awareness month this May, we strived to elevate and shine a light on CF community experiences. There are many parts of living with CF that are...

May is Cystic Fibrosis Awareness Month, a special month for the CF community and Emily's Entourage. It is a month for spreading awareness, raising money for research, connecting through advocacy...

Three hours pass and you’re sitting in an exam room watching the clock hands slowly tick away. You’re tired, hungry, and sick of talking about mucus and poop. Someone knocks...

Cystic fibrosis (CF) can go hand-in-hand with uncomfortable symptoms that are difficult to resolve or mask in public. For example, symptoms like bloating or bowel issues. When all you want...

In my previous article, I explained the importance of the color purple, including the annual Great Strides walk. Let's continue to unpack the impact that purple has on my journey...

May is cystic fibrosis awareness month, which is represented by the color purple. Purple is rarely seen in a hospital setting, so I always make sure to include it in...

The PASTEUR Act is a bill in Congress. It aims to address the growing problem of antibiotic resistance. The act will encourage research on new antibiotics and how to use...

One of the resources I wished was available when I was a kid was a multitude of children's books explaining CF. Back in the early 90s, there really weren't any...

In May we celebrate many things. Mothers. Cinco de Mayo. Memorial Day. The arrival of new growth and warmer days. We also celebrate both CF awareness and mental health awareness...

Cystic fibrosis (CF) is an inherited condition that affects the lungs and digestive system. But CF can affect the bones and joints as well. People with CF are at an...

Mental health emergencies can look different for different people. They all can put you at risk of losing your life, getting into legal trouble, losing family, or having a serious...

This giveaway is now closed. Thank you for your interest! Living with cystic fibrosis (CF) or caring for a loved one with CF can cause a lot of unwanted stress...

Family vacations are meant to be filled with fun, excitement, close bonding, and laughter. Being someone who does not have CF, I had a very different view on how planning...

Dust, fumes, mold, and bacteria, oh my! Our homes are filled with many irritants that can harm our respiratory systems. However, those same irritants do need to be cleaned and...

In Part 1 of the article, we discussed the prevalence of CF-related diabetes (CFRD) and the role of blood glucose monitoring. In this part, I will outline the two main...