Ask the Advocates: Judging An Invisible IllnessDuring cystic fibrosis (CF) awareness month this May, we strived to elevate and shine a light on CF community experiences. There are many parts of living with CF that are... By Editorial Team 4 min readBookmark for laterReactions 0 reactions Comments0 comments
“Cross Out CF” with Emily's EntourageMay is Cystic Fibrosis Awareness Month, a special month for the CF community and Emily's Entourage. It is a month for spreading awareness, raising money for research, connecting through advocacy... By Editorial Team 1 min readBookmark for laterReactions 0 reactions Comments0 comments
What I Don't Miss About CF ClinicThree hours pass and you’re sitting in an exam room watching the clock hands slowly tick away. You’re tired, hungry, and sick of talking about mucus and poop. Someone knocks... By Janeil Whitworth2 min readBookmark for laterReactions 0 reactions Comments1 comments
Ask the Advocates: Privacy In PublicCystic fibrosis (CF) can go hand-in-hand with uncomfortable symptoms that are difficult to resolve or mask in public. For example, symptoms like bloating or bowel issues. When all you want... By Editorial Team 3 min readBookmark for laterReactions 0 reactions Comments0 comments
The Many Colors of Cystic Fibrosis: Purple (Part 2)In my previous article, I explained the importance of the color purple, including the annual Great Strides walk. Let's continue to unpack the impact that purple has on my journey... By Nicole Kohr2 min readBookmark for laterReactions 0 reactions Comments0 comments
The Many Colors of Cystic Fibrosis: Purple (Part 1)May is cystic fibrosis awareness month, which is represented by the color purple. Purple is rarely seen in a hospital setting, so I always make sure to include it in... By Nicole Kohr2 min readBookmark for laterReactions 0 reactions Comments1 comments
The PASTEUR Act and Antibiotic ResistanceThe PASTEUR Act is a bill in Congress. It aims to address the growing problem of antibiotic resistance. The act will encourage research on new antibiotics and how to use... By Editorial Team 3 min readBookmark for laterReactions 0 reactions Comments0 comments
Five Wonderful Children's Books About CFOne of the resources I wished was available when I was a kid was a multitude of children's books explaining CF. Back in the early 90s, there really weren't any... By Janeil Whitworth2 min readBookmark for laterReactions 0 reactions Comments0 comments
May MadnessIn May we celebrate many things. Mothers. Cinco de Mayo. Memorial Day. The arrival of new growth and warmer days. We also celebrate both CF awareness and mental health awareness... By Jennifer Oramas2 min readBookmark for laterReactions 0 reactions Comments0 comments
How Kyphosis Affects People With Cystic FibrosisCystic fibrosis (CF) is an inherited condition that affects the lungs and digestive system. But CF can affect the bones and joints as well. People with CF are at an... By Editorial Team 3 min readBookmark for laterReactions 0 reactions Comments0 comments
Mental Health EmergenciesMental health emergencies can look different for different people. They all can put you at risk of losing your life, getting into legal trouble, losing family, or having a serious... By Editorial Team 3 min readBookmark for laterReactions 0 reactions Comments0 comments
CF Coloring Book GiveawayThis giveaway is now closed. Thank you for your interest! Living with cystic fibrosis (CF) or caring for a loved one with CF can cause a lot of unwanted stress... By Editorial Team 1 min readBookmark for laterReactions 0 reactions Comments0 comments
Here We Go: Planning a Family Vacation with CFFamily vacations are meant to be filled with fun, excitement, close bonding, and laughter. Being someone who does not have CF, I had a very different view on how planning... By Andrew Loebach3 min readBookmark for laterReactions 0 reactions Comments0 comments
Household Chores to Skip With CFDust, fumes, mold, and bacteria, oh my! Our homes are filled with many irritants that can be harmful to our respiratory systems. However, those same irritants do need to be... By Janeil Whitworth2 min readBookmark for laterReactions 0 reactions Comments0 comments
Blood Glucose Monitoring Devices for CF-Related Diabetes: Part 2In Part 1 of the article, we discussed the prevalence of CF-related diabetes (CFRD) and the role of blood glucose monitoring. In this part, I will outline the two main... By Canadian Pharmacist2 min readBookmark for laterReactions 0 reactions Comments0 comments
My Two CF Birth Stories: Part TwoIn Part One of this series, I reminisced about the birth of our first son as a new mom with cystic fibrosis. Now, that little boy is four years old... By Janeil Whitworth2 min readBookmark for laterReactions 0 reactions Comments0 comments
Parenting With Cystic FibrosisThe balance of being a provider and needing providing wasn’t something I thought about until I became a mother. Diagnosed with CF at age 12, most of my teenage years... By Jennifer Oramas3 min readBookmark for laterReactions 0 reactions Comments1 comments
Blood Glucose Monitoring Devices for CF-Related Diabetes: Part 1Cystic fibrosis (CF)-related diabetes is a common complication of CF. The treatment of CF-related diabetes (CFRD) is important as diabetes is associated with worsening lung function, increased risk of infections... By Canadian Pharmacist3 min readBookmark for laterReactions 0 reactions Comments0 comments
Staying Organized with CFHello everyone! For my first article I’m beginning with something I have struggled with a lot when it comes to advocating for my own health and being my own caregiver:... By Mikayla Bianchin3 min readBookmark for laterReactions 0 reactions Comments3 comments
PleurisyCystic fibrosis (CF) is a chronic disease that primarily impacts the lungs. Lung infections are more severe with lung disease. They cause symptoms to worsen. The risk of hospitalization for... By Editorial Team 3 min readBookmark for laterReactions 0 reactions Comments0 comments