Becoming Your Own ChampionI’ve found myself saying this a few times in recent weeks and so I figured it warranted writing about. “Don’t compare yourself...reactionscomments
Thank You! To My CF CaregiversAs a person living with cystic fibrosis (CF), I know my life is hard. I know I go through so many things...reactionscomments
First Child-Free VacationMargo was born almost five years ago, and in that time, my husband and I have only spent a handful of nights...reactionscomments
The Many Colors of Cystic Fibrosis: Yellow (Part 2)In my last article, I discussed the impact of the color yellow on my journey with cystic fibrosis. Let’s continue talking about...reactionscomments
The 2024 Social Health Awards ProgramEditorial Note: Nominations for 2024 are now closed. We are very excited to announce the launch of the 2024 Social Health Awards...reactionscomments
Traveling with Cystic FibrosisNot to be a downer, but traveling with CF is a headache. Regardless, I have been incredibly lucky to have gotten to...reactionscomments
Tips for Summer Caregivers for Kiddos with CFSummer is here and that means your kiddos with CF are home for the next few months from school. Just when you...reactionscomments
The Many Colors of Cystic Fibrosis: Yellow (Part 1)When I was a child, I fell in love with the show Joseph and the Technicolor Dreamcoat and its colorful set design...reactions2comments
Ask the Advocates: Staying HydratedLiving with cystic fibrosis (CF), you learn how important hydration is and the best ways to get your body the necessary fluids...reactions1comment
Lessons From the Other Side of the Hospital BedLike many people with chronic illness, I often find myself to be the one laying in the hospital bed. The hospital is...reactionscomments
Having An Emotional Support AnimalBack in 2017, my dad surprised me with a puppy; a 2-month-old, adorable pitbull who I named Harley. At the time, I...reactionscomments
Yes, I Am DisabledYes, I am disabled. I’ve always envisioned myself as a strong, capable, and independent person. I always told myself that I was...reactionscomments
Beating The CF Belly BloatCystic fibrosis (CF) belly equals CF bloat. One of the most uncomfortable feelings and, often complained about amongst the global patient cohort...reactions3comments
COVID Pandemic Silver Linings for a CF CaregiverWhen the COVID pandemic began in earnest, our younger son, who has cystic fibrosis, was not quite 18 months old. He was...reactionscomments
Ten Surprising Facts About CFEven after living with CF for 31 years, it seems like everyday I learn something new about this disease. CF is such...reactions10comments
Ask the Advocates: Judging An Invisible IllnessDuring cystic fibrosis (CF) awareness month this May, we strived to elevate and shine a light on CF community experiences. There are...reactions1comment
“Cross Out CF” with Emily's EntourageMay is Cystic Fibrosis Awareness Month, a special month for the CF community and Emily's Entourage. It is a month for spreading...reactionscomments
What I Don't Miss About CF ClinicThree hours pass and you’re sitting in an exam room watching the clock hands slowly tick away. You’re tired, hungry, and sick...reactions1comment
Ask the Advocates: Privacy In PublicCystic fibrosis (CF) can go hand-in-hand with uncomfortable symptoms that are difficult to resolve or mask in public. For example, symptoms like...reactionscomments
The Many Colors of Cystic Fibrosis: Purple (Part 2)In my previous article, I explained the importance of the color purple, including the annual Great Strides walk. Let's continue to unpack...reactionscomments
