Organizing CF MedicationsI have moved less than a handful of times in my life. Most of my moves have been since I got married...reactionscomments
Ask the Health Leaders: Working With CF SpecialistsCystic fibrosis (CF) healthcare teams tackle a variety of health issues, and therefore can be made up of many different types of...reactionscomments
Motherhood Before and After Life Saving TreatmentThere’s a four year age gap between my two boys–and for a very good reason. Once my eldest was born 5 years...reactions1comment
A Day in the Life of a CF WarriorThis is just brief since I can have an attack at any time. So, I wake up at around 8:30am to take...reactionscomments
Talking With Work About Cystic FibrosisI have always enjoyed working. My parents noticed my work ethic when I was younger, and it has remained the same. My...reactionscomments
Setting New Year GoalsWith 2023 right around the corner, you will probably hear of people wanting to set New Year resolutions. A few examples are...reactions2comments
9 Ways CF Makes the Holidays UniqueThe holidays are some of the year’s most magical and memorable moments. Family and friend gatherings, festive decorations, and cozy winter wonderland...reactionscomments
Hospitalization Series: Packing the EssentialsPacking for vacation is fun. But packing for a hospitalization is not fun. And packing for something you aren't look forward to...reactionscomments
When Is the Right Time to Remove My Port?There’s been so many profound changes for individuals with cystic fibrosis (CF) over the past few years. Many of these changes are...reactions4comments
Hospitalization Series: Pre-Admission RoutineGetting ready to be admitted to the hospital for a cystic fibrosis (CF) tune-up often made me anxious. I knew the coming...reactionscomments
The Many Colors of Cystic Fibrosis: Black (Part 2)In my last article, I discussed the impact of the color black on my journey with cystic fibrosis (CF). Let’s continue talking about...reactionscomments
Do I See Myself As a Caregiver? Not Necessarily....The month of November has come and gone. As some may know, it is National Caregiver Appreciation Month as well. Cheriz and...reactionscomments
The Many Colors of Cystic Fibrosis: Black (Part 1)If you haven’t read my columns before, allow me to reintroduce myself. My name is Nicole Kohr. I am a cystic fibrosis...reactionscomments
Important Documents: Writing Down Your WishesLiving with cystic fibrosis (CF) requires having a lot of conversations. Some of these conversations are with the children in your life...reactionscomments
CF Hospitalization: Creating Habits & SchedulesLiving with cystic fibrosis (CF) can mean you are hospitalized a lot depending on your health. And if you aren’t hospitalized a...reactionscomments
Surviving CF With "Hygge"“Hygge” (pronounced hoo-ga) is a popular Danish lifestyle that emphasizes creating a cozy and comforting environment to induce peace and happiness. Hygge...reactionscomments
What Is the Social Health Network Community?Like our other Health Union condition communities, the Social Health Network brings people together to drive unique and impactful conversations about health...reactions2comments
Important Documents and Cystic FibrosisWhen you live with cystic fibrosis (CF) you are familiar with having hard conversations. We must talk to our doctors about what...reactionscomments
Ask the Health Leaders: Telehealth or In-Person?Technology has come a long way, and we now have the option to receive care from medical professionals in the comfort of...reactionscomments
Effects of COVID-19 on Anxiety Levels of Children with CF and Their PeersWhen the COVID-19 pandemic broke out in March 2020, nearly everyone had increased anxiety and stress. Fears of getting sick, dying, or...reactionscomments
