Living

Every person with CF has a unique health journey and faces different challenges or complications along the way. No story is the same– but the basic testing done to keep...

Cystic fibrosis (CF) isn’t always an invisible disease. Some of us have our tell-tale signs. Oxygen tanks. Insulin pumps. Chest scars. For me, I wear one of my signs as a...

Eating is my life . . .literally. Calories and the energy it provides serves as an important life line to my health and ability to fight infection. Everyone with CF...

I love celebrations. It doesn’t matter whether it’s a birthday, a wedding, graduation, or simply a surprise get-together to show someone love. No matter what, I love celebrations. Growing up...

My cystic fibrosis (CF) care center is an important piece of my life. I’m thankful for the relationships I have developed with each member of my care team. I grew...

No doubt, parenting has its ups and downs. It seems to ebb and flow from the greatest joy, to the most draining physical and mental responsibilities a person can have...

Most people love vacations. It’s an awesome break from the pressures of everyday life and a beautiful experience when getting to see new places. All vacations come with some stress...

As Margo has grown and become more aware that her cystic fibrosis (CF) is something that makes her different, she has started asking more difficult questions. Some of these questions...

Back to school season is just around the corner, and unfortunately, that means cold and flu season is also close behind. As much as I enjoy watching my son grow...

Having an illness that appears indistinguishable to the public, yet is crystal clear to myself, is challenging. Even with an invisible illness, I found that parts of my body that...

When asked in interviews for tv stations, newspapers and conversations about my CF, I tried to think of my absolute worst day. I wanted to make CF sound as horrible...

If you haven't already heard of it, Atomic Habits by James Clear is a book that talks about what habits are and how they develop over time. Personally, I found...

When your day to day life is an endless cycle with a plate that’s just too full to carry, eventually your arms have no choice but to collapse. It’s a...

When discussing cystic fibrosis (CF), people are overwhelmed to discover how many areas it affects in the body. Lungs, digestive system, pancreas, bones, reproductive system and so on. What always...

In this series, I am detailing my experience with IVF and genetic testing. You can visit the first installment here! This was the most critical piece of IVF for us...

As the past two years came to a head and COVID-19 entered our house, I felt a break in my cool, calm, and collected response to sickness. What I feared...

Since I became a Community Advocate, I have wanted to write about my experience with IVF. However, I’ve put it off because of a few reasons. 1) This entire process...

They say motherhood is the hardest thing you’ll ever do. What they don’t divulge about motherhood is how physically and mentally demanding and just plain confusing it can be alongside...

Trikafta is "pure magic" in a blister pack. "The golden ticket, the sunshine pill, the miracle". The commentary I heard from consumers of this drug was astronomical in comparison to...

We asked our health leaders: Do you feel that sharing your (or your loved ones) journey with CF has been healing? If so, do you have any tips for others...