Everything You Have Always Wanted To Know About Keeping A Treatment DiaryOne of the biggest struggles living with cystic fibrosis (CF) is managing the daily slog of treatment. This is the most common...reactionscomments
My Thoughts About Smoking in CF FamiliesSmoking is a risky behavior that can cause long term health problems for both healthy people and people living with CF. Even...reactions7comments
Ready for TakeoffOur family is taking a trip in a couple weeks to visit family. This is an especially meaningful trip for us as...reactionscomments
Becoming Your Own ChampionI’ve found myself saying this a few times in recent weeks and so I figured it warranted writing about. “Don’t compare yourself...reactionscomments
GastroparesisMany people think of cystic fibrosis (CF) as a lung condition. This is because most CF symptoms happen as a result of...reactionscomments
The Many Colors of Cystic Fibrosis: Yellow (Part 2)In my last article, I discussed the impact of the color yellow on my journey with cystic fibrosis. Let’s continue talking about...reactionscomments
Helping My Child Cope with Medical AnxietyMy daughter Caroline was two years old when we noticed she was developing medical anxiety. Most children do not enjoy going to...reactionscomments
Traveling with Cystic FibrosisNot to be a downer, but traveling with CF is a headache. Regardless, I have been incredibly lucky to have gotten to...reactionscomments
Community Views: The Unspoken Emotional Impact of Cystic FibrosisLiving with cystic fibrosis (CF) is challenging in so many ways. When we talk about CF, we tend to talk about the...reactionscomments
Lessons From the Other Side of the Hospital BedLike many people with chronic illness, I often find myself to be the one laying in the hospital bed. The hospital is...reactionscomments
Having An Emotional Support AnimalBack in 2017, my dad surprised me with a puppy; a 2-month-old, adorable pitbull who I named Harley. At the time, I...reactionscomments
The Importance of Supplementing With Probiotics In CFWe are taught how to manage pancreatic insufficiency with enzymes. Then given laxatives, food diaries, and stool charts to help manage other...reactions3comments
When CF Treatments Become a HassleWhen our son was young, getting him to do his treatments was as simple as putting on YouTube for the 20 minutes...reactionscomments
Surviving a Clinic Appointment With a ChildSome of the most stressful times in my life have been when my toddler - in desperate need of a nap -...reactionscomments
Yes, I Am DisabledYes, I am disabled. I’ve always envisioned myself as a strong, capable, and independent person. I always told myself that I was...reactionscomments
Beating The CF Belly BloatCystic fibrosis (CF) belly equals CF bloat. One of the most uncomfortable feelings and, often complained about amongst the global patient cohort...reactions3comments
COVID Pandemic Silver Linings for a CF CaregiverWhen the COVID pandemic began in earnest, our younger son, who has cystic fibrosis, was not quite 18 months old. He was...reactionscomments
What is a Metered-Dose Inhaler and How Does it Work?If you take any inhaled respiratory medications, chances are you take them with a metered-dose inhaler, which is also referred to as...reactionscomments
Why Are Fat-Soluble Vitamins Important in CF?Vitamins A, D,E, and K, or fat-soluble vitamins, play an important role in making sure people with CF are growing and healthy...reactionscomments
It's Ok to ForgetOur Monday was just like any other day. My husband and I woke up and ate breakfast. I had some work to...reactionscomments
