CF and Sex 101: Reproduction and Sexual FunctionSex is a normal, fun, and important part of our lives as humans. Whether you have CF or not, you have the right to connect with others and enjoy intimacy...reactionscomments
Opioids for Cystic Fibrosis Pain: Benefits, Risks, and ConcernsResearch shows that more than 75 percent of adults with cystic fibrosis (CF) live with chronic pain. Many use prescription opioids to help reduce this pain. In 2021, researchers developed...reactions2comments
How to Talk to Kids About IllnessCreating a good relationship with our nieces and nephews has been so important to me and my husband. One of the ways we have helped to foster that healthy relationship...reactionscomments
The Many Colors of Cystic Fibrosis: Red (Part 2)Have you read my most recent post, “The Many Colors of Cystic Fibrosis: Red (Part 1)?” If not, just know that I am a huge fan of “Joseph and the...reactionscomments
Nutritional Status and CF-Related DiabetesCystic fibrosis-related diabetes (CFRD) is a unique form of diabetes among people with cystic fibrosis (CF). It is relatively common and can affect both adults and children. In our 2020...reactions1comment
A Day in a CF Patient's Life: Clinic VisitMy daughter, Margo, recently had her quarterly CF clinic appointment, so I am going to take you through our typical routine. One thing I’ve found in talking with other CF...reactionscomments
Slow Trikafta Coverage Expands in CanadaTRIKAFTA® (elexacaftor/tezacaftor/ivacaftor and ivacaftor), Vertex’s newest CFTR modulator, has been available in the U.S. for those 6 and up with one F508del mutation for some time now. This astounding medication...reactionscomments
Person Before Patient Survey Results: Getting to Know Our Community MembersThe nature of cystic fibrosis (CF) can mean frequent hospital visits and medical care. Many people report that living with CF sometimes feels like you are a patient first and...reactionscomments
The Many Colors of Cystic Fibrosis: Red (Part 1)If you haven’t read my previous article, “The Many Colors of Cystic Fibrosis: Blue,” you need to know that I am a huge theater nerd. Joseph and the Technicolor Dreamcoat...reactionscomments
Mom with CF: Worries of the WorldThe world has been heavy lately, if you haven’t noticed. Civil and governmental arrest in the Middle East, natural disasters peppering the globe in destruction, and the ever on-going debate...reactions2comments
Caregiver Awareness Month Giveaway (Now Closed)This giveaway is now closed. Thank you for your interest! When you are a caregiver for a loved one with cystic fibrosis (CF), you have an immeasurable impact on their...reactionscomments
Community Views: The Unspoken Emotional Impact of Cystic FibrosisLiving with cystic fibrosis (CF) is challenging in so many ways. When we talk about CF, we tend to talk about the ongoing doctor visits or the physical aspects of...reactionscomments
Should I Go For It? Marrying Someone with CF (Part 2)Read Part 1 of Andrew's story: "Should I Go For It? Dating Someone with CF" Has it really been 6 years? Wow, time sure has flown by, and what a...reactionscomments
Better SleepGetting better sleep is something that most people want. Whether it is better quality or more sleep, it is common to know someone who struggles falling asleep and staying asleep...reactionscomments
What Is One Life Lesson CF Has Taught You?Cystic fibrosis (CF) is a chronic, life-long condition with several ups and downs. Between the initial diagnosis, hospital stays, managing difficult symptoms, daily treatments, and the emotional strain of CF...reactionscomments
All About Fat-Soluble Vitamins In CFVitamins are so widely used that more than half of adults in America head to their medicine cabinet daily to take them or other dietary supplements. I know this is...reactionscomments
How Do Drugs Get Their Names?Most drugs on the market have 2 names. They have a brand name (like Tylenol), and a generic name (like acetaminophen). Unlike brand names, generic names are used to describe...reactions1comment
The Best Response It is always interesting to me how people react when they learn my daughter has cystic fibrosis. After more than 4 years, I still can’t gauge what kind of response...reactionscomments
What is Medical PTSD?Post-traumatic stress disorder, or PTSD, is anxiety in the aftermath of a traumatic event. You may think of it happening to a soldier returning from war or a victim of...reactions1comment
CF Diagnosis: Then and NowWhen our son was diagnosed 13 years ago, cystic fibrosis was not a disease that my husband and I were familiar with. In all honesty, I had heard it a...reactionscomments
