Self-CareHave you ever heard of the term “self-care”? I have heard a lot about self-care recently, especially during the pandemic. During the...reactionscomments
CF Coloring Book Giveaway Terms and ConditionsOfficial Rules, Terms and Conditions for the CF Coloring Book Giveaway NO PURCHASE NECESSARY TO ENTER OR WIN. A PURCHASE DOES NOT...reactionscomments
Stories from Our CF Community: InfertilityLiving with cystic fibrosis (CF) includes many challenges, including infertility. Infertility affects about 98 percent of men with CF, and women with...reactionscomments
Ask The Advocates: Importance Of Research and AdvocacyThe definition of advocacy is to support another by giving them a voice. This, I think, rings so true when being part...reactionscomments
CF and Sex 101: Reproduction and Sexual FunctionSex is a normal, fun, and important part of our lives as humans. Whether you have CF or not, you have the...reactionscomments
Opioids for Cystic Fibrosis Pain: Benefits, Risks, and ConcernsResearch shows that more than 75 percent of adults with cystic fibrosis (CF) live with chronic pain. Many use prescription opioids to...reactions2comments
How to Talk to Kids About IllnessCreating a good relationship with our nieces and nephews has been so important to me and my husband. One of the ways...reactionscomments
The Many Colors of Cystic Fibrosis: Red (Part 2)Have you read my most recent post, “The Many Colors of Cystic Fibrosis: Red (Part 1)?” If not, just know that I...reactionscomments
Nutritional Status and CF-Related DiabetesCystic fibrosis-related diabetes (CFRD) is a unique form of diabetes among people with cystic fibrosis (CF). It is relatively common and can...reactions1comment
A Day in a CF Patient's Life: Clinic VisitMy daughter, Margo, recently had her quarterly CF clinic appointment, so I am going to take you through our typical routine. One...reactionscomments
Slow Trikafta Coverage Expands in CanadaTRIKAFTA® (elexacaftor/tezacaftor/ivacaftor and ivacaftor), Vertex’s newest CFTR modulator, has been available in the U.S. for those 6 and up with one F508del...reactionscomments
Person Before Patient Survey Results: Getting to Know Our Community MembersThe nature of cystic fibrosis (CF) can mean frequent hospital visits and medical care. Many people report that living with CF sometimes...reactionscomments
The Many Colors of Cystic Fibrosis: Red (Part 1)If you haven’t read my previous article, “The Many Colors of Cystic Fibrosis: Blue,” you need to know that I am a...reactionscomments
Mom with CF: Worries of the WorldThe world has been heavy lately, if you haven’t noticed. Civil and governmental arrest in the Middle East, natural disasters peppering the...reactions3comments
Caregiver Awareness Month Giveaway (Now Closed)This giveaway is now closed. Thank you for your interest! When you are a caregiver for a loved one with cystic fibrosis...reactionscomments
Community Views: The Unspoken Emotional Impact of Cystic FibrosisLiving with cystic fibrosis (CF) is challenging in so many ways. When we talk about CF, we tend to talk about the...reactionscomments
Should I Go For It? Marrying Someone with CF (Part 2)Read Part 1 of Andrew's story: "Should I Go For It? Dating Someone with CF" Has it really been 6 years? Wow...reactionscomments
Better SleepGetting better sleep is something that most people want. Whether it is better quality or more sleep, it is common to know...reactionscomments
What Is One Life Lesson CF Has Taught You?Cystic fibrosis (CF) is a chronic, life-long condition with several ups and downs. Between the initial diagnosis, hospital stays, managing difficult symptoms...reactionscomments
All About Fat-Soluble Vitamins In CFVitamins are so widely used that more than half of adults in America head to their medicine cabinet daily to take them...reactionscomments
