Slow Trikafta Coverage Expands in CanadaTRIKAFTA® (elexacaftor/tezacaftor/ivacaftor and ivacaftor), Vertex’s newest CFTR modulator, has been available in the U.S. for those 6 and up with one F508del mutation for some time now. This astounding medication...Reactions0reactionsComments0 comments
Person Before Patient Survey Results: Getting to Know Our Community MembersThe nature of cystic fibrosis (CF) can mean frequent hospital visits and medical care. Many people report that living with CF sometimes feels like you are a patient first and...Reactions0reactionsComments0 comments
The Many Colors of Cystic Fibrosis: Red (Part 1)If you haven’t read my previous article, “The Many Colors of Cystic Fibrosis: Blue,” you need to know that I am a huge theater nerd. Joseph and the Technicolor Dreamcoat...Reactions0reactionsComments0 comments
Mom with CF: Worries of the WorldThe world has been heavy lately, if you haven’t noticed. Civil and governmental arrest in the Middle East, natural disasters peppering the globe in destruction, and the ever on-going debate...Reactions0reactionsComments0 comments
Caregiver Awareness Month Giveaway (Now Closed)This giveaway is now closed. Thank you for your interest! When you are a caregiver for a loved one with cystic fibrosis (CF), you have an immeasurable impact on their...Reactions0reactionsComments0 comments
Community Views: The Unspoken Emotional Impact of Cystic FibrosisLiving with cystic fibrosis (CF) is challenging in so many ways. When we talk about CF, we tend to talk about the ongoing doctor visits or the physical aspects of...Reactions0reactionsComments0 comments
Should I Go For It? Marrying Someone with CF (Part 2)Read Part 1 of Andrew's story: "Should I Go For It? Dating Someone with CF" Has it really been 6 years? Wow, time sure has flown by, and what a...Reactions0reactionsComments0 comments
Better SleepGetting better sleep is something that most people want. Whether it is better quality or more sleep, it is common to know someone who struggles falling asleep and staying asleep...Reactions0reactionsComments0 comments
What Is One Life Lesson CF Has Taught You?Cystic fibrosis (CF) is a chronic, life-long condition with several ups and downs. Between the initial diagnosis, hospital stays, managing difficult symptoms, daily treatments, and the emotional strain of CF...Reactions0reactionsComments0 comments
All About Fat-Soluble Vitamins In CFVitamins are so widely used that more than half of adults in America head to their medicine cabinet daily to take them or other dietary supplements. I know this is...Reactions0reactionsComments0 comments
How Do Drugs Get Their Names?Most drugs on the market have 2 names. They have a brand name (like Tylenol), and a generic name (like acetaminophen). Unlike brand names, generic names are used to describe...Reactions0reactionsComments1 comments
The Best Response It is always interesting to me how people react when they learn my daughter has cystic fibrosis. After more than 4 years, I still can’t gauge what kind of response...Reactions0reactionsComments0 comments
What is Medical PTSD?Post-traumatic stress disorder, or PTSD, is anxiety in the aftermath of a traumatic event. You may think of it happening to a soldier returning from war or a victim of...Reactions0reactionsComments1 comments
CF Diagnosis: Then and NowWhen our son was diagnosed 13 years ago, cystic fibrosis was not a disease that my husband and I were familiar with. In all honesty, I had heard it a...Reactions0reactionsComments0 comments
Unique Challenges of Second Trimester CF PregnancyThe second trimester of pregnancy is often thought of as the golden period for many moms-to-be. After a rough few months of morning sickness, food aversions, and fatigue that is...Reactions0reactionsComments0 comments
Be Involved in Your CF CareHaving cystic fibrosis has taught me the invaluable lesson: Learning to value myself when it comes to my own health. I believe it is easy to get lost in the...Reactions0reactionsComments0 comments
My Experience: COVID Vaccine BoosterWhat can truly be said about needing a third vaccine? In my view, it is scary to be in a world where a different COVID variant can cause damage, because...Reactions0reactionsComments0 comments
Depression and Anxiety in People Living With Cystic FibrosisLiving with cystic fibrosis (CF) can bring many challenges. While the physical symptoms of CF are often discussed, the toll that the condition takes on mental health is just as...Reactions0reactionsComments0 comments
Association Between Heartburn and Cystic FibrosisWe are all guilty of occasionally consuming too much of the "wrong food" -- spicy food, anyone? -- and ending up with indigestion and heartburn. The medical term for consistent...Reactions0reactionsComments0 comments
Join the Cystic-Fibrosis.com Advocate TeamWould you like to share your experience with CF and help others who are also living or caring for someone with the condition? We’re looking to add new voices to...Reactions0reactionsComments0 comments