Emotional Support AnimalI have often seen service animals and I’m sure you have too. For example, you may see them in the mall or at a park or the store. They wear... By Katelyn Harlow3 min readBookmark for laterReactions 0 reactions Comments2 comments
It's Ok to ForgetOur Monday was just like any other day. My husband and I woke up and ate breakfast. I had some work to do so I sat in our office, half... By Misty Roussa3 min readBookmark for laterReactions 0 reactions Comments0 comments
Know Your MucusIf there is one thing us patients with cystic fibrosis have in common, it's mucus! While it is a gross topic and something not a lot of people really talk... By Marieliz Landa2 min readBookmark for laterReactions 0 reactions Comments0 comments
Precautions for Going Back to School this FallSchool is starting soon (too soon!!) and despite most state's Covid numbers, students in many areas will not have the option of going virtual this year. To lessen the likelihood... By Misty Roussa2 min readBookmark for laterReactions 0 reactions Comments0 comments
Wide Awake: How CF Affects Sleep Sleep disturbances are extremely common in the general population, and can vary in their level of effect on quality of life. Insomnia, or troubles sleeping, is common in our general... By Canadian Pharmacist2 min readBookmark for laterReactions 0 reactions Comments0 comments
How to Grow in Your AdvocacyMany of us in the CF community are well connected on social media and often share our personal experiences battling our illness to bring awareness to CF, facilitate discussion around... By Ella Balasa1 min readBookmark for laterReactions 0 reactions Comments1 comments
First-Time School Germs Give Me AnxietyIt’s the nightmare all moms talk about after starting school or daycare for the first time: how frequently their children and/or other family become sick after being exposed to an... By Janeil Whitworth3 min readBookmark for laterReactions 0 reactions Comments0 comments
CF Changes You from the Inside OutThere is one conversation that repeats in the CF community that always makes me stop and think about my life and those around me who also fight the same disease... By Janeil Whitworth3 min readBookmark for laterReactions 0 reactions Comments0 comments
Cystic Fibrosis and PneumothoraxPneumothorax is also known as a collapsed lung. It is caused by damage to the lung which then releases air into the chest cavity. For those living with cystic fibrosis... By Editorial Team 2 min readBookmark for laterReactions 0 reactions Comments0 comments
The Constant Spiral of Caretaker GuiltOne feeling I was not prepared for when I became a CF caregiver was guilt. Few things can send me spiraling quicker than a perceived sense of guilt for something... By Meagan Brackeen3 min readBookmark for laterReactions 0 reactions Comments1 comments
Morning TreatmentsGrowing up, treatments were never my favorite time of the day. Especially morning treatments. While I looked forward to the relief that my morning dose of medication gave me, I... By Katelyn Harlow3 min readBookmark for laterReactions 0 reactions Comments0 comments
Transferring PharmaciesMoving can be a stressful. Coordinating leases, installations, and packing your life into boxes can feel like a lot. If you have a chronic illness, you also need to make... By Katelyn Harlow3 min readBookmark for laterReactions 0 reactions Comments0 comments
Take the Managing Treatment and Medication SurveyThe Managing Treatment and Medication Survey is now closed. Thank you for your interest! Treatment is a big part of managing a chronic (long-term) health condition like cystic fibrosis (CF)... By Editorial Team 1 min readBookmark for laterReactions 0 reactions Comments0 comments
HidingOne of the difficult parts of having this disease is pretending that you are okay when you are not. I believe at this point in my life I have become... By Marieliz Landa2 min readBookmark for laterReactions 0 reactions Comments2 comments
Why Are Fat-Soluble Vitamins Important in CF?Vitamins A, D,E, and K, or fat-soluble vitamins, play an important role in making sure people with CF are growing and healthy. From helping the body fight off dangerous bacteria... By Janeil Whitworth2 min readBookmark for laterReactions 0 reactions Comments0 comments
Are Your Friends and Family Supportive of Your CF?It is no secret that living with cystic fibrosis (CF) can be time-consuming, frustrating, or even flat-out difficult. Due to the day-to-day challenges of living with a chronic condition like... By Editorial Team 7 min readBookmark for laterReactions 0 reactions Comments0 comments
Mediterranean PizzaThis is a favorite pizza of my spouse, Cheriz! She loves the fact that it is high in fat grams, which goes great with her CF Modulator Trikafta (She needs... By Andrew LoebachBookmark for laterReactions 0 reactions Comments0 comments
Migraines and CF: Are They Related?Migraines an extremely common condition; In fact, migraine is considered the third most common condition in the world. 12-15% of the population is affected by migraines. The link between cystic... By Canadian Pharmacist2 min readBookmark for laterReactions 0 reactions Comments0 comments
The Many Colors of Cystic Fibrosis: BlueJoseph and the Technicolor Dream coat is one of my favorite shows. I see it every Christmas. One of my favorite songs, “Joseph Coat”, describes all of the colors on... By Nicole Kohr2 min readBookmark for laterReactions 0 reactions Comments0 comments
How Can a Lung Transplant Affect Cystic Fibrosis Life Expectancy?Cystic fibrosis is a genetic disease that affects the lungs, pancreas, and other vital organs. The life expectancy of someone with CF is 40 years. The disease impacts many parts... By Editorial Team 3 min readBookmark for laterReactions 0 reactions Comments2 comments