Articles

One of the most frightening things for me to do was travel, because I was always so scared to do anything. I always put my CF as an excuse to...

While many people have heard of cystic fibrosis (CF) and may even know a little about the condition, very few fully understand what life with CF entails. Even the friends...

Like with all things regarding parenting, some choices are easier to make than others. Whether it be what school to send your child to or what pediatrician they will see...

Andrew Loebach and Cheriz Kunkel discuss how they met and how cystic fibrosis played a role in their relationship while dating. This is part one from Cheriz’s perspective as someone...

Watch Part 1 Andrew Loebach and Cheriz Kunkel share their experience on dating and how CF comes into play with their relationship. This is part 2 from Andrew’s perspective on...

Our lives are a little crazy at the moment as I try to balance my CF, caring for our preschool son, and a new baby on the way! (Not to...

I have often seen service animals and I’m sure you have too. For example, you may see them in the mall or at a park or the store. They wear...

Our Monday was just like any other day. My husband and I woke up and ate breakfast. I had some work to do so I sat in our office, half...

If there is one thing us patients with cystic fibrosis have in common, it's mucus! While it is a gross topic and something not a lot of people really talk...

School is starting soon (too soon!!) and despite most state's Covid numbers, students in many areas will not have the option of going virtual this year. To lessen the likelihood...

Sleep disturbances are extremely common in the general population, and can vary in their level of effect on quality of life. Insomnia, or troubles sleeping, is common in our general...

Many of us in the CF community are well connected on social media and often share our personal experiences battling our illness to bring awareness to CF, facilitate discussion around...

It’s the nightmare all moms talk about after starting school or daycare for the first time: how frequently their children and/or other family become sick after being exposed to an...

There is one conversation that repeats in the CF community that always makes me stop and think about my life and those around me who also fight the same disease...

Pneumothorax is also known as a collapsed lung. It is caused by damage to the lung which then releases air into the chest cavity. For those living with cystic fibrosis...

One feeling I was not prepared for when I became a CF caregiver was guilt. Few things can send me spiraling quicker than a perceived sense of guilt for something...

Growing up, treatments were never my favorite time of the day. Especially morning treatments. While I looked forward to the relief that my morning dose of medication gave me, I...

Moving can be a stressful. Coordinating leases, installations, and packing your life into boxes can feel like a lot. If you have a chronic illness, you also need to make...

The Managing Treatment and Medication Survey is now closed. Thank you for your interest! Treatment is a big part of managing a chronic (long-term) health condition like cystic fibrosis (CF)...

One of the difficult parts of having this disease is pretending that you are okay when you are not. I believe at this point in my life I have become...